2024-09-30T11:03:46-07:00 2023-12-31 410746749 CliftonLarsonAllen LLP 220 S 6th Street Suite 300 Minneapolis MN 55402 990 2023-01-01 411717098 AMERICAN BRAIN FOUNDATION AMER 8667707570 201 Chicago Avenue Minneapolis MN 55415 Michelle Heritage Executive Director 6129286317 2024-09-30 1 1 Sarah Reichling P01587996 6123973066 2024-09-30 2023 2024-10-15 13:58:12Z Michelle Heritage 201 Chicago Avenue Minneapolis MN 55415 12825922 0 X www.americanbrainfoundation.org X 1992 MN To accelerate breakthrough research on brain disease and optimize brain health for all. ABF funds the best and brightest scientists to make a lasting impact on public health and our collective knowledge of the brain. 17 17 10 43 0 0 6002262 10120592 0 0 54689 403606 -110178 -140378 5946773 10383820 5297664 2401988 0 0 1237544 1288130 0 41250 656125 1178443 1225032 7713651 4956400 -1766878 5427420 16866097 21918542 3676391 2449895 13189706 19468647 ABF's mission is to accelerate breakthrough research on brain disease and optimize brain health for all. Driven by the certainty that all aspects of the brain are interconnected, we invest in research on mechanisms shared by multiple brain diseases, disorders, and injuries, setting the stage for new treatments to emerge for conditions that were previously untreatable. 0 0 2438504 2227015 0 GRANTS: In 2023, the American Brain Foundation funded Next Generation Research Grants in Amyotrophic Lateral Sclerosis (ALS); Alzheimer's; Cognitive Aging and Age-Related Memory Loss; Epilepsy; Frontotemporal Degeneration; Lewy Body Dementia; Migraine; Multiple Sclerosis; Muscular Dystrophy; Neuromuscular Disease; Parkinson's Disease; Peripheral Neuropathy; Stroke; Tourette Syndrome; and Neurological Healthcare Disparities. These are two- and three-year innovative clinical research projects that launch research careers. Over 95% of the nearly 300 investigators the foundation has funded have received additional research funding from the NIH and other entities to continue the research started with our grants. The American Brain Foundation also continued to lead the development and funding of an initiative to find a biomarker for the early diagnosis of Lewy body dementia with partners the Alzheimer's Association, the Michael J. Fox Foundation, and the American Academy of Neurology. We expect this research to lead to more clarity and effective therapies for people struggling with LBD, and to increase our understanding of other neurodegenerative brain diseases, such as Alzheimer's disease and Parkinson's disease. 226017 174972 0 AWARDS: The American Brain Foundation honored leaders in the fight against brain disease-both scientists and members of the public. Among these were the prestigious Potamkin Prize in Pick's, Alzheimer's, and Related Diseases, and the Sheila Essey Award for Research in ALS. Other awards included the Public Leadership in Neurology Award, given to Arianna Huffington for raising public awareness of the importance of sleep and brain health, and the Scientific Breakthrough Award, given to Josep Dalmau, MD, PhD and Vanda Lennon, MD, PhD for transforming the field of autoimmune and paraneoplastic neurology. We also gave humanitarian and lifetime achievement awards, including the Association of Indian Neurologists in American Lifetime Achievement Award; the Mridha Spirit of Neurology Award; and the Ted M. Burns Humanism in Neurology Award, and underwrote numerous AAN Scientific Awards, including the Dreifuss-Penry Epilepsy Award; Norman Geschwind Prize in Behavioral Neurology; Mitchell B. Max Award for Neuropathic Pain; Movement Disorders Research Award; Michael S. Pessin Stroke Leadership Prize; Sleep Science Award, Neuro-oncology Scientific Award, Neuroinfectious Disease Award, and many others. 