2024-11-12T10:16:23-06:00 2024-06-30 560587513 HAIGH BYRD & LAMBERT LLP PO BOX 53349 FAYETTEVILLE NC 283053349 990 2023-07-01 561273974 BLEEDING DISORDERS FOUNDATION OF NORTH CAROLINA HEMO 9193190014 260 TOWN HALL DRIVE A MORRISVILLE NC 27560 KARYN DAVIS PRESIDENT 9193190014 2024-11-01 1 0 STEPHEN G TERRY P00093449 9104831437 2024-11-01 2023 2024-10-15 13:58:12Z KARYN DAVIS 260 TOWN HALL DRIVE A MORRISVILLE NC 27560 807839 0 X WWW.BLEEDINGDISORDERSNC.ORG X 1977 NC DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES. 11 11 4 0 0 0 467798 620713 10000 29400 32103 58421 134991 65172 644892 773706 65935 56157 0 0 215252 259734 0 0 48683 299782 323702 580969 639593 63923 134113 1084537 1217841 11091 10282 1073446 1207559 DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES. 0 0 490463 472019 BLEEDING DISORDERS FOUNDATION OF NC PROVIDES EDUCATION TO HELP PEOPLE WITH BLEEDING DISORDERS AVOID DEBILITATING COMPLICATIONS AND LIVE LONGER, MORE ACTIVE AND HEALTHIER LIVES; CONDUCTS ADVOCACY INITIATIVES AT LOCAL AND NATIONAL LEVELS TO HELP ENSURE ACCESS TO MEDICAL CARE AND EQUITABLE INSURANCE REIMBURSEMENT FOR ALL; BUILDS AWARENESS OF BLEEDNG DISORDERS AND PROMOTES EARLY DIAGNOSIS; ADVOCATES AND CREATES AWARENESS FOR BLOOD SAFETY AND HELPS TO FUND AND PROMOTE RESEARCH TOWARD BETTER TREATMENTS AND CURES. 11179 BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES A QUARTERLY NEWSLETTER, THE CONCENTRATE, THAT IS DISTRIBUTED TO MEMBERS, THE MEDICAL COMMUNITY AND OTHER INTERESTED PARTIES. INFORMATION IN THE NEWSLETTER CONTAINS ARTICLES ON RELEVANT TOPICS TO THE BLEEDING DISORDERS COMMUNITY, UPDATES ON PROGRAMS AND SERVICES AND HIGHLIGHTS OF COMMUNITY MEMBERS. BASED ON INFORMATION RECEIVED FROM THE MEMBERSHIP, THE NEWSLETTER IS THEIR PRIMARY SOURCE OF INFORMATION. IN ADDITION TO THE NEWSLETTER, BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES FLYERS WITH INFORMATION ABOUT UPCOMING PROGRAMS AND SERVICES. 56157 56157 THE BLEEDING DISORDERS FOUNDATION OF NC FINANCIAL ASSISTANCE PROGRAM IS PART OF THE ORGANIZATION'S CONTINUING EFFORT TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS. THIS PROGRAM PROVIDES FUNDS TO ELIGIBLE INDIVIDUALS AND FAMILIES WHO NEED ASSISTANCE WITH EXPENSES INCURRED IN THE CARE, TREATMENT OR PREVENTION OF A BLEEDING DISORDER, AND/OR BASIC LIVING EXPENSES. 557799 1 1 0 0 0 0 0 0 0 0 1 1 0 0 0 0 1 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 3 0 1 4 1 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 X X THE ORGANIZATION 9193190014 260 TOWN HALL DRIVE A MORRISVILLE NC 27560 STEVEN HUMES PRESIDENT 2.00 X X 0 0 0 ANN SKINNER BOARD MEMBER 2.00 X 0 0 0 KATHY REGISTER TREASURER 2.00 X X 0 0 0 KARYN DAVIS BOARD MEMBER 2.00 X X 0 0 0 ELLEN KEARNEY BOARD MEMBER 2.00 X 0 0 0 ARLETTE WHITAKER BOARD MEMBER 2.00 X 0 0 0 CHERI