2024-01-26T19:46:01-06:00 2023-01-31 431552002 LOPATA FLEGEL & COMPANY LLP 600 MASON RIDGE CENTER DR STE 100 ST LOUIS MO 63141 990 2022-02-01 431458163 THE AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION ST LOUIS REGIONAL CHAPTER AMYO 8888738539 1950 CRAIG ROAD 200 SAINT LOUIS MO 63146 KEVIN DW HEWGLEY BOARD CHAIR 8888738539 2024-01-25 1 KEVIN DW HEWGLEY 999009999 1 WENDY G LEWIS P00966654 3145148881 2024-01-25 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z KEVIN DW HEWGLEY 1950 CRAIG ROAD 200 SAINT LOUIS MO 63146 3308508 0 X WWW.ALSA-STL.ORG X 1984 MO TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. X 21 21 15 108 0 0 2475625 1363782 1200 0 38996 -1316975 108770 -78113 2624591 -31306 265173 127257 0 0 853404 396249 0 0 164923 802704 3942855 1921281 4466361 703310 -4497667 5164940 2107930 246147 2107930 4918793 0 X TO DISCOVER TREATMENTS AND A CURE FOR ALS, AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 0 0 533451 127257 PATIENT CARE SERVICES: CASE MANAGEMENT AND SUPPORTIVE PROGRAMS AND SERVICES TO 345 INDIVIDUALS DIAGNOSED WITH ALS AND THEIR FAMILY MEMBERS IN EASTERN MISSOURI AND CENTRAL AND SOUTHERN ILLINOIS. SERVICES AND PROGRAMS ARE FREE OF CHARGE. CARE SERVICE COORDINATORS HELP FAMILIES NAVIGATE THROUGH HEALTHCARE SYSTEMS AND STRIVE TO INCREASE FUNCTIONAL INDEPENDENCE WHILE IMPROVING QUALITY OF LIFE. THE CHAPTER ASSESSES PATIENT/FAMILY NEEDS, DEVISES INDIVIDUALIZED CARE PLANS THAT INCLUDE HOME VISITS, COUNSELING, END OF LIFE CARE PLANNING, AND GRIEF COUNSELING; PARTICIPATION WITH COMMUNITY PARTNERSHIPS WITH ALS MULTIDISCIPLINARY TREATMENT CENTERS AT SAINT LOUIS UNIVERSITY AND AFFILIATED CLINICS AT WASHINGTON UNIVERSITY AND JOHN COCHRAN VA MEDICAL CENTER IN ST. LOUIS, ST. FRANCIS IN CAPE GIRARDEAU AND SIU MEDICAL CENTER IN SPRINGFIELD ILLINOIS; COLLABORATION WITH DURABLE MEDICAL EQUIPMENT PROVIDERS, SEATING/MOBILITY PROVIDERS, HOSPICE/HOME HEALTH CARE PROVIDERS; PROVISION OF FINANCIAL GRANTS, MEDICAL EQUIPMENT, NUTRITIONAL SUPPLEMENTS, TRANSPORTATION ASSISTANCE, AUGMENTATIVE COMMUNICATION AND ASSISTIVE TECHNOLOGY EQUIPMENT LOAN; AND OFFERS A VOLUNTEER PROGRAM, PROVIDING VISITING HELPERS TO ASSIST WITH HOUSEHOLD CHORES AND COMPANIONSHIP. 129353 EDUCATION, AWARENESS AND ADVOCACY: STIMULATE PUBLIC AWARENESS THROUGH ADVOCACY ACTIVITIES ON STATE AND NATIONAL LEVELS. THE CHAPTER PROVIDES AN EDUCATIONAL INSTITUTE FOR HEALTH CARE PROFESSIONALS, REGULAR PATIENT INFORMATION UPDATES, A PRINTED, VIDEO AND CD LENDING LIBRARY, ALS EDUCATIONAL ACTIVITY BOOKS FOR CHILDREN, AND PRINTED AND ONLINE RESOURCE MANUALS FOR ASSISTANCE WITH TECHNOLOGY, LOSS AND GRIEF, VA HEALTHCARE AND BENEFITS. VOLUNTEER PROGRAM EDUCATES FAMILY AND FRIENDS ABOUT PATIENT NEED SO THEY CAN PROVIDE PATIENT AND FAMILY ADDITIONAL HELP, CARE AND SUPPORT. THROUGH PUBLIC OUTREACH EFFORTS, MEDIA RELATIONS AND SOCIAL MEDIA, THE CHAPTER CONTINUALLY TELLS THE STORY OF THOSE BATTLING THE DISEASE AND THE IMPACT OF OUR WORK TO INCREASE