2024-11-14T17:02:59-06:00 2023-12-31 461498870 BMSS LLC 1020 HIGHLAND COLONY PKWY SUITE 600 RIDGELAND MS 39157 990 2023-01-01 710874241 FOUNDATION TO ERADICATE DUCHENNE INC FOUN 7036837500 PO BOX 2371 ALEXANDRIA VA 223010371 JAMES WOOD TREASURER 7036837500 2024-11-14 1 1 MAURA MCDEVITT CPA P02480985 6019482924 2023 2024-10-15 13:58:12Z JAMES WOOD PO BOX 2371 ALEXANDRIA VA 223010371 969706 0 X WWW.DUCHENNEMD.ORG X 2002 VA TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. 7 7 0 7 0 0 805428 834048 0 0 1809 2721 -30164 -9986 777073 826783 519194 407352 0 0 0 0 84000 90000 96961 160850 142358 764044 639710 13029 187073 837468 1030887 177802 148015 659666 882872 THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. 0 0 467352 407352 THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $407,352 DURING 2023. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. 467352 1 1 0 1 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 1 1 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 MD DC VA TN MS X LESLIE WADLER 7036837500 4202 MAPLE TREE CT ALEXANDRIA VA 22304 X JOEL WOOD PRESIDENT 10.00 X X 0 0 0 SCOTT SINDER SECRETARY 5.00 X X 0 0 0 JAMES WOOD TREASURER 5.00 X X 0 0 0 DAN CARSON DIRECTOR 1.00 X 0 0 0 DAVE HEIL DIRECTOR 1.00 X 0 0 0 BRAD TODD DIRECTOR 1.00 X 0 0 0 BILL QUIRK DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 EPIPHANY PRODUCTIONS INC 4102 MAPLE TREE COURT ALEXANDRIA VA 22304 FUNDRAISING & ADMINISTRATIVE 137500 1 416532 417516 834048 2721 2721 0 416532 142923 -142923 -142923 TRINDS LLC 900099 132937 132937 132937 826783 0 0 -7265 334865 334865 72487 72487 60000 60000 12446 6223 6223 60000 60000 90000 90000 2383 1645 738 BANK FEES 7529 7529 639710 467352 75397 96961 152340 5050 239870 30487 34414 39981 650714 715499 837468 1030887 177802 75528 72487 177802 148015 X 659666 882872 659666 882872 837468 1030887 X 187073 5646 30487 X X 0 1 X 1 0 X 857838 732763 945848 805428 834048 4175925 857838 732763 945848 805428 834048 4175925 175121 4000804 3392 280 226 2721 2625 9244 27415 103390 111785 103942 132937 479469 4664638 0.85770 0.89410 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 60000 0 0 60000 0 PART II-B, LINE 1: CONSULTANT PAID TO ADVOCATE ON BEHALF OF OUR ORGANIZATION AND SIMILAR MUSCULAR DYSTROPHY ORGANIZATIONS TO PROVIDE FUNDS FOR RESEARCH FOR THE CURE OF NEUROMUSCULAR DEGENERATIVE DISORDER DISEASES. 0 INVESTMENT IN TRINDS, LLC 665499 F INVESTMENT IN REVERAGEN BIOPHARMA, INC. 50000 C 715499 X 975352 5646 142923 148569 826783 0 826783 752146 142923 142923 609223 30487 30487 639710 PART X, LINE 2: MANAGEMENT BELIEVES IT HAS NO MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, IT WILL NOT RECOGNIZE ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 142,923. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 142,923. PART XII, LINE 4B - OTHER ADJUSTMENTS: PRIOR YEAR GRANT RECOVERY 30,487. 1 SOUTH ASIA 0 0 GRANT TO RECIPIENT LOCATED IN THE REGION 42000 NORTH AMERICA 0 0 GRANT TO RECIPIENT LOCATED IN THE REGION 30487 0 0 0 0 0 0 72487 0 72487 INDIA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 42000 0 CANADA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 30487 0 2 0 0 0 0 0 0 X X X X X X 1 EPHIPHANY PRODUCTIONS INC 104 EAST HUME AVENUE ALEXANDRIA VA 22301 FUNDRAISING EVENT PLANNING, CONSULTING 0 834048 90000 744048 834048 90000 744048 DC MD VA TN MS DINING AWAY DUCHENNE 338200 338200 4680 22606 102594 550 7486 FORE DUCHENNE 77240 77240 2280 2727 2 1092 1092 416532 416532 4680 24886 102594 550 10213 142923 -142923 1 PARENT PROJECT MUSCULAR DYSTROPHY 1012 14TH STREET STE 500 WASHINGTON DC 20005 311405490 50000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY RESEARCH FOUNDATION FOR SUNY AT BINGHAMTON UNIVERSITY PO BOX 6000 BINGHAMTON NY 139026000 166053710 134865 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521654453 125000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY OSTEOGENESIS IMPERFECTA FOUNDATION PO BOX 824061 PHILADELPHIA PA 191824061 237076021 25000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 4 FORM 990, PART VI, SECTION A, LINE 2 JOEL WOOD (PRESIDENT) AND JAMES WOOD (TREASURER) ARE BROTHERS. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER OF THE FOUNDATION, JAMES E. WOOD, PRESENTS THE PREPARED FORM 990 TO THE GOVERNING BODY. THE INFORMATION CONTAINED IN THE FORM 990 IS REVIEWED AND EXPLAINED AND ANY QUESTIONS POSED ARE ANSWERED. AFTER THE GOVERNING BODY HAS REVIEWED THE FORM 990 AND AGREES WITH THE INFORMATION CONTAINED THEREIN, THE FORM 990 IS FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE AFFILIATIONS OF THE BOARD MEMBERS AND OFFICERS ARE REGULARLY MONITORED TO ENSURE THAT NO CONFLICTS OF INTEREST OCCUR, EITHER PERCEIVED OR ACTUAL, WITH RESPECT TO THE FOUNDATION TO ERADICATE DUCHENNE AND THOSE CHARGED WITH ITS GOVERNANCE. THE BOARD MEMBERS ARE PROVIDED A COPY OF THE POLICY AND REVIEW AND DISCLOSE ANY CONFLICTS ON AN ANNUAL BASIS. ANY ISSUES ARE BROUGHT TO THE BOARD, DISCUSSED AND REPORTED IN THE BOARD MINUTES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9: PRIOR YEAR GRANT RECOVERY 30,487. FORM 990, PART XII, LINE 2C THE AUDITOR MEETS WITH THE BOARD OF DIRECTORS MAKING A FULL PRESENTATION AT THE COMPLETION OF THE AUDIT FOR THE YEAR ANSWERING ANY OF THE BOARD'S QUESTIONS. THE AUDITOR WORKS CLOSELEY WITH THE BOARD OF DIRECTORS DURING THE YEAR SHOULD ANY CONCERNS ARISE.