2024-11-05T11:22:59-05:00 2023-12-31 880374623 HOULDSWORTH RUSSO & COMPANY PC 8675 S EASTERN AVE STE A LAS VEGAS NV 89123 990 2023-01-01 473169795 THE FAMILIESCN2A FOUNDATION INC FAMI 3012528070 PO BOX 4260 GETTYSBURG PA 17325 MICHAEL VASEY TREASURER 3105919145 2024-10-28 true JESSICA P SAYLES P01530213 7022699992 2024-11-05 2023 2024-10-15 13:58:12Z JENNIFER BURKE PO BOX 4260 GETTYSBURG PA 17325 1860699 false X WWW.SCN2A.ORG X 2015 MA THE FAMILIESCN2A IS DEDICATED TO FINDING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR SCN2A RELATED AUTISM AND EPILEPSY DISORDERS. THE FAMILIESCN2A FOUNDATION RAISES PUBLIC AWARENESS, PROVIDES PATIENT ADVOCACY, AND SUPPORTS CLINICAL RESEARCH, GENETIC RESEARCH, AND EARLY DETECTION. 10 9 3 20 0 1414320 1807341 72550 30994 22364 0 1486870 1860699 298568 738059 0 132433 223627 0 78035 559761 512039 990762 1473725 496108 386974 1757650 2153548 124841 121174 1632809 2032374 THE FAMILIESCN2A'S MISSION IS TO IMPROVE LIVES OF THOSE AFFECTED BY SCN2A RELATED DISORDERS THROUGH RESEARCH, PUBLIC AWARENESS, FAMILY SUPPORT AND PATIENT ADVOCACY. false false 1029614 738059 PROVIDING ADVANCED RESEARCH TOWARDS EARLY DETECTION, TREATMENTS, AND A CURE FOR SCN2A DISORDERS. 282119 88494 THE SUMMER SEMINAR IS A FAMILY-FOCUSED GATHERING, WHERE FAMILIES COME TOGETHER AND LEARN ABOUT SCN2A-RELATED TOPICS AND TREATMENTS, AS WELL AS SHARE EXPERIENCES. 13331 13331 1325064 true true false false false false false false false false false false false true false false true false false false false true false false false false false true false false false false false false false false false false true false false false false false false false false true 15 0 3 true false false false false false false false false false false false false X 10 9 true false false false false false false true true false false true true true true false true true false false CA MA PA X X FORTISS LLC 3234154917 1100 S FLOWER ST STE 3100 LOS ANGELES CA 90015 LEAH SCHUST MYERS EXECUTIVE DI 60.00 X 90000 0 0 CARLA FORBES ADMIN MANAGE 20.00 X 23575 0 0 JENNIFER BURKE CHAIR 5.00 X X 0 0 0 MERY OMAN VICE CHAIR 2.00 X X 0 0 0 MICHELLE LEWIS SECRETARY 5.00 X X 0 0 0 MICHAEL VASEY TREASURER 5.00 X X 0 0 0 CATALINA BETANCUR TRUSTEE 2.00 X 0 0 0 EMILY PARK TRUSTEE 2.00 X 0 0 0 MAURA BRAGG TRUSTEE 2.00 X 0 0 0 WILL HUTSON TRUSTEE 2.00 X 0 0 0 ROGER PREMO TRUSTEE 2.00 X 0 0 0 113575 false false false 1807341 105835 1807341 SUMMER CONFERENCE 611710 30994 30994 30994 22364 22364 1860699 30994 22364 731977 731977 6082 6082 113575 85181 5679 22715 92277 69209 4613 18455 17775 13331 889 3555 54097 27049 27048 69994 69994 18258 9129 4564 4565 37986 4208 12033 21745 26164 13082 13082 282119 282119 1168 1168 RESEARCH & DEVELOPMENT 10851 10851 MERCHANDISE 7000 7000 ASSISTANCE PROGRAMS 1577 1577 STAFF DEVELOPMENT 1150 575 575 1675 700 975 1473725 1325064 70626 78035 1196720 626948 30684 557369 281269 3561 9800 996908 207939 1757650 2153548 124841 121174 124841 121174 X 1190725 1251287 442084 781087 1632809 2032374 1757650 2153548 386974 12591 X false true X true false X 859862 605287 808341 1486870 1807341 5567701 859862 605287 808341 1486870 1807341 5567701 3225790 2341911 22364 22364 5590065 156453 0.41890 0.45450 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED REFUNDABLE ADVANCES 207939 207939 1873290 12591 12591 1860699 1860699 1473725 1473725 1473725 EUROPE RESEARCH GRANTS RESEARCH GRANTS 6082 SCN2A RESEARCH 6082 WIRE TRANSFER false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 6,082 0 SCHEDULE F, PAGE 5, PART V PART I, LINE 2: A WRITTEN SCIENTIFIC PROGRESS REPORT REGARDING THE PROJECT MUST BE SUBMITTED TO THE FOUNDATION SIX (6) MONTHS FROM THE EFFECTIVE DATE FOR THE RELEASE OF FUNDING AS DESCRIBED IN THE GRANT AGREEMENT. A FINAL SCIENTIFIC PROGRESS REPORT AND FINANCIAL REPORT DETAILING ALL EXPENDITURES FOR THE LIFE OF THE GRANT WILL BE DUE NO LATER THAN SIXTY (60) DAYS FOLLOWING THE EXPIRATION OR TERMINATION OF THE GRANT AS DESCRIBED IN THE FOUNDATION'S POLICY STATEMENT ON RESEARCH SUPPORT. IN ADDITION, ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO THE FOUNDATION TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. PART I, LINE 3: THE ACCRUAL ACCOUNTING METHOD IS USED TO ACCOUNT FOR EXPENDITURES. ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. ONCE EXPENSES ARE SUBSTANTIATED, A REFUNDABLE ADVANCE IS DETERMINED IF ADVANCES MADE DURING THE CALENDAR YEAR EXCEED EXPENSES INCLUDED IN THE ANNUAL FINANCIAL REPORT. true COMBINEDBRAIN 1510 OLD HICKORY BLVD BRENTWOOD TN 37027 831825692 501C3 5582 SCN2A RESEARCH TRUSTEES OF THE UNIVERSITY OF PENNSYLVANIA 3535 MARKET ST STE 750 PHILADELPHIA PA 19104 231352685 501C3 10645 SCN2A RESEARCH UNIVERSITY OF CALIFORNIA DAVIS 2825 50TH ST SACRAMENTO CA 95817 946036494 501C3 26009 SCN2A RESEARCH UNIVERSITY OF IOWA 201 S CLINTON ST IOWA CITY IA 52242 426004813 501C3 65942 SCN2A RESEARCH GLADSTONE INSTITUTES 1650 OWENS ST SAN FRANCISCO CA 94158 237203666 501C3 77948 SCN2A RESEARCH UNIVERSITY OF CALIFORNIA SAN FRANCISCO 490 ILLINOIS ST 4TH FLOOR SAN FRANCISCO CA 94143 946036493 501C3 120673 SCN2A RESEARCH PURDUE UNIVERSITY 207 S MARTIN JISCHKE DR WEST LAFAYETTE IN 47907 356002041 501C3 409160 SCN2A RESEARCH 7 SCHEDULE I, PAGE 1, PART I, LINE 2 A WRITTEN SCIENTIFIC PROGRESS REPORT REGARDING THE PROJECT MUST BE SUBMITTED TO THE FOUNDAITON SIX (6) MONTHS FROM THE EFFECTIVE DATE FOR THE RELEASE OF FUNDING DESCRIBED IN THE GRANT AGREEMENT. A FINAL SCIENTIFIC PROGRESS REPORT AND FINANCIAL REPORT DETAILING ALL EXPENDITURES FOR THE LIFE OF THE GRANT WILL BE DUE NO LATER THAN SIXTY (60) DAYS FOLLOWING THE EXPIRATION OR TERMINATION OF THE GRANT AS DESCRIBED IN THE FOUNDATION'S POLICY STATEMENT ON RESEARCH SUPPORT. IN ADDITION, ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO THE FOUNDATION TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. SCHEDULE I, PAGE 4, PART IV THE ACCRUAL ACCOUNTING METHOD IS USED TO ACCOUNT FOR EXPENDITURES. ANNUAL FINANCIAL REPORTS ARE SUBMITTED TO SUBSTANTIATE EXPENSES FOR THE APPLICABLE PERIOD. ONCE EXPENSES ARE SUBSTANTIATED, A REFUNDABLE ADVANCE IS DETERMINED IF ADVANCES MADE DURING THE CALENDAR YEAR EXCEED EXPENSES INCLUDED IN THE ANNUAL FINANCIAL REPORT. X 5 105835 FAIR MARKET VALUE false true true SCHEDULE M, PAGE 1, PART I, LINE 32B THE ORGANIZATION USED TD AMERITRADE TO SELL STOCK DONATIONS. FORM 990, PAGE 6, PART VI, LINE 2 EMILY PARK MICHAEL VASEY DIRECTOR TREASURER BUSINESS RELATIONSHIP FORM 990, PAGE 6, PART VI, LINE 11B THE RETURN IS FURNISHED TO THE FOUNDATION'S TREASURER FOR REVIEW AND SUBMITTED TO THE EXECUTIVE BOARD (EXECUTIVE DIRECTOR, CHAIR, VICE CHAIR, TREASURER, AND SECRETARY) FOR APPROVAL BEFORE THE RETURN IS SUBMITTED FOR FILING. FORM 990, PAGE 6, PART VI, LINE 12C ANY INTERESTS THAT COULD GIVE RISE TO CONFLICT MUST BE DISCLOSED TO THE BOARD. HOWEVER, NO CONTRACT OR TRANSACTION BETWEEN THE FOUNDATION AND ONE OR MORE OF ITS MEMBERS, DIRECTORS, OR OFFICERS OR ANY OTHER FOUNDATION PARTNERSHIP, ASSOCIATION, OR OTHER ORGANIZATION IN WHICH ONE OR MORE OF THIS FOUNDATION'S DIRECTORS OR OFFICERS ARE DIRECTORS OR OFFICERS, OR HAVE A FINANCIAL INTEREST, SHALL BE VOID OR VOIDABLE SOLELY FOR SUCH REASON, OR SOLELY BECAUSE THE MEMBER, DIRECTOR, OR OFFICERS IS PRESENT OR PARTICIPATES IN THE MEETING OF THE BOARD OF DIRECTORS WHICH AUTHORIZES THE CONTRACT OR TRANSACTION, OR SOLELY BECAUSE HIS OR THEIR VOTES ARE COUNTED FOR SUCH PURPOSE IF: A.THE MATERIAL FACTS AS TO THE RELATIONSHIP OR INTEREST AND AS TO THE CONTRACT OR TRANSACTION ARE DISCLOSED OR ARE KNOWN TO THE BOARD OF DIRECTORS AND THE BOARD OF DIRECTORS IN GOOD FAITH AUTHORIZES THE CONTRACT OR TRANSACTION BY THE AFFIRMATIVE VOTES OF A MAJORITY OF THE DISINTERESTED DIRECTORS EVEN THOUGH THE DISINTERESTED DIRECTORS ARE LESS THAN A QUORUM; B. THE MATERIAL FACTS AS TO HIS RELATIONSHIP OR INTEREST AND AS TO THE CONTRACT OR TRANSACTION ARE DISCLOSED OR ARE KNOWN TO THE BOARD OF DIRECTORS, AND THE CONTRACT OR TRANSACTION IS SPECIFICALLY APPROVED IN GOOD FAITH BY A VOTE OF SUCH DIRECTORS; OR C.THE CONTRACT OR TRANSACTION IS FAIR AS TO THE FOUNDATION AS OF THE TIME IT IS AUTHORIZED, APPROVED OR RATIFIED BY THE BOARD OF DIRECTORS. FORM 990, PAGE 6, PART VI, LINE 15A THE COMPENSATION COMMITTEE SHALL CONSIST OF THE CHAIR AND VICE CHAIR. THEY WILL REVIEW THE SALARY AND OTHER BENEFITS OF THE EXECUTIVE DIRECTOR. AS PART OF THIS REVIEW, THE COMPENSATION COMMITTEE WILL MAKE A RECOMMENDATION TO THE BOARD OF DIRECTORS REGARDING THE EXECUTIVE DIRECTOR'S SALARY AND OTHER BENEFITS TO BE PAID FOR THE UPCOMING YEAR. THIS SHALL BE DONE ON AN ANNUAL BASIS. THE VOTE OF A MAJORITY OF THE DIRECTORS ENTITLED TO VOTE AT A MEETING AT WHICH THERE IS A QUORUM SHALL DETERMINE THE SALARY AND OTHER BENEFITS OF THE EXECUTIVE DIRECTOR AND THIS SHALL BE DONE ON AN ANNUAL BASIS, NO LATER THAN SIXTY (60) DAYS AFTER THE ANNIVERSARY DATE OF THE EXECUTIVE DIRECTOR'S DATE OF HIRE. FORM 990, PAGE 6, PART VI, LINE 19 THE FOUNDATION MADE ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC ON ITS OWN WEBSITE AND GUIDESTAR UPON REQUEST.