UNDERSTANDING AND SEEK CONTINUED FUNDING NEEDED FOR CARE SERVICES AND ALS RESEARCH. RESEARCH: THE CHAPTER CONTRIBUTES TO THE ALS NATIONAL ORGANIZATIONS EFFORTS TO SUPPORT GLOBAL RESEARCH AND THE VISION OF CREATING A WORLD WITHOUT ALS. THE CHAPTER DEDICATES FUNDS EACH YEAR TO SUPPORT OVER 160 OF THE MOST ACTIVE AND PROMISING PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR THE DISEASE. THE CHAPTER ENCOURAGES AND WORKS WITH PATIENTS TO ENROLL IN CLINICAL TRIALS, WHICH IS CRITICAL TO ADVANCING RESEARCH EFFORTS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH. 662804 1 1 0 0 0 0 0 0 0 1 0 1 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 1 0 0 0 1 0 0 1 0 1 0 0 0 1 18 0 1 15 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 X 21 21 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X SARAH HENKE 3144327257 1950 CRAIG ROAD SUITE 200 SAINT LOUIS MO 63146 JOSH ROGERS BOARD CHAIR 2.00 X X 0 0 0 MIKE SABATINO DIRECTOR 0.50 X X 0 0 0 ZACHARY LEEDS DIRECTOR 0.50 X X 0 0 0 DAVID J VAN DE RIET DIRECTOR 2.00 X 0 0 0 DAVID G BUSKER DIRECTOR 2.00 X 0 0 0 KEVIN HEMENWAY DIRECTOR 2.00 X 0 0 0 EVAN WALDMAN DIRECTOR 2.00 X 0 0 0 SCOTT WANAMAKER DIRECTOR 2.00 X 0 0 0 DAVE COLLET BOARD TREASURER 2.00 X X 0 0 0 KEVIN HEWGLEY DIRECTOR 2.00 X 0 0 0 ANTHONY MITCHELL DIRECTOR 0.50 X 0 0 0 MARK CALMES DIRECTOR 2.00 X 0 0 0 DEAN FUNKENBUSCH DIRECTOR 0.50 X 0 0 0 KIEL PEREGRIN DIRECTOR 0.50 X 0 0 0 GARY ROBERT DIRECTOR 2.00 X 0 0 0 SCOTT STROTHKAMP DIRECTOR 2.00 X 0 0 0 STEVE ZIEGLER DIRECTOR 2.00 X 0 0 0 MAX DOUGHERTY DIRECTOR 2.00 X 0 0 0 ELIZABETH SHOCKLEE DIRECTOR 0.50 X 0 0 0 JENNIFER SENGPIEL DIRECTOR 0.50 X 0 0 0 CJ ROMANELLI DIRECTOR 0.28 X 0 0 0 VITHYA MURUGAN DIRECTOR 0.50 X 0 0 0 JOHN LATHAM DIRECTOR 2.00 X 0 0 0 KATIE MCGOVERN PRESIDENT/CEO 50.00 X 57383 0 791 57383 0 791 0 0 0 0 0 425903 937879 237005 1363782 39012 39012 1829554 1715414 1470127 114140 -1470127 -1355987 -1355987 76160 425903 154273 -78113 -78113 -31306 0 0 -1395088 127257 127257 57382 45065 5331 6986 279214 192156 41570 45488 1422 961 161 300 27679 18757 3493 5429 30552 21471 4416 4665 8148 1060 112 6976 11270 11270 16326 11423 2363 2540 4400 4400 14786 9756 695 4335 19184 11235 3833 4116 46829 36398 3866 6565 246 246 7049 4464 82 2503 153899 96956 16929 40014 93359 70315 9141 13903 10505 7639 1287 1579 RESERVE/LEGACY FUNDS TO 3530893 3530893 TRANSPORTATION 6517 6045 0 472 REPAIRS AND MAINTENANCE 901 720 57 124 18543 1126 3135 14282 4466361 662804 3638634 164923 1827638 1883860 9155 1198 374622 0 9487 0 0 0 517878 0 2083376 0 224640 222872 118144 0 5164940 2107930 246147 0 0 2107930 246147 2107930 X 4016797 0 901996 0 4918793 0 5164940 2107930 -4497667 -421126 0 X 0 0 0 X 2169653 2258331 2033614 2299926 1531765 10293289 2169653 2258331 2033614 2299926 1531765 10293289 10293289 52241 -2922 21659 38997 39012 148987 10442276 2000 0.98570 0.98920 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 224640 -1768 222872 221556 3084 224640 226968 -5412 