2024-12-12T17:50:59-06:00 2024-01-31 954557617 Harrington Group CPAs LLP 2698 Mataro Street Pasadena CA 91107 990 2023-02-01 954163338 ALS Network ALSN 8188658067 PO Box 7082 Woodland Hills CA 91365 Sheri Strahl MPH MBA President, CEO 8188658067 2024-12-12 1 1 Oswaldo D Torres CPA P02465082 6264036801 2023 2024-10-15 13:58:12Z Sheri Strahl MPH MBA PO Box 7082 Woodland Hills CA 91365 12160526 0 X www.alsnetwork.org X 1991 CA ALS Network (formerly The ALS Association Golden West Chapter) is dedicated to leading the fight to treat and cure ALS through cutting-edge research and targeted advocacy while also empowering people with ALS and their families to live fuller lives by providing them with compassionate care and support. ALS Network supports people living with ALS and their loved ones in California, Hawaii, and elsewhere. 16 16 60 625 0 0 10242961 11121176 0 0 2319 19853 0 401621 10245280 11542650 1388434 1417234 0 0 4695681 5286578 0 0 975769 3127577 3367813 9211692 10071625 1033588 1471025 13316104 14303880 1645251 1140171 11670853 13163709 X The mission of ALS Network is to partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes. 0 0 5021119 1417234 Our mission critical program priorities include care services, research, and advocacy. These programs are provided to people with ALS and their families at no charge. Our accomplishments for fiscal year ending 1/31/24 are as follows:Care Management -Strategically based in and near patients' home communities, ALS Network Care Managers (CMs) work directly with persons with ALS and their families and serve as part of the treatment team in collaboration with clinicians from ALS specialty care clinics. Among other things, CMs provide critical information and referrals to patients and families, help patients obtain medical and communication-related equipment, connect them with essential resources, advocate for the uninsured, explain medical directives, and offer psychosocial support. In addition, the CM program provides help navigating complex benefits systems, more than 30 monthly support groups, bereavement support, educational webinars, concrete support, safety assessments, in-clinic support, and many other things. This program is available throughout California and Hawaii. This program provided service to 1,965 persons with ALS. Service was available for 365 days. 1538300 Community Outreach & Awareness/Public Policy -Community outreach events, including our ALS walks, are opportunities to bring hope and a sense of community to persons with ALS and their families. By coming together to share their stories, people with ALS and their families, as well as those who have lost loved ones to ALS, find strength and support with one another. Community outreach events create an environment of empowerment where families and friends of persons with ALS are given an opportunity to affect public policy by signing petitions that are sent to the legislators representing their districts. These events also bring awareness to local communities of those fighting ALS and of the support available to them through ALS Network.ALS Network Public Policy and Leadership Development program is intended to increase understanding, education and awareness of the devastating impact of ALS and the role that ALS Network plays in achieving the three core components of our mission; care and support for people with ALS and families, global research for treatments and cures, and important Public Policy initiatives. Through these efforts, we engage volunteers in the communities we serve and give them the opportunity to participate in advancing the activity of the organization and the achievement of our mission priorities. In addition, these activities have a direct positive impact on increasing access to care and ensuring significant federal funding of ALS research - historically at an increased amount year over year. This program also encompasses the organization's robust ALS Research Summit, an annual gathering of researchers, investigators, clinicians, biotech companies, government representatives and patient advocates in ALS and related fields. The purpose of the Summit is to increase, expedite and promote the amount and level of ALS and related research done in California; and to foster networking, collaboration and cooperation among investigators, their peers and their colleagues to identify, develop and deliver new and effective treatments, ideas and, ultimately, cures. 1289277 ALS Clinic Support - ALS Network is committed to making sure that people living with ALS have access to specialized care that is based on best practices. Proven by research to help people with ALS live longer and better lives, access to high quality specialty care is one of the cornerstones of the ALS Network wraparound model of care. Chapter care services staff members are embedded in each ALS specialty clinic, where they act as key members of the multidisciplinary team and provide comprehensive support to persons with ALS and their family members/caregivers. This model of care brings together a team of health care professionals specially trained to address the needs of people living with ALS, allowing them to receive care from each discipline during a single visit. The care team typically includes a neurologist, physical therapist, occupational therapist, respiratory therapist, nurse, dietitian, speech language pathologist, social worker, mental health professional, and ALS Network liaison. The ALS clinics supported by ALS Network Chapter provide compassionate care in a supportive, family-oriented atmosphere. In addition to supporting established ALS specialty clinics, the ALS Network Chapter supports, staffs, and promotes satellite clinics that improve access to critically needed services in areas that would otherwise lack ALS specialty care. 460555 National ALS Association -As a former chapter of the ALS Association, ALS Network provided financial support to The ALS Association national office to support federal public policy initiatives to improve the lives of patients and families living with ALS, as well as global cutting-edge research projects in search of ALS treatments and cures. 