2024-07-30T18:21:32-07:00 2023-12-31 262176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990 2023-01-01 930995453 FANCONI CANCER FOUNDATION FANC 5416874658 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 MARK QUINLAN EXECUTIVE DIRECTOR 2024-07-30 1 1 JEREMY CORK P01544850 2082874777 2024-07-30 2023 2024-08-08 14:25:15Z X MARK QUINLAN 360 EAST 10TH AVE SUITE 201 EUGENE OR 97401 4521040 0 X Fanconi.org X 1989 OR TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 0 0 12 125 0 0 2979498 3189061 23549 40035 164989 262765 3952 1777 3171988 3493638 1718785 1938214 0 0 977926 1165161 0 0 395292 1226391 1084595 3923102 4187970 -751114 -694332 7540304 7555758 629031 890455 6911273 6665303 TO FIND EFFECTIVE TREATMENTS AND A CURE FOR FANCONI ANEMIA AND TO PROVIDE EDUCATION AND SUPPORT SERVICES TO FAMILIES WORLDWIDE. 0 0 2170235 1895322 20435 RESEARCH INITIATIVES - "ADVANCES OUR STAND UP TO CANCER PROJECT, AWARDS AND MANAGES RESEARCH GRANTS, MANAGES THE VIRTUAL TUMOR BOARD, ADVANCES OUR CLINICAL REGISTRY, OVERSEES THE FANCONI ANEMIA RESEARCH MATERIALS PROJECT, KEEPS FANCONI ANEMI GUIDELINES MANUAL UP TO DATE, MANAGES FANCONI ANEMIA CANCER CONSORTIUM, MANGES FANCONI ANEMIA BRUSH BIOPSY PROJECT, CONVENES FARF SPARKS MEETINGS, MANAGES FRIENDS DATA COMMONS." 642743 2500 19600 EVENTS - "ANNUAL PLANNING MEETING, JOEL WALKER SERIES MEETINGS, ANNUAL FAMILY RETREAT, SCIENTIFIC SYMPOSIUM, ADULT FA RETREAT, INTERNATIONAL SUMMIT, SUPPORT FOR FARF SPARKS AND FA CONNECT." 427008 40392 0 COMMUNITY PROGRAMS AND SUPPORT - "ONBOARDS NEWLY DIAGNOSED FAMILIES, MANAGES ADULT COUNCIL, MANAGES WINN/BYRD AWARD, MANAGES INTERNATIONAL SUPPORT GRANT PROGRAM, MANAGES BEREAVEMENT SUPPORT, MANAGES CAREGIVER SUPPORT, MANAGES PEER SUPPORT, CONVENES FA CONNECT SESSIONS, MANAGES ADVOCACY AND ENGAGEMENT PROGRAM. " 0 0 0 3239986 1 1 0 0 0 0 0 0 0 1 0 0 0 1 1 1 1 0 0 0 1 1 1 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 12 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 0 0 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 0 0 1 0 0 AK AR AZ CA CO CT DC DE FL GA HI IL KS KY MA MD ME MI MN MO NC ND NH NJ NM NV NY OH OK OR PW RI SC TN UT VA WA WI WV X X X EASY OFFICE DBA JITASA 2082874777 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 MARK QUINLAN EXECUTIVE DIRECTOR 40 X X 168509 0 0 ISIS SROKA CHIEF SCIENTIFIC OFFICER 40 X X 146531 0 9038 SHERRI L VAN RAVENHORST HIGHEST COMPENSATED EMPLOYEE 1 X 102325 0 0 LISA MINGO PRESIDENT 5 X 0 0 0 JOHN CONNELLY SECRETARY 5 X 0 0 0 WIN GOULDIN VICE PRESIDENT 5 X 0 0 0 PEDRO RAVELO TREASURER 5 X 0 0 0 LYNN FROHNMAYER