2024-04-23T08:33:54-05:00 2023-12-31 112442493 CRAIG FITZSIMMONS & MEYER LLP 20 MANOR ROAD SMITHTOWN NY 11787 990 2023-01-01 582404527 LYMPHATIC EDUCATION & RESEARCH NETWORK INC (LE&RN) LYMP 5166259675 154 West 14th Street 2nd Floor NEW YORK NY 10011 WILLIAM REPICCI PRESIDENT & CEO 5166259675 2024-04-23 1 WILLIAM REPICCI 999009999 0 Robert Craig P01239055 6313601400 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z WILLIAM REPICCI 154 West 14th Street 2nd Floor NEW YORK NY 10011 1482521 0 X http://lymphaticnetwork.org X 1998 NY THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASE AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS. 6 6 10 0 0 0 1346987 1391048 0 0 29306 48778 86240 36539 1462533 1476365 9000 17000 0 0 753979 907103 25666 0 147508 701500 812095 1490145 1736198 -27612 -259833 3910350 3828174 292175 357401 3618175 3470773 X THE ORGANIZATION'S MISSION IS TO FIGHT LYMPHATIC DISEASES AND LYMPHEDEMA THROUGH EDUCATION, RESEARCH AND ADVOCACY. THE ORGANIZATION SEEKS TO ACCELERATE THE PREVENTION, TREATMENT, AND CURE OF LYMPHATIC DISEASES WHILE BRINGING PATIENTS AND MEDICAL PROFESSIONALS TOGETHER TO ADDRESS THE UNMET NEEDS SURROUNDING LYMPHATIC DISORDERS. 0 0 1453045 17000 1427587 Some activities of the organization during 2023 included the following: LE&RN continued to expand programs to meet the goals of the expanded mission of fighting lymphatic disease through education, research, and advocacy. LE&RN continued the International Lymphatic Disease and Lymphedema Registry, a national patient registry, to stimulate research and support clinical trials and drug development. LE&RN continued the International Lymphatic Disease and Lymphedema Biorepository, providing biological materials to serve as a source for the clinical and laboratory study of lymphatic diseases, and began sharing data with worldwide databases. LE&RN continued its grant program that allows young investigators to attend a conference focused on lymphatic research. LE&RN continued its educational and awareness outreach programs targeting academia, government, industry, and the medical and patient communities. LE&RN continued its monthly virtual symposium series, which brings the world's foremost authorities in lymphatic disease and lymphedema to patients, their families, and professionals. LE&RN updated its website and provided daily social media posts and monthly newsletters featuring significant events in the field. LE&RN produced six issues of Lymphatic Research and Biology, an international, peer-reviewedbiomedical journal providing a forum for the exchange of cutting-edge scientific developments in lymphatic science and medicine. LE&RN secured ongoing support from the Congressional and National Institutes of Health for lymphatic research. LE&RN continued the LE&RN/LymphNotes Lymphedema Scholarship Program to provide tuition support to therapists seeking certification in lymphedema therapy LE&RN continued a web-based "Ask the Experts" feature that allows patients, their families, and professionals to ask the most prominent authorities in the field questions directly. LE&RN spokesperson and Academy Award Winner Kathy Bates appeared in print and television media to support research. LE&RN grew its Honorary Board, headed by Kathy Bates and including notable celebrities who support LE&RN's mission. LE&RN's Virtual Expo was expanded to better serve patients and therapists. LE&RN and NAVBO prepared a biennial Virtual Lymphatic Forum for researchers LE&RN developed new chapters in several states and countries. LE&RN continued to lead global events related to its having established World Lymphedema Day on March 6, 2016. LE&RN hosted a National Action Week supporting the creation of a National Commission on Lymphatic Diseases. LE&RN supported and grew its program, creating the first-ever Centers of Excellence in the Diagnosis & Treatment of Lymphatic Diseases. LE&RN, in collaboration with Stanford University, hosted the annual virtual State-of-the-Art Summit in Lymphatic Research & Medicine. LE&RN promoted its authored New York State bill that mandates hospital institutions to provide lymphedema materials to all at-risk patients. LE&RN promoted its PSA video featuring National Spokesperson Kathy Bates, hosted on the Centers for Disease Control and Prevention (CDC) cancer-related websites. LE&RN continued its cancer-related lymphedema campaign funded by a grant from the CDC Chronic Disease Awareness Grants program. Stavros Niarchos Foundation continued its LE&RN grant to fund its Centers of Excellence program. LE&RN succeeded in its efforts to have the Congressionally Directed Medical Research Program (CDMRP) include lymphedema and lymphatic diseases as categories in the Department of Defense's Peer Reviewed Medical Research Program (PRMRP). LE&RN succeeded in its efforts to have Congress request that the National Institutes of Health (NIH) establish a National Commission on Lymphatic Diseases. LE&RN established a global Patient Resource Center. LE&RN expanded and updated its Global Patient Registry. LE&RN created the CDC's first National Indicator Report on Cancer-Related lymphedema. LE&RN successfully advocated for a Program Manager in Lymphatics at the Advanced Research Agency for Health (ARPA-H) LE&RN created a "Gaps in Lymphatic Research" document in concert with the research community, distributed to NIH, CDC, ARPA-H, CDMRP, NNLBI, and NIAID. 1453045 1 1 0 1 0 0 0 0 0 0 1 1 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 0 1 1 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 12 0 10 1 0 0 0 0 0 0 0 0 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 0 0 AL AK CA CT DE FL GA IA ID IL IN KS LA MA MD MI MO MT NC NH AR NV NY OH OK OR PA SC TN VA VT WA WV WY AK WI WY CO DC HI KY ME MS NE NJ NM ND RI SD TX X X THE ORGANIZATION 5166259675 154 West 14th Street 2nd Floor NEW YORK NY 10011 JOSEPH DAYAN MD DIRECTOR 1.00 X 0 0 0 DORON ILAN MD DIRECTOR 1.00 X 0 0 0 DAVE MCDOWELL CHAIRPERSON 10.00 X X 0 0 0 RICK PETTY DIRECTOR 1.00 X 0 0 0 DEBBIE MILES TREASURER 1.00 X 0 0 0 MELISSA ALDRICH PHD SECRETARY 1.00 X 0 0 0 WILLIAM REPICCI PRESIDENT & CEO 40.00 X 272415 0 49184 272415 0 49184 1 0 1 0 0 522491 868557 1391048 48778 48778 42695 6156 36539 36539 1476365 0 0 85317 17000 17000 272913 231976 27291 13646 453812 338071 20533 95208 30000 23505 1981 4514 99865 78246 6594 15025 50513 39575 3333 7605 42600 42600 62356 62356 6503 5266 489 748 19467 15764 1464 2239 29833 24158 2243 3432 26587 26587 4422 3580 333 509 RESEARCH & PROGRAM ACTI 582491 582491 ADMINISTRATIVE 12532 12532 FILING AND REGISTRATION 12164 12164 DUES AND MEMBERSHIP 7405 3458 3947 5735 4470 630 635 1736198 1453045 135645 147508 949870 688563 160565 209493 22500 22500 0 7343 9897 3900 3900 0 0 2768718 2896943 1354 778 3910350 3828174 47172 72297 245003 285104 292175 357401 X 3618175 3353875 116898 3618175 3470773 3910350 3828174 -259833 112431 0 X 0 1 X 1 0 X 1113946 896827 4128787 1433227 1427587 9000374 1113946 896827 4128787 1433227 1427587 9000374 0 0 0 9000374 1380 558 294 29306 48778 80316 1380 558 294 29306 48778 80316 605 605 1115326 897385 4129686 1462533 1476365 9081295 0.99110 0.99620 0.00880 0.00370 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 1 62356 0 0 0 62356 0 3900 3900 0 0 CHARLES SCHWAB 285104 F Fidelity Investment 2611839 F 2896943 X Part X, Line 2: UNDER ACCOUNTING STANDARDS CODIFICATION (ASC) SECTION 740, THE TAX STATUS OF TAX-EXEMPT ENTITIES IS AN UNCERTAIN TAX POSITION, SINCE EVENTS COULD POTENTIALLY OCCUR THAT JEOPARDIZE THE ORGANIZATION'S TAX EXEMPT STATUS. MANAGEMENT OF THE ORGANIZATION IS NOT AWARE OF ANY EVENTS THAT COULD JEOPARDIZE ITS TAX-EXEMPT STATUS. THEREFORE, NO LIABILITY OR PROVISION FOR INCOME TAX HAS BEEN REFLECTED IN THE FINANCIAL STATEMENTS X X X X X 0 AL AK AZ AR CA CO CT DE FL GA HI ID IL IN IA KS KY LA ME MD MA MI MN MS MO MT NE NV NH NJ NM NY NC ND OH OK OR PA RI SC SD TN TX UT VT VA WA WV WI WY WALKATHONS 42695 42695 6156 42695 42695 6156 6156 36539 0 Lymphedema Therapist Scholarship 17 17000 1 X X X X 0 1 0 0 0 0 0 0 0 WILLIAM REPICCI PRESIDENT & CEO 272415 0 0 0 0 0 30000 0 19184 0 321599 0 0 0 William Repicci PRESIDENT & CEO Pension X 285104 285104 0 1 1 285104 MICHAEL MINICHIELLO CEO's Spouse 73250 Consulting service related to the design of LE&Rn's website, brochurers, social media and conference events 0 Form 990, Part VI, Section B, line 11b THE BOARD TREASURER REVIEWS THE 990 IN DETAIL AND REVIEWS THE HIGHLIGHTS OF THE 990 WITH THE BOARD Form 990, Part VI, Section B, line 12c BOARD MEMBERS AND KEY MEMBERS OF MANAGEMENT ARE REQUIRED TO ANNUALLY SIGN A PROACTIVE CONFLICT OF INTEREST STATEMENT. BOARD MEMBERS AND KEY MEMBERS OF MANAGEMENT ARE REGULARLY REMINDED OF THEIR RESPONSIBILITIES WITH RESPECT TO THEIR INVOLVEMENT WITH THE ORGANIZATION AND THE NEED TO DISCLOSE REAL OR PERCEIVED CONFLICTS. Form 990, Part VI, Section B, line 15a ON AN ANNUAL BASIS THE BOARD DOES A COMPARISON STUDY BASED UPON PUBLISHED SALARY SURVEYS TO DETERMINE A REASONABLE COMPENSATION FOR THE PRESIDENT & CEO TAKING INTO CONSIDERATION PERFORMANCE, INDUSTRY NORMS, AND UNIQUE ASPECTS OF HIS RESPONSIBILITIES AT THE ORGANIZATION. Form 990, Part VI, Section C, line 19 THE ORGANIZATON MAKES ITS FINANCIAL STATEMENTS, ITS CONFLICTS OF INTEREST POLICY, AND ITS GOVERNING DOCUMENTS AVAILABLE FOR PUBLIC INSPECTION AT ITS CORPORATE OFFICE DURING NORMAL BUSINESS HOURS