2024-05-08T19:18:33-05:00 2023-06-30 521711839 COUNCILOR BUCHANAN & MITCHELL PC 7910 WOODMONT AVE STE 500 BETHESDA MD 20814 990 2022-07-01 820765105 THE JOSEPH ROBERT SHAW FOUNDATION JOSE 2022371769 5117 52ND STREET NW WASHINGTON DC 20016 JANET SLOAN SECRETARY/TREASURER 2022371769 2024-05-06 1 JANET SLOAN 999009999 0 RICHARD E MORRIS P00190795 3019860600 2024-05-06 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z JOEY'S FOUNDATION JANET SLOAN 5117 52ND STREET NW WASHINGTON DC 20016 223165 0 X WWW.JOEYS.FOUNDATION X 2017 DC PROVIDING FINANCIAL SUPPORT TO INDIVIDUALS, ORGANIZATIONS OR OTHER ENTITIES ENGAGED IN RESEARCH, EDUCATION AND INNOVATION RELATED TO CHILDREN WITH BRAIN INJURIES, THEIR TREATMENT, REHABILITATION, RECOVERY AND ACTIVITIES OF DAILY LIVING. 7 7 0 7 0 0 398088 208925 0 0 7204 13219 5412 1021 410704 223165 35000 0 0 0 0 0 0 0 2521 22115 14195 57115 14195 353589 208970 781485 1036049 226 1028 781259 1035021 X PROVIDING FINANCIAL SUPPORT TO INDIVIDUALS, ORGANIZATIONS OR OTHER ENTITIES ENGAGED IN RESEARCH, EDUCATION AND INNOVATION RELATED TO CHILDREN WITH BRAIN INJURIES, THEIR TREATMENT, REHABILITATION, RECOVERY AND ACTIVITIES OF DAILY LIVING. 0 0 338 0 0 JOEY'S FOUNDATION WILL BE THE SUPPORTING ORGANIZATION AND FINANCIAL SPONSOR OF THE BFIT PROGRAM IN NORTHERN VIRGINIA. BFIT ENCOURAGES PHYSICAL ACTIVITY AND PARTICIPATION FOR CHILDREN WITH CEREBRAL PALSY (CP), THE MOST COMMON MOTOR DISABILITY IN CHILDHOOD, AFFECTING AN ESTIMATED 500,000 CHILDREN AND ADULTS IN THE UNITED STATES. CP IS A COLLECTION OF NON-PROGRESSIVE CONDITIONS AFFECTING THE BRAIN. IMPAIRMENTS ARE CAUSED BY ABNORMAL DEVELOPMENT OF THE NERVOUS SYSTEM CHARACTERIZED BY SPASTICITY, MUSCLE WEAKNESS, AND POOR MOTOR CONTROL. THIS VULNERABLE POPULATION IS OFTEN EXCLUDED FROM PARTICIPATING IN COMMUNITY-BASED PHYSICAL ACTIVITY.BFIT IS AN INDIVIDUALLY MENTORED PHYSICAL ACTIVITY PROGRAM FOR CHILDREN WITH NEUROMUSCULOSKELETAL CONDITIONS SUCH AS CEREBRAL PALSY, FOCUSING ON FAST MOVEMENTS TO BUILD STRENGTH, POWER, AND COORDINATION. THE PROGRAM'S SUPPORTIVE SOCIAL ENVIRONMENT REDUCES BARRIERS TO PARTICIPATION AND FOCUSES ON INCREASING NOT ONLY PHYSICAL BUT ALSO SOCIAL FUNCTIONING. THE 12-WEEK PROGRAM, DESIGNED AND BASED AT SHRINERS HOSPITALS FOR CHILDREN SPRINGFIELD MA, CONSISTS OF TWO 90-MINUTE ACTIVITY SESSIONS EACH WEEK. OUTCOME MEASURES FOR EACH ATHLETE ARE BASED ON STANDARDIZED ASSESSMENTS DONE AT THE START OF THE PROGRAM WITH GOALS SET BY THE ATHLETES AND THEIR FAMILIES. BFIT ENABLES ADOLESCENTS WITH PHYSICAL DISABILITIES TO PURSUE THEIR DESIRE TO PARTICIPATE IN RECREATIONAL SPORTS AND INCREASE PHYSICAL ACTIVITY. WITH POSITIVE REINFORCEMENT AND INCREASED SELF-ESTEEM, ATHLETES LEARN THAT THEY ARE CAPABLE OF PARTICIPATING IN MANY DIFFERENT TYPES OF EXERCISES, UTILIZING A VARIETY OF EQUIPMENT AND LEARNING NEW MOTOR SKILLS.THE PROGRAM IMPLEMENTATION REQUIRES EXERCISE SPACE, EQUIPMENT, PROGRAM COORDINATION, VOLUNTEER TRAINERS FROM A LOCAL PT SCHOOL AND MEDICAL OVERSIGHT.DEPENDING ON FUNDING LEVELS, THE PROGRAM COULD SUPPORT THE PARTICIPATION OF TENS TO HUNDREDS OF CHILDREN WITH CEREBRAL PALSY IN A PHYSICAL ACTIVITY PROGRAM THAT IS DEMONSTRATED TO IMPROVE FUNCTIONAL OUTCOMES AS WELL AS BENEFITS FOR MENTAL HEALTH AND SOCIALIZATION FOR PARTICIPANTS AND FAMILIES ALIKE. 