2024-11-12T12:06:24-05:00 2023-12-31 461410019 LA CROSSE CPAS LLC 1425 STATE ROAD 16 STE A LA CROSSE WI 54601 990 2023-01-01 411826063 AMERICAN NEUROMUSCULAR FOUNDATION AMER 5072880100 2621 SUPERIOR DRIVE NW ROCHESTER MN 55901 SHIRLYN ADKINS EXECUTIVE DIRECTOR 5072880100 2024-11-07 true true DEREK WILBER CPA P01829150 6084339884 2024-11-11 X 2023 2024-10-15 13:58:12Z SHIRLYN ADKINS 2621 SUPERIOR DRIVE NW ROCHESTER MN 55901 876150 false X WWW.NEUROMUSCULARFOUNDATION.ORG X 1995 MN THE AMERICAN NEUROMUSCULAR FOUNDATION WAS ESTABLISHED TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH DISORDERS OF SKELETAL MUSCLE, NEUROMUSCULAR FUNCTION, AND CENTRAL AND PERIPHERAL NERVOUS SYSTEMS THROUGH THE PROMOTION OF RESEARCH AND EDUCATION AND ADVANCING PUBLIC UNDERSTANDING OF THE DISORDERS. IT WAS ORGANIZED TO CARRY OUT THE CHARITABLE, EDUCATIONAL, AND SCIENTIFIC ACTIVITIES OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM). 10 10 0 48 0 343368 462090 0 301560 395476 6910 644928 864476 282641 233082 0 0 0 13924 144548 183651 427189 416733 217739 447743 6618527 7274841 109114 59382 6509413 7215459 X THE AMERICAN NEUROMUSCULAR FOUNDATION WAS ESTABLISHED TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH DISORDERS OF SKELETAL MUSCLE, NEUROMUSCULAR FUNCTION, AND CENTRAL AND PERIPHERAL NERVOUS SYSTEMS THROUGH THE PROMOTION OF RESEARCH AND EDUCATION AND ADVANCING PUBLIC UNDERSTANDING OF THE DISORDERS. IT WAS ORGANIZED TO CARRY OUT THE CHARITABLE, EDUCATIONAL, AND SCIENTIFIC ACTIVITIES OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM). false false 199223 199223 THE AMERICAN NEUROMUSCULAR FOUNDATION FUNDS RESEARCH GRANTS IN THE AREA OF NEUROMUSCULAR MEDICINE. RESEARCH AWARDS ARE GIVEN TO ATTENDEES WHO SUBMIT WINNING ABSTRACTS AT THE AANEM ANNUAL MEETING (FUNDED BY THE ANF OR BY DONOR-RESTRICTED FUNDS. IN 2023, THERE WERE 82 ABSTRACT AWARDS. GRANT PAYMENTS ARE DISBURSED QUARTERLY TO CONTRACTED RESEARCHERS, 7 GRANT RECIPIENTS WERE PAID IN 2023 146955 THE ANF CREATED THE LATE ONSET NEUROMUSCULAR DISEASE CONSORTIUM IN 2022. THE ANF CONVENED NEARLY 25 STAKEHOLDERS INCLUDING PATIENT ADVOCACY ORGANIZATIONS, INDUSTRY, AND CLINICIANS TO BEGIN TO IDENTIFY COMMON CHALLENGES AND POTENTIAL WORKSTREAMS FOR FUTURE CROSS-STAKEHOLDER COLLABORATION. THE LONDC IS FOCUSED ON PROJECTS TO DRIVE AWARENESS, IMPROVE EDUCATION, AND ADDRESS GAPS IN CARE. THE STAKEHOLDERS AND KEY OPINION LEADERS MET IN 2023 TO CONTINUE THE WORK OF THE LONDC. 