764041 0 0 PUBLIC OUTREACH: The American Brain Foundation continued to invest in a large-scale public awareness campaign with the purpose of educating the public about the need for brain disease research. The multi-channel campaign provided resources and information about brain diseases and disorders, the latest brain research news, and stories from patients and caregivers. The American Brain Foundation produced free monthly webinars with neurology experts for the public on topics such as Deep Brain Stimulation, Sleep and the Brain, and Migraine Research and Treatment. The Commitment to Cures gala was a hybrid event and was attended by nearly 2,000 people and raised over $850,000. All key performance indicators for public outreach exceeded goals. Comparing 2022 to 2021, Social media followers increased 51%, website traffic increased 50%, and email subscribers increased 31%. 0 0 0 3428562 1 1 0 0 0 1 0 0 0 1 0 0 0 0 0 1 1 0 0 0 0 0 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 8 0 1 10 1 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 X 17 17 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 0 0 AK AL AR CA CO CT DC FL GA HI IL KS KY MA MD ME MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WA WI WV X X Kevin Myren 6129286023 201 Chicago Avenue Minneapolis MN 55415 JANE RANSOM EXECUTIVE DIRECTOR 41 X 371331 0 47755 EMILY CHRISTIAN DEPUTY DIRECTOR 37 X 143081 0 22316 DAVID D DODICK CHAIR 1.5 X X 0 0 0 BEN LENAIL VICE CHAIR 1 0 X X 0 0 0 JAMES ESSEY TREASURER 1 X X 0 0 0 JACQUELINE FRENCH SECRETARY 1 X X 0 0 0 CARLAYNE E JACKSON EX OFFICIO VOTING DIRECTOR 0.5 X X 0 0 0 ROBERT C GRIGGS EX OFFICIO VOTING DIRECTOR 0.5 X X 0 0 0 MERIT CUDKOWICZ DIRECTOR 0.5 X 0 0 0 DAVID EAGLEMAN DIRECTOR 0.5 X 0 0 0 JAMES C GROTTA DIRECTOR 0.5 X 0 0 0 STEPHEN L HAUSER DIRECTOR 0.5 X 0 0 0 FRANCES JENSEN DIRECTOR 0.5 X 0 0 0 RALPH R LESILE DIRECTOR 0.5 X 0 0 0 THABELE LESILE-MAZWI DIRECTOR 0.5 X 0 0 0 RONALD PETERSEN DIRECTOR 0.5 X 0 0 0 ALYX B PORTER DIRECTOR 0.5 X 0 0 0 ALFREDO QUINONES-HINOJOSA DIRECTOR 0.5 X 0 0 0 SEAN SANSIVERI DIRECTOR 0.5 X 0 0 0 MARY E POST EX OFFICIO NON-VOTING DIRECTOR 0.5 X 0 0 0 514412 0 70071 2 0 1 0 Yakkety Yak 216 S Jefferson St Suite 200 Chicago IL 60661 Full service digital marketing agency 528500 American Academy of Neurology 201 Chicago Avenue Minneapolis MN 55415 Management Services & Occupancy 248741 2 0 0 443150 0 0 9677442 2018500 10120592 0 0 0 0 0 419159 0 0 419159 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 2245792 0 2261345 0 -15553 0 -15553 0 0 -15553 38110 443150 180757 -142647 0 -142647 0 0 0 0 0 0 0 0 0 0 0 0 Miscellaneous Income 900099 2269 0 0 2269 0 0 0 0 2269 10383820 0 0 263228 X 2399988 2399988 2000 2000 0 0 0 0 419086 131432 176661 110993 0 0 0 0 645992 202594 272310 171088 70890 22232 29883 18775 88589 27783 37344 23462 63573 19938 26798 16837 47850 15661 19062 13127 28776 7910 15926 4940 130464 38744 59244 32476 0 0 0 0 41250 41250 8762 0 8762 0 569415 420150 102118 47147 58893 56560 0 2333 197120 28320 47506 121294 44390 14527 17686 12177 0 0 0 0 39700 12308 17075 10317 48298 15833 15147 17318 0 0 0 0 31827 11125 12151 8551 0 0 0 0 0 0 0 0 0 0 0 0 10360 0 10360 0 Miscellaneous Expense 9177 1457 3680 4040 4956400 3428562 871713 656125 1460384 1007855 2274246 5128619 3281095 4671369 321854 228313 0 0 0 0 0 0 0 0 55090 61532 0 9473428 10820854 0 0 0 0 0 0 0 0 16866097 21918542 232951 199979 3438245 2242216 5195 7700 0 0 0 0 0 0 0 0 0 0 0 0 3676391 2449895 X 6350103 7718793 6839603 11749854 13189706 19468647 16866097 21918542 X 5427420 579857 0 0 0 271664 X 0 1 X 1 0 X 4703334 5675913 6035920 6002262 10120593 32538022 0 0 0 0 0 0 0 0 0 0 0 0 4703334 5675913 6035920 6002262 10120593 32538022 10670757 21867265 249969 233645 441373 162383 419135 1506505 0 0 0 0 0 0 0 0 0 0 0 0 34044527 0 0.64231 0.73289 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2 0 48825 0 1804 0 75468 0 1 1 4128167 4493 581180 99346 0 25126 4589368 4888034 10401 -653510 85470 0 31287 4128168 4028837 380695 597232 88190 0 30540 4888034 3784027 78271 269623 91480 0 11604 4028837 2967570 340366 557165 81076 0 0 3784025 0 0.6504 0.3496 0 0 0 0 X 11721542 579857 577110 0 180755 1337722 10383820 0 0 0 10383820 5442603 577110 0 0 -90907 486203 4956400 0 0 0 4956400 Schedule D, Part V, Line 4 A portion of interest earned on endowment funds is recorded as temporary restricted funds and used to support awards and clinical research training scholarships Schedule D, Part X, Line 2 The Organization follows the provisions of FASB.ASC 