2024-05-14T10:22:30-04:00 2023-12-31 382954392 SHINDEL ROCK & ASSOCIATES PC 28100 CABOT DR STE 102 NOVI MI 48377 990 2023-01-01 770552005 KENNEDY'S DISEASE ASSOCIATION INC KENN 8555327762 P O BOX 1105 COARSEGOLD CA 93614 TERRY THOMPSON PRESIDENT 2488558833 2024-05-13 TERRY THOMPSON 999009999 false MARIA MONTIE P00051355 2488558833 2024-05-13 2023 2023-04-26 12:10:37Z TERRY THOMPSON 454537 false X WWW.KENNEDYSDISEASE.ORG X 2000 CA TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). 10 10 0 0 334295 441338 15749 0 -124 13199 0 349920 454537 154000 477753 0 0 0 0 41977 21396 195977 499149 153943 -44612 764527 761855 204000 245940 560527 515915 TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). false false 437350 437350 TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS. 40403 40403 TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY). 13674 13674 491427 true false false false false false false false false false false false false false false false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 0 false false false false false false false false X 10 10 true false true false false false false true true false false true true true true true true false false false CA CO MD NV NC SC WI X X MARGY YELTON 5133785201 427 S BROADWAY ST LEBANON OH 45036 X TERRY THOMPSON PRESIDENT 20.00 X X 0 0 0 JAMESON PARKER VICE PRESIDE 5.00 X X 0 0 0 DAVID YELTON JAN - NOV TREASURER 5.00 X X 0 0 0 SIMON HILL SECRETARY, D 2.00 X X 0 0 0 JOHN LAUBER DEC TREASURER 2.00 X X 0 0 0 RON MOFFET DIRECTOR 15.00 X 0 0 0 KATHY THOMPSON DIRECTOR,SEC 2.00 X X 0 0 0 STEVEN RITTMASTER DIRECTOR 2.00 X 0 0 0 DALE TRAXLER DIRECTOR 2.00 X 0 0 0 RANDY SOOHOO DIRECTOR 2.00 X 0 0 0 JOAN SORENSEN DIRECTOR 2.00 X 0 0 0 false false false 441338 441338 13199 13199 454537 13199 307403 307403 170350 170350 1864 1372 492 10730 10730 1572 1572 REGISTRATION FEES 3714 3714 BANK CHARGES & CC FEES 3216 3216 MEMBERSHIPS & DUES 300 300 499149 491427 7722 0 755615 309824 4514 452031 4398 764527 761855 40 204000 245900 204000 245940 X 560527 515915 560527 515915 764527 761855 -44612 X false false X 172788 195774 294128 324292 441338 1428320 172788 195774 294128 324292 441338 1428320 1428320 1428320 49023 1.00000 1.00000 X RESEARCH 69000 RESEARCH 91350 EDUCATION/AWARENESS 10000 false false false false false false true PENNSYLVANIA COLLEGE OF OSTEOPATHIC HEATHER MONTIE 4170 CITY AVE PHILADELPHIA PA 19131 100000 RESEARCH THOMAS JEFFERSON UNIVERSITY MASOUD SHEKARABI 4201 HENRY AVE PHILADELPHIA PA 19144 100000 RESEARCH BANBURY RESEARCH SBMA WORKSHOP 1 BUNGTOWN RD COLD SPRING HARBOR NY 11724 30403 EDUCATION/RESEARCH UNIVERSITY OF CALIFORNIA - IRVINE ANASTASIA GROMOVA 510 E PELTASON DR IRVINE CA 