2024-11-06T14:27:56-06:00 2024-03-31 521022232 SNYDER COHN PC 11200 ROCKVILLE PIKE SUITE 415 NORTH BETHESDA MD 20852 990 2023-04-01 113142753 BOOMER ESIASON FOUNDATION BOOM 3016561200 7475 WISCONSIN AVENUE 1100 BETHESDA MD 20814 RONALD RUBIN TREASURER 3016561200 2024-11-05 1 0 KEITH JENNINGS P01319883 3016526700 2024-11-05 2023 2024-10-15 13:58:12Z RONALD RUBIN 7475 WISCONSIN AVENUE 1100 BETHESDA MD 20814 6542628 0 X WWW.ESIASON.ORG X 1993 NY THE MISSION OF THE BOOMER ESIASON FOUNDATION IS TO HEIGHTEN AWARENESS, EDUCATION AND THE QUALITY OF LIFE FOR THOSE AFFECTED BY CYSTIC FIBROSIS WHILE PROVIDING FINANCIAL SUPPORT TO RESEARCH AIMED AT FINDING A CURE. 26 22 18 45 0 0 7274823 5700944 0 0 11220 219278 18370 140 7304413 5920362 1309666 1738900 0 0 1476152 1697315 263739 146947 613138 2358482 2002847 5408039 5586009 1896374 334353 9084510 9505141 1907075 1727479 7177435 7777662 X THE MISSION OF THE BOOMER ESIASON FOUNDATION IS TO HEIGHTEN AWARENESS, EDUCATION AND THE QUALITY OF LIFE FOR THOSE AFFECTED BY CYSTIC FIBROSIS WHILE PROVIDING FINANCIAL SUPPORT TO RESEARCH AIMED AT FINDING A CURE. 0 0 1359151 444140 A PROGRAM TO FOSTER EDUCATION AND RESEARCH IN CYSTIC FIBROSIS WHICH INCLUDES THE FOLLOWING INITIATIVES: ADVOCACY ADVANCING KEY CYSTIC FIBROSIS INITIATIVES WITH A STRONG EDUCATIONAL FOCUS SHARED THROUGH THE ORGANIZATION'S ADVOCACY PLATFORM, ITS AMBASSADORS AND THROUGH GRANTS TO OTHER PATIENT ORGANIZATIONS; AN EDUCATIONAL COMPONENT SUPPORTING FAMILY BUILDING IN THE CYSTIC FIBROSIS COMMUNITY, PROVIDING CLEAR, ACCESSIBLE INFORMATION ON REPRODUCTIVE HEALTH OPTIONS, DECISIONS, AND CHALLENGES; NUTRITION AND CULINARY ADVICE WITH CYSTIC FIBROSIS-SPECIFIC EDUCATION THROUGH ENGAGING SOCIAL MEDIA CONTENT; CAREER DEVELOPMENT WITH A GOAL TO IMPROVE EDUCATIONAL AND EMPLOYMENT ACCESS FOR PEOPLE WITH CYSTIC FIBROSIS THROUGH COUNSELING FROM DISABILITY EXPERTS, AND COACHING ON SELF-ADVOCACY THROUGH EXPERTS AND ROLE MODELS; AND GRANTS TO MEDICAL INSTITUTIONS AND RESEARCHERS WHO ARE DRIVING SCIENTIFIC BREAKTHROUGHS THAT WILL HELP THE CYSTIC FIBROSIS COMMUNITY. 1996177 1294760 A PROGRAM DESIGNED TO HELP FAMILIES MANAGE THE FINANCIAL BURDEN OF CYSTIC FIBROSIS WHICH INCLUDES THE FOLLOWING INITIATIVES: MERIT-BASED SCHOLARSHIPS FOR CYSTIC FIBROSIS COMMUNITY MEMBERS PURSUING HIGHER EDUCATION; FINANCIAL HARDSHIP ASSISTANCE OFFERING TEMPORARY SUPPORT DURING CRITICAL TIMES, SUCH AS NATURAL DISASTERS, ORGAN TRANSPLANTS, JOB LOSS, OR MEDICAL EMERGENCIES; AND AN IN VITRO FERTILIZATION INITIATIVE PROVIDING FINANCIAL RESOURCES FOR ADULTS WITH CYSTIC FIBROSIS FACING CHALLENGES IN BUILDING THEIR FAMILIES. 