2024-01-15T17:14:40-06:00 2023-06-30 410746749 CLIFTONLARSONALLEN LLP 301 NORTH LAKE AVENUE SUITE 900 PASADENA CA 91101 990 2022-07-01 854002671 EPILEPSY FOUNDATION OF GREATER LOS ANGEL EPIL 3106702870 5777 WEST CENTURY BLVD 820 LOS ANGELES CA 90045 STEPHEN SMITH TREASURER 3106702870 2023-12-18 1 STEPHEN SMITH 999009999 1 KAREN LO P02141262 6267933600 2023-12-18 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z STEPHEN SMITH 5777 WEST CENTURY BLVD 820 LOS ANGELES CA 90045 2250293 0 X HTTPS://EPILEPSYLOSANGELES.ORG/ X 2020 CA THE MISSION OF OUR NATIONWIDE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. 21 21 6 100 0 0 1120386 1274747 0 0 94629 161247 573444 300095 1788459 1736089 518725 270625 0 0 448165 431937 0 0 112867 368958 394589 1335848 1097151 452611 638938 5262682 5732060 652528 414059 4610154 5318001 X THE MISSION OF OUR NATIONWIDE EPILEPSY FOUNDATION IS TO LEAD THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY AND TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES, AND SAVE LIVES. THE EPILEPSY FOUNDATION LOS ANGELES (EFLA) FULFILLS OUR MISSION LOCALLY, LEADING THE FIGHT TO END EPILEPSY TOGETHER, TO OVERCOME CHALLENGES CREATED BY SEIZURES FOCUSING ON SPECIALTY CARE, PUBLIC EDUCATION AND AWARENESS AND SUPPORTIVE CARE. 0 0 287675 266700 SPECIALTY CARE: IMPROVE ACCESS TO AND QUALITY OF SPECIALTY CARE TO IMPROVE OUTCOMES FOR CHILDREN WITH EPILEPSY. EFLA DOES THIS BY HELPING EXPEDITE ACCESS TO SPECIALTY CARE THROUGH OUR 800# HELPLINE AND FUNDING PEDIATRIC EPILEPTOLOGIST FELLOWS. SPECIFICALLY, EFLA CONTINUED OUR CARE AND CURE INITIATIVES TO SUPPORT THE TRAINING OF SPECIALISTS AT MEDICAL EPILEPSY CENTERS IN OUR REGION: (A) UCLA DAVID GEFFEN SCHOOL OF MEDICINE (B) CHILDREN'S HOSPITAL LOS ANGELES (C) USC KECK SCHOOL OF MEDICINE. 341460 PUBLIC EDUCATION AND AWARENESS: PROMOTE UNDERSTANDING, FAIRNESS, ACCESS AND JUSTICE FOR THOSE WITH EPILEPSY. PROMOTED AWARENESS ABOUT EPILEPSY AND EFLA THROUGH COMMUNITY EVENTS, WEBSITE AND SOCIAL MEDIA SO THAT MORE PEOPLE ARE INFORMED AND INSPIRED TO JOIN THE FIGHT TO END EPILEPSY TOGETHER. PROMOTED AWARENESS TO GROW THE NUMBER OF GRASSROOT ADVOCATES. EFLA LED EDUCATING STATE LEGISLATORS AND LEGISLATIVE STAFF AND OTHER KEY STAKEHOLDERS REGARDING THE NEEDS OF CHILDREN WITH EPILEPSY AND TRAINING OPPORTUNITIES. EFLA ADVOCATED FOR MEASURES THAT BENEFIT PEOPLE WITH EPILEPSY, AND CONTINUED INVOLVEMENT WITH ADVOCACY COALITIONS. IN CONJUNCTION WITH THE EPILEPSY FOUNDATION OF AMERICA, WE PARTICIPATED IN NATIONWIDE ADVOCACY THROUGH THE PUBLIC POLICY INSTITUTE AND TEENS SPEAK UP TO ADVOCATE FOR MORE FUNDING FOR EPILEPSY RESEARCH AND PUBLIC HEALTH PROGRAMS AND ENGAGE YOUNG PEOPLE AS ADVOCATES. EDUCATION TO THE PUBLIC-AT-LARGE WAS DELIVERED THROUGH SEIZURE RECOGNITION AND FIRST AID TRAININGS TO EMPLOYERS, SCHOOLS, AND THROUGH PARTNER COMMUNITY AGENCIES. EFLA PARTICIPATED IN THE CALIFORNIA SCHOOL NURSES ORGANIZATION'S ANNUAL CONFERENCE TO UPDATE SCHOOL NURSES ON THE LATEST TREATMENTS IN EPILEPSY AND HOW BEST TO SUPPORT STUDENTS WITH SEIZURES. 178160 3925 SUPPORTIVE CARE: PROMOTE SEIZURE FREEDOM AND SAFETY AND TO IMPROVE AND SAVE LIVES. ORGANIZED AND OFFERED A VARIETY OF VIRTUAL ACTIVITIES TO DISSEMINATE INFORMATION AND UPDATES ON EPILEPSY AND EPILEPSY TREATMENT. WE CONDUCTED EPILEPSY AND SEIZURE FIRST AID TRAINING IN THE COMMUNITY, MONTHLY EPILEPSY 101 SESSIONS WITH FAMILIES AND INDIVIDUALS AFFECTED BY EPILEPSY, MONTHLY SEIZURE FIRST AID TRAINING CERTIFICATION COURSES, MONTHLY SUPPORT GROUPS, PARTNERED WITH LOCAL EPILEPSY CENTERS TO HOST MULTIPLE EDUCATIONAL SESSION ON VARIOUS TOPICS, PROVIDED TRAINING AND UPDATES ON EPILEPSY TO SCHOOL NURSES AND SCHOOL PERSONNEL. EFLA CONNECTS PEOPLE AFFECTED BY EPILEPSY TO ONE ANOTHER TO BUILD COMMUNITY AND SUPPORT AND TO ULTIMATELY EMPOWER THEM TO PURSUE THEIR UTMOST QUALITY OF LIFE. EFLA DOES THIS BY OFFERING MULTIPLE NETWORKING ACTIVITIES ART THERAPY, MUSIC THERAPY, EMPLOYMENT READINESS WORKSHOPS, AND OTHER SOCIAL ACTIVITIES. THROUGH THE 800# HELPLINE, EFLA HELPS PEOPLE NAVIGATE THEIR EPILEPSY JOURNEY BY PROVIDING INFORMATION, REFERRAL AND AN EMERGENCY ASSISTANCE PROGRAM. 29111 29111 836406 1 1 0 1 0 0 0 0 0 1 1 0 0 1 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 18 0 6 1 0 0 0 0 0 0 0 0 0 0 0 0 X 21 21 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 0 0 CA X JULIE PALETTA 3106702870 5777 WEST CENTURY BLVD 820 LOS ANGELES CA 90045 ZITOMERSKY LOREN PRESIDENT 2.00 X X 0 0 0 BAUM STEVE SECRETARY 2.00 X X 0 0 0 EDELMAN MATT VICE PRESIDENT 2.00 X X 0 0 0 SMITH STEPHEN TREASURER 2.00 X X 0 0 0 KALLER ADAM ASSISTANT SECRETARY 2.00 X X 0 0 0 GUMPERT ANDREW MEMBER 2.00 X 0 0 0 BORMAN MARK MEMBER 2.00 X 0 0 0 BENDER CHRIS MEMBER 2.00 X 0 0 0 DRABINSKY DARYL MEMBER 2.00 X 0 0 0 GOLDSTEIN HEIDI MEMBER 2.00 X 0 0 0 HAMILTON DIANE CREA MEMBER 2.00 X 0 0 0 HOFFMAN PEYTON MEMBER 2.00 X 0 0 0 HOWLEY MATT MEMBER 2.00 X 0 0 0 KOH SAMUEL MEMBER 2.00 X 0 0 0 MINAHAN THOMAS MEMBER 2.00 X 0 0 0 NELSON JOLIE MEMBER 2.00 X 0 0 0 PARKER DAVID A MEMBER 2.00 X 0 0 0 PIASEK DIEGO