2024-05-14T17:01:29-07:00 2023-12-31 942590179 Krisch & Company 3478 Buskirk Ave Ste 215 Pleasant Hill CA 94523 990 2023-01-01 680182998 HEMOPHILIA COUNCIL OF CALIFORNIA HEMO 9165727771 717 K STREET 501 SACRAMENTO CA 95814 LYNNE KINST Executive Director 2024-05-14 true LYNNE KINST 999009999 true ROBERT EVERAL SUMMERS CPA P02379258 9259300902 3 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z LAUREN HAY 717 K STREET 501 SACRAMENTO CA 95814 333152 false X http://www.hemophiliaca.org/ X 1989 CA THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS. 13 13 2 30 0 8879 320099 238735 7500 8740 5553 0 256354 333152 0 0 160231 169065 0 7243 188438 199545 348669 368610 -92315 -35458 336465 378124 53627 107093 282838 271031 X THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS. false false 176912 88000 EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT. 90454 67640 ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT.IN ADDITION TO SERVING THE HCC BOARD, THE VOLUNTEER BOARD OF DIRECTORS ALSO SERVE THE HEMOPHILIA COMMUNITY IN VARIOUS CAPACITIES. SOME OF THESE INCLUDE EDUCATION, ADVOCACY, PHARMACEUTICAL INSIGHT, RELATIONAL DEVELOPMENT, AND FUTURE BUILDING. 28592 73500 HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE. 33597 89500 329555 true true false true false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 3 0 true 2 true false false false false false false false 0 false false false false false false false X 13 13 false false false false false false false true true false false true true true true true true true false false CA X X X LYNNE KINST 9165727771 717 K STREET STE 501 SACRAMENTO CA 95814 LYNNE KINST Executive Dir. 40.00 0.00 X 93079 0 0 STEPHANIE DANSKER Secretary 5.00 0.00 X X 0 0 0 CINDY GUZMAN BOARD MEMBER 2.00 0.00 X 0 0 0 RYAN FADEN BOARD MEMBER 5.00 0.00 X 0 0 0 AMAL ESTRADA BOARD MEMBER 2.00 0.00 X 0 0 0 RICHARD UNO BOARD MEMBER 2.00 0.00 X 0 0 0 MOSI WILLIAMS BOARD MEMBER 2.00 0.00 X 0 0 0 ELAINE MACASIRAY BOARD MEMBER 2.00 0.00 X 0 0 0 TONY CARVALHO BOARD MEMBER 2.00 0.00 X 0 0 0 BRENT MASCORRO BOARD MEMBER 2.00 0.00 X 0 0 0 SHELLYE HOROWITZ BOARD MEMBER 2.00 0.00 X 0 0 0 LAUREN HAY President 5.00 0.00 X X 0 0 0 RIGO MANZO Vice President 2.00 0.00 X X 0 0 0 OSCAR HORTA Treasurer 2.00 0.00 X X 0 0 0 93079 0 false false false 0 320099 320099 NEWSLETTER 900099 7500 7500 7500 5553 5553 0 0 0 0 0 0 0 0 333152 7500 5553 X 0 0 0 0 93078 79117 9308 4653 0 49377 42986 5905 486 0 15474 12534 2476 464 11136 9020 1782 334 0 0 7388 6021 1182 185 0 0 0 113468 104917 7897 654 0 0 0 0 4030 3284 645 101 31823 31497 282 44 0 0 0 0 261 261 3905 3183 624 98 MEETINGS 16922 16908 12 2 DUES AND SUBSCRIPTIONS 6981 6324 569 88 EDUCATIONAL MATERIALS 4384 4254 112 18 COMMUNICATIONS 2934 2459 411 64 7449 7051 346 52 368610 329555 31812 7243 51233 87662 283691 289181 0 0 0 0 0 0 514 516 2470 1705 1026 765 0 0 0 0 1 0 336465 378124 1127 1093 52500 106000 53627 107093 X 282838 271031 282838 271031 336465 378124 -35458 23651 X false false false X 270050 194854 254304 247614 323550 