2024-10-11T11:31:15-05:00 2023-12-31 521711839 COUNCILOR BUCHANAN & MITCHELL PC 7910 WOODMONT AVE STE 500 BETHESDA MD 20814 990 2023-01-01 521782065 NATIONAL BREAST CANCER COALITION FUND NATI 2022967477 2001 L STREET NW 500 WASHINGTON DC 20036 FRANCES M VISCO PRESIDENT 2022967477 2024-10-10 1 1 MARK C THOMAS P00362982 3019860600 2024-10-10 2023 2024-10-15 13:58:12Z FRANCES M VISCO 2001 L STREET NW 500 WASHINGTON DC 20036 5905974 0 X WWW.STOPBREASTCANCER.ORG X 1991 PA NBCC'S MISSION IS "TO END BREAST CANCER THROUGH THE POWER OF ACTION AND ADVOCACY." 15 14 18 14 0 0 4515573 4257321 137560 140524 19782 172311 -134200 -178387 4538715 4391769 304686 323795 0 0 1772388 2229552 0 0 336010 1384454 1502500 3461528 4055847 1077187 335922 5965372 6725511 177782 601492 5787590 6124019 X NBCC'S MISSION IS "TO END BREAST CANCER THROUGH THE POWER OF ACTION AND ADVOCACY." NBCC IS MADE UP OF ACTIVISTS WHO SET A PROGRAMMATIC AND RESEARCH AGENDA TO END BREAST CANCER AND USE THE POWER OF ACTION AND ADVOCACY TO FIGHT THE BREAST CANCER STATUS QUO, OVERCOME BARRIERS TO TRUE PROGRESS IN SAVING LIVES, AND EMPOWER AND TRAIN SURVIVORS AND ADVOCATES TO BE LEADERS FOR THIS CAUSE. 0 0 1434753 14795 81125 EDUCATION AND TRAINING - THE CENTER FOR NBCC ADVOCACY TRAINING SUPPLIES THE EDUCATION, TOOLS, TRAINING, AND ACTION THAT ENABLE BREAST CANCER SURVIVORS AND OTHER ADVOCATES TO UNDERSTAND COMPLEX MEDICAL AND SCIENTIFIC INFORMATION AND TO TAKE LEADERSHIP ROLES IN CLINICAL, SCIENTIFIC, FUNDING, AND POLICY DECISION-MAKING THAT AFFECT BREAST CANCER.THE ADVOCATE LEADERSHIP SUMMIT IS A THREE-DAY EDUCATIONAL AND STRATEGY-BUILDING SESSION TO TRAIN AND EMPOWER BREAST CANCER SURVIVORS AND OTHER ADVOCATES BY PROVIDING INFORMATION AND BACKGROUND ABOUT BREAST CANCER AS WELL AS THE TOOLS AND TACTICS NECESSARY TO TAKE A LEADERSHIP ROLE IN BREAST CANCER ADVOCACY.PROJECT LEAD, NBCC'S INNOVATIVE SCIENCE TRAINING COURSE, IS DESIGNED TO HELP BREAST CANCER ACTIVISTS INFLUENCE RESEARCH AND PUBLIC POLICY. AN INTENSIVE TWO-TO-SIX-DAY PROGRAM, PROJECT LEAD PREPARES ADVOCATES FOR PARTICIPATION IN THE WIDE RANGE OF FORUMS WHERE BREAST CANCER RESEARCH DECISIONS ARE MADE. PROJECT LEAD INCLUDES:- PROJECT LEAD INSTITUTE: ANNUAL INTENSIVE SIX-DAY COURSE IN CORE SCIENCE TRAINING FOR ADVOCATE LEADERS TO LEARN THE LANGUAGE AND CONCEPTS OF SCIENCE WITH A FOCUS ON THE BIOLOGY OF BREAST CANCER, GENETICS, EPIDEMIOLOGY, RESEARCH DESIGN, AND ADVOCACY.- ADVANCED PROJECT LEAD: ONGOING EDUCATIONAL AND TRAINING SESSIONS FOR ADVOCATES WHO EXCEL IN SCIENCE AND HAVE SUCCESSFULLY COMPLETED PROJECT LEAD FOCUSING ON ENHANCING CRITICAL THINKING AND RESEARCH SKILLS.- CONTINUING EDUCATION FOR PROJECT LEAD GRADUATES: CONTINUED SCIENTIFIC EDUCATION AND RESEARCH INVOLVEMENT, INCLUDING LEADGRADS ONLINE RESOURCES, ADVANCED TOPICS SESSIONS AT VARIOUS SCIENTIFIC MEETINGS, AND LEADCASTS - ONLINE WEBINARS WITH WELL-KNOWN RESEARCHERS.