CLARK BOARD MEMBER 2.00 X 0 0 0 DANIEL GOUGHERTY BOARD MEMBER 2.00 X 0 0 0 ERIN OTEY BOARD MEMBER 2.00 X 0 0 0 GUILLERMO SANCHEZ BOARD MEMBER 2.00 X 0 0 0 ANITA SMITH BOARD MEMBER 2.00 X 0 0 0 CHARLENE COWELL EXECUTIVE DIRECTOR 40.00 X 94107 0 0 94107 0 0 0 0 0 0 0 620713 620713 AD INCOME AND FEES 900099 29400 29400 29400 58421 58421 80501 34133 46368 46368 18804 18804 18804 773706 48204 0 104789 56157 56157 230935 184749 18476 27710 11893 9515 951 1427 16906 13525 1352 2029 19650 14245 2922 2483 75 75 31050 24498 2689 3863 9814 5888 981 2945 14861 7431 7430 170638 170638 5689 3701 1192 796 3307 3307 ADVOCACY 37454 37454 SCHOLARSHIPS 13800 13800 NEWSLETTERS/FLYERS 12420 11179 1241 EDUCATION/TRAINING 3669 3669 1275 1275 639593 557799 33111 48683 160407 104305 558685 529177 3248 3322 31060 17679 19070 13381 343127 567656 1084537 1217841 11091 10282 11091 10282 X 992482 1137928 80964 69631 1073446 1207559 1084537 1217841 134113 0 X 0 1 X 1 0 X 377312 359433 447561 477798 650113 2312217 377312 359433 447561 477798 650113 2312217 2312217 3644 24515 -12455 32103 58421 106228 17035 54135 3500 3970 18804 97444 2515889 822850 0.91900 0.93410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 31060 17679 13381 13381 VANGUARD SHORT TERM RESERVES 567656 F 567656 807839 0 807839 -34133 -34133 773706 673726 0 673726 -34133 -34133 639593 PART XI, LINE 4B - OTHER ADJUSTMENTS: DIRECT EXPENSES OF SPECIAL EVENTS PART XII, LINE 4B - OTHER ADJUSTMENTS: DIRECT EXPENSES OF SPECIAL EVENTS HEMOPHILIA WALKS/FESTIVALS 80501 80501 34133 80501 80501 34133 34133 46368 1 ASSISTANCE PROGRAMS INCLUDING: EMERGENCY FINANCIAL ASSISTANCE (RENT, UTILITIES, ETC.), MEDICAL IDS, SEATBELT STRAPS, AND TRANSPORTATION ASSISTANCE FOR PATIENTS TO THE HEMOPHILIA TREATMENT CENTERS. 500 56157 ACTUAL CASH PAYMENTS FORM 990, PART VI, SECTION B, LINE 11B THE BOARD WAS PROVIDED A DRAFT OF THE FORM 990 FOR THEIR REVIEW PRIOR TO THE SUBMISSION OF THE FORM. FORM 990, PART VI, SECTION B, LINE 12C THE CONFLICT OF INTEREST STATEMENT AND POLICY ARE REVIEWED AND SIGNED BY THE BOARD MEMBERS ANNUALLY AT A QUARTERLY FACE-TO-FACE MEETING. EVERY NEW EMPLOYEE RECEIVES AND SIGNS A CONFLICT OF INTEREST STATEMENT DURING ORIENTATION. ALL EMPLOYEES REVIEW AND SIGN THE CONFLICT OF INTEREST STATEMENT ANNUALLY. FORM 990, PART VI, SECTION B, LINE 15A THE PRESIDENT OF THE BOARD PERFORMS AN EVALUATION OF THE EXECUTIVE DIRECTOR AND PRESENTS IT TO THE FULL BOARD. THE BOARD THEN PERFORMS A REVIEW IN THE ABSENCE OF THE EXECUTIVE DIRECTOR. THE BOARD PREPARES THE FINAL EVALUATION WHICH IS SIGNED BY THE EXECUTIVE DIRECTOR AND KEPT IN THE EXECUTIVE DIRECTOR'S PERSONNEL FILE. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES INFORMATION AVAILABLE TO THE PUBLIC AT THE ORGANIZATION'S OFFICE UPON REQUEST AND ON THE ORGANIZATION'S WEBSITE.