711638 A PROGRAM THAT ENCOURAGES PEOPLE WITH CYSTIC FIBROSIS TO LEAD ACTIVE, HEALTHY LIFESTYLES THROUGH VARIOUS ATHLETIC EVENTS, HIGHLIGHTING THE BENEFITS OF EXERCISE AND ENGAGING PARTICIPANTS IN PHYSICAL ACTIVITY. IT ALSO FEATURES NCAA ATHLETES LIVING WITH CYSTIC FIBROSIS, SHARING THEIR JOURNEYS OF BALANCING CYSTIC FIBROSIS CARE WITH HIGHER EDUCATION WHILE COMPETING AT THE HIGHEST LEVEL IN COLLEGIATE SPORTS, INSPIRING OTHERS TO PURSUE BOTH FITNESS AND ACADEMIC SUCCESS. 4066966 1 1 0 0 0 0 0 0 0 1 1 1 0 0 1 1 1 0 0 0 1 1 0 1 1 0 0 1 1 1 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 1 41 0 1 18 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 26 22 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA IL KS KY MA MD MI MN NC NH NJ NM NY OR PA RI SC TN UT VA WI WV MS X X RON RUBIN 3016561200 7475 WISCONSIN AVENUE 1100 BETHESDA MD 20814 BOOMER ESIASON CHAIRMAN 30.00 X X 23796 0 38588 CHERYL ESIASON CHAIRMAN 30.00 X X 0 0 0 RON RUBIN TREASURER 3.00 X X 0 0 0 PETE ABITANTE DIRECTOR 0.25 X 0 0 0 STEVEN BOWMAN DIRECTOR 0.25 X 0 0 0 JACK CASSIDY DIRECTOR 0.25 X 0 0 0 BOB DIFAZIO DIRECTOR 0.25 X 0 0 0 JOE DUSSICH DIRECTOR 0.25 X 0 0 0 GUNNAR ESIASON ADVOCATE - PROGRAM DIRECTO 40.00 X 68031 0 39074 BILLY HEINZERLING DIRECTOR 0.25 X 0 0 0 NINA MITCHELL DIRECTOR 3.00 X 0 0 0 STEPHEN MUELLER DIRECTOR 0.25 X 0 0 0 ANDREA COLABELLA DIRECTOR 0.25 X 0 0 0 MIKE NORSETH DIRECTOR 0.25 X 0 0 0 KEVIN PLANK DIRECTOR 0.25 X 0 0 0 JIM ROSETTA DIRECTOR 0.25 X 0 0 0 HARVEY SANDERS DIRECTOR 0.25 X 0 0 0 RALPH STAYER DIRECTOR 0.25 X 0 0 0 MEGAN PACE DIRECTOR 0.25 X 0 0 0 JIM REGAN DIRECTOR 0.25 X 0 0 0 FRANK BOLTE DIRECTOR 0.25 X 0 0 0 JOE GURRERA DIRECTOR 0.25 X 0 0 0 DAVID RIMINGTON VP OF EVENTS 40.00 X X 35396 0 38808 BRIAN FLEISHHACKER DIRECTOR 0.25 X 0 0 0 ROBERT MILKOVICH DIRECTOR 0.25 X 0 0 0 RANDY WILLIAMS DIRECTOR 0.25 X 0 0 0 ETSUKO MURASE CFO/COO 40.00 X 174392 0 10785 ROBERT PLANSKER PRESIDENT 40.00 X 167505 0 48360 TAMI AMAKER SPECIAL PROGRAM DIRECTOR 40.00 X 134991 0 20535 RICHARD HAHN EMPLOYEE 40.00 X 127862 0 7770 NATALIE STOUT WANDELT EMPLOYEE 40.00 X 189843 0 1938 921816 0 205858 5 0 1 0 EMPIRE EVENTS PROMOTIONS INC 65 S MAPLE 2ND FLOOR BASKING RIDGE NJ 07920 DEVELOPMENT SERVICES/PROGRAM EDUCATION 346784 COMMUNICORE INC 787 CONGRESS PARK DRIVE DAYTON OH 45459 CONSULTING 159430 2 2946574 2754370 65789 5700944 218778 218778 140 140 500 0 500 500 500 622266 2946574 622266 0 5920362 500 0 218918 961519 961519 746181 746181 31200 31200 437071 329612 66097 41362 1034940 760271 76818 197851 35788 26837 1843 7108 86947 57033 7069 22845 102569 75499 9766 17304 146947 146947 382 382 141184 48386 89882 2916 202401 182157 10124 10120 67731 43781 7681 16269 23264 23264 