2024-05-14T12:53:53-00:00 2023-12-31 363614997 Eccezion 5400 W Elm Street Suite 203 McHenry IL 60050 990 2023-01-01 364253176 Citizens United for Research in Epilepsy CITI 3122551801 420 N Wabash Ave STE 650 Chicago IL 60611 Beth Dean CEO 3122551801 2024-05-14 true Beth Dean 999009999 Cheryden Juergensen P01252676 8153441300 2024-05-14 2 AAL1 IAL1 2023 2023-04-26 12:10:37Z CURE Epilepsy Beth Dean 420 N Wabash Ave STE 650 Chicago IL 60611 7387467 false X www.cureepilepsy.org X 1998 IL To find a cure for epilepsy by promoting and funding patient focused research. 15 15 19 275 0 5937146 6403752 0 846777 355902 -552547 -576491 6231376 6183163 2804485 2759409 0 2174207 2243543 0 608021 814421 990398 5793113 5993350 438263 189813 10252744 10587072 4004057 3627120 6248687 6959952 To find a cure for epilepsy by promoting and funding patient focused research. false false 3918989 Since its inception in 1998, CURE Epilepsy has raised more than 99 million to fund epilepsy research and other initiatives that will lead the way to cures for the epilepsies. CURE Epilepsy awards grants for novel research projects to prevent epilepsy related to pediatric epilepsy, post-traumatic epilepsy, treatment resistant epilepsies, sudden unexplained death in epilepsy SUDEP, and sleep and epilepsy advancing the search for a cure, eliminating treatment side effects, and reversing deficits caused by frequent seizures, CURE Epilepsy funds grants for young and established investigators and todate has awarded more than 285 grants in 18 countries around the world. 1138426 CURE Epilepsy believes that awareness is a critical vehicle to increase the amount of funding for epilepsy research and to share key learnings and opportunities for those impacted by epilepsy. CURE Epilepsy creates, sponsors and levers our website, webinars, seminars, podcasts, educational events and other digital communication to drive this critical awareness. 5057415 true true false true false false false false false false true false false false true true true false false false true true false false true false false true false true false false false false false false false false false false false false false false false false false true 20 0 true 19 true false false false false false true true false false false false false false X 15 15 false false false false false false false true true false false true true true true true true true false false AL AR CA CT FL GA HI IL KS KY MA MD MI MN MS NH NJ NM NY OK OR PA RI SC TN TX WI WV X X X John Anderluh 3122551801 420 N Wabash Ave Suite 650 Chicago IL 60611 Beth Dean CEO 037.50 X 314565 0 38569 Laura Lubbers Chief Scientific Officer 037.50 X 316541 0 17360 Alysha Biehl Sr. Director Development 037.50 X 156866 0 14647 Dana Vielmetti Director, Marketing 037.50 X 146627 0 3294 Priya Balasubramanian Assoc Director of Research 037.50 X 120444 0 26176 John Anderluh CFO 037.50 X 116125 0 28915 Lisa Cotton Chair 004.00 X X 0 0 0 Shalee Cunneen Secretary 003.00 X X 0 0 0 Kathy McKenna Treasurer 004.00 X X 0 0 0 Steve Austin Director 002.00 X 0 0 0 Mike Axelrod Director 002.00 X 0 0 0 Kim Borden Director 002.00 X 0 0 0 Marilynn Gardner Director 002.00 X 0 0 0 Carrie Garman Director 002.00 X 0 0 0 Justin Gover Director 002.00 X 0 0 0 David Reifman Director 002.00 X 0 0 0 Tina Sacks Director 002.00 X 0 0 0 Matt Schneider Director 003.00 X 0 0 0 Hannah Whitten Director 002.00 X 0 0 0 Irina Colon Director 002.00 X 0 0 0 Kelly Cervantes Director 002.00 X 0 0 0 1171168 128961 6 false true false William Morris Endeavor Ent LLC 9601 Wilshire Blvd Los Angeles CA 90210 Music for Benefit 100000 1 2768235 779179 2856338 6403752 245340 245340 541381 430819 110562 110562 110562 196994 2768235 773485 -576491 6183163 355902 1975934 1975934 0 783475 783475 0 747231 474711 82883 189637 0 1076066 776387 135555 164124 0 292153 185287 32845 74021 128093 81675 14270 32148 122594 111753 486 10355 0 15055 13350 1705 0 20094 20094 14703 13130 1573 0 47959 18060 2466 27433 0 0 117175 75958 12536 28681 54104 17256 2769 34079 0 61087 61087 0 0 25494 16527 2727 6240 18972 12298 2030 4644 Advocacy and Awareness 258811 258811 Other Expenses 7247 2333 1462 3452 Computer, Web Development and Internet 174175 145072 8851 20252 Bank, Merchant, Investment Fees 52928 34311 5662 12955 0 5993350 5057415 327914 608021 814141 544726 733572 1106132 41357 32706 305695 236990 59923 68705 8153627 8471391 450124 363412 10252744 10587072 143881 124754 3045280 3066066 316546 28093 498350 408207 4004057 3627120 X 5192244 5305489 1056443 1654463 6248687 6959952 10252744 10587072 189813 521452 X false true X true false X 7599997 6964176 6172734 5937146 6403752 33077805 7599997 6964176 