- ONLINE CENTER FOR ADVOCACY TRAINING: NBCC'S ESTEEMED TRAINING EXPERIENCES BROUGHT DIRECTLY TO ADVOCATES IN A CONVENIENT AND UNDERSTANDABLE DIGITAL FORMAT.- TEAM LEADER TRAINING: PREPARES GRASSROOTS LEADERS TO UNDERSTAND THE LEGISLATIVE PROCESS AND TO FORWARD NBCC'S ANNUAL PUBLIC POLICY AGENDA. 905461 0 0 CATALYTIC RESEARCH PROJECTS AND COLLABORATIONS - NBCC'S ARTEMIS PROJECT IS CENTERED AROUND STRATEGIC SUMMITS, CATALYTIC WORKSHOPS, AND COLLABORATIVE EFFORTS WITH A MULTI- DISCIPLINARY AND DIVERSE GROUP OF STAKEHOLDERS. THIS ADVOCATE-LED, INNOVATIVE APPROACH ALLOWS SCIENTISTS, INDUSTRY REPRESENTATIVES, AND REGULATORS TO WORK COLLABORATIVELY WITH ADVOCATES TO DEVELOP AND IMPLEMENT STRATEGIC RESEARCH PLANS THAT COULD HAVE A SIGNIFICANT IMPACT ON PRIMARY PREVENTION AND SAVING LIVES. PROJECTS INCLUDE:- ARTEMIS PROJECT FOR A PREVENTIVE BREAST CANCER VACCINE: A STRATEGIC PLAN FOR THE DEVELOPMENT OF A PREVENTIVE IN BREAST CANCER.- ARTEMIS PROJECT ON THE PREVENTIVE OF METASTASIS: DETERMINING THE PROCESS BY WHICH BREAST CANCER SPREADS AND BECOMES LETHAL, AND HOW TO INTERVENE TO STOP IT. - SEED GRANTS FOR RESEARCH: NBCC HAS AWARDED SEED GRANTS TO ALLOW SCIENTISTS TO BEGIN THE RESEARCH REQUIRED IN KEY AREAS IDENTIFIED IN THE COLLABORATIVE RESEARCH PLANS.CLINICAL TRIALS INITIATIVE - NBCC WORKS WITH INDUSTRY AND THE RESEARCH COMMUNITY ON CLINICAL TRIALS THAT MEET THE CRITERIA OF NBCC'S CLINICAL TRIAL PROJECT. WE INVOLVE BREAST CANCER ACTIVISTS IN ALL ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION, AND OVERSIGHT. WE WORK TO IMPROVE ACCESS TO QUALITY CLINICAL TRIALS AND, THUS, TREATMENT AND CARE FOR WOMEN WITH BREAST CANCER AND STRATEGIES FOR THOSE AT RISK. 484612 309000 0 PUBLIC POLICY - PUBLIC POLICY PLAYS A SIGNIFICANT ROLE IN ALL ASPECTS OF BREAST CANCER. NBCC FOCUSES ITS PUBLIC POLICY ADVOCACY ON PRIORITIES THAT WILL HAVE A MAJOR IMPACT ON ENDING BREAST CANCER, INCLUDING THOSE THAT WILL INCREASE FUNDING FOR MEANINGFUL BREAST CANCER RESEARCH, PROVIDE ACCESS TO HIGH-QUALITY HEALTH CARE AND CLINICAL TRIALS, AND EXPAND THE INFLUENCE OF BREAST CANCER ADVOCATES EVERYWHERE BREAST CANCER DECISIONS ARE MADE.NBCC HOSTS A SERIES OF CONGRESSIONAL FORUMS ON CAPITOL HILL DESIGNED TO EDUCATE POLICYMAKERS ON ISSUES VITAL TO THE BREAST CANCER COMMUNITY. NBCC PROVIDES MEMBERS OF CONGRESS AND THEIR STAFF UP-TO-DATE INFORMATION ABOUT BREAST CANCER AND REPORTS ON RESEARCH DISCOVERIES THAT AFFECT POLICY AND APPROPRIATIONS. NBCC LEADERSHIP OFTEN TESTIFIES BEFORE CONGRESSIONAL COMMITTEES ON SUBSTANTIVE BREAST CANCER ISSUES. 307155 0 0 PUBLIC INFORMATION, COMMUNICATIONS, AND OUTREACH - NBCC HAS UNDERTAKEN AN EXPANSIVE EFFORT TO CHANGE THE CONVERSATION AROUND BREAST CANCER TO A DIALOGUE ABOUT KNOWING HOW TO END THE DISEASE.- BREAST CANCER INFORMATION CAMPAIGNS: THE NBCC WEBSITE AND PRINT AND ELECTRONIC COMMUNICATIONS HELP EDUCATE THE PUBLIC WITH FACTS ABOUT BREAST CANCER. NBCC'S EXPERT STAFF ANALYZE RESEARCH STUDIES AND MEDIA COVERAGE AND PRESENT THE TRUTH BEHIND THE NEWS.