2024-09-27T11:05:27-04:00 2023-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2023-01-01 851278444 Institute for Exceptional Care INST 1717 K Street NW STE 900 Washington DC 20006 Hoangmai Pham President 2028439260 2024-09-27 true true John Mullins P01429307 2027706371 2024-09-27 2023 2024-10-15 13:58:12Z X Hoangmai Pham 1250463 false X www.ie-care.org X 2020 DC Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive. 15 14 8 21 0 0 2236878 916996 325500 85 7967 0 2236963 1250463 0 0 577897 1081838 0 328827 476106 752581 1054003 1834419 1182960 -583956 1552216 1057300 173620 262660 1378596 794640 Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive. false false 1234551 325500 Thought Leadership: Institute for Exceptional Care (IEC) chaired the Planning Committee for a public workshop of the National Academy of Science, Engineering, and Medicine, on the policy, clinical, and business actions needed to build an integrated system of care for people with intellectual and/or developmental disabilities (I/DD). The workshop featured over 30 stakeholders and experts in the field, addressing the critical topics of better coordination of support services across clinical and home- and community-based sectors, improving the cultural and technical preparedness of the general clinical workforce to care for people with I/DD, and improving financing and payment to sustain effective care models. IEC also:Led the design of all disability-related discussions at a national health equity conference with over 9,000 attendees from across the fields of clinical care and health policy. Produced an analysis of federal policy options to improve mental health outcomes for people with I/DD.Co-chaired other workshops and publications from the National Academy of Medicine on policy and programmatic options for improving the health of communities, particularly for vulnerable populations including people with I/DD. Research and Analysis:IEC sponsored three critical analyses to support the design of better care systems for people with I/DD: (1) Case studies of financing and payment innovations across the United States; (2) reviews of the strengths and weaknesses of current approaches to coordination between clinical and non-clinical service sectors, identification of 13 key coordination functions, and the design of an alternative framework for coordination that specifies which stakeholders should be responsible for which functions; and (3) review of current methods for risk stratification and producing a conceptual framework for predicting the types and levels of clinical and non-clinical services that a person with I/DD will need, in order to support better budgeting, financing, and payment. Education:IEC sponsored a webinar for a community of students, alumni, and staff at an independent residential school for children with I/DD, on the elements of neurodiverse friendly healthcare. The webinar addressed important physical accommodations in clinical practices, the potential and challenges of telehealth, and suggestions for how people with I/DD and caregivers can advocate for better care.Additional Info:IEC provided thought leadership through multiple speaking engagements to state and federal government agencies, academic institutions, healthcare conferences, webinars, and blogs. Creation of the IDD Advocate Corps, a grass-roots advocacy network of passionate health professionals partnering with community members with lived experience of IDD. The Corps began planning its approach to governance, training, research and education, and making change in specific sectors of healthcare, beginning with healthcare delivery organizations. Additional Info:-Completed first phase of IIDDEAL project to define what health outcomes matter most to people with IDD-Convened the IIDDEAL Consensus Working Group in-person to develop national goals for improving health outcomes that matter-Held a Policy Summit on IIDDEAL findings-Completed first phase of technical design of the Always Uniquely Me app-Completed drafting the National Roadmap for Disability Inclusive Healthcare 1234551 true true false false false false false false false false false false false false false true true false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false true 17 0 true 8 true false false false false false false false false false false false false X 15 14 false false false false false false false true true false false true true true false true true true true false CA CT DC FL IL MA MD NJ NV VA X X Institute for Exceptional Care 2028439260 1717 K Street NW Suite 900 Washington DC 20006 Hoangmai Pham President 20.00 0.00 X X 255906 0 16203 May-Lynn Andersen Director of Partnerships 40.00 0.00 X 156324 0 20531 Lauren Erickson Policy Director 40.00 0.00 X 156644 0 161 John Stowe Chief Operating Officer 30.00 0.00 X X 115547 0 7361 Margaret Nygren Finance Chair 1.00 0.00 X 0 0 0 Richard Gilfillan Director 1.00 0.00 X 0 0 0 Cathy Farmer Director 1.00 0.00 X 0 0 0 Staci Alexander Director 1.00 0.00 X 0 0 0 Dena Gassner Education Co-Chair 1.00 0.00 X 0 0 0 Vish Sankaran Director 1.00 0.00 X 0 0 0 Cuong Do Vice Chair 1.00 0.00 X 0 0 0 Julia Bascom Director 1.00 0.00 X 0 0 0 James Perrin Director 1.00 0.00 X 0 0 0 Chester Finn Director 1.00 0.00 X 0 0 0 Morenike Giwa Onaiwu Education Co-Chair 1.00 0.00 X 0 0 0 Bob Galvin Development Chair 1.00 0.00 X 0 0 0 Merrill Friedman Director 1.00 0.00 X 0 0 0 Bernard Rosof Chair 2.00 0.00 X X 0 0 0 684421 0 44256 4 false true false Hope Glassberg LLC 16 North Dutcher St Irvington NY 10533 Project Management 168000 Brandeis University 415 South Street Waltham MA 02453 Project Consulting 103042 Strategic Communications Planning 40 West Evergreen Ave Suite 101 Philadelphia PA 19118 DesignConsulting 101441 3 916996 916996 Program Service Revenue 900099 325500 325500 325500 7967 7967 1250463 325500 0 7967 X 371453 230099 45846 95508 578104 358112 71351 148641 36377 22534 4490 9353 25191 15605 3109 6477 70713 43803 8728 18182 10175 8195 1980 623383 502104 121279 2453 1486 350 617 35269 9380 1866 24023 58891 40996 68 17827 9858 9858 State Registrations 12502 2187 2116 8199 Dues and Subscriptions 50 50 1834419 1234551 271041 328827 706951 432490 835031 608356 10234 16454 1552216 1057300 173620 262660 173620 262660 X 543565 186284 835031 608356 1378596 794640 1552216 1057300 -583956 0 X false true X true false X 188470 498421 2236878 916996 3840765 188470 498421 2236878 916996 3840765 331020 3509745 7967 7967 73 85 158 3848890 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 1250463 1250463 1250463 1834419 1834419 1834419 Footnote for uncertain tax position under FIN 48 (Part X) The Organization is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code(the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Organization is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Organization has filed all of its known and required tax returns in a timely manner, including as permitted, allowed extensions. X X false false false false false false false false false Hoangmai Pham President 255906 16042 161 272109 May-Lynn Andersen Director of Partnerships 156324 9920 10611 176855 Lauren Erickson Policy Director 156644 161 156805 Form 990 governing body review Part VI line 11 The IRS Form 990 was prepared by an indpendent CPA and provided to the full Board prior to filing. CEO executive director top management comp Part VI line 15a The executive committee conducts an annual review of the performance of the CEO, including setting compensation for the year. the CEO is responsible for setting the compensation of other key employees of the organization within the parameters of the budget approved by the board of directors. in setting salaries, the CEO reviews information on similar positions at comparable organizations from salary surveys. Other officer or key employee compensation Part VI line 15b Compensation is determined through the annual budgeting process. Governing documents etc available to public Part VI line 19 These documents are available upon request. List of other fees for services expenses Part IX line 11g Other Professioanal Fees and Consulting $610,691Payroll Service Fees $10,672Benefits Processing Fee $2,020