92697 77000 RESEARCH SCHEDULE I, PAGE 1, PART I, LINE 2 GRANTS PROPOSALS ARE SUBMITTED AND REVIEWED BY AN INDEPENDENT SCIENTIFIC REVIEW BOARD. THEIR RECOMMENDATIONS ARE CONSIDERED BY THE ORGANIZATION AND FINAL GRANTS ISSUED BY THE BOARD. THE RECIPIENT OF THE GRANT MUST ADHERE TO THE GRANT REQUIREMENTS, SUBMIT A FINAL ACOCUNTING AT THE END OF THE GRANT TERM, AND RETURN ANY EXCESS FUNDS TO THE ORGANIZATION. FORM 990, PAGE 6, PART VI, LINE 2 TERRY THOMPSON KATHY THOMPSON PRESIDENT SECRETARY HUSBAND AND WIFE FORM 990, PAGE 6, PART VI, LINE 4 ORGANIZATION ADDED CONFLICT OF INTEREST, DATA RETENTION, AND WHISTLE BLOWER POLICIES. FORM 990, PAGE 6, PART VI, LINE 11B A DRAFT FORM 990 IS CIRCULATED TO THE ORGANIZATION'S OFFICERS AND OTHER DIRECTORS FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C A CONFLICT OF INTEREST WILL EXIST WHEN THE INTERESTS OR CONCERNS OF A BOARD MEMBER, AN EMPLOYEE, INDEPENDENT CONTRACTOR, VOLUNTEER, OR ANY MEMBER OF HIS/HER IMMEDIATE FAMILY, PARTY, GROUP, OR ORGANIZATION IN WHICH THE PROFESSIONALS ARE ACTIVELY INVOLVED WITH, MAY HAVE, OR BE SEEN TO HAVE COMPETING INTERESTS WITH THE KENNEY'S DISEASE ASSOCIATION ("KDA"). A CONFLICT OF INTEREST MAY ARISE WHEN: 1. THERE IS AN EXISTING RELATIONSHIP WHICH COULD IMPAIR THE EXERCISE OF THE PERSONS INDEPENDENT JUDGEMENT ON BEHALF OF THE KDA, OR 2. THE PERSON OR FAMILY MEMBER RECEIVED A FINANCIAL BENEFIT DIRECTLY OR FROM INFORMATION LEARNED DURING A BUSINESS RELATIONSHIP WITH THE KDA. ALL PERSONS INVOLVED WITH THE KDA'S BUSINESS MATTERS NOT ONLY SHOULD AVOID THESE SITUATIONS BUT ALSO AVOID THOSE SITUATIONS WHICH CREATE THE APPEARANCE OF A CONFLICT OF INTEREST. TO AVOID THE FACT OR APPEARANCE OF SUCH CONFLICT, ALL PARTIES MUST MAKE FULL DISCLOSURES OF INDIVIDUAL INTERESTS THAT MAY APPEAR TO CONFLICT WITH INTERESTS OF THE KDA. BOARD MEMBERS WILL REVIEW ANY DISCLOSURES MADE. IF A TRUSTEE OR DIRECTOR IS INVOLVED WITH THIS CONFLICT OF INTEREST. THEY WILL NOT BE ABLE TO VOTE OR BE COUNTED AS PART OF THE QUORUM IN ANY DECISION ON THIS MATTER. AFTER DISCLOSURE OF THE FINANCIAL INTEREST AND ALL MATERIAL FACTS, AND AFTER ANY DISCUSSION WITH THE INTERESTED PERSON, THE INTERESTED PERSON SHALL LEAVE THE BOARD MEETING AND THE REMAINING BOARD WILL DECIDE IF A CONFLICT OF INTEREST EXISTS. FORM 990, PAGE 6, PART VI, LINE 19 ANNUAL REPORT IS EMAILED OUT TO SUBSCRIBERS AS PART OF ONE OF THE QUARTERLY NEWSLETTERS AND IT IS ALSO POSTED ON THE ORGANIZATION'S WEBSITE. ORGANIZATION'S ARTICLES OF INCORPORATION ARE ALSO POSTED ON THE WEBSITE. FURTHER, REQUESTS FOR INFORMATION CAN BE MADE THROUGH THE ORGANIZATION'S TOLL FREE NUMBER OR THE ORGANIZATION'S EMAIL ADDRESS, AND INFORMATION WILL BE PROVIDED THEREIN.