1290372 0 0 270050 194854 254304 247614 323550 1290372 455266 835106 163 4339 129 8740 5553 18924 0 0 1309296 0.63780 0.65050 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false 24000 24000 364897 388897 77779 19445 false 43918 48703 69734 77779 240134 360201 24000 24000 25200 24000 97200 10980 12176 17434 19445 60035 90053 Part II-B, Line 1i - Other Activities Description HEMOPHILIA COUNCIL OF CALIFORNIA HAS A PAID LOBBYIST WHO MONITORS LEGISLATION ON ITS' BEHALF. WHEN NEEDED, SHE WILL LOBBY IN SUPPORT OF HEALTH CARE PRIORITIES OF THE ORGANIZATION. SHE ALSO REPRESENTS THE ORGANIZATION ON ISSUES WITH THE STATE DEPARTMENT OF HEALTH SERVICES, MEDI-CAL PROGRAM, CCS, GHPP, MRMIB & MRMIP PROGRAMS FOR THE UNDERINSURED. Part IV - Additional Information 2470 1705 765 765 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE. OTHER PROGRAM SERVICES 5: EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT. Form 990, Part VI, Section B, Line 11b THE EXECUTIVE DIRECTOR AND GOVERNING BODY ARE PROVIDED WITH PRELIMINARY COPY OF THE FORM 990 AND ALL SCHEDULES TO INCLUDE COMMENTS AND OVERVIEWS FROM THE CERTIFIED PUBLIC ACCOUNTANT. THE ACCOUNTANT SUBSEQUENTLY ADDRESSES ANY QUESTIONS OR CONCERNS THE BOARD MEMBERS HAVE REGARDING THIS DRAFT RETURN. THE BOARD APPROVES THE RETURN AND AUTHORIZES THE ACCOUNTANT TO FINALIZE THE RETURN. THE BOARD ALSO AUTHORIZES THE EXECUTIVE DIRECTOR TO SIGN THE RETURN. Form 990, Part VI, Section B, Line 12c THE ORGANIZATION HAS A CONFLICT OF INTEREST POLICY WHICH DEFINES THE CONFLICT OF INTEREST AND IDENTIFIES CLASSES OF INDIVIDUALS COVERED BY THE POLICY WHICH INCLUDE OFFICERS, DIRECTORS, AND THE EXECUTIVE DIRECTOR. THIS POLICY IS REVIEWED IN JANUARY OF EACH CALENDAR YEAR BY THE PERSONS COVERED BY THIS POLICY, ASKING THEM TO DISCLOSE OR UPDATE THEIR INTEREST THAT COULD GIVE RISE TO CONFLICTS OF INTEREST, SUCH AS A LIST OF FAMILY MEMBERS, SUBSTANTIAL BUSINESS OR INVESTMENT HOLDERS, AND OTHER TRANSACTIONS OR AFFILIATIONS WITH BUSINESSES, ORGANIZATIONS OR FAMILY MEMBERS. THE ORGANIZATION'S EXECUTIVE DIRECTOR MONITORS PROPOSED OR ONGOING TRANSACTIONS FOR ACTUAL OR POTENTIAL CONFLICTS AND DISCLOSES THEM TO THE PRESIDENT FOR APPROPRIATE ACTION. Form 990, Part VI, Section B, Line 15a THE COMPENSATION FOR THE EXECUTIVE DIRECTOR IS ESTABLISHED BY THE GOVERNANCE COMMITEE WHICH IS COMPRISED OF FOUR DIRECTORS WITHOUT CONFLICT OF INTEREST. THE GOVERNANCE COMMITTEE OBTAINS COMPARABLE COMPENSATION DATA FOR SIMILARLY QUALIFIED PERSONS AT SIMILAR SIZE ORGANIZATIONS. TO APPROVE THE COMPENSATION FOR THE EXECUTIVE DIRECTOR, THE GOVERNANCE COMMITEE DOCUMENTS HOW IT REACHED ITS DECISION, INCLUDE THE DATA ON WHICH IT RELIED,IN THE MINUTES OF THE MEETING DURING WHICH THE COMPENSATION WAS APPROVED. Form 990, Part VI, Section C, Line 19 PRIOR YEAR INFORMATION RETURNS (FORM 990) ARE AVAILABLE FOR PUBLIC INSPECTION ON THE GUIDESTAR WEBSITE LOCATED AT WWW.GUIDESTAR.ORG. THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES, FINANCIAL STATEMENTS AND INFORMATION RETURNS ARE AVAILABLE UPON REQUEST.