0 0 0 CONTINUED SPONSORSHIP OF A MAJOR CLINICAL DEVICE DEVELOPMENT ENTITLED PEDIACORE, AN IMMERSIVE, INTERACTIVE MOVEMENT TRAINING SYSTEM FOR TODDLERS AND PRE-SCHOOL AGED CHILDREN CREATED UNDER THE AUSPICES OF THE CHIEF SCIENCE OFFICER OF THE KENNEDY KRIEGER INSTITUTE AND THE CENTER FOR BIOENGINEERING INNOVATION AND DESIGN PROGRAM OF JOHNS HOPKINS UNIVERSITY. THIS DEVICE WAS CREATED TO IMPROVE TRUNK STABILITY IN YOUNG CHILDREN WITH CEREBRAL PALSY. TRUNK STABILITY IS IMPORTANT FOR MANY DAY-TO-DAY FUNCTIONS, INCLUDING SITTING, STANDING AND WALKING. A SECOND-GENERATION PROTOTYPE SYSTEM HAS BEEN CONSTRUCTED AND IS IN CLINICAL TRIAL. JOEY'S FOUNDATION WILL CONTINUE SPONSORSHIP OF THE SYSTEM THROUGH A SINGLE-BLIND RANDOMIZED CONTROLLED TRIAL. THE PRIMARY OUTCOME WILL BE A CLINICAL MEASURE OF POSTURAL (TRUNK) CONTROL THAT IS COLLECTED THROUGHOUT THE INTERVENTION PHASE AND AT TWO FOLLOW-UP POINTS AFTER THERAPY (THREE AND SIX MONTHS). THIS DEVICE COULD IMPACT NEW PHYSICAL THERAPY TECHNIQUES. 0 0 0 JOEY'S CORNER PROVIDES BOOKS FOR CHILDREN WITH AND WITHOUT DISABILITIES. THE ORGANIZATION IS ENGAGED IN THE CREATION AND DISTRIBUTION OF MULTISENSORY ADAPTIVE BOOKS FOR CHILDREN WITH MOTOR SKILL IMPAIRMENT. TO CREATE THESE ADAPTED BOOKS, JOEY'S FOUNDATION IS SPONSORING WORKSHOPS TO MAKE BOOKS MORE ACCESSIBLE, AVAILABLE AND UNDERSTANDABLE FOR ALL LEARNERS. THIS IS ACCOMPLISHED BY ADDING MATERIAL TO PROVIDE STABILIZATION AND HELP WITH INDEPENDENT PAGE TURNING. ADAPTED TEXT AND SYMBOL-SUPPORTED VERSIONS OF READING MATERIAL WILL BRING BOOKS TO LIFE IN A VISUAL AND PHYSICAL WAY. PROPS LIKE PUPPETS OR TOYS ENHANCE A STORY AND INCREASE UNDERSTANDING. REMOVABLE, LAMINATED COPIES OF IMAGE OR CHARACTERS MAKE THE READING MATERIAL INTERACTIVE. FINALLY, THE USE OF SPEECH-GENERATING DEVICES ALIGNED TO A TEXT WILL INCREASE INTERACTION AND UNDERSTANDING OF THE STORY. MULTISENSORY BOOKS ARE CREATIVE, FUN AND ENHANCE COMPREHENSION. AS MORE BOOKS ARE ADAPTED, THE ORGANIZATION WILL BE ABLE TO SUPPORT JOEY'S CORNER IN MORE LOCATIONS. 338 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 7 7 1 0 0 0 0 0 0 1 1 0 0 1 0 0 0 0 0 0 X JANET SLOAN 2022371769 5117 52ND STREET NW WASHINGTON DC 20016 X ROBERT SLOAN BOARD CHAIR/PRESIDENT 15.00 X X 0 0 0 JANET SLOAN SECRETARY/TREASURER 15.00 X X 0 0 0 MATTHEW AMMERMAN MD BOARD MEMBER 0.25 X 0 0 0 SHERRI BOHINC BOARD MEMBER 0.25 X 0 0 0 NICHOLAS MCCONNELL ESQ BOARD MEMBER 0.25 X 0 0 0 CHRISTOPHER SHAW BOARD MEMBER 0.25 X 0 0 0 SUSAN SHAW BOARD MEMBER 0.25 X 0 0 0 0 0 0 0 0 0 0 0 208925 5000 208925 12566 12566 653 0 653 653 653 MISCELLANEOUS 900099 1021 1021 1021 223165 1021 0 13219 534 534 3470 3470 1779 338 1441 1461 1461 61 61 2562 2562 FUNDRAISING 2521 2521 MERCHANT SERVICES 1221 1221 DC REGISTRATION 548 548 BANK CHARGES 38 38 14195 338 11336 2521 4360 28277 182177 359985 594948 642787 0 5000 781485 1036049 226 1028 226 1028 X 781259 1035021 781259 1035021 781485 1036049 208970 44792 0 X 0 0 0 X 182582 216613 224856 398088 208925 1231064 182582 216613 224856 398088 208925 1231064 277122 953942 564 743 627 5502 12566 20002 5412 1021 6433 1257499 0.75860 0.80740 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: MISCELLANEOUS - 2021 AMOUNT: $ 5,412. 2022 AMOUNT: $ 1,021. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED FORM 990, PART VI, SECTION A, LINE 2 SHERRI BOHINC, FAMILY RELATIONSHIP; CHRISTOPHER SHAW, FAMILY RELATIONSHIP; SUSAN SHAW, FAMILY RELATIONSHIP; JANET SLOAN, FAMILY RELATIONSHIP; ROBERT SLOAN, FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY OUTSIDE ACCOUNTANTS AND REVIEWED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 THE FOUNDATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST.