2024-05-15T21:35:20-04:00 2023-12-31 990 2023-01-01 932255729 PKU HOPE FOUNDATION % JILL ELKINS PKUH 9134614384 40817 GREYHOUSE PL LEESBURG VA 201754854 JILL ELKINS EXECUTIVE DIRECTOR 2024-05-15 false JILL ELKINS XXX-XX-XXXX 2023 2023-04-26 12:10:37Z X JILL ELKINS 40817 GREYHOUSE PL LEESBURG VA 201754854 817773 false X X 2023 VA The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet. 3 1 0 5 0 0 817773 0 0 0 817773 42930 0 0 0 42830 48429 91359 726414 807344 80930 726414 The mission of the PKU Hope Foundation is to improve the quality of life for those with PKU by fostering community influencing and supporting research treatment therapies and easing the burden of managing the diet. false false 42930 42930 0 FOSTERING COMMUNITY FOR A RARE DISEASE PROVIDES A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES FACING SIMILAR CHALLENGES FACILITIES INFORMATION SHARING AND RESOURCES RAISES AWARENESS ABOUT THE DISEASE PROMOTES ADVOCACY FOR RESEARCH AND FUNDING AND COMBATS FEELINGS OF ISOLATION OFTEN EXPERIENCED BY THOSE AFFECTED. ULTIMATELY IT HELPS EMPOWER INDIVIDUALS TO NAVIGATE THEIR JOURNEY WITH THE DISEASE MORE EFFECTIVELY. 0 0 0 INFLUENCING AND SUPPORTING RESEARCH TREATMENT THERAPIES FOR THE RARE DISEASE COMMUNITY IS CRUCIAL TO HELP ACCELERATE THE DEVELOPMENT OF EFFECTIVE TREATMENTS AND THERAPIES TAILORED TO THE SPECIFIC NEEDS OF INDIVIDUALS WITH PKU. BY ADVOCATING FOR RESEARCH THE COMMUNITY CAN ATTRACT FUNDING INCREASE AWARENESS AMONG RESEARCHERS AND HEALTHCARE PROFESSIONALS AND FOSTER COLLABORATION BETWEEN STAKEHOLDERS. ADDITIONALLY IT OFFERS HOPE TO PATIENTS AND THEIR FAMILIES BY PROVIDING ACCESS TO POTENTIALLY LIFE-IMPROVING INTERVENTIONS. OVERALL ADVANCING RESEARCH AND TREATMENT OPTIONS IMPROVES THE QUALITY OF LIFE AND PROGNOSIS FOR THOSE LIVING WITH RARE DISEASES. 0 0 0 EASING THE BURDEN OF MANAGING THE RESTRICTIVE PHENYLKETONURIA DIET IS ESSENTIAL TO IMPROVE THE QUALITY OF LIFE FOR INDIVIDUALS AFFECTED BY THIS CONDITION. IT INVOLVES PROVIDING SUPPORT RESOURCES AND EDUCATION TO HELP PATIENTS AND THEIR FAMILIES NAVIGATE THE COMPLEXITIES OF THE DIET EFFECTIVELY. BY EASING THE BURDEN OF THE PKU DIET INDIVIDUALS CAN BETTER MAINTAIN THEIR HEALTH PREVENT COMPLICATIONS AND IRREVERSIBLE BRAIN DAMAGE AND LIVE MORE FULFILLING LIVES. 42930 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false false true 0 0 0 false false false false false false false false X 3 1 true false false false false false false true true false false true true true true false false false false false VA X JILL ELKINS 9134614384 40817 GREYHOUSE PL LEESBURG VA 201754854 X JILL ELKINS EXEC DIRECTOR BOARD VP TREASURER 35.00 0.00 X X 0 0 0 JERRY ELKINS BOARD PRESIDENT 3.00 0.00 X 0 0 0 SUSAN ANDERSON BOARD SECRETARY 1.00 0.00 X 0 0 0 0 0 0 0 false false false 800000 0 0 0 0 17773 0 817773 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 817773 0 0 0 42930 42930 0 0 0 0 0 0 0 0 48429 0 5599 42830 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 91359 42930 5599 42830 0 807344 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 807344 0 38000 0 42930 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 80930 X 0 0 0 0 0 726414 0 726414 0 807344 726414 0 0 0 0 0 X false false false X 0 0 0 0 817773 817773 0 0 0 0 817773 817773 783645 34128 817773 0 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true FLOK HEALTH PO BOX 43552 MONTCLAIR NJ 07043 943098601 501(c)(3) 42930 0 FOSTER COMMUNITY INFLUENCE AND SUPPORT RESEARCH TREATMENT THERAPIES 1 0 Part I Line 2 FUNDRAISING MATCH FOR HEALTH ORGANIZATION REVIEWED BY EXECUTIVE DIRECTOR AND BOARD PRESIDENT Part VI, Line 2 | Employee:, Relationship:, Employee:| JILL ELKINS, Family Relationship, JERRY ELKINS| Part VI, Section B, Line 11b THE FORM 990 IS REVIEWED BY THE TREASURER AND EXECUTIVE DIRECTOR AND A COPY IS PROVIDED TO THE FULL BOARD PRIOR TO FILING. Part VI, Section B, Line 12c EXECUTIVE DIRECTOR AND BOARD MEMBERS REVIEW AND SIGN THE CONFLICT OF INTEREST STATEMENT Part VI, Section C, Line 19 No documents available to the public