BOARD MEMBER 1 X 0 0 0 ADAM BECKER BOARD MEMBER 1 X 0 0 0 WILLIAM BLOXOM BOARD MEMBER 1 X 0 0 0 JOHN WAGNER BOARD MEMBER 1 X 0 0 0 TRACY STRIMLING BOARD MEMBER 1 X 0 0 0 JASMINE BENNETSEN BOARD MEMBER 1 X 0 0 0 HENEKKE TAKKENBERG BOARD MEMBER 1 X 0 0 0 CARMEM BONFIM BOARD MEMBER 1 X 0 0 0 ZARIEL TOOLAN BOARD MEMBER 1 X 0 0 0 417365 0 9038 3 0 1 0 0 0 0 0 0 0 3189061 0 3189061 PROGRAM SERVICE FEES 900099 40035 40035 0 0 0 0 0 0 40035 208600 0 0 208600 0 0 0 0 0 0 0 0 0 0 1081567 0 1027402 0 54165 0 54165 54165 0 0 1750 0 0 1750 0 1750 27 27 0 0 27 3493638 94227 0 210350 1510098 1510098 9000 9000 419116 419116 370873 226219 74018 70636 554003 337922 110567 105514 18527 10007 3035 5485 132703 71279 23068 38356 89055 49490 24969 14596 658 658 41772 41772 170038 18627 82987 68424 62001 11819 42153 8029 53444 3360 43205 6879 63935 63935 247155 238158 4084 4913 55945 31250 24695 10622 10622 VENUE RENTAL 303595 303595 0 0 PROGRAM EXPENSES 42597 20 0 42577 BANK CHARGES AND PROCESSING FEES 32833 26 2924 29883 4187970 3239986 552692 395292 1994672 1681246 38798 54933 0 0 408115 0 4970524 5309235 128195 510344 7540304 7555758 106206 149010 92500 353268 430325 388177 629031 890455 X 6911273 6665303 0 0 6911273 6665303 7540304 7555758 -694332 473858 0 -25496 0 0 X 0 1 X 0 0 X 3213829 235071 3309323 2979498 3189061 12926782 3213829 235071 3309323 2979498 3189061 12926782 3817465 9109317 187667 125808 279590 164431 208600 966096 13892878 70965 0.65568 0.64194 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 128196 0 21103 0 0 6586 142713 165877 0 -31193 0 0 6488 128196 150681 0 21457 0 0 6261 165877 133887 700 21533 0 0 5439 150681 85985 34272 17728 0 0 4098 133887 1 0 0 0 0 RIGHT OF USE 367631 ENDOWMENT 142713 510344 LEASE LIABILITY 388177 388177 X 3945496 473858 3496 0 0 477354 3468142 25496 0 25496 3493638 4191466 3496 0 0 0 3496 4187970 0 0 0 4187970 Schedule D, Part V, Line 4 THE ENDOWMENT FUND WAS SET UP TO FUND THE AMY WINN AND CHRISTOPHER BYRD AWARD THAT IS PRESENTED ANNUALLY TO SOMEONE WHO IS STRIVING TO TO MAKE A DIFFERENCE AND HAS SET HIGH GOALS FOR HIM/HERSELF. IN ADDITION TO FUNDING THE AWARD, THE ENDOWMENT IS SCHEDULED TO FUND THE TRAVEL COST OF THE AWARD WINNER TO THE ANNUAL MEETING FOR ADULTS WITH FANCONI ANEMIA. ALL FUNDS WITHIN THE ENDOWMENT FUND WERE INVESTED IN THE SOCIAL IMPACT POOL WITH THE OREGON COMMUNITY FOUNDATION (OCF). INVESTMENTS WITHIN THIS FUND ARE SUBJECTED TO AN ENVIRONMENTAL, SOCIAL AND GOVERNANCE SCREENING. DISTRIBUTIONS OUT OF THE ENDOWMENT FUND ARE SUBJECT TO OCF DISCRETION. DISTRIBUTIONS ARE BASED ON THE GRANT