740.10.2s, which requires that a tax position be recognized or derecognized based on a "more likely than no" threshold. This applies to positions taken or expected to be taken in a tax return. The Organization does not believe its financial statements include any uncertain tax positions. The Organizations tax returns are subject to review and examination by federal authorities. Schedule D, Part XI, Line 2d Fundraising event expenses netted out on Schedule VIII from the Commitment to Cures gala. Schedule D, Part XII, Line 2d Refunds of unused or forfeited grants from prior years in which the recipient no longer met the criteria for the grant or had funds remaining after project completion netted against fundraising event expenses netted out on Schedule VIII from the Commitment to Cures gala. X X X X X X 1 Trevino Consulting Group 2802 Timmons Lane 22886 Houston TX 77027 Fundraising consulting services 0 0 24750 -24750 Veritus Group LLC 1105 Washington Boulevard 186 Belpre OH 45714 Major Gifts Consulting 0 0 16500 -16500 0 41250 -41250 AK AL AR AZ CA CO CT DC DE FL GA HI IA ID IL IN KS KY LA MA MD ME MI MN MO MS MT NC ND NE NH NJ NM NV NY OH OK OR PA RI SC SD TN TX UT VA VT WA WI WV WY 2023 Commitment to Cures 481260 443150 38110 0 0 22807 87983 1400 68567 0 0 481260 443150 38110 0 0 22807 87983 1400 68567 180757 -142647 1 American Academy of Neurology Institute 201 Chicago Avenue Minneapolis MN 55415 410726167 501c3 2260973 Clinical Research Training Scholarships, Scientific Awards, and Non Scientific Awards for work on diseases of the brain and nervous system. See Part IV for more details. National Multiple Sclerosis Society 733 3rd Avenue Third Floor New York NY 10017 135661953 501c3 75000 Clinician Scientist Development Award in Multiple Sclerosis Johns Hopkins University 3910 Keswick Road N4327-B Baltimore MD 21211 520595110 501c3 16378 Funding grant for research in Alzheimer's and related neurodegenerative disorders 3 0 Schedule I, Part I, Line 2 The American Brain Foundation's (ABF) Next Generation Research Grants program funds Clinical Research Training Scholarships (CRTS) and Clinician Scientist Development Awards (CSDA) offered to neurologists and clinical investigators interested in academic careers in clinical research on brain diseases and disorders. More than 80 percent of the recipients of these ABF-funded awards have gone on to receive funding from NIH, enabling a lifetime of research on brain disease. The ABF awards grant funding to the research programs of the American Academy of Neurology, the National Multiple Sclerosis Society, and other institutions who regrant funds to early career investigators through their institutions. The administering institutions report progress annually back to the ABF. Schedule I, Part II, Line 1 Further elaboration for the $2.261M to the AANI in 2023: $2.090M of these funds were distributed to fulfill grants in the following categories: Clinical Research Training Scholarship in ALS, Richard Olney Clinician Scientist Development Award in ALS, McKnight Clinical Translational Research Scholarship in Cognitive Aging and Age-Related Memory Loss, Susan S. Spencer, MD Clinical Research Training Scholarship in Epilepsy, Clinical Research Training Scholarship in Frontotemporal Degeneration, Clinical Research Training Scholarship in Migraine, Clinical Research Training Scholarship in Neurodisparities, Clinical Research Training Scholarship in Neuromuscular Disease, Clinical Research Training Scholarship in Parkinson's Disease, Clinical Research Training Scholarship Peripheral Neuropathy, Lawrence M. Brass Stroke Research Award. $171K of the funds to AANI were distributed to neurologists for Scientific Awards in the following categories: Potamkin Prize for Research in Pick's, Alzheimer's, and Related Diseases, Sheila Essey Award: An Award for ALS Research, Neuro-infectious Disease Award, Alliance Awards: Founders, Alliance Awards: S. Weir Mitchell, Dreifuss-Penry Epilepsy Award, Michael S. Pessin Stroke Leadership Prize, Movement Disorders Research Award, Neuro-Oncology Scientific Award, Neuro-Oncology Investigator Award, Norman Geschwind