2024-05-11T12:09:58-07:00 2023-12-31 202466693 Donna Foxman CPA 105 Foxwood Terrace Toms River NJ 08755 990 2023-01-01 223123551 Lyme Disease Association Inc LYME 8883666611 PO Box 1438 Jackson NJ 08527 Patricia V Smith President 2024-05-11 true Patricia V Smith 999009999 true Donna Foxman CPA P01320600 7323497638 X 2 AAL1 IAL1 FAL1 2023 2023-04-26 12:10:37Z Patricia V Smith PO Box 1438 Jackson NJ 08527 330469 false X LymeDiseaseAssociation.org X 1992 NJ Lyme Disease Association (LDA) raises funds for research, education, prevention and patient support. LDA partnered to establish Columbia Un. Lyme & Tick-Borne Diseases Research Center. Provides research grants, LymeAid 4 Kids, physician conferences, public presentations. 6 6 0 23 0 278794 330238 0 209 231 0 279003 330469 70500 39755 0 0 0 1924 210169 217965 280669 257720 -1666 72749 494539 556186 67459 54302 427080 501884 LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients. false false 200322 Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.This year's annual conference was held on zoom October 13-14: Lyme & Other Tick-Borne Diseases: Research & Clinical Advances 2023. 26755 Research, Education, Grants: Since 1992, LDA has provided 127 research grants including three 2023 grants.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2023, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provided educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD. 13000 LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $456,000 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 13 financially disadvantaged families grants in 2023. 240077 true true false true false false false false false false true false false false false false true false false false false false false false false false false true true false false false false false false false false false false false false false false false false false false true 8 0 false 0 false false false false false false false 0 false false false false false false false X 6 6 true false false false false false false true false false false true true true true true false true true false AK AL AR AZ CA CO CT FL GA KS KY LA MA MD ME MN MO NC NH NJ NY OH OK OR PA RI SC TN UT VA WA WI WV X X Isabella Hackett 8883666611 PO Box 1438 Jackson NJ 08527 X Patricia V Smith President 56.00 0.00 X X 0 0 0 Corey Lakin 2nd Vice Pres. 1.50 0.00 X X 0 0 0 Ruth Waddington Secretary 10.00 0.00 X X 0 0 0 Jeannine Phillips Director 9.00 0.00 X 0 0 0 Richard Smith V P/Treasurer 4.00 0.00 X X 0 0 0 Timothy Lynagh Director 10.00 0.00 X 0 0 0 0 false false false 0 330238 330238 0 231 231 0 0 0 0 0 0 0 0 330469 231 26755 26755 13000 13000 0 0 0 0 0 0 0 0 0 0 5000 5000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 703 464 239 3727 1113 2614 Outside services 113122 107000 5040 1082 Program costs and supplies 72791 72791 Database management, website 11190 10989 201 Technology & office expenses 2936 1821 1115 8496 6144 1510 842 257720 240077 15719 1924 142264 268763 345817 277555 0 0 0 0 0 0 0 13599 11872 2430 1727 4028 8141 0 0 0 0 494539 556186 5459 10513 62000 43789 67459 54302 X 109778 178023 317302 323861 427080 501884 494539 556186 72749 2055 X false true X true false X 297124 241978 308002 278794 330238 1456136 0 0 297124 241978 308002 278794 330238 1456136 0 1456136 4772 5899 4340 209 231 15451 0 0 1471587 0.98950 0.98670 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false Part I-A, Line 1 - Direct and Indirect Political Campaign Activities There was no political campaign activities.In 2023, LDA had a small amount of lobbying efforts that were not relevant financially as they were basically volunteer efforts. Although LDA wrote letters supporting funding to Congress, it used volunteers and very little time to complete this. 13599 11872 1727 1727 332524 2055 2055 330469 330469 257720 257720 257720 true Georgia Southern University Hendricks Hall Stateboro GA 30640 13788 0 actual research ILADS 2 Winston Circle Chevy Chase MD 20815 7000 0 actual education University of Texas at Dallas 800 W Campbell Rd Richardson TX 75080 18150 0 actual research 0 3 LymeAid 4 Kids (1,000 each grant) 13 13000 actual Additional Supplemental Information Research and education grants totaling $66,938 were awarded in 2023. In addition to the grants over $5,000, smaller grants were awarded to the following in 2023: Lyme Fight Foundation (CA) Voices Against Lyme (CT) IPM Institute of N. America (WI) Lyme Connection (CT) Gordon Research Conferences (RI) In addition, LDA awarded 13 $1,000 grants to individuals under Lymeaide 4 Kids programs. Grantmaker's Description of How Grants are Used LDA requires a signed grant agreement and periodic reports from the grant recipients, plus a final report. The larger grants are paid in installments. If a grantee publishes their work, LDA needs to be recognized in the journal article. Form 990, Part VI, Section A, Line 2 Patricia Smith and Richard Smith, both directors and officers, are married. Form 990, Part VI, Section A, Line 8b Board minutes are recorded for all Board meetings and any actions taken by the Board. There are no committees which are authorized to act on behalf of the organization. Form 990, Part VI, Section B, Line 11b The Association's financial records are reviewed by the internal audit committee prior to providing them to the auditor. The 990 is reviewed by the president and treasurer before it is filed. It is then sent to the Board for comment. The Board reviews both the audit and the 990 and then votes to accept the documents at the next Board meeting or in online discussion. Form 990, Part VI, Section B, Line 12c The organization has a written conflict of interest policy. Board members are reminded of compliance with this policy on an ongoing basis. Form 990, Part VI, Section B, Line 15a The organization does not have paid employees. Form 990, Part VI, Section B, Line 15b There are no paid employees. This is a volunteer run organization. Form 990, Part VI, Section C, Line 19 Information is available upon request as required by current regulations. Financial information can also be found on Candid, formerly Guidestar.