37223 21807 14730 686 PROJECT EXPENSES 997026 718727 278299 BAD DEBT EXPENSE 275100 275100 RECOGNITION GIFTS 126770 25388 22844 78538 PRIZES 65058 65058 66708 38186 22388 6134 5586009 4066966 905905 613138 X 519820 291422 116469 111929 2070148 735682 3082836 2791468 582969 750146 109252 84731 373548 584408 203548 103303 65040 100245 2512165 4149439 288552 309022 9084510 9505141 709425 284543 911355 1145700 286295 297236 1907075 1727479 X 4962870 5402539 2214565 2375123 7177435 7777662 9084510 9505141 X 334353 265875 -1 X X 0 1 X 1 0 X 3415822 4796309 4710596 7274823 5700944 25898494 402275 335715 195632 142710 622266 1698598 3818097 5132024 4906228 7417533 6323210 27597092 1531712 2119940 2127306 1769284 1799852 9348094 0 1531712 2119940 2127306 1769284 1799852 9348094 18248998 71576 117739 79915 11525 218778 499533 71576 117739 79915 11525 218778 499533 3889673 5249763 4986143 7429058 6541988 28096625 0.64950 0.61760 0.01780 0.01310 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2570507 2598613 332040 5000 866000 4630160 219712 2551300 -198204 2301 2570507 210857 8685 170 219712 196468 14389 682 682 210857 185404 11064 2408 2408 196468 0.95200 0.04800 0 0 60934 34726 26208 131852 57815 74037 10762 10762 0 100245 EPISTEMIC AI, INC. 119784 F TCG BALANCED FUND 4029655 F 4149439 LEASE LIABILITIES 297236 297236 X 6808502 265875 622265 888140 5920362 0 5920362 6208275 622266 622266 5586009 0 5586009 PART V, LINE 4: TO FUND, FROM ANY INCOME GENERATED, SCHOLARSHIPS SET UP BY DONOR. PART X, LINE 2: THE FOUNDATION ACCOUNTS FOR THE EFFECT OF ANY UNCERTAIN TAX POSITIONS BASED ON A "MORE LIKELY THAN NOT" THRESHOLD TO THE RECOGNITION OF THE TAX POSITIONS BEING SUSTAINED BASED ON THE TECHNICAL MERITS OF THE POSITION UNDER SCRUTINY BY THE APPLICABLE TAXING AUTHORITY. IF A TAX POSITION OR POSITIONS ARE DEEMED TO RESULT IN UNCERTAINTIES OF THOSE POSITIONS, THE UNRECOGNIZED TAX EFFECT IS ESTIMATED BASED ON A "CUMULATIVE PROBABILITY ASSESSMENT" THAT AGGREGATES THE ESTIMATED TAX LIABILITY FOR UNCERTAIN TAX POSITIONS. INTEREST AND PENALTIES, IF ANY, ARE ACCRUED AS A COMPONENT OF GENERAL AND ADMINISTRATIVE EXPENSES WHEN ASSESSED. THE FOUNDATION HAS IDENTIFIED ITS TAX STATUS AS A TAX EXEMPT ENTITY UNDER SECTION 501(C)(3) AND ITS DETERMINATION THAT IT HAS NO UNRELATED BUSINESS INCOME AS TAX POSITIONS; HOWEVER, THE FOUNDATION HAS DETERMINED THAT SUCH TAX POSITIONS DO NOT RESULT IN AN UNCERTAINTY REQUIRING RECOGNITION. INCOME TAX YEARS ENDED PRIOR TO MARCH 31, 2021 ARE NO LONGER SUBJECT TO AUDIT BY TAXING AUTHORITIES. SCHEDULE D, PART XI, LINE 2D OTHER REVENUE INCLUDED IN F/S DIRECT EVENT COSTS - PART VIII, LINE 8A $351,926 SCHEDULE