33859 33859 AWARDS: THE AMERICAN NEUROMUSCULAR FOUNDATION SUPPORTS ITS EDUCATION AND RESEARCH GOALS BY FUNDING SEVERAL AWARDS EACH YEAR. EACH AWARD GIVES PHYSICIANS/INVESTIGATORS THE OPPORTUNITY TO BE RECOGNIZED AMONG THEIR PEERS FOR THEIR WORK IN RESEARCH. THE AWARDS GIVEN INCLUDE THE GOLSETH YOUNG INVESTIGATOR AWARD WHICH IS PRESENTED TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN EDX MEDICINE; THE BEST ABSTRACT AWARD IS PRESENTED TO THE WRITER AND RUNNER-UP OF THE ABSTRACT JUDGED BY THE AANEM ABSTRACT REVIEW COMMITTEE AS THE BEST BASED ON SCIENTIFIC MERIT, WELL WRITTEN, EXCELLENT DISCUSSION, IMPORTANCE TO THE FIELD,AND/OR FASCINATING CASE; THE PRESIDENT'S RESEARCH INITIATIVE AWARD IS BASED ON ABSTRACTS PERTAINING TO AN AREA OF INTEREST OF THE PRESIDENT; THE RESIDENT/FELLOW MEMBER RECOGNITION AWARD IS GIVEN TO AANEM PHYSICIAN-IN-TRAINING MEMBERS WHO ARE THE FIRST AND PRESENTING AUTHOR ON AN APPROVED ABSTRACT TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN THE FIELDS OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE; THE OLNEY LECTURESHIP AWARD IS GIVEN TO THE PERSON CHOSEN TO PRESENT THE TITLED PLENARY SESSION AT THE AANEM ANNUAL MEETING; THE TECHNOLOGIST RECOGNITION AWARD IS GIVEN TO AANEM TECHNOLOGIST MEMBERS TO ENCOURAGE THEM TO TAKE A LEADING ROLE IN CONDUCTING RESEARCH IN NEUROMUSCULAR AND EDX MEDICINE. THE LAMBERT AWARD FOR PRESENTATION WAS ALSO GIVEN. THE MEDICAL STUDENT AWARD IS ALSO GIVEN. 380037 true true false false false true false false false true false false false false false false false true false false false false true false true false false true true true false false false false false false false false false false false false false true false false false true 1 0 0 false false false false false true true false false false false false false X 10 10 false false false false false false false true true false false true true true true true true true false false MN X SHIRLYN ADKINS 5072880100 2621 SUPERIOR DRIVE NW ROCHESTER MN 55901 SHIRLYN ADKINS EXECUTIVE DI 5.00 40.00 X 0 273837 29149 JACOB SOKOL IT DIRECTOR 0.25 45.00 X 0 150125 16929 JAY SCHWINEFUS MEMBERSHIP & 0.25 45.00 X 0 131501 29113 MICHELLE JONES MTG, CORP,& 2.00 45.00 X 0 126949 25692 MILLIE SUK HLTH, POL & 0.02 45.00 X 0 126377 21666 SAMUEL BIERNER DIRECTOR X 0 0 0 MICHAEL CARTWRIGHT DIRECTOR X 0 0 0 ANTHONY CHIODO HISTORIAN/FI X 0 0 0 LAURA CORRIGAN DIRECTOR X 0 0 0 ROBERT IRWIN PAST PRESIDE X X 0 0 0 MONIKA KRZESNIAK-SWINARSKA DIRECTOR X 0 0 0 JOHN MORREN DIRECTOR X 0 0 0 DEVON RUBIN SECRETARY/TR X X 0 0 0 MICHAEL SKOLKA YOUNG LEADER X 0 0 0 FAYE TAN PRESIDENT EL X X 0 0 0 AMBER VOCELLE YOUNG LEADER X 0 0 0 BENJAMIN WARFEL DIRECTOR X 0 0 0 