2024-07-13T10:04:24-07:00 2023-12-31 990EZ 2023-01-01 454791469 BEAUTIFUL YOU MRKH FOUNDATION BEAU 7654909586 13301 Clifton Road Silver Spring MD 209043252 Amy Lossie President 7654909586 2024-06-03 Amy Lossie 999009999 1 1 11 1 AAL2 2023 2023-04-26 12:10:37Z X www.beautifulyoumrkh.org X X 42791 X 41977 0 0 814 0 0 0 0 0 0 0 0 0 0 0 42791 2800 0 17140 0 2461 282 52210 74893 -32102 90734 0 58632 90734 58632 0 0 0 0 90734 58632 0 0 90734 58632 The mission of Beautiful You MRKH Foundation is to create a supportive community that partners with health care professionals to increase awareness of MRKH and empower women of all ages with MRKH to feel beautiful just as they are. MRKH, (Mayer-Rokitansky-Küster-Hauser Syndrome), is a congenital condition characterized by absence of the uterus, cervix and vagina, and can include kidney, urogenital, skeletal, brain, and heart malformations. In our recent survey, over 600 patients and parents stated that improving mental health was their top priority for future research and programs. Although we have developed significant mental health resources for people diagnosed with MRKH, there was a dearth of programs and resources for parents/caregivers. Beautiful You MRKH, with grant assistance from Global Genes, worked to create resources for these parents/caregivers of people diagnosed with (MRKH) The target audience reflected the overall make up of our MRKH parent community. We conducted a survey of 99 parents about how their child's diagnosis affected their and their child's mental health. With those results, this project created a Mental Health Toolkit for 500 parents and caregivers. It was also translated into Spanish to reach a more diverse group of recipients. This toolkit allows the Beautiful You MRKH Foundation to provide much-needed mental health support to parents and caregivers. The toolkit has already been disseminated through MRKH Family Conferences, Global Genes Meetings, and MRKH Provider Conferences. We also translated 5 BY videos and 1 fact sheet into 5 languages. 13800 25500 Beautiful You MRKH worked toward creating an inclusive and more diverse experience in MRKH Health Care through advocacy and education because representation matters. Projects toward this goal include: Collaborated with a film student at the Pratt Institute, to produce a documentary about MRKH entitled, More than a Woman, https://www.mrkhdocumentary.com/. Beautiful You contributed toward production and to postproduction on the film. We expect the final short film to be completed by April 2024. Beautifully You: A Faith-Based Guided Journal: Empowerment of the Silent Sisterhood : Beautiful You partnered with Sisters Anointed for Encouragement to create a faith-based guided journal that explores five concepts related to MRKH and infertility: I am Beautiful; In my Uniqueness; My Uterus is Power; Virtuous V; and You. The five authors contribute their perspectives to each chapter. The authors include someone with MRKH, a mother of someone with MRKH, two people who explore what being different has meant to them, and a gay man. Beautifully You should be available online by April 2024. You are not Alone BYMRKH Campaign: This campaign consists of a blog that connects people with MRKH across the world and holds in-person meet-ups around the US. In-person Meet-ups and MRKH Meetings (Provided services to 93 people). These included an in-person meet-up in Atlanta, organized by our South Regional Ambassador Team, from November 3-5, 2023, where people with MRKH could meet others with the condition, often for the first time. A MRKH Conference dedicated to the pelvic floor, was organized in partnership with the University of Michigan on May 6, 2023. Travel Assistance was provided for six families (12 people) to attend the conference and the meet-up. Travel Assistance was also provided for two presenters to attend and make several presentations at the Conference. The BYMRKH Blog: We published several blogs from the MRKH Community over the last year highlighting research done by students and one person's Uterine Transplant experiences (https://beautifulyoumrkh.com Dissemination of Deliverables: We created social media and email-based campaigns to disseminate the materials developed. Our social media team created a campaign for More than a Woman, which helped raise just over $10,000 to help fund the documentary. This included several hours of in-kind support from Beautiful You by Christina Ruth, our Executive Director and Director of Social Media. MRKH Genes and Müllerian Development Video (in-kind): We partnered with MRKH Canada to create a short video about Müllerian Development and MRKH, which we launched in May 2023 with a social media campaign. 5000 18600 Participation in the annual NASPAG Conference: 6 People, presented panel Mental Health marginalized people and MRKH 5000 10700 Organize and participate in Ann Arbor conference: 73 provided cohosted with U Michigan focused on public floor health. 3500 3950 Provided funding for Sumaavi Circle K Membership Program for 8 individuals. 2500 2925 Provide education and emotional support to those with MRKH holding monitored communication on social media. 1000 1450 63125 Amy Lossie President 20 0 0 0 Christina Ruth Martin Vice President/Executive Director 15 12000 0 0 Steven Hamilton Secretary 1 0 0 0 Kristen O'Brien Treasurer 3 0 0 0 Jacklyn Misch Board Member 2 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 AL AR AZ CA CT FL GA HI IL IN KS KY MA MD MI MN MO MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN TX UT VA WA WI WV Amy Lossie 13301 Clifton Road Silver Spring MD 209043252 7654909586 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 53361 62736 48032 59167 41977 265273 53361 62736 48032 59167 41977 265273 120000 145273 60 49 31 34 814 988 355 355 266616 0 0.54488 0.4513 X Schedule A, Part II, Line 10 The $355 was earned by the sale of Beautiful You MRKH merchandise. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 10 Grants were made to help pay for travel expenses to Medical and Support Conferences for those with MRKH who could not attend without assistance. Form 990-EZ, Part I, Line 16 Support Meetings $4196, Medical Conferences $10155, Life Coaching Program $2360, Ambassador Networking Groups $7676, Diversity Program film and journal $10126, State Registrations $7050, Computer Software $5346, Other Business Expenses $2604, Other Operational Expense $2697. We filed an extension.