221556 221302 5666 226968 228484 5691 12873 221302 0 0 0 INVESTMENTS ENDOWMENT 222872 F 222872 POST UNIFICATION ACTIVITY 65463 DUE TO NATIONAL - RESERVES 2042467 2107930 X PART V, LINE 4: PERMANENTLY RESTRICTED NET ASSETS ARE COMPRISED OF ENDOWMENT FUNDS OF DONATIONS FROM THE BRONSTEIN MEMORIAL ENDOWMENT FUND WHICH WILL BE HELD IN A SEPARATE INVESTMENT ACCOUNT IN PERPETUITY, AS WELL AS THE GREG L. CLAUNCH ALS PATIENT AND FAMILY CARE ENDOWMENT FUND. THE BRONSTEIN ENDOWMENT: INCOME FROM THE INVESTMENT IS RESTRICTED TO FUND ALS-RELATED RESEARCH AWARDS TO ST. LOUIS UNIVERSITIES WITH THE UNDERSTANDING THAT, IF THERE ARE NO SUCH CURRENT AWARDS/PROJECTS AUTHORIZED, THE ENDOWMENT'S INCOME WILL BE CARRIED FORWARD FOR UP TO 3 YEARS PENDING SUCH AWARDS/PROJECTS TO THE EXTENT, AT THE END OF 3 YEARS THERE ARE NO SUCH CURRENT AWARDS/PROJECTS AUTHORIZED, THE ENDOWMENT'S INCOME CAN THEN BE USED, TEMPORARILY, FOR ALS-RELATED RESEARCH ANYWHERE IN THE UNITED STATES (UNTIL SUCH TIME THAT ST. LOUIS AWARDS ARE SUBSEQUENTLY DETERMINED, AT WHICH POINT, THE ENDOWMENT INCOME WILL AGAIN BE APPLIED IN ST. LOUIS). THE CLAUNCH ENDOWMENT: FUNDS FROM THE ENDOWMENT MAYBE INVESTED AT THE DISCRETION OF THE ORGANIZATION AND THE ORGANIZATION MAY USE THE ENDOWMENT'S INCOME UP TO 4% ANNUALLY IN ACCORDANCE WITHIN THE CHAPTER'S POLICIES. EARNINGS IN EXCESS OF 4% ANNUALLY SHALL BE DEEMED PERMANENTLY RESTRICTED. ALL ASSETS WILL BE MOVED TO THE NATIONAL ORGANIZATION. THOUGH THIS ORGANIZATION STILL HOLDS TWO ENDOWMENTS, THE RESTRICTIONS HAVE MOVED TO THE NATIONAL ORGANIZATION. THE ENDOWMENT FUNDS WILL BE TRANSFERED AS WELL. PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM INCOME TAXES PURSUANT TO SECTION 501(C)(3)OF THE INTERNAL REVENUE SERVICE CODE. THEREFORE, NO PROVISION IS MADE FOR TAXES ON INCOME. ON JULY 1,2010, THE ORGANIZATION ADOPTED THE PROVISIONS OF FASB ASC 740 (FORMERLY FIN 48) ACCOUNTING FOR UNCERTAINTY IN INCOME TAXES. FASB ASC 740 REQUIRES THAT A TAX POSITION BE RECOGNIZED OR DERECOGNIZED BASED ON A "MORE LIKELY THAN NOT" THRESHOLD. THIS APPLIES TO POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE IMPLEMENTATION OF FASB ASC 740 HAD NO IMPACT ON THE ORGANIZATION'S STATEMENT OF FINANCIAL POSITION OR STATEMENT OF ACTIVITIES. THE ORGANIZATION DOES NOT BELIEVE ITS FINANCIAL STATEMENTS INCLUDE (OR REFLECT) ANY UNCERTAIN TAX POSITIONS. THE ORGANIZATION'S FORMS 990,RETURN OF ORGANIZATION EXEMPT FROM INCOME TAX, FOR THE YEARS ENDING IN 2018, 2019 AND 2020 COULD BE SUBJECT TO EXAMINATION BY THE IRS, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. WALK TO DEFEAT ALS 423973 365113 58860 58860 GALA EVENT 6500 6500 2000 75265 848 2 71590 54290 17300 531 16769 502063 425903 76160 2000 75796 76477 154273 -78113 1 NUTRITIONAL SUPPLEMENT 79 0 11945 FMV SUPPLEMENT LIQUID NUTRITION AND SUPPLEMENT THICKENING AGENT PATIENT ASSIST/JANE'S ANGEL FUND GRANTS 106 0 56096 FMV FINANCIAL ASSISTANCE FOR ADDITIONAL RESPITE, HOME MODIFICATIONS, EQUIPMENT, MEDICAL