808789 122549 false true false SMITHSOLVE LONDC SERVICES 146955 1 11674 150000 300416 11674 462090 347862 347862 47614 47614 47614 47614 18584 11674 11674 6910 6910 864476 402386 199223 199223 26559 26559 7300 7300 146955 146955 22763 22763 2250 2250 MISCELLANEOUS EXPENSES 9 9 11674 11674 416733 380037 22772 13924 X 53179 238025 208069 53433 6357279 6983383 6618527 7274841 36570 25000 72544 34382 109114 59382 X 6301344 6877420 208069 338039 6509413 7215459 6618527 7274841 447743 258303 X X false true X true false X X 1 AMERICAN ASSN OF NEUORMUSCULAR & ELECTRODIAGNOSTIC MEDICINE 416036691 10 true 150000 287105 1 150000 287105 true false true true true false false false false false false false false false false false false true PART IV, SECTION A, LINE 3B THE SUPPORTED ORGANIZATION, AANEM, IS A RELATED ORGANIZATION MANAGED BY THE SAME BOARD OF DIRECTORS AND SUPPORTED BY THE SAME STAFF, SO THE RECORDS ARE REVIEWED ON AN ON-GOING BASIS. SUPPORT PROVIDED IS REVIEWED TO ENSURE IT IS FOR THE CHARITABLE SCIENTIFIC, AND/OR EDUCATIONAL PURPOSES OF THE AANEM. PART IV, SECTION A, LINE 3C SUPPORT PROVIDED IS REVIEWED TO ENSURE IT IS FOR THE CHARITABLE SCIENTIFIC, AND/OR EDUCATIONAL PURPOSES OF THE AANEM. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 3 2 150000 338093 6645290 true true 6357279 648988 22884 6983383 7380798 291098 -999489 291554 23575 6357279 5431633 1539989 581810 151296 21338 7380798 4666996 775490 10853 5431633 3982813 75000 685279 62689 13407 4666996 0.95000 0.05000 false false SCHEDULE D, PAGE 2, PART V, LINE 4 THE AMERICAN NEUROMUSCULAR FOUNDATION HAS TWO BOARD-DESIGNATED ENDOWMENT FUNDS AND THREE DONOR-ADVISED FUNDS. THE FIRST IS THE OLNEY LECTURESHIP ENDOWMNET, WHICH WAS ESTABLISHED IN 2006 TO FUND THE SPEAKER CHOSEN TO PRESENT THE RICHARD K OLNEY LECTURE DURING A PLENARY SESSION AT THE AANEM ANNUAL MEETING. THE FMV OF THIS ACCOUNT IS 192,922. THE SECOND IS THE RESEARCH DESIGNATED ENDOWMENT, WHICH WAS ESTABLISHED IN 2016 TO FUND RESEARCH PROJECTS. THE FMV OF THIS ACCOUNT IS 6,452,367. THERE ARE THREE DONOR-ADVISED FUNDS: GOLSETH DONOR-ADVISED FUND, WHICH WAS ESTABLISHED IN 2004 TO FUND THE GOLSETH YOUNG INVESTIGATOR AWARD AND HAS A FMV OF 131,057. THE GOLSETH YOUNG INVESTIGATOR AWARD IS PRESENTED ANNUALLY FOR ORIGINAL RESEARCH IN NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE TO ENCOURAGE MEDICAL STUDENTS TO CONDUCT RESEARCH. LAMBERT LECTURESHIP ENDOWMENT, WHICH WAS ESTABLISHED IN 2015 TO FUND THE SPEAKER CHOSEN TO PRESENT THE LAMBERT LECTURE AT A PLENARY SESSION AT THE AANEM ANNUAL MEETING. THE FMV OF THIS