MEMBER 2.00 X 0 0 0 SHERAK GINGER MEMBER 2.00 X 0 0 0 STEVENS BETHANY MEMBER 2.00 X 0 0 0 ZENOBI CARO MEMBER 2.00 X 0 0 0 HAIGHT MARTHA MEMBER (END DATE 01/26/2023) 2.00 X 0 0 0 REBEKKAH HALLIWELL EXECUTIVE DIRECTOR 40.00 X 88430 0 5506 JULIE PALETTA FINANCE DIRECTOR 16.00 X 60209 0 0 148639 0 5506 0 0 0 0 0 725672 116727 432348 1274747 161247 161247 814299 725672 514204 300095 300095 1736089 0 0 461342 266700 266700 3925 3925 165293 70735 69295 25263 219297 198696 5955 14646 17368 12171 4264 933 29979 21003 5930 3046 3850 3850 23459 23459 48000 48000 42168 27235 12817 2116 47279 41704 3396 2179 9499 6805 1780 914 52999 37130 10484 5385 12095 11748 73 274 32771 29455 2249 1067 3042 2131 602 309 8397 4181 3610 606 SPECIAL EVENT NON DIREC 77185 21342 55843 WALK AWARENESS EXPENSES 30944 30944 POSTAGE & PRINTING 2901 2501 114 286 1097151 836406 147878 112867 3264861 2076538 17500 5000 26548 139200 35501 31016 13005 4467 11580 8538 1496166 1906692 1975602 5262682 5732060 78452 92983 570000 320000 4076 1076 652528 414059 X 1376660 1691738 3233494 3626263 4610154 5318001 5262682 5732060 638938 68910 0 X X 0 1 X 1 0 X 197426 1120386 1274747 2592559 197426 1120386 1274747 2592559 2592559 1905 94629 161249 257783 403 403 2850745 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: NET INCOME FROM FUNDRAISING EVENT - 2020 AMOUNT: $ 403. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 0 1 48000 0 0 48000 0 41000 41000 41000 41000 41000 41000 0 0 13005 4467 8538 8538 GARNIER TRUST 1975602 1975602 DEFERRED RENT 1076 1076 X 1804999 68910 68910 1736089 0 1736089 1097152 0 1097152 0 1097152 PART X, LINE 2: EFGLA IS RECOGNIZED AS A TAX-EXEMPT ORGANIZATION UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE AND SECTION 23701(D) OF THE CALIFORNIA REVENUE AND TAXATION CODE AND IS CLASSIFIED BY THE INTERNAL REVENUE SERVICE AS OTHER THAN A PRIVATE FOUNDATION. QUALIFYING CONTRIBUTIONS TO EFGLA ARE TAX DEDUCTIBLE. U.S. GAAP PROVIDE ACCOUNTING AND DISCLOSURE GUIDANCE ABOUT POSITIONS TAKEN BY AN ORGANIZATION IN ITS TAX RETURNS THAT MIGHT BE UNCERTAIN. MANAGEMENT HAS CONSIDERED ITS TAX POSITIONS AND BELIEVES ALL OF THE POSITIONS TAKEN BY EFGLA ARE MORE LIKELY THAN NOT TO BE SUSTAINED UPON EXAMINATION WALK 378679 334679 44000 70190 2013 CARE AND CURE DINNER 1144926 382699 762227 73440 201628 158006 2 16366 8294 8072 8927 1539971 725672 814299 152557 201628 160019 514204 300095 1 CHILDREN'S HOSPITAL OF LOS ANGELES 4650 SUNSET BLVD LOS ANGELES CA 90027 951690977 266700 0 PEDIATRIC GENETICS PROGRAM ENDOWMENT TO TRAIN A PEDIATRIC GENETICS FELLOW. 