- GLOBAL INFLUENCE: THE NBCC EXECUTIVE TEAM, BOARD OF DIRECTORS, AND ADVOCATE LEADERSHIP REPRESENT THE BREAST CANCER COMMUNITY, ADVOCATING ON ITS BEHALF AND SERVING ON SCIENTIFIC, MEDICAL, AND RESEARCH BODIES AT THE NATIONAL AND INTERNATIONAL LEVELS.THROUGH ALL OF THESE PROGRAMS, NBCC SUPPORTS AND FACILITATES THE RESEARCH NEEDED TO END BREAST CANCER, GLOBAL ACCESS TO THE NECESSARY INFORMATION AND LIFESAVING INTERVENTIONS, AND THE INFLUENCE OF LEADERS EVERYWHERE IN THE STRATEGIES TO END BREAST CANCER. 290684 0 0 GRASSROOTS ADVOCACY FIELD NETWORK DEVELOPMENT AND SUPPORT - NBCC PROVIDES RESOURCES AND SUPPORT TO MEMBER ORGANIZATIONS NATIONWIDE AND ENHANCES EDUCATION AND TRAINING AMONG DIVERSE POPULATIONS OF BREAST CANCER ACTIVISTS.ALL ORGANIZATION AND INDIVIDUAL MEMBERS OF NBCC'S NATIONAL ACTION NETWORK RECEIVE EMAIL ALERTS THROUGHOUT THE YEAR, USUALLY TWICE EACH MONTH, WITH IMPORTANT INFORMATION AND TIMELY ACTIONS FOR THEIR ADVOCACY. NBCC ALSO CONVENES REGULAR CONFERENCE CALLS AND WEBINARS FOR THE GRASSROOTS FIELD NETWORK TO PROVIDE INDIVIDUALIZED GUIDANCE, INFORMATIONAL MATERIALS, AND PEER-TO-PEER SUPPORT. 25211 0 60189 OTHER PROGRAMS - THROUGH THE CLINICAL TRIALS INITIATIVE, NBCC WORKS WITH THE RESEARCH COMMUNITY TO INVOLVE BREAST CANCER ACTIVISTS IN ALL ASPECTS OF CLINICAL TRIAL DESIGN, IMPLEMENTATION AND OVERSIGHT AND INCREASE THE NUMBER OF HIGH QUALITY TRIALS CONDUCTED. NBCC'S ACCLAIMED PUBLICATION, GUIDE TO QUALITY BREAST CANCER CARE, IS AVAILABLE FREE OF CHARGE ON THE NBCC WEBSITE. THE GUIDE PROVIDES INFORMATION FOR PATIENTS TO USE WHEN EVALUATING THE QUALITY OF THEIR HEALTH CARE AND DEVELOPING STRATEGIES FOR GETTING THE BEST CARE AVAILABLE. 623050 0 60189 3447876 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 0 1 23 0 1 18 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 15 14 1 0 1 0 0 0 0 1 1 0 1 1 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MA MD MI MN MS NC NH NJ NM NY OK OR PA RI SC TN VA WI WV ND X X X THE ORGANIZATION 2022967477 2001 L STREET NW 500 WASHINGTON DC 20036 FRANCES VISCO PRESIDENT 46.00 6.00 X X 221154 28846 23700 ALEC CALL CHAIR 1.00 X X 0 0 0 LINDA ROTHWEILER VICE CHAIR 1.00 X X 0 0 0 CHRISTINE NORTON SECRETARY 1.00 1.00 X X 0 0 0 IRA HILLMAN TREASURER 1.00 X X 0 0 0 SHERRY GOLDMAN TRUSTEE 1.00 1.00 X 0 0 0 JUDI HIRSHFIELD-BARTEK TRUSTEE 1.00 1.00 X 0 0 0 DENNIS SLAMON TRUSTEE 1.00 X 0 0 0 DOUGLAS WALL TRUSTEE 1.00 X 0 0 0 LIANE LINDNER TRUSTEE 1.00 X 0 0 0 BRYAN JOHNS TRUSTEE 1.00 X 0 0 0 ANN YAHNER TRUSTEE 1.00 X 0 0 0 MICHELE RAKOFF TRUSTEE 1.00 1.00 X 0 0 0 BETH EMERY TRUSTEE 1.00 1.00 X 0 0 0 TODD NICKEY TRUSTEE 1.00 X 0 0 0 MARA WALKER CHIEF OPERATING OFFICER 38.00 2.00 X 160980 8473 16574 MICHELLE TREGEAR CHIEF PROGRAMS OFFICER 39.00 1.00 X 172586 4425 6993 MELANIE WYNE CHIEF POLICY OFFICER 32.00 8.00 X 146200 36550 16417 MARY DULANEY CHIEF ADVANCEMENT OFFICER 38.00 