ACCOUNT IS 144,378. SINGH LECTURESHIP ENDOWMENT, WHICH WAS ESTABLISHED IN 2019 TO FUND A EARLY CAREER PRESENTER FOR THE SINGH LECTURESHIP AT THE AANEM ANNUAL MEETING. THE FMV OF THIS ACCOUNT IS 62,658. RESIDENT / FELLOW INTERNATIONAL 4 800 INTR'L TRAVEL SCHOLARSHIP INTERNATIONAL 5 5000 MEDICAL STUDENT INTERNATIONAL 2 1000 PRESIDENT'S RESEARCH INIT INTERNATIONAL 1 500 false false false false false false SILENT AUCTION 30258 11674 18584 11674 30258 11674 18584 11674 11674 6910 true DUKE UNIVERSITY MEDICAL CENTER 2200 W MAIN STREET STE 300 DURHAM NC 27705 560532129 501C3 38955 FMV RESEARCH GRANTS REHABILITATION INSITITUTE OF CHICAGO D/B/A SHIRLEY RYAN ABILITYLAB - 355 E ERIE ST - CHICAGO IL 60611 362256036 501C3 37500 FMV RESEARCH GRANTS MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501C3 25000 FMV RESEARCH GRANTS UNIVERSITY OF ROCHESTER PO BOX 270140 ROCHESTER NY 146270140 386005984 501C3 10268 FMV RESEARCH GRANTS THE RESEARCH INSTITUTE OF NATIONWIDE CHILDRENS HOSPITAL DEPT 781653 PO BOX 78000 DETROIT MI 482781653 316056230 501C3 50000 FMV RESEARCH GRANTS NEW YORK UNIVERSITY TYLER NELSON DEVELOPMENT GRANT SPONSORED PROGRAM ADMINISTRACTION PO BOX 5166 NEW YORK NY 10087 135562308 501C3 12500 FMV RESEARCH GRANTS THE BRIGHAM AND WOMEN'S HOSPITAL ERIKA WILLIAMS GRANT 100 FEDERAL STREET BOSTON MA 02110 042312909 501C3 25000 FMV RESEARCH GRANTS 7 GOLSETH YOUNG INVESTIGATO 1 1000 PRES RESEARCH INITIATIVE 8 4000 OLNEY LECTURESHIP EXPENSE 1 1853 LAMBERT LECTURESHIP EXPEN 1 1853 SINGH LECTURESHIP EXPENSE 1 1353 MEDICAL STUDENT AWARDS 13 5500 RESIDENT & FELLOW AWARDS 54 10800 TECHOLOGIST RECOGNITION A 1 200 SCHEDULE I, PAGE 1, PART I, LINE 2 RESEARCH GRANTS (WHEN GIVEN) ARE ASSIGNED A STUDY MONITOR WHO REVIEWS THE GRANTEES PROGRESS ON THEIR RESEARCH. THE GRANTEE'S INSTITUTION MUST SUPPLY THE AMERICAN NEUROMUSCULAR FOUNDATION PROGRESS REPORTS INCLUDING GRANT EXPENDITURES. EXPENDITURES ARE COMPARED TO THE GRANT TO INSURE FUNDS ARE BEING SPENT APPROPRIATELY. GRANTS AND OTHER ASSISTANCE (AWARDS) PART III, LINES 2-5 ARE FIRST BASED ON SUBMISSION OF AN ABSTRACT THAT IS ACCEPTED/APPROVED BY THE AANEM ABSTRACT REVIEW COMMITTEE AND SUBCOMMITTEE. ADDITIONAL CRITERIA VARIES BASED ON THE AWARD. THE AWARDS ARE NOT PROVIDED UNTIL AFTER ALL CRITERIA FOR THE AWARD HAVE BEEN MET TO INSURE COMPLIANCE. THE OLNEY/LAMBERT/SINGH LECTURESHIP AWARD (PART III, LINE 1, 5) ARE GIVEN BASED ON INDIVIDUAL'S EXPERTISE ON A GIVEN SUBJECT MATTER, AND IS SELECTED BY THE PRESIDENT BASED ON THEIR CHOSEN CONCETRATION FOR THE MEETING. FUNDS ARE NOT DISPERSED UNTIL AFTER THE