D, PART XII, LINE 2D OTHER EXPENSES PER AUDITED F/S DIRECT EVENT COSTS - PART VIII, LINE 8B -$351,926 1 ENGLAND 0 0 GRANTMAKING 31200 0 0 0 0 0 0 31200 0 31200 ENGLAND CF SUPPORT 31200 WIRE TRANSFER 0 1 0 0 0 0 0 0 PART I, LINE 2: BEF REQUIRES THE UNIVERSITY OF PLYMOUTH TO PROVIDE A DETAILED RECONCILIATION OF HOW THE FUNDS WERE SPENT NO LATER THAN APRIL 1, 2025. BEF WILL USE THIS RECONCILIATION TO GAUGE THE EFFECTIVENESS AND PROGRESS OF THE UNIVERSITY'S EFFORT, OFFERING A DETAILED OVERVIEW OF THE MILESTONES ACHIEVED, CHALLENGES ENCOUNTERED, AND THE OVERALL INFLUENCE ON THE COMMUNITY. THE REPORT WILL ALSO FOSTER TRANSPARENCY IN THE UTILIZATION OF GRANT FUNDS. X X X X X 1 EMPIRE EVENT PROMOTIONS INC 65 S MAPLE 2ND FLOOR BASKING RIDGE NJ 07920 DEVELOPMENT MANAGEMENT 0 3216914 181540 3035374 3216914 181540 3035374 AL AK AR AZ CA CO CT FL GA KS KY ME MD MA MI MN MO NH NJ NM NY NC ND OH OK OR PA TN VA WA WV WI IL MS RI SC BEF GOLF 809501 729676 79825 10000 253 5000 42974 BOOMING CELEBRATION 1867282 1566255 301027 5728 142148 7040 262573 3 892057 650643 241414 146550 3568840 2946574 622266 10000 5728 142401 12040 452097 622266 0 1 BOSTON CHILDREN'S HOSPITAL 333 LONGWOOD AVENUE 5TH FLOOR BOSTON MA 02115 431987409 501(C)3 41667 0 CF SUPPORT BREATHE BRAVELY 305 W 29TH ST SIOUX FALLS SD 57105 475334258 501(C)3 10000 0 CF SUPPORT CHILDREN'S HOSPITAL & MEDICAL CENTER FUND 8404 INDIAN HILLS DRIVE SUITE 650 OMAHA NE 68114 476105603 501(C)3 20000 0 CF SUPPORT CODY DIERUF FOUNDATION PO BOX 7361 BOZEMAN MT 59771 204498266 501(C)3 15000 0 CF SUPPORT CYSTIC FIBROSIS FOUNDATION 4550 MONTGOMERY AVE STE 1100N BETHESDA MD 20814 131930701 501(C)3 50000 0 CF SUPPORT CYSTIC FIBROSIS RESEARCH INSTITUTE 1731 EMBARCADERO ROAD STE 210 PALO ALTO CA 94303 510169988 501(C)3 15000 0 CF SUPPORT EMILY'S ENTOURAGE PO BOX 71 MERION STATION PA 19066 453768161 501(C)3 10000 0 CF SUPPORT MAYO CLINIC 200 FIRST STREET SW ROCHESTER MN 55902 416011702 501(C)3 77239 0 CF SUPPORT NEW YORK ROAD RUNNERS 9 E 89TH STREET NEW YORK NY 10128 132949483 501(C)3 53725 0 CF SUPPORT NORTHWELL HEALTH 972 BRUSH HOLLOW ROAD WESTBURY NY 11590 113418133 501(C)3 80000 0 CF SUPPORT ROCK CF FOUNDATION 2990 W GRAND BLVD DETROIT MI 40202 134358351 501(C)3 10000 0 CF SUPPORT SOCIAL GOOD FUND 12651 SAN PABLO AVE RICHMOND CA 94805 461323531 501(C)3 12000 0 CF SUPPORT STATE UNIVERSITY OF IOWA 201 S CLINTON STREET IOWA CITY IA 52242 426004813 501(C)3 100000 0 CF SUPPORT THE BONNELL FOUNDATION PO BOX 1215 ROYAL OAK MI 48068 800631159 501(C)3 7650 0 CF SUPPORT THE NEBRASKA MEDICAL CENTER 4350 DEWEY AVENUE OMAHA NE 68105 911858433 501(C)3 20343 0 CF SUPPORT THOMAS JEFFERSON UNIVERSITY 1101 