2024-11-15T09:31:22-06:00 2023-12-31 990 2023-01-01 274464618 WESCOE FOUNDATION FOR PULMONARY FIBROSIS WESC 4845536340 229 N MAIN STREET COOPERSBURG PA 18036 JENNIFER SINGLEY EXECUTIVE DIRECTOR 4845536340 2024-11-14 0 2023 2024-10-15 13:58:12Z JENNIFER SINGLEY 229 N MAIN STREET COOPERSBURG PA 18036 221402 0 X WWW.WESCOE.ORG X 2009 PA THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS PROVIDES SUPPORT, EDUCATION, ADVOCACY AND RESOURCES FOR PATIENTS LIVING WITH IDIOPATHIC PULMONARY FIBROSIS (IPF), THEIR FAMILIES AND CARE PARTNERS IN ORDER TO SUSTAIN THE HIGHEST POSSIBLE QUALITY OF LIFE. 6 6 4 25 0 0 170796 207299 0 0 27 25 -17088 -11110 153735 196214 0 0 0 0 94709 93671 0 0 36057 182238 103120 276947 196791 -123212 -577 15904 15327 0 0 15904 15327 X THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS PROVIDES SUPPORT, EDUCATION, ADVOCACY AND RESOURCES FOR PATIENTS LIVING WITH IDIOPATHIC PULMONARY FIBROSIS (IPF), THEIR FAMILIES AND CARE PARTNERS IN ORDER TO SUSTAIN THE HIGHEST POSSIBLE QUALITY OF LIFE. 0 0 7585 SUPPORT GROUPS: THROUGH OUR SUPPORT GROUPS, THE WESCOE FOUNDATION FOR PULMONARY FIBROSIS CONNECTS PATIENTS, CARE PARTNERS AND FAMILIES TO ESSENTIAL EDUCATION, SUPPORT AND RESOURCES WHILE NAVIGATING PULMONARY FIBROSIS. WE HAVE EVOLVED FROM ONE SUPPORT GROUP IN THE LEHIGH VALLEY, PENNSYLVANIA AREA TO 18 SUPPORT GROUPS IN PENNSYLVANIA, NEW JERSEY, AND DELAWARE. WE HAVE TRANSITIONED OUR SUPPORT GROUPS TO A VIRTUAL PLATFORM AND MAINTAINED CONSISTENCY WITH ATTENDANCE AS WE PRIORITIZE THE NEEDS OF PATIENTS AND FAMILIES. TO GROW AND DEVELOP OUR PROGRAMMING, OUR COLLABORATIVE EFFORTS WITH MAJOR MEDICAL CENTERS AND AREA COMMUNITY HOSPITALS REMAIN STRONG WITH PATIENT AND COMMUNITY ENGAGEMENT. WE HAVE EXPANDED OUR GROUPS TO PRIORITIZE CARE PARTNER SUPPORT, LUNG TRANSPLANT EDUCATION, AND OVERALL MENTAL HEALTH. ADDITIONALLY, OUR SUPPORT GROUPS HAVE BEEN EXPANDED FURTHER TO INCLUDE WOMEN, VETERANS, AND GRIEF GROUPS. 91931 PA-IPF SUPPORT NETWORK: THE PA-IPF SUPPORT NETWORK IS A GRANT-FUNDED PROGRAM UNDER WESCOE FOUNDATION FOR PULMONARY FIBROSIS. THIS PROGRAM IS A NEW, ONE-OF-ITS-KIND, ONLY STATE-WIDE IPF SUPPORT NETWORK THAT EXISTS IN THE UNITED STATES. WE HAVE INCORPORATED CENTERS OF EXCELLENCE TO CONTINUE EFFECTIVE EDUCATION AND SUPPORT THROUGHOUT PENNSYLVANIA. LED BY LEADING EXPERTS, WE HOLD A MONTHLY PULMONARY FIBROSIS PODCAST ON ALL TOPICS DEALING WITH PULMONARY FIBROSIS. THE SUPPORT NETWORK ALSO PROVIDES PATIENT AND PROVIDER CHECKLISTS, PATIENT GUIDES, AND OTHER VALUABLE, PRACTICAL TOOLS FOR PATIENTS AND FAMILIES. WE HAVE LED A VERY SUCCESSFUL PULMONARY FIBROSIS AWARENESS CAMPAIGN THROUGH IPF COMMUNITY AWARENESS EVENTS, PASSING OF PA SENATE RESOLUTION DESIGNATING A WEEK IN SEPTEMBER AS RESEARCH AND AWARENESS WEEK, AND LIGHTING 30 PROMINENT LANDMARKS AND 22 PULMONARY REHABILITATION CENTERS BLUE. AS PART OF THE SUPPORT NETWORK, WE HAVE CREATED AN INNOVATIVE WEB APPLICATION TO CONNECT PATIENTS AND FAMILIES TO SUPPORTIVE CARE AND EDUCATION RESOURCES. 