Prize in Behavioral Neurology, Sleep Science Award, Wayne A. Hening Sleep Medicine Investigator Award, Bruce S. Schoenberg Award, Cheryl A. Jay Lectureship, and Kenneth M. Viste Jr, MD, Patient Advocate of the Year Award. X X X X 0 0 0 0 0 0 0 0 0 JANE RANSOM EXECUTIVE DIRECTOR 288793 0 64737 0 17801 0 30859 0 16896 0 419086 0 21930 0 EMILY CHRISTIAN DEPUTY DIRECTOR 134401 0 7853 0 827 0 14230 0 8086 0 165397 0 7853 0 Schedule J, Part I, Line 3 The American Brain Foundation leases employees with American Academy of Neurology (AAN) through a contractual arrangement by which AAN's employees are leased to ABF. This arrangement included, as of 2023, the ABF's Executive Director being leased through AAN. The ABF's Board of Directors is responsible for hiring and setting the compensation for the Executive Director. The Board employs procedures (use of independent consultant, compensation survey and no involvement of persons with conflicts of interests) and last set compensation amounts in 2023. Form 990, Part VI, Section A, Line 4 The American Brain Foundation revised language about ex-officio, non-voting members of its board of directors and the voting rights of these positions. Additionally, the American Brain Foundation updates its bylaws to include the position of Chair Elect, which will perform duties as assigned by the Chair or Board of Directors and prepare to become Chair immediately following the last term of the current Chair. Form 990, Part VI, Section B, Line 11b The CFO undertook extensive review of the draft form 990 as initially prepared by the Staff Accountant. Their review was thereafter augmented by exempt organizations Tax/Legal Counsel. This Form 990 was then presented to the Audit Committee by the CFO and other members of the management team. The Audit Committee Reviewed the Form 990 and identified any agreed upon changes to be made. In line with Minnesota Law, the final Form 990 is presented to and approved by the Board of directors. The Form 990 is filed subsequent to this process. Form 990, Part VI, Section B, Line 12c The Foundation's conflict of interest policy covers individuals serving as an officer, director, committee member, or positions of official responsibility or leadership. All covered are required to complete a relationship disclosure statement annually, or as changed in personal circumstances occur. The statements are reviewed and actions determined according to the Foundation's hierarchy based on position or by the Executive Committee if a resolution cannot be made. Potential conflicts are handled on an individual basis. Actions taken depend on the severity of the conflict which include no action required, on-going monitoring with appropriate disclosure or withdrawal from the conflicting relationship. Conflict of interest proceeding are documented in meeting minutes or as appropriate Form 990, Part VI, Section B, Line 15 The American Brain Foundation leases all employees from the American Academy of Neurology (AAN) through a contractual arrangement. This arrangement included, as of 2023, the Foundation Executive Director being leased through AAN. The ABF's Board of Directors is responsible for hiring and setting the compensation for the Executive Director. The Board employs procedures (use of independent consultant, compensation survey, and no involvement of any persons with conflict of interest) and last set compensation amounts in 2023 Form 990, Part VI, Section C, Line 19 the Foundation makes the most recent three years audited financial statements and IRS Form 990 available to the public on its website. The Foundation does not make its other governing documents (e.g. articles of incorporation) nor its Conflict of Interest policy available to the public. Form 990, Part IX, Line 11g Further explanation of the $569K listed for Part IX, Line 11g: Marketing and advertising services in the amount of $453K, staffing consulting and search firm paid in the amount of $100K, program evaluation consultant paid in the amount of $14K, and meeting consultant paid in the amount of $2K. Form 990, Part XI, Line 9 Grant refunds and forfeitures from prior years