PRESENTATION IS GIVEN. false false false false false false false false false SHIRLYN ADKINS EXECUTIVE DIRECTOR 263837 10000 29149 302986 JACOB SOKOL IT DIRECTOR 142545 7580 16929 167054 JAY SCHWINEFUS MEMBERSHIP & MARKETI 128794 2707 29113 160614 MICHELLE JONES MTG, CORP,& FDN DIR. 121452 5497 25692 152641 FORM 990 - ORGANIZATION'S MISSION THE AMERICAN NEUROMUSCULAR FOUNDATION WAS ESTABLISHED TO IMPROVE THE QUALITY OF CARE FOR PEOPLE WITH DISORDERS OF SKELETAL MUSCLE, NEUROMUSCULAR FUNCTION, AND CENTRAL AND PERIPHERAL NERVOUS SYSTEMS THROUGH THE PROMOTION OF RESEARCH AND EDUCATION AND ADVANCING PUBLIC UNDERSTANDING OF THE DISORDERS. IT WAS ORGANIZED TO CARRY OUT THE CHARITABLE, EDUCATIONAL, AND SCIENTIFIC ACTIVITIES OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM). FORM 990, PAGE 2, PART III, LINE 4C AWARDS: THE AMERICAN NEUROMUSCULAR FOUNDATION SUPPORTS ITS EDUCATION AND RESEARCH GOALS BY FUNDING SEVERAL AWARDS EACH YEAR. EACH AWARD GIVES PHYSICIANS/INVESTIGATORS THE OPPORTUNITY TO BE RECOGNIZED AMONG THEIR PEERS FOR THEIR WORK IN RESEARCH. THE AWARDS GIVEN INCLUDE THE GOLSETH YOUNG INVESTIGATOR AWARD WHICH IS PRESENTED TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN EDX MEDICINE; THE BEST ABSTRACT AWARD IS PRESENTED TO THE WRITER AND RUNNER-UP OF THE ABSTRACT JUDGED BY THE AANEM ABSTRACT REVIEW COMMITTEE AS THE BEST BASED ON SCIENTIFIC MERIT, WELL WRITTEN, EXCELLENT DISCUSSION, IMPORTANCE TO THE FIELD,AND/OR FASCINATING CASE; THE PRESIDENT'S RESEARCH INITIATIVE AWARD IS BASED ON ABSTRACTS PERTAINING TO AN AREA OF INTEREST OF THE PRESIDENT; THE RESIDENT/FELLOW MEMBER RECOGNITION AWARD IS GIVEN TO AANEM PHYSICIAN-IN-TRAINING MEMBERS WHO ARE THE FIRST AND PRESENTING AUTHOR ON AN APPROVED ABSTRACT TO ENCOURAGE YOUNG PHYSICIANS TO CONDUCT RESEARCH IN THE FIELDS OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE; THE OLNEY LECTURESHIP AWARD IS GIVEN TO THE PERSON CHOSEN TO PRESENT THE TITLED PLENARY SESSION AT THE AANEM ANNUAL MEETING; THE TECHNOLOGIST RECOGNITION AWARD IS GIVEN TO AANEM TECHNOLOGIST MEMBERS TO ENCOURAGE THEM TO TAKE A LEADING ROLE IN CONDUCTING RESEARCH IN NEUROMUSCULAR AND EDX MEDICINE. THE LAMBERT AWARD FOR PRESENTATION WAS ALSO GIVEN. THE MEDICAL STUDENT AWARD IS ALSO GIVEN. FORM 990, PAGE 6, PART VI, LINE 11B A COMPLETED COPY OF FORM 990 AND ALL RELATED SCHEDULES IS REVIEWED IN DETAIL BY THE EXECUTIVE DIRECTOR. AFTER THE REVIEW, FORM 990 AND ALL RELATED SCHEDULES ARE EMAILED TO THE BOARD OF DIRECTORS FOR THEIR REVIEW AND INPUT PRIOR TO FILING WITH THE IRS. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD OF DIRECTORS AND COMMITTEE MEMBERS ARE ASKED ANNUALLY TO DISCLOSE ANY CONFLICTS OF INTEREST THEY MAY HAVE. AT EACH BOARD OR COMMITTEE MEETING, THOSE PRESENT ARE AGAIN ASKED TO DISCLOSE ANY CONFLICTS OF INTEREST, BOTH VERBALLY AND IN WRITING. IF SOMEONE HAS A CONFLICT OF INTEREST ON A TOPIC OF DISCUSSION, THEY ARE ASKED TO EITHER LEAVE THE ROOM OR REFRAIN FROM PARTICIPATING IN THE DISCUSSION AND ABSTAIN FROM VOTING ON THE TOPIC. FORM 990, PAGE 6, PART VI, LINE 15A THE FINANCE COMMITTEE OF THE AANEM, HEADED BY THE SECRETARY-TREASURER, COMPLETES AN EVALUATION/FORMAL REVIEW PROCESS FOR THE EXECUTIVE DIRECTOR AND/OR ANY OTHER KEY EMPLOYEE OR OFFICER DEEMED NECESSARY ANNUALLY. THE SECRETARY-TREASURER OBTAINS INPUT FROM KEY MEMBERS OF THE ORGANIZATION THAT MAY INCLUDE THE BOARD PRESIDENT, OTHER BOARD MEMBERS, AND STAFF THROUGH DISCUSSIONS, EMAILS AND/OR WRITTEN REVIEW FORM. AFTER COMPLETION AND DISCUSSION OF THE EVALUATION, THE FINANCE COMMITTEE REVIEWS COMPARABLE COMPENSATION INFORMATION FOR SIMILARLY QUALIFIED PERSONS IN FUNCTIONALLY COMPARABLE POSITIONS AT SIMILARLY SITUATED ORGANIZATIONS FROM 990S AND/OR SALARY SURVEYS. THE FINANCE COMMITTEE THEN RECOMMENDS A COMPENSATION PACKAGE AND SUBMITS IT TO THE BOARD OF DIRECTORS FOR APPROVAL. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FORMS, AND FORM 990 ARE AVAILABLE FOR PUBLIC INSPECTION AT THE CORPORATE OFFICE LOCATED AT 2621 SUPERIOR DR NW ROCHESTER, MN 55901. THE DOCUMENTS MAY ALSO BE OBTAINED THROUGH A WRITTEN REQUEST. FORM 990, PART X THE FOUNDATION IS EXEMPT FROM FEDERAL AND STATE TAXES UNDER 501(C)(3) OF THE INTERNAL REVENUE CODE AND SIMILAR STATE STATUTES AND CONSEQUENTLY, RECORDS NO PROVISION FOR INCOME TAXES. FORM 990, PART XI THE AUDITED FINANCIAL STATEMENTS INCLUDE THE TOTAL REVENUES, GAINS AND OTHER SUPPORT OF THE AMERICAN ASSOCIATION OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE (AANEM), WHICH IS AN AFFILIATED SUPPORTED 501 (C)(6) ORGANIZATION WITH THE SAME BOARD OF DIRECTORS, MINUS THE PUBLIC MEMBER. THE 150,000 RECEIVED FROM AANEM WAS ELIMINATED FROM THE CONSOLIDATED FINANCIAL STATEMENTS AND NEEDS TO BE ADDED BACK TO ARRIVE AT THE FOUNDATION'S TOTAL REVENUE. FORM 990, PART XII THE AUDITED FINANCIAL STATEMENTS INCLUDE THE TOTAL EXPENSES AND LOSSES OF AANEM. AMERICAN ASSC OF NEUROMUSCULAR & ELECTRODIAGNOSTIC MEDICINE 2621 SUPERIOR DRIVE ROCHESTER MN 55901 416036691 PROFESSION MN 501C6 N/A false false false true false false false false false false false false false true true true true false false false AANEM C 161674 FMV AANEM M 175000 FMV