99516 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 4 1 0 0 0 0 0 0 0 0 0 0 X 6 6 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 0 1 1 0 PA X KYLE ELSENBAUMER 6107514104 229 N MAIN ST COOPERSBURG PA 18036 JENNIFER WESCOE SINGLEY EXECUTIVE DIRECTOR 50.00 X X 45000 0 0 TRISHA COLASURDO VICE PRESIDENT 1.00 X X 0 0 0 JENNIFER FERNANDES FORMER SECRETARY 1.00 X X 0 0 0 GERARD PETERSEN PRESIDENT 1.00 X X 0 0 0 KYLE ELSENBAUMER TREASURER 1.00 X X 0 0 0 MIKE PFEIFFER BOARD MEMBER 1.00 X 0 0 0 DOUGLAS CORWIN BOARD MEMBER 1.00 X 0 0 0 DENNIS MCGORRY BOARD MEMBER 1.00 X 0 0 0 45000 0 0 0 0 0 0 0 39296 150000 18003 207299 25 25 14078 39296 25188 -11110 -11110 196214 0 0 -11085 45000 22500 13500 9000 42014 21007 12604 8403 6657 3329 1997 1331 1575 1575 4400 4400 1156 1156 23870 11935 7161 4774 28815 14408 8644 5763 7150 3575 2145 1430 770 385 231 154 9934 4967 2980 1987 2016 1009 605 402 3255 1628 976 651 SUPPORT GROUPS 7585 7585 SUPPLIES 6124 3062 1837 1225 MEMBERSHIPS 2410 1205 723 482 MISCELLANEOUS 2125 1062 638 425 1935 1859 46 30 196791 99516 61218 36057 13209 14648 6528 5849 2695 679 15904 15327 0 0 X 15904 15327 15904 15327 15904 15327 -577 0 X 1 X 0 0 0 X 99373 202093 177456 170796 207299 857017 9901 4240 8500 22641 109274 206333 185956 170796 207299 879658 0 0 0 879658 6 22 33 27 25 113 6 22 33 27 25 113 35 264 299 109315 206355 186253 170823 207324 880070 0.99950 0.99910 0.00010 0.00010 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 6528 5849 679 679 COOPERSBURG 5K 25063 16185 8878 16824 GOLF EVENT 23535 18335 5200 7658 1 4776 4776 1055 53374 39296 14078 25537 25537 -11459 FORM 990, PART VI, SECTION B, LINE 11B THE BOARD TREASURER AND EXECUTIVE DIRECTOR REVIEW THE 990 AND DISSEMINATE IT TO THE ENTIRE BOARD OF DIRECTORS FOR DISCUSSION AND APPROVAL BEFORE SUBMITTING IT TO THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ALL DIRECTORS REVIEW/SIGN CONFLICT OF INTEREST POLICY AT ANNUAL MEETING. FORM 990, PART VI, SECTION B, LINE 15 THE PROCESS FOR DETERMINING COMPENSATION INCLUDES A REVIEW AND APPROVAL BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 18 FORM 1023 AND FORM 990 ARE MADE AVAILABLE UPON REQUEST. FORM 990 IS ALSO AVAILABLE ON GUIDESTAR. FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST,