2024-11-15T06:41:10-06:00 2023-12-31 990 2023-01-01 351040153 MUSCULAR DYSTROPHY FAMILY FOUNDATION MUSC 3176159140 PO BOX 776 CARMEL IN 46032 JACOB T BUEHLER PRESIDENT 3176159140 2024-11-14 1 X 2023 2024-10-15 13:58:12Z JACOB T BUEHLER PO BOX 776 CARMEL IN 46032 492078 0 X WWW.MDFF.ORG X 1958 IN WE ASSIST PERSONS WITH NEUROMUSCULAR DISEASES, INCLUDING MUSCULAR DYSTROPHY. EACH OF THE PAST 10 YEARS, WE HAVE PURCHASED AT LEAST ONE ACCESSIBLE VAN FOR A FAMILY, AND WE HAVE PROVIDED OVER $940,000 IN ADAPTIVE EQUIPMENT TO FAMILIES OVER THE PAST 10 YEARS. 13 12 3 20 0 0 362176 275762 0 0 10661 21797 96753 135585 469590 433144 197812 228705 0 0 73872 90055 0 0 36859 55276 63043 326960 381803 142630 51341 734362 785703 0 0 734362 785703 X THE MUSCULAR DYSTROPHY FAMILY FOUNDATION USES THE POWER OF GIVING TO INCREASE THE QUALITY OF LIFE AND INDEPENDENCE OF PEOPLE WITH MUSCULAR DYSTROPHY - AND EMPOWER THEIR FAMILIES - THROUGH ADVOCACY, EDUCATION, AND FINANCIAL ASSISTANCE. 0 0 149225 149225 THE MDFF ANNUAL ACCESSIBLE VAN GIVE-AWAY - THE WINSTON AND BOUSUM FAMILIES OF INDIANAPOLIS, INDIANA WERE THE RECIPIENTS OF THE MDFF ACCESSIBLE VAN GIVE-AWAY PROGRAM IN 2023. THE COST OF THE ACCESSIBLE VANS WAS $149,225. 53310 53310 THE MDFF ADAPTIVE EQUIPMENT PROGRAM - PROVIDING GOODS AND SERVICES FOR THOSE WITH MUSCULAR DYSTROPHY, AS FOLLOWS, VAN CONVERSION/REPAIRS $4,430WHEELCHAIR REPAIRS/UPGRADES $10,680EQUIPMENT $5,883BATHROOM REMODEL $5,702CHAIR ELEVATORS $22,558OTHER $4,057TOTAL: $53,310 26170 26170 MDFF PROVIDED OTHER CLIENT SERVICES FOCUSED ON SOCIAL ACTIVITIES LIKE A CHRISTMAS PARTY FOR KIDS AFFECTED BY MUSCULAR DYSTROPHY, SCHOLARSHIPS, ZOO DAYS, AND A TRIP TO THE CHILDREN'S MUSEUM:CHRISTMAS PARTY: $14,202SEEVER SCHOLARSHIP DISBURSEMENTS: $4,687ZOO DAYS: $3,060CHILDREN'S MUSEUM: $4,221 36022 COMPENSATION OF OFFICERS 36022 264727 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 0 0 3 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 13 12 1 0 0 0 0 0 0 1 0 0 0 1 1 1 1 0 0 1 1 0 IN X JACOB T BUEHLER 3172583403 PO BOX 776 CARMEL IN 46032 X JIM BADGER DIRECTOR 1.00 X 0 0 0 MINDY CAMERON DIRECTOR 1.00 X 0 0 0 JUSTIN RUMER DIRECTOR 1.00 X 0 0 0 NIKKI HYBBEN DIRECTOR 1.00 X 0 0 0 BARNEY QUINN DIRECTOR 1.00 X 0 0 0 JACOB BUEHLER DIRECTOR 1.00 X 0 0 0 JEFF TRAUB DIRECTOR 1.00 X 0 0 0 KATHY TRAUB DIRECTOR 1.00 X 0 0 0 ROBBIN ABNEY DIRECTOR 1.00 X 0 0 0 TIM DOYLE PRESIDENT 32.00 X 0 0 0 MATT SIGLER VICE PRESIDENT 5.00 X 0 0 0 DAVID THYEN SECRETARY 1.00 X 0 0 0 OMAR ROSAS TREASURER 1.00 X 0 0 0 0 0 0 0 0 0 0 0 19538 256224 35964 275762 21797 21797 172571 58934 113637 113637 REALIZED GAIN/LOSS ON 523000 21948 21948 21948 433144 0 0 157382 228705 228705 71177 28471 14235 28471 18878 7551 3776 7551 2000 2000 837 837 12384 12384 7590 7590 6088 6088 3974 3974 2931 2931 26004 26004 1235 1235 381803 264727 80217 36859 83214 105589 573156 628126 77992 51988 734362 785703 0 0 X 0 0 0 0 734362 785703 734362 785703 734362 785703 51341 0 X 1 X 0 0 0 X 205453 187078 333948 188166 413333 1327978 205453 187078 333948 188166 413333 1327978 1327978 1327978 1.00000 1.