COPAYS, PRESCRIPTIONS AND OTHER EMERGENCY NEEDS RESPITE CARE 44 0 35705 FMV HOME HEALTH CARE COMMUNICATION EQUIPMENT/LOAN CLOSET 154 0 10756 FMV SPEECH/AT COMPUTER/POWER CHAIRS/DURABLE MED EQUIPMENT CLINIC SUPPORT 248 0 12500 FMV CLINIC SUPPORT COUNSELING AND THERAPIES 4 0 255 FMV COUNSELING PATIENTS, OT, PT, SEAT ELEVATORS PART I, LINE 2: THE CARE SERVICE TEAM ASSESSES THE NEED FOR ALL PATIENTS AND CARE SERVICES COORDINATORS DECIDE WHAT TYPE OF ASSISTANCE IS NEEDED BASED ON PHYSICIAN ORDERS AND CLINIC RECOMMENDATIONS FOR ALL NUTRITIONAL SUPPLEMENT, EQUIPMENT, HOME HEALTH CARE AND THERAPIES. ALL OTHER ASSISTANCE IS BASED ON THE CARE SERVICE TEAM GUIDELINES AND DIRECTOR OF CARE SERVICES DETERMINATION. THE DIRECTOR OF CARE SERVICES AND THE CEO ARE CO-SIGNERS OF ALL DISBURSEMENTS WITH THE BOARD OF DIRECTORS' OVERSIGHT. STEVE ZIEGLER BOARD MEMBER 2209 DISBURSEMENT FROM ANGEL FUND AND GRANT REIMBURSEMENT FOR ALS DIAGNOSIS EXPENSES X 94 16163 TREAS. REG. 20.2031-2 X WHEELCHAIRS 10 171505 APPRAISAL X COMMUNICATION DEVICES 5 65500 APPRAISAL OTHER 0 0 14 0 0 0 CASH 2022-07-31 576892 BOOK VALUE 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION 1275 K STREET NW STE 1050 WASHINGTON DC 20005 501(C)(3) CONTRIBUTIONS RECEIVABLE 2022-07-31 347635 BOOK VALUE 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION 1275 K STREET NW STE 1050 WASHINGTON DC 20005 501(C)(3) ACCOUNTS RECEIVABLE 2022-07-31 133871 BOOK VALUE 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION 1275 K STREET NW STE 1050 WASHINGTON DC 20005 501(C)(3) FIXED ASSETS NET ACCUMULATED DEPRECIATION 2022-07-31 661455 COST LESS ACCUMULATED DEPRECIATION 133271855 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION 1275 K STREET NW STE 1050 WASHINGTON DC 20005 501(C)(3) 0 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B AN ELECTRONIC COPY OF THE 990 WAS REVIEWED AND APPROVED BY THE BOARD OF DIRECTORS BEFORE FILING. FORM 990, PART VI, SECTION B, LINE 12C ON AN ANNUAL BASIS EMPLOYEES AND BOARD OF DIRECTORS MUST READ AND SIGN A STATEMENT OF DUALITY THAT STATES WHETHER OR NOT THEY HAVE ANY OUTSIDE INTERESTS OR ACTIVITIES THAT MIGHT CAUSE A CONFLICT OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15A THE BOARD OF DIRECTORS APPROVE ALL SALARIES, RAISES, AND DISCRETIONARY BONUSES, IF APPLICABLE, BASED ON PERFORMANCE/OPERATIONS DURING THE FISCAL YEAR. FORM 990, PART VI, SECTION C, LINE 19 THESE DOCUMENTS ARE AVAILABLE UPON REQUEST. AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION 1275 K STREET NW STE 1050 WASHINGTON DC 20005 133271855 ALS RESEARCH DE 501(C)(3) LINE 7 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 1 0 AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION M 9091 CASH PAYMENTS AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION R 153899 CASH PAYMENTS AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION B 3530893 CASH PAYMENTS AMYOTROPHIC LATERAL SCLEROSIS ASSOCIATION R 1470059 ASSET COST NET LIAB ASSUMED