2.00 X 162183 8536 16384 ELIZABETH DELLSY ARTEMIS PROJECT DIRECTOR 40.00 0.00 X 149565 0 15419 MARGARET BUSH DIRECTOR, GRASSROOTS ENGAGEMENT 37.00 3.00 X 110936 8995 5623 1123604 95825 101110 10 0 1 0 0 65310 645581 134183 3412247 4257321 ADVOCATE LEADERSHIP SUMMIT 900099 81125 81125 OTHER PROGRAM EVENTS 900099 59399 59399 140524 170709 170709 1300000 1298398 1602 1602 1602 36630 645581 215807 -179177 -179177 MISCELLANEOUS 900099 790 790 790 4391769 141314 0 -6866 309000 309000 14795 14795 418846 359412 27970 31464 1503870 1294223 99182 110465 43606 35985 3599 4022 121052 101128 8716 11208 142178 121906 9578 10694 22600 13577 9023 34900 34900 284629 223910 4555 56164 119453 46934 15758 56761 47980 39865 3391 4724 79443 64158 5086 10199 60236 56536 526 3174 678943 676090 2853 21150 17494 1411 2245 12515 10346 829 1340 DUES AND FEES 59816 24597 6645 28574 SCHOLARSHIPS 39335 5394 33941 OPERATING LEASE EXPENSE 37500 30285 2401 4814 EQUIPMENT 4000 2241 1597 162 4055847 3447876 271961 336010 X 32590 19707 5226 7657 1310862 839256 1284962 1112860 3325 0 178046 425612 307620 307116 21652 504 3166525 3944066 0 403213 5965372 6725511 146641 199840 31141 401652 177782 601492 X 3734983 3798830 2052607 2325189 5787590 6124019 5965372 6725511 335922 507 0 X X 0 1 X 1 0 X 3584701 3988349 4181680 4515573 4257321 20527624 3584701 3988349 4181680 4515573 4257321 20527624 9131088 11396536 3376 2040 39 21999 170709 198163 20725787 684223 0.54990 0.56260 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 309000 309000 3746847 4055847 352792 88198 0 0 290727 287192 323076 352792 1253787 1880681 225000 200000 285000 309000 1019000 72682 71798 80769 88198 313447 470171 71653 71536 117 235967 235580 387 504 DEPOSITS 17500 OPERATING RIGHT-OF-USE ASSET 385713 403213 DUE TO NATIONAL BREAST CANCER COALITION 15939 OPERATING LEASE LIABILITY 385713 401652 X 4469550 507 77274 77781 4391769 0 4391769 4133121 77274 77274 4055847 0 4055847 PART X, LINE 2: NBCC REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE-LIKELY-THAN-NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. NBCC DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE, OR REFLECT, ANY UNCERTAIN TAX POSITIONS. NBCC'S FORM 990, RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX RETURNS IS SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE GENERALLY FOR THREE YEARS AFTER IT IS FILED. LA CABARET 682211 645581 36630 150 2160 33811 106183 73503 682211 645581 36630 150 2160 33811 106183 73503 215807 -179177 1 NATIONAL BREAST CANCER COALITION 2001 L STREET NW SUITE 500 WASHINGTON DC 20036 232693372 501(C)(4) 309000 0 GRANT USED FOR GENERAL LOBBY ACTIVITIES IN ACCORDANCE WITH NBCC'S 501(H) ELECTION 1 2023 SUMMIT REIMBURSEMENT TRAVEL 11 4071 2023 LEAD SCHOLARSHIP TRAVEL 27 10724 PART I, LINE 2: GRANT TO NATIONAL BREAST CANCER COALITION: NBCC MONITORS THE ACTIVITIES TO ENSURE THAT THE FUNDS ARE NOT USED FOR GRASSROOTS