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FUNDRAISER (FEUD) 80354 80354 24497 FUNDRAISER (GOLF) 56898 56898 22875 5 35319 35319 11562 172571 172571 58934 58934 113637 1 SALLY MICHAEL-STAIR LIFT 9000 EFREN GONZALEZ-PEMOBILE STANDER 6277 GRACE COUNCIL-MEDICAL EQUIPMENT 5883 WINSTON FAMILY - VAN 62000 BOUSUM FAMILY - VAN 49650 SCHEDULE I, PART III, LINE (A) 1. GRACE COUNCIL - FOR PURCHASE OF MEDICAL EQUIPMENT 2. SALLY MICHAEL - FOR PURCHASE OF A STAIR LIFT 3. EFREN GONZALEZ - FOR PURCHASE OF A PEMOBILE STANDER 4. WINSTON FAMILY - FOR PURCHASE OF AN WHEELCHAIR ACCESSIBLE VAN 5. BOUSUM FAMILAY - FOR PURCHASE OF AN WHEELCHAIR ACCESSIBLE VAN X 11 5462 FAIR MARKET VALUE X MISC BASKETS, GIFT CARDS, GIFTS 173 20502 COST FROM DONOR X WEBSITE MAINTENANCE AND DESIGN 1 10000 INVOICE COST 0 0 0 PART I, LINE 25 AND LINE 26 TBH CREATIVE IS A CARMEL, INDIANA WEBSITE DEVELOPMENT COMPANY THAT AGREED TO REDEVELOP THE WEBSITE OF OUR ORGANIZATION. THE ESTIMATED COST OF THE PROJECT UPDATE WAS $10,000 AND TBH CREATIVE HAS PROVIDED AN IN KIND DONATION TO MDFF IN THAT AMOUNT. THE WEBSITE IS LOCATED AT MDFF.ORG. TBH CREATIVE PROVIDED ONE ITEM TO MDFF - AN UPDATED WEBSITE. NUMEROUS DONORS ALSO PROVIDED GIFT CARDS, GIFT BASKETS AND OTHER MISC ITEMS FOR A SILENT AUCTION AT AN EVENT HOSTED BY MDFF DURING 2023 TOTALLING $20,503. FORM 990, PART VI, SECTION A, LINE 2 TWO BOARD OF DIRECTOR MEMBERS, JEFF TRAUB AND KATHY TRAUB ARE MARRIED. FORM 990, PART VI, SECTION A, LINE 8B THE COMMITTEE THAT OVERSEES FINANCE, FUNDRAISING AND ADMINISTRATION DOES NOT KEEP SEPARATE MINUTES; THEY DO MEET BEFORE BOARD MEETINGS AND GIVE REGULAR UPDATES DURING BOARD MEETINGS, WHICH ARE DOCUMENTED IN MINUTES. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WAS PREPARED BY THE PRESIDENT JACOB BUEHLER, AND REVIEWED BY OMAR ROSAS, TREASURER AND KATHY TRAUB, BOARD MEMBER. FORM 990, PART VI, SECTION B, LINE 12C ANNUALLY, AT THE NOVEMBER BOARD MEETING, A CONFLICT OF INTEREST POLICY IS SIGNED BY EACH BOARD MEMBER AND REVIEWED BY THE EXECUTIVE COMMITTEE AND DISCUSSED WITH BOARD MEMBERS, IF NECESSARY. FORM 990, PART VI, SECTION B, LINE 15 THE PROCESS OF DECIDING THE SALARY OF OUR EXECUTIVE DIRECTOR AND ASSISTANT STARTED BY UTILIZING SALARY SURVEYS IN THE AREA. THE PRESIDENT AND VICE PRESIDENT DETERMINED THE SALARY. THE SALARY WAS THEN APROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE MUSCULAR DYSTROPHY FAMILY FOUNDATION MADE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC BY REQUEST DURING THE TAX YEAR.