PERCENTAGE PAYOUT POLICY FOR PERMANENT FUNDS WHICH IS PERIODICALLY UPDATED BY THE BOARD OF DIRECTORS OF OCF. Schedule D, Part X, Line 2 THE ORGANIZATION IS ORGANIZED AS AN OREGON NONPROFIT CORPORATION AND HAS BEEN RECOGNIZED BY THE IRS AS EXEMPT FROM FEDERAL INCOME TAXES UNDER IRC SECTION 501(A) AS AN ORGANIZATION DESCRIBED IN IRC SECTION 501(C)(3), QUALIFIES FOR THE CHARITABLE CONTRIBUTION DEDUCTION UNDER IRC SECTIONS 170(B)(1)(A)(VI) AND (VIII), AND HAS BEEN DETERMINED NOT TO BE A PRIVATE FOUNDATION UNDER IRC SECTIONS 509(A)(1) AND (3), RESPECTIVELY. THE ORGANIZATION IS ANNUALLY REQUIRED TO FILE A RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX (FORM 990) WITH THE IRS AND REPORTS IN OTHER STATES WHERE THE ORGANIZATION HAS ACTIVITIES. IN ADDITION, THE ORGANIZATION IS SUBJECT TO INCOME TAX ON NET INCOME THAT IS DERIVED FROM BUSINESS ACTIVITIES THAT ARE UNRELATED TO THEIR EXEMPT PURPOSES. WE HAVE DETERMINED THAT THE ORGANIZATION IS NOT SUBJECT TO UNRELATED BUSINESS INCOME TAX AND HAVE NOT FILED AN EXEMPT ORGANIZATION BUSINESS INCOME TAX RETURN (FORM 990-T) WITH THE IRS. 1 Europe (including Iceland and Greenland) Program Services RESEARCH GRANTS 281355 North America (including Canada and Mexico, but not the United States) Program Services RESEARCH GRANTS 102369 South America Program Services INTERNATIONAL SUPPORT GRANTS 15392 North America (including Canada and Mexico, but not the United States) Program Services INTERNATIONAL SUPPORT GRANTS 10000 Sub-Saharan Africa Program Services INTERNATIONAL SUPPORT GRANTS 10000 0 0 419116 Europe (including Iceland and Greenland) RESEARCH 281355 CHECK FMV North America (including Canada and Mexico, but not the United States) RESEARCH 102369 CHECK FMV South America SUPPORT GRANTS 15392 CHECK FMV North America (including Canada and Mexico, but not the United States) SUPPORT GRANTS 10000 CHECK FMV 0 6 INTERNATIONAL SUPPORT GRANTS Sub-Saharan Africa 1 10000 FMV 0 0 0 0 0 0 Schedule F, Part I, Line 2 THE ORGANIZATION PROVIDES FUNDS WITH THE UNDERSTANDING THAT THOSE FUNDS WILL BE USED TO FULFILL THE MISSION OF THE RECEIVING ORGANIZATION. 1 STAND UP TO CANCER 10880 WILSHIRE BOULEVARD SUITE 1400 LOS ANGELES CA 90024 951644609 501C3 375000 NATIONAL CANCER INSTITUTE 9000 ROCKVILLE PIKE BUILDING 31 ROO BETHESDA MD 20892 521986675 501C3 369154 STANFORD UNIVERSITY 3160 PORTER DRIVE P PALO ALTO CA 94304 941156365 501C3 265834 ALPHA OMEGA ALPHA HONOR MEDICAL SOCIETY OREGON UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 936041998 501C3 100000 THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK 615 WEST 