1 PART I, LINE 2: THE FOUNDATION HAS A WRITTEN CONTRACT WITH EACH GRANT RECIPIENT AND OBTAINS PROGRESS PROGRAM REPORTS AND FINANCIAL REPORTS DETAILING FUND USAGE IN ACCORDANCE WITH THE GRANT STIPULATIONS ON A SEMI-ANNUAL BASIS AND FINAL PROGRAM AND FINANCIAL REPORTS AT THE COMPLETION OF THE CONTRACT PERIOD. FORM 990, PART VI, SECTION B, LINE 11B THE TAX RETURN IS REVIEWED BY THE FINANCE DIRECTOR AND APPROVED BY THE FINANCE COMMITTEE. FORM 990, PART VI, SECTION B, LINE 12C THE EPILEPSY FOUNDATION LOS ANGELES (HEREINAFTER REFERRED TO AS EFLA OR THE FOUNDATION) BENEFITS FROM THE PRESENCE OF VOLUNTEERS AND STAFF WITH DIVERSE INTERESTS AND EXPERTISE IN THE FIELD OF EPILEPSY WHO SERVE THE FOUNDATION IN ITS MANY ACTIVITIES AND IN POLICY DEVELOPMENT. AT THE SAME TIME, THE FOUNDATION RECOGNIZES THAT AN INDIVIDUAL SERVING THE FOUNDATION IN AN ELECTED OR APPOINTED POSITION MAY HAVE SOME OUTSIDE INTERESTS WHICH COULD CONSTITUTE A CONFLICT OF INTEREST OR BE PERCEIVED AS CONSTITUTING A CONFLICT OF INTEREST BECAUSE OF THE VERY NATURE AND EXTENT OF THAT INVOLVEMENT IN SOME ASPECT OF THE TREATMENT OF EPILEPSY. IN DISCHARGING THEIR RESPONSIBILITIES TO THE FOUNDATION, ALL DIRECTORS, OFFICERS, PAB MEMBERS, VOLUNTEERS AND STAFF ARE EXPECTED TO OBSERVE THE HIGHEST ETHICAL STANDARDS, TO AFFIRMATIVELY AVOID CONFLICTS OF INTEREST OR THE APPEARANCE THEREOF, AND TO ACT AS FIDUCIARIES OF THE FOUNDATION. ANY ACTIVITIES WHICH DO NOT SERVE THE BEST INTERESTS OF THE FOUNDATION OR WHICH FAVOR EITHER THE PERSONAL ADVANTAGE OF THE INDIVIDUAL OR ANOTHER PERSON OR CORPORATION ARE INCONSISTENT WITH THE DUTIES AND RESPONSIBILITIES OWING TO THE FOUNDATION. FORM 990, PART VI, SECTION B, LINE 15A DETERMINATION OF THE EXECUTIVE DIRECTOR COMPENSATION IS ADDRESSED THROUGH THE ANNUAL REVIEW AND APPROVAL OF THE OPERATING BUDGET AND A FISCAL YEAR END MEETING BETWEEN THE EXECUTIVE COMMITTEE OF THE BOARD AND THE EXECUTIVE DIRECTOR. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES FORM 990 AND OTHER FINANCIAL INFORMATION AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XII, LINE 2C: THE EPILEPSY FOUNDATION OF GREATER LOS ANGELES HAS NOT CHANGED ITS OVERSIGHT OR SELECTION PROCESS IN THE CURRENT TAX YEAR. EPILEPSY FOUNDATION OF AMERICA 8301 PROFESSIONAL PLACE EAST LANDOVER MD 20785 520856660 EPILEPDY RESEARCH AND AWARENESS MD 501(C)(3) LINE 10 N/A 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 EPILEPSY FOUNDATION OF AMERICA C 257800 AMOUNT OF CONTRIBUTIONS