2024-11-14T13:42:57-08:00 2023-12-31 953654092 Beeson Hoffman & Siddall Inc 500 North Central Ave Suite 325 Glendale CA 91203 990 2023-01-01 061789643 The Neuromuscular Disease Foundation NEUR 3107211605 269 South Beverly Drive 1206 Beverly Hills CA 90212 Nasser David Haverim Treasurer 2024-11-13 true true Gordon P Hoffman CPA P00161674 8182408322 2023 2024-10-15 13:58:12Z Nasser David Haverim 269 South Beverly Drive 1206 Beverly Hills CA 90212 561017 false X www.curegnem.org X 2006 CA To promote and fund research for genetic neuromuscular disorders and diseases. Additionally, the foundation may engage in any activities that are reasonably related to or in furtherance of its stated charitable purposes. 11 11 5 10 0 362522 491595 0 14437 39034 65864 30388 442823 561017 384646 100975 0 199100 98898 0 51188 448162 299777 1031908 499650 -589085 61367 886359 948612 1713 2517 884646 946095 THE NEUROMUSCULAR DISEASE FOUNDATIONS (NDF) MISSION mission is to enhance the quality of the lives of people living with GNE Myopathy (also known as HIBM) through advocacy, education, outreach, and funding for critical research focused on treatments and a cure. false false 306061 38000 CLINICAL RESEARCH: Since 2006 NDF has been proactively seeking and funding clinical research projects to help understand GNE Myopathy (HIBM) and to hopefully help find treatments and cures. NDF is a world leader in funding scientists, universities and laboratories, the results of which have proven instrumental in how new studies are built. 66705 Patient & Carrier Advocacy: NDF strives to create a two-way connection between patients and scientists in order to maximize patient understanding about the latest research and treatment options being developed; and for physicians, scientists, and pharmaceutical companies to gain a better perspective, not only about patients needs and experiences, but also about how this impacts families as well. 19619 Outreach & Education: A significant part of NDF's mission is preventing and suppressing the symptoms of GNEM in patients through screening and public education. NDF values the importance of educating physicians about this rare disease. We focus on educating the public about carrier screening aids, particularly for those in populations with higher carrier rates. 392385 true true false false false false false false false false false false false false true false false false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 9 0 true 5 true false false false false false false false 0 false false false false false false false X 11 11 false false false false false false false true true false false true true true true true true true false false CA X In the Black Bookkeeping 8187265104 8302 Jayseel Street Sunland CA 91040 X Navid Rachman Director 1.00 0.00 X 0 0 0 Suma Rao-Gupta Director 1.00 0.00 X 0 0 0 Tara Voogel Secretary 1.00 0.00 X X 0 0 0 Nasser David Haverim Treasurer 1.00 0.00 X X 0 0 0 Isabella Tyszler Director 1.00 0.00 X 0 0 0 David Dahl Director 1.00 0.00 X 0 0 0 Amy Curran Director 1.00 0.00 X 0 0 0 Tahseen Mozaffar Director 1.00 0.00 X 0 0 0 0 false false false 0 491595 491595 0 39034 39034 0 0 0 0 0 0 0 ERC REFUNDS 30388 30388 30388 561017 69422 X 38000 38000 0 62975 62975 0 0 0 91568 54025 916 36627 0 0 7330 4325 3005 0 900 900 6370 6370 0 0 0 258608 225429 32505 674 1245 1245 0 0 0 3996 3996 0 0 950 950 0 0 0 4033 4033 IT Subscriptions 7054 704 2117 4233 Events 5144 5144 Quantum Creators 4688 4688 Operations 3143 3143 3646 1289 2097 260 499650 392385 56077 51188 110588 28609 775771 920003 0 0 0 0 0 0 0 0 0 0 0 0 0 886359 948612 1713 2517 1713 2517 X 884646 946095 884646 946095 886359 948612 61367 82 X false false false X 2593652 418257 435754 362522 491595 4301780 0 0 2593652 418257 435754 362522 491595 4301780 2866180 1435600 23459 14168 517 10048 39034 87226 0 65864 30388 96252 4485258 0.32010 0.48630 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED CREDIT CARDS 2171 OTHER LIABILITIES 59 PAYROLL TAXES PAYABLE 287 2517 true Asia Research 54600 Wire Europe Research 8375 Wire 2 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US Research conducted overseas is overseen by a scientist and NDF advisory committee member at the university of California, Los Angeles. true Cure Rare Disease 4 Research Drive Woodbridge CT 06525 822473513 501(c)(3) 10000 0 CASH Research NHGRI NIH 31 Center Drive Bethesda MD 20894 521986675 501(c)(3) 10000 0 CASH Research Genetic Disorders Uplifting Athletes 8 Atkinson Drive PO BOX 574 Doyelstown PA 18901 341986485 501(c)(3) 10000 0 CASH Research Yale University PO Box 1873 New Haven CT 06508 060646973 501(c)(3) 8000 0 CASH Research Genetic Disorders 4 0 Grantmaker's Description of How Grants are Used The organization requires those interested in obtaining a grant to submit an application stating how they will use the funds to further advance the research relating to the development and/or testing of therapies for HIBM and related disorders. The scientific advisory board reviews the applications and the board members vote to select the grant recipients. Form 990, Part VI, Section B, Line 11b The Form 990 is submitted to the board of directors for review and approval before it is filed. Form 990, Part VI, Section B, Line 15a A subcommittee of the board of directors determines the executive director's salary using information from Guidestar and other sources. Form 990, Part VI, Section C, Line 19 Governing documents and financial statements are available upon request.