131ST STREET NEW YORK NY 10027 135598093 501C3 78334 THE ROCKEFELLER UNIVERSITY 1230 YORK AVE NEW YORK NY 10065 131624158 501C3 64492 BOSTON CHILDREN'S HOSPITAL 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501C3 62500 UNIVERSITY OF WASHINGTON 1959 NE PACIFIC ST SEATTLE WA 98915 911486484 501C3 62500 UNIVERSITY OF CHICAGO SELF INSURANCE TRUST 6054 S DREXEL AVE CHICAGO IL 60637 363020034 501C3 52660 THE REGENTS OF THE UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS STREET 4TH FLOOR BOX 0 SAN FRANCISCO CA 94143 943067788 501C3 50000 OREGON STATE UNIVERSITY 3181 SW SAM JACKSON PARK RD PORTLAND OR 97239 237083114 501C3 24624 10 1 STIPENDS 12 9000 Schedule I, Part I, Line 2 THE ORGANIZATION COMPILES A GRANT FILE FOR EACH GRANT RECIPIENT THAT HOUSES THE GRANT APPLICATION, REVIEWS CONDUCTED BY OUTSIDE REVIEWERS, THE PROPOSAL REVIEW COMMITTEES REPORT, A CV FOR ALL PARTICIPATING IN THE PROJECT, AND A SIGNED ACCEPTANCE OF THE AWARD. THIS DOCUMENT MUST BE SIGNED BY THE PRINCIPAL INVESTIGATOR AND THE OFFICIAL SIGNING AUTHORITY OF THE INSTITUTION WHERE THE RESEARCH WILL BE PERFORMED. TO MONITOR THE USE OF FUNDS FINANCIAL AND RESEARCH REPORTS ARE REQUIRED ON AN ANNUAL BASIS DURING THE LIFE OF THE GRANT AND REVIEWED BY THE EXECUTIVE DIRECTOR TO ENSURE FUNDS ARE BEING USED APPROPRIATELY IN ADDITION TO BEING REVIEWED BY THE PROPOSAL COMMITTEE AND THE BOARD. X X 0 0 0 0 0 0 0 0 0 MARK QUINLAN EXECUTIVE DIRECTOR 168509 0 0 0 0 0 0 0 0 0 168509 0 0 0 ISIS SROKA CHIEF SCIENTIFIC OFFICER 146531 0 0 0 9037 0 0 0 0 0 155568 0 0 0 Form 990, Part VI, Section A, Line 4 RESTATED ARTICLES OF INCORPORATION AND AMENDED BYLAWS. Form 990, Part VI, Section B, Line 11b THE 990 IS REVIEWED AT A REGULAR MEETING OF THE BOARD OF DIRECTORS. Form 990, Part VI, Section B, Line 12c THE EXECUTIVE DIRECTOR REVIEWS THE POLICY ANNUALLY AT THE ANNUAL LEADERSHIP MEETING. Form 990, Part VI, Section B, Line 15 EXECUTIVE DIRECTOR COMPENSATION IS SET BY THE BOARD PRESIDENT AFTER REVIEWING SELF-CONDUCTED MARKET RESEARCH. EMPLOYEE COMPENSATION IS EVALUATED BY COLLECTING COMPARABLE DATA FROM NON-PROFIT, STATE, AND COUNTY SOURCES, AS WELL AS A WGE ANALYSIS REVIEW BY INDEPENDENT PERSONS WHICH IS THEN USED TO FORMULATE WAGES BY THE EXECUTIVE DIRECTOR. Form 990, Part VI, Section C, Line 19 WHEN GOVERNING DOCUMENTS OR THE CONFLICT OF INTEREST POLICY ARE REQUESTED A COPY IS MAILED TO THE REQUESTING PARTY. THE ANNUAL FORM 990 AND AUDIT REPORT ARE ON THE ORGANIZATIONS WEBSITE AND COPIES ARE ALSO ISSUED WHEN REQUESTED. FORM 990S CAN BE ACCESSED ALSO VIA WEBSITES: GUIDESTAR.ORG AND IRS.GOV.