LOBBYING. X 1 1 X X X X 0 0 0 0 0 0 0 0 0 FRANCES VISCO PRESIDENT 221154 28846 0 0 0 0 6635 865 14331 1869 242120 31580 0 0 MELANIE WYNE CHIEF POLICY OFFICER 146200 36550 0 0 0 0 4386 1097 8748 2186 159334 39833 0 0 MARY DULANEY CHIEF ADVANCEMENT OFFICER 162183 8536 0 0 0 0 4865 256 10700 563 177748 9355 0 0 MARA WALKER CHIEF OPERATING OFFICER 160980 8473 0 0 0 0 4829 254 10916 575 176725 9302 0 0 MICHELLE TREGEAR CHIEF PROGRAMS OFFICER 172586 4425 0 0 0 0 5178 133 1641 41 179405 4599 0 0 ELIZABETH DELLSY ARTEMIS PROJECT DIRECTOR 149565 0 0 0 0 0 4500 0 10919 0 164984 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 ALEC CALL AND BRYAN JOHNS HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION A, LINE 4 THE ORGANIZATION UPDATED ITS BY-LAWS ON OCTOBER 23, 2023 IN ORDER TO COMPLY WITH VARIOUS UPDATED MULTIPLE STATE REQUIREMENTS. THE UPDATES INCLUDED CHANGE OF TITLE OF BOARD MEMBERS FROM "DIRECTORS" TO "TRUSTEE", CHANGES TO TERMS, ADDITION OF AN AUDIT COMMITTEE (PER CALIFORNIA LAW) AND OTHER CHANGES PER CURRENT PROVISIONS OF PENNSYLVANIA LAW (BEST PRACTIVES AND CURRENT OPERATIONS). FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS REVIEWED BY PRESIDENT AND AUDIT COMMITTEE CHAIR PRIOR TO SIGNATURE. THE FORM 990 WAS SHARED WITH FULL BOARD PRIOR TO FILING WITH IRS. FORM 990, PART VI, SECTION B, LINE 12C POLICY IS REVIEWED WITH FULL PRESENTATION DURING BOARD ORIENTATION (FOR NEW AND RETURNING MEMBERS) EACH YEAR. ALL BOARD AND STAFF, AFTER REVIEWING UPDATED LIST OF VENDORS, COMPLETE NEW FORMS ANNUALLY STATING ANY CONFLICT OF INTERESTS. FORM 990, PART VI, SECTION B, LINE 15 THE PRESIDENT'S SALARY IS DETERMINED BY THE BOARD'S EXECUTIVE COMMITTEE. THEY REVIEW HER SALARY ANNUALLY, COMPARE IT TO PEERS AT OTHER ORGANIZATIONS, AND DETERMINE AN INCREASE (IF APPLICABLE). OTHER OFFICER OR KEY EMPLOYEE SALARIES ARE BENCHMARKED ANNUALLY AGAINST SIMILAR JOBS AT SIMILAR ORGANIZATIONS. SALARY INCREASES ARE BASED ON A COMBINATION OF MERIT AND INFLATION. OTHER SALARY ADJUSTMENTS ARE MADE WHEN APPROPRIATE GIVEN MARKET CONDITIONS, BENCHMARK COMPARISONS, ETC. ALL SALARIES AND SALARY ADJUSTMENTS MUST BE APPROVED BY THE PRESIDENT. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS (INCLUDING THE FORM 990), GOVERNING DOCUMENTS (INCLUDING THE FORM 1023), AND THE CONFLICT OF INTEREST POLICY ARE AVAILABLE UPON REQUEST. FORM 990, PART XII, LINE 2C: THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR OVERSIGHT OF THE AUDIT AND SELECTION OF AN INDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR. NATIONAL BREAST CANCER COALITION 2001 L STREET NW SUITE 500 WASHINGTON DC 20036 232693372 TO ERADICATE BREAST CANCER THROUGH PUBLIC POLICY PA 501(C)(4) 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 NATIONAL BREAST CANCER COALITION B 309000 CASH NATIONAL BREAST CANCER COALITION C 134183 CASH NATIONAL BREAST CANCER COALITION O 169723 CASH NATIONAL BREAST CANCER COALITION N 10926 CASH