6172734 5937146 6403752 33077805 1995962 31081843 175964 105918 124018 140351 245340 791591 33869396 415047 0.91770 0.95630 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 527490 442077 439656 1409223 2113835 40000 10000 50000 131873 110519 109914 352306 528459 false 100519 80655 19864 193013 156335 36678 12163 12163 68705 Financial derivatives and other financial products Closely-held equity interests Federal income taxes Operating Lease Liabilities 408207 408207 X 8257850 521452 1573329 2094781 6163069 20094 20094 6183163 7546585 1573329 1573329 5973256 20094 20094 5993350 X 2 The Organization is a nonprofit corporation that is exempt from income taxes under Section 501c3 of the Internal Revenue Code as an entity that is not a private foundation within the meaning of section 509a and qualifies for deductible contributions as provided in section 170b1aVI. Management represents that the organization has no unrelated business income for the year ended December 31, 2023. true Europe Including Iceland and Greenland Grants to recipients in region 529131 East Asia and the Pacific Grants to recipients in region 249343 Middle East and North Africa Grants to recipients in region 5001 783475 783475 Europe Including Iceland and Greenland Research Grant 519131 Wire East Asia and the Pacific Research Grant 249343 Wire Middle East and North Africa Conference Grant 5001 Wire 3 false false false false false false Part I Line 2 Grantees are required to make periodic progress reports. Chicago Benefit 2005029 1896235 108794 145874 187995 103848 207070 New York Benefit 285880 197680 88200 2445 14768 5345 46489 1 674320 674320 3858 20 55773 2965229 2768235 196994 152177 202763 109213 309332 773485 -576491 true The Children's Hospital of Philadelphia PO Box 8500 Philadelphia PA 19178 232237932 501C3 100000 Research Grant University of California San Francisco PO Box 748872 Los Angeles CA 90074 946036493 501C3 100000 Research Grant University of Alabama PO Box 870162 Tuscaloosa AL 35487 636001138 501C3 100000 Research Grant Northwestern University 633 Clark Street Room G-547 Evanston IL 60208 362167817 501C3 250000 Research Grant University of Texas Southwestern Medical Center 5323 Harry Hines Blvd MC 9029 Dallas TX 75390 746000089 501C3 249966 Research Grant Brigham and Women's Hospital 75 Francis Street Boston MA 02115 042312909 501C3 250000 Research Grant St Jude Children's Research Hospital 32121 Woodward Ave Suite 350 Royal Oak MI 48073 620646012 501C3 99999 Research Grant Massachusetts General Hospital 55 Fruit St Boston MA 02114 041564655 501C3 99972 Research Grant Boston Children's Hospital PO Box 414413 Boston MA 02241 042774441 501C3 100000 Research Grant University of Maryland PO Box 41428 Baltimore MD 21203 526002033 501C3 99916 Research Grant American Epilepsy Society 135 W Lasalle St Chicago IL 60603 046112600 501C3 15000 Conference Grant University of Utah Conferences and Events 110 Sourth Fort Douglas Blvd Salt Lake City UT 84113 876000525 501C3 5000 Conference Grant Gordon Research Conferences 5568 Post Road G02 East Greenwich RI 02818 260150662 501C3 10445 Conference Grant Gryphon Bio 611 Gateway Blvd Suite 120 253 South San Francisco CA 94080 825230170 C-Corp 88100 Research Grant Mid-Atlantic Sleep and Epilepsy Center 6410 Rockledge Dr Bethesda MD 20817 300767458 S-Corp 36865 Research Grant Morehouse University 720 Westview Drive SW Atlanta GA 30310 580566205 501C3 242790 Research Grant Stanford University PO Box 884253 Los Angeles CA 90088 941156365 501C3 20609 Research Grant Mayo Clinic PO Box 860334 Minneapolis MN 55486 416011702 501C4 9539 Research Grant 15 3 Part I Line 2 Grantees are required to make periodic progress reports X X X X X false false false false false false false false false Beth Dean CEO 286552 28013 9654 28915 353134 Laura Lubbers Chief Scientific Officer 288771 27770 9555 7805 333901 Alysha Biehl Sr. Director Development 156866 4780 9867 171513 Form 990, Part VI, Section B, Line 11b Form 990 is reviewed by the finance manager, treasurer and chief executive officer. When the draft is approved, it is sent to the entire board Form 990, Part VI, Section B, Line 12c Each board member signs it annually and expects to self-monitor. Conflicts are dealt with on a case-by-case basis. Form 990, Part VI, Section C, Line 19 Governing documents and conflict of interest policy are not generally available to the public. The organizations financial statements are available on its website. Form 990, Part VI, Section B, Line 15a Comparable salary information is obtained and reviewed using an outside executive search firm. The board of directors has final approval and review compensation annually.