2024-08-16T16:10:58-05:00 2023-09-30 910189318 MOSS ADAMS LLP 3121 W MARCH LN STE 200 STOCKTON CA 952192367 990 2022-10-01 474011296 THE MYALGIC ENCEPHALOMYELITIS ACTION NETWORK MYAL 6263547833 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 OMAR WASOW TREASURER 6263547833 2024-08-15 1 0 TRACY S PAGLIA P00366884 2099556100 2024-08-15 2022 2024-08-08 14:25:15Z BETH MAZUR 1217 WILSHIRE BOULEVARD 3639 SANTA MONICA CA 90403 859633 0 X WWW.MEACTION.NET X 2014 NJ TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 10 10 8 100 0 0 709854 839488 0 0 0 0 -267 20145 709587 859633 250 750 0 0 472287 502475 0 0 94604 180554 221313 653091 724538 56496 135095 43019 168906 40737 30029 2282 138877 TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH M.E. WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE. 0 0 221154 0 0 RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME. 143354 0 0 DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE. 133828 750 0 #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION. 498336 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 13 0 1 8 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 10 0 0 0 0 0 0 0 1 1 0 1 1 0 1 1 1 1 1 0 0 0 AL AK CA CO GA KY ME MO NJ NV NH NM NC OH OK OR SC UT VA WA DC X ROBIN RHINE 6263547833 1217 WILSHIRE BOULEVARD SUITE 3639 SANTA MONICA CA 90403 LAURIE JONES EXECUTIVE DIRECTOR 40.00 X 75000 0 0 JILL HINSON CO-CHAIR 8.00 X X 0 0 0 BETH MAZUR CO-CHAIR 5.00 X X 0 0 0 JUDY GAYER SECRETARY 6.00 X X 0 0 0 MICHELLE PINEDO TREASURER 1.00 X X 0 0 0 SHAQUILE COONCE DIRECTOR 1.00 X 0 0 0 JD DAVIDS DIRECTOR (THRU 10/22) 1.00 X 0 0 0 JENNIFER ENGLAND DIRECTOR 1.00 X 0 0 0 KEHSI IMAN WILSON DIRECTOR (AS OF 07/23) 1.00 X 0 0 0 RYAN PRIOR DIRECTOR 1.00 X 0 0 0 NIRANJAN SHEKAR DIRECTOR (AS OF 07/23) 1.00 X 0 0 0 ROBERT SKLANS DIRECTOR 1.00 X 0 0 0 75000 0 0 0 0 0 0 0 839488 839488 EXPENSE REIMBURSEMENT 900099 15000 15000 MISCELLANEOUS INCOME 900099 5783 5783 EXCHANGE LOSS 900099 -638 -638 20145 859633 0 0 20145 X 750 750 90624 65241 10627 14756 355250 255746 41659 57845 16480 11864 1933 2683 40121 28883 4705 6533 1890 1890 8273 8273 25820 25820 76652 63131 13521 9724 7353 2084 287 61427 53413 3372 4642 19643 10334 2570 6739 4852 1621 3231 BUSINESS REGISTRATION F 8867 8867 PLATFORM/TRANSACTION FE 1119 1119 3046 3046 724538 498336 131598 94604 42436 168906 583 0 43019 168906 39688 30029 1049 0 40737 30029 X 2282 138877 2282 138877 43019 168906 135095 1500 0 X X 0 0 0 X 252180 660581 511765 709854 839488 2973868 252180 660581 511765 709854 839488 2973868 568899 2404969 1 16 17 3616 493 4109 20145 20145 2998139 0.80220 0.73010 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS INCOME SCH A, PART II, COLUMNS (A) - (E): THE MEACTION NETWORK FILED A SHORT YEAR TAX RETURN TO TRANSITION FROM A CALENDAR YEAR TO A FISCAL YEAR END AS OF SEPTEMBER 30, 2019 FOR THE 2018 FORM 990 (COLUMN A). SCHEDULE A, PART II, COLUMN (E) INCLUDES ACTIVITY FOR THE FISCAL YEAR OCTOBER 1, 2022 - SEPTEMBER 30, 2023. SCHEDULE A, PART II, COLUMN (D) INCLUDES ACTIVITY FOR THE FISCAL YEAR OCTOBER 1, 2021 - SEPTEMBER 30, 2022. SCHEDULE A, PART II, COLUMN (C) INCLUDES ACTIVITY FOR THE FISCAL YEAR OCTOBER 1, 2020 - SEPTEMBER 30, 2021. SCHEDULE A, PART II, COLUMN (B) INCLUDES ACTIVITY FOR THE FISCAL YEAR OCTOBER 1, 2019 - SEPTEMBER 30, 2020. SCHEDULE A, PART II, COLUMN (A) INCLUDES ACTIVITY FOR THE NINE MONTH PERIOD JANUARY 1, 2019 - SEPTEMBER 30, 2019. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WILL BE REVIEWED BY MANAGEMENT AND A COMMITTEE OF THE BOARD OF DIRECTORS PRIOR TO FILING WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C THE #ME ACTION CONFLICT OF INTEREST POLICY COVERS STAFF MEMBERS AND BOARD MEMBERS. EACH COVERED PERSON IS GIVEN A COPY OF THE CONFLICT OF INTEREST POLICY AT THE TIME THEY BECOME AFFILIATED WITH THE ORGANIZATION AND MUST AGREE IN WRITING TO ABIDE BY IT. COVERED PERSONS ARE REQUIRED TO DISCLOSE TO THE CHAIR OF THE BOARD OR FULL BOARD OF DIRECTORS IF A POTENTIAL CONFLICT EXISTS. THE REMAINING BOARD MEMBERS WILL DETERMINE WHETHER AN ACTUAL CONFLICT OF INTEREST EXISTS. THE COVERED PERSON THAT DISCLOSED THE RELATIONSHIP WILL NOT PARTICIPATE IN OR BE PRESENT DURING THE DISCUSSION OR VOTE. ALL PROCEEDINGS ARE DOCUMENTED IN THE MEETING MINUTES. FORM 990, PART VI, SECTION C, LINE 19 #MEACTION DOES NOT CURRENTLY MAKE ITS GOVERNING DOCUMENTS OR CONFLICT OF INTEREST POLICY AVAILABLE TO THE PUBLIC. FINANCIAL STATEMENTS ARE MADE AVAILABLE ON THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING FEES: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 4,238. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 4,238. OTHER OUTSIDE SERVICES: PROGRAM SERVICE EXPENSES 28,636. MANAGEMENT AND GENERAL EXPENSES 9,283. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 37,919. EVENT PRODUCTION: PROGRAM SERVICE EXPENSES 34,495. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 34,495. FORM 990, PART XII, LINE 2C: THE ORGANIZATION DID NOT CHANGE ITS SELECTION OR OVERSIGHT PROCESS IN THE CURRENT YEAR.