460555 8309251 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 26 0 1 60 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 16 16 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 CA HI X X X Paul Willett 8188658067 5950 Canoga Ave Suite 110 Woodland Hills CA 91367 Patricia Shuler Schimbor Board Chair 1.00 X X 0 0 0 Stacy Inman Board Vice Chair 1.00 X X 0 0 0 Jan Medusky Board Treasurer 1.00 X X 0 0 0 Jared Gill Board Secretary 1.00 X X 0 0 0 Susan Morris Member-at-Large 1.00 X 0 0 0 David W Cragg Sr Board Member 1.00 X 0 0 0 Linda Della Board Member 1.00 X 0 0 0 Bruce Friedricks Board Member 1.00 X 0 0 0 Gary Galerne Board Member 1.00 X 0 0 0 Jonathan Katz MD Board Member 1.00 X 0 0 0 Michele Newman Board Member 1.00 X 0 0 0 Kathleen Rasmussen Board Member 1.00 X 0 0 0 Shae Selix Board Member 1.00 X 0 0 0 Pranjal Shah Board Member 1.00 X 0 0 0 Kathy Shawyer Maffei Board Member 1.00 X 0 0 0 Simon Wise Board Member 1.00 X 0 0 0 Fred B Fisher President/CEO 40.00 X 662148 0 14273 Sheri Strahl COO 40.00 X 304091 0 13264 Cherryl Goldstein VP of Development 40.00 X 220397 0 9749 Jon Asher Garfinkel VP of Community Outreach 40.00 X 143702 0 816 Audra Hindes VP of Care Services 40.00 X 134845 0 5170 Paul Willett Sr Dir Finance & Admin 40.00 X 139355 0 6528 1604538 0 49800 6 0 1 0 Ballard Spahr LLP 2029 Century Park E Ste 1400 Los Angeles CA 90067 Legal 137104 Michael Adams Consulting 96 Steamboat Rd Great Neck NY 11024 IT consulting 112465 Point B LLC 6080 Center Dr 600 Los Angeles CA 90045 Business management consulting 105185 3 1250718 3814846 6055612 988295 11121176 19853 19853 617876 1250718 617876 0 Settlement proceeds 900099 401621 401621 401621 11542650 0 0 421474 X 1417234 1417234 678850 509138 33942 135770 3716979 2996785 360393 359801 75551 60898 7313 7340 505143 403009 45424 56710 310055 247334 27854 34867 12139 12139 20700 20700 48000 48000 1267942 925072 134013 208857 10135 8085 910 1140 391178 318454 32297 40427 112465 75467 16431 20567 284409 221224 31999 31186 165971 132397 14910 18664 4633 3696 416 521 56791 45303 5102 6386 Research, patient svcs 460555 460555 Constituent activity 324200 258618 29125 36457 Miscellaneous 92962 74161 8347 10454 Other clinic programs 47549 47549 68184 56272 5290 6622 10071625 8309251 786605 975769 10331845 10652086 1198910 2311741 852074 649060 288301 257042 18832 2168 59931 59931 0 0 626142 431783 13316104 14303880 865626 552721 160000 155099 619625 432351 1645251 1140171 X 9301541 11348524 2369312 1815185 11670853 13163709 13316104 14303880 1471025 21831 0 X 0 1 X 1 0 X 10438540 8807876 10467543 10242961 11121176 51078096 10438540 8807876 10467543 10242961 11121176 51078096 51078096 1937 1111 587 2319 19853 25807 401621 401621 51505524 0.99170 0.99610 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 0 0 0 1 48000 0 0 0 48000 0 Part II-B, Line 1: ALS Network lobbying activities are focused on initiating and promoting policy and legislative priorities that benefit the ALS community. The $48,000 was to Noteware Government Relations. 59931 59931 0 0 Right-of-use liabilities - operating leases 432351 432351 X 11564481 21831 21831 11542650 0 11542650 10071625 0 10071625 0 10071625 Part X, Line 2: ALS Network is exempt from taxation under Internal Revenue Code Section 501(c)(3) and California Revenue and Taxation Code Section 23701d. Generally accepted accounting principles provide accounting and disclosure guidance about positions taken by an organization in its tax returns that might be uncertain. Management has considered its tax positions and believes that all of the positions taken by ALS Network in its federal and state exempt organization tax returns are more likely than not to be sustained upon examination. ALS Network's returns are subject to examination by federal and state taxing authorities, generally for three and four years, respectively, after they are filed. Napa Ride 941870 724867 217003 7758 54964 28846 125434 Champions 557318 307703 249615 10098 3839 117322 118355 3 369406 218148 151258 10521 24356 41204 75179 1868594 1250718 617876 28377 83159 187372 318968 617876 0 1 ALS Association Greater San Diego Chapter 9929 Hilbert St Suite A San Diego CA 92131 043651272 501(c)(3) 207864 0 To support a wraparound model of care ALS Association Greater Sacramento Chapter 5701 Sunrise Blvd Citrus Heights CA 95610 680159292 501(c)(3) 226936 0 To support a wraparound model of care ALS Association Orange County Chapter 3002 Dow Ave Unit 524 Tustin CA 92780 330282720 501(c)(3) 182434 0 To support a wraparound model of care Regents of the University of California Irvine 200 S Manchester Suite 110 Orange CA 92868 952226406 501(c)(3) 100000 0 To support a wraparound model of care Faculty Physicians & Surgeons of LLUSM 11370 Anderson St Suite B-100 Loma Linda CA 92354 330672915 501(c)(3) 100000 0 To support a wraparound model of care Regents of the University of California Department of Neurosciences 9500 Gilman Dr La Jolla CA 920935004 956006144 501(c)(3) 100000 0 To support a wraparound model of care UC Davis Multidisciplinary ALS Clinic 4860 Y St Suite 3850 Sacramento CA 95817 946036494 501(c)(3) 100000 0 To support a wraparound model of care Cedar-Sinai Medical Center 8700 Beverly Blvd Los Angeles CA 90048 951644600 501(c)(3) 100000 0 To support a wraparound model of care Forbes Norris ALS Research Center 2324 Sacramento St San Francisco CA 94115 941156581 501(c)(3) 100000 0 To support a wraparound model of care Regents of the University of California San Francisco 1855 Folsom St MCB 425 Box 0897 San Francisco CA 94143 946036493 501(c)(3) 100000 0 To support a wraparound model of care Keck Medical of USC ALS Clinic University of Southern California University Gardens Suite 205 Los Angeles CA 90089 951642394 501(c)(3) 100000 0 To support a wraparound model of care 11 0 Part I, Line 2: Grantees submit an application for chapter support that includes proposed program activities, anticipated impact/results, and the related program budget. After a review by executive and program leadership as well as the Board of Directors, proposals that represent a comprehensive, wraparound model of care paired with feasible and relevant objectives and appropriate budget plans are approved and the applicants notified. To ensure that progress is being made and to allow for program modifications if necessary, a six month progress report is required of all grantees. A year-end report confirms the impact of the grant and creates the platform for the application for renewed funding. To receive clinic support, the ALS clinic must be in the State of California and must maintain and adhere to the national standards of Certified Treatment Centers of Excellence (CTCEs). The standards require a multidisciplinary team approach, a cornerstone of the wraparound model of care. Compliance is monitored through on-site clinic participation by chapter staff as well as compliance monitoring by The ALS Association national office. CTCEs must submit an annual report to the national office. Once the national office reviews and confirms adherence to CTCE standards, the CTCE is awarded funding to support clinic services for one year. X X X 0 0 0 0 0 0 0 1 0 Fred B Fisher President/CEO 552148 0 110000 0 0 0 13200 0 1073 0 676421 0 0 0 Sheri Strahl COO 246091 0 58000 0 0 0 12189 0 1075 0 317355 0 0 0 Cherryl Goldstein VP of Development 220397 0 0 0 0 0 8836 0 913 0 230146 0 0 0 Part I, Line 7 Compensation potentially includes a discretionary performance-based bonus. Compensation for officers and key employees of the organization is determined through the annual budget process and is approved by the President/CEO and the governing board. The Board approves all bonuses and incentive (merit) salary increases for the President/CEO. The $110k bonus for Fred B. Fisher is comprised of $50k for FY 22/23 and $60k for FY 23/24. X 1 988295 FMV 0 0 0 Part I, Column (b): The number of contributions reported is based on the number of individual donors. Form 990, Part VI, Section A, line 4 ALS Network separated from the National ALS Association September 2023 and became ALS Golden West on an interim basis before rebranding as ALS Network publicly in January 2024. The separation was approved by the Board. The Bylaws were amended and restated on July 12, 2023. Form 990, Part VI, Section B, line 11b Prior to filing and upon completion of the audit field work, a draft of the financial statements and Form 990 is presented to the board at the first board meeting following the audit. Form 990, Part VI, Section B, line 12c Each new hire is required to complete a conflict of interest document. On an annual basis, each employee and board member is required to sign an updated form. Form 990, Part VI, Section B, line 15 The executive committee of the board determines the compensation for the President/CEO, the COO, and any other officers if applicable. After application of the annual Consumer Price Index inflation rate, any discretionary adjustment is based on comparable salary data, compensation trends in the industry, tenure and retention goals, meritorious achievements in the prior year, and project load for the ensuing year. Compensation potentially includes a discretionary performance-based bonus. Compensation for officers and key employees of the organization is determined through the annual budget process and is approved by the President/CEO and the governing board. All salaries are researched through comparable non-profit data. Form 990, Part VI, Section C, line 19 ALS Network provides access to its audited financial statements and Form 990 through its website. ALS Network financials can also be viewed on the Charity Navigator and GuideStar websites. ALS Network (previous years' ALS Association Golden West Chapter) financial statements and a public copy of the Form 990 can be viewed on the Dept. of Registry Trusts website. Form 990, Part IX, line 11g Other professional services: Program service expenses 300,930. Management and general expenses 6,457. Fundraising expenses 49,188. Total expenses 356,575. Outside services: Program service expenses 38,288. Total expenses 38,288. Outside contractors: Program service expenses 585,854. Management and general expenses 127,556. Fundraising expenses 154,920. Total expenses 868,330. Entertainment: Fundraising expenses 4,749. Total expenses 4,749.