MARKET STREET 29TH FLOOR PHILADELPHIA PA 19107 231352294 501(C)3 20000 0 CF SUPPORT TRUSTEES OF COLUMBIA UNIVERSITY 622 WEST 113TH STREET NEW YORK NY 10025 135598093 501(C)3 107500 0 CF SUPPORT 17 1 CF PATIENT LIVING ASSISTANCE 37 261181 SCHOLARSHIPS 42 485000 PART I, LINE 2: THE ORGANIZATION MONITORS THE GRANTS THROUGH A WRITTEN CONTRACT WITH CONTINGENCY CLAUSE FOR INSTALLMENT PAYMENTS UPON PERFORMANCE AND BY REPORTS AND ACKNOWLEDGEMENT LETTERS FROM RECIPIENTS. IN ADDITION, THE ORGANIZATION CONTINUALLY MONITORS THE PROGRESS OF RESEARCH. X 0 0 0 0 0 0 0 0 0 ROBERT PLANSKER PRESIDENT 167505 0 0 0 0 0 10050 0 38310 0 215865 0 0 0 NATALIE STOUT WANDELT EMPLOYEE 189843 0 0 0 0 0 1938 0 0 0 191781 0 0 0 ETSUKO MURASE CFO/COO 174392 0 0 0 0 0 9858 0 927 0 185177 0 0 0 TAMI AMAKER SPECIAL PROGRAM DIRECTOR 134991 0 0 0 0 0 6541 0 13994 0 155526 0 0 0 RONALD RUBIN PRINCIPAL OF COLONY GROUP AND THE TREASURER OF THE FOUNDATION 98383 FINANCIAL SERVICES 0 LEE BECKER OWNS EMPIRE EVENT PROMOTIONS, INC. AND IS A FORMER DIRECTOR 346784 DEVELOPMENT SERVICES AS WELL AS PROGRAM EDUCATION 1 X 45089 FAIR MARKET VALUE X 3000 FAIR MARKET VALUE X SPORTS TICKETS AND TRAVEL 7 17700 FAIR MARKET VALUE 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 DIRECTORS BOOMER ESIASON AND CHERYL ESIASON ARE HUSBAND AND WIFE AND GUNNAR ESIASON IS THEIR SON. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 IS REVIEWED AND APPROVED BY THE PRESIDENT AND TREASURER. A COPY OF FORM 990 IS EMAILED TO DIRECTORS BEFORE IT IS FILED. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS AND DIRECTORS ARE REQUIRED TO SIGN AN ACKNOWLEDGEMENT EACH YEAR THAT THEY HAVE RECEIVED THE CONFLICT OF INTEREST POLICY. EACH OFFICER AND DIRECTOR IS ASKED TO NOTIFY THE BOARD OF ANY CONFLICTS OF INTEREST. OFFICERS AND DIRECTORS ABSTAIN FROM ANY APPROVAL OF SALARIES OR OTHER FORMS OF COMPENSATION FOR THEMSELVES. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION PAID TO KEY EMPLOYEES IS EVALUATED ON AN ANNUAL BASIS. COMPENSATION IS BASED UPON THE LEVEL OF SKILL REQUIRED FOR THE POSITION, COMPARISON OF COMPENSATION TO SIMILAR POSITIONS IN THE NON-PROFIT INDUSTRY, AND AN EVALUATION OF THE EMPLOYEE'S ACHIEVEMENTS DURING THE YEAR. THE PRESIDENT'S SALARY IS REVIEWED AND APPROVED BY THE BOARD CHAIRMAN. KEY EMPLOYEE SALARIES ARE APPROVED BY THE PRESIDENT. FORM 990, PART VI, SECTION C, LINE 19 FINANCIAL STATEMENTS, GOVERNING DOCUMENTS, AND POLICIES OF THE ORGANIZATION ARE PROVIDED BY APPROPRIATE NEED AND UPON REQUEST. FORM 990, PART XI, LINE 9: ROUNDING -1. FORM 990, PART XII, LINE 2C: THE AUDIT COMMITTEE ASSUMES RESPONSIBILITY FOR OVERSEEING THE ANNUAL FINANCIAL STATEMENT AUDIT.