2023-12-15T09:26:15-05:00 2023-01-31 562034483 NORTON COLLAR LUND LILLEY PLLC 7701 SIX FORKS RD STE 100 RALEIGH NC 27615 990 2022-02-01 561609591 THE ALS ASSOCIATION NORTH CAROLINA CHAPTER ALSA 9197559001 4 N BLOUNT STREET SUITE 200 RALEIGH NC 27601 DAVID SHORE PRESIDENT & CEO 9197559001 2023-12-12 true JERRY DAWSON 999009999 false JON A LUND P00105848 9198411000 2023-12-15 2022 2023-04-26 12:10:37Z THE ALS ASSOCIATION NORTH CAROLINA DAVID SHORE 4 N BLOUNT ST SUITE 200 RALEIGH NC 27601 3132849 false X WWW.ALSNC.ORG X 1988 NC TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. 12 12 21 75 0 2600340 2387308 11750 152317 84469 -120812 -209343 2631845 2274184 0 0 862797 1468538 0 160163 1228400 1368413 2091197 2836951 540648 -562767 3676425 3182521 348996 775169 3327429 2407352 X TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST. false false 1533664 CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. DESPITE THE DISRUPTION CAUSED BY THE ONGOING COVID-19 PANDEMIC, NO CUTS WERE MADE TO ANY CRUCIAL PROGRAMS OR SERVICES. THE ALS ASSOCIATION NORTH CAROLINA CHAPTER CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2023 FISCAL YEAR ALSNC HELD 104 SUPPORT GROUP MEETINGS, LOANED 501 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 3,300 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED MORE THAN 1,000 PATIENTS. 135146 THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO THE ALS ASSOCIATION NATIONAL OFFICE TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS. 752413 THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES. 2421223 true true false false false false false false false true true false false true true false true false false false false false false false true false false false false true false false false false false false false false true false false false false false false false false true 8 0 21 true false false false false false false false false false false false false false false X 12 12 false false false false false false false true true false false false true true true true true true true false X X HOLLY ZAHN 9197559001 4 N BLOUNT ST SUITE 200 RALEIGH NC 27601 JERRY DAWSON PRESIDENT&CE 44.00 X 188723 0 18803 DAVID SHORE PRESIDENT & 44.00 X 125707 0 13668 JANA ANTOS DIRECTOR 2.00 X 0 0 0 SARAH BOYCE DIRECTOR 2.00 X 0 0 0 BETH CHRISTINA DIRECTOR 2.00 X 0 0 0 KATHRYN FOSTER VICE CHAIR 6.00 X X 0 0 0 CHRISTY HALL SECRETARY 3.00 X X 0 0 0 DENISE KIRKLAND DIRECTOR 2.00 X 0 0 0 JOHN MILLER DIRECTOR 2.00 X 0 0 0 DOUGLAS NOREEN CHAIR 15.00 X X 0 0 0 LINDA SHUFORD-REEVES DIRECTOR 2.00 X 0 0 0 DARVIS SIMMS DIRECTOR 2.00 X 0 0 0 ANN WHITE DIRECTOR 2.00 X 0 0 0 ROBERT WHITED TREASURER 3.00 X X 0 0 0 314430 32471 2 false true false 1238087 434937 714284 143235 2387308 CAREGIVERS CONFERENCE 11750 11750 11750 133702 133702 594288 636200 7321 -41912 -7321 -49233 -49233 1238087 215144 -215144 OTHER MISC INCOME 5801 5801 5801 2274184 84469 17551 593092 533783 59309 616576 600761 5569 10246 33301 31110 1674 517 148609 141354 5060 2195 76960 73004 2878 1078 25040 25040 15853 15853 106383 55431 50303 649 14866 14866 28515 10460 2911 15144 97943 41254 20274 36415 113479 96716 10495 6268 8772 8381 362 29 42233 42233 8399 7618 450 331 PROGRAM EXPENSES 563149 563149 NATIONAL DUES 281642 223792 17181 40669 BANK FEES 29607 3926 25681 MISCELLANEOUS 18730 8014 6782 3934 13802 11530 1118 1154 2836951 2421223 255565 160163 269447 553775 236753 172521 254487 236634 14894 346994 97866 148557 249128 2737944 1680301 14343 290162 3676425 3182521 293556 482711 10000 10000 45440 2500 279958 348996 775169 X 3327429 2353752 53600 3327429 2407352 3676425 3182521 X -562767 -357310 X false true X true false X 2328075 2493664 2318060 2600340 2387308 12127447 2328075 2493664 2318060 2600340 2387308 12127447 176970 11950477 85914 71181 60988 179500 133702 531285 17551 17551 12676283 12031 0.94270 0.87960 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2737944 50730 -265520 827000 15853 1680301 2909687 597725 36776 783893 22351 2737944 2387504 909709 226954 595000 19480 2909687 2346083 752183 357975 1047000 21737 2387504 2278101 1659000 -38244 1534000 18774 2346083 1.00000 false false 8939 1951 6988 280430 87912 192518 57625 8003 49622 249128 LEASE RIGHT OF USE 275819 JEWELRY DONATION 10190 SECURITY DEPOSIT 4153 290162 LEASE LIABILITY 279958 279958 2134022 -357310 17856 215145 -124309 2258331 15853 15853 2274184 3054099 17856 215145 233001 2821098 15853 15853 2836951 SCHEDULE D, PAGE 4, PART XI, LINE 2D DIRECT FUNDRAISING EXPENSES 215,145 SCHEDULE D, PAGE 4, PART XII, LINE 2D DIRECT FUNDRAISING EXPENSES 215,145 WALKS 914568 914568 166611 OTHER EVENTS 323519 323519 48533 1238087 1238087 215144 215144 -215144 X X false false false false false false false false false JERRY DAWSON PRESIDENT&CEO (FMR) 188723 18803 207526 X 492 50735 FAIR MARKET VALUE X WHEELCHAIRS 37 92500 FAIR MARKET VALUE false true true SCHEDULE M, PAGE 1, PART I, LINE 32B BROKERAGE FIRM IS CHARGED WITH PROCESSING AND LIQUIDATING DONATED SECURITIES. FORM 990, PAGE 2, PART III, LINE 4A CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. DESPITE THE DISRUPTION CAUSED BY THE ONGOING COVID-19 PANDEMIC, NO CUTS WERE MADE TO ANY CRUCIAL PROGRAMS OR SERVICES. THE ALS ASSOCIATION NORTH CAROLINA CHAPTER CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2023 FISCAL YEAR ALSNC HELD 104 SUPPORT GROUP MEETINGS, LOANED 501 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 3,300 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED MORE THAN 1,000 PATIENTS. FORM 990, PAGE 6, PART VI, LINE 11B THE TREASURER WILL REVIEW AND COMMENT ON A DRAFT OF THE FORM 990 AND ANNUAL AUDITED FINANCIAL STATEMENTS. AFTER ANY CHANGES, THE DRAFTS OF THE FORM 990 AND AUDITED FINANCIAL STATEMENTS WILL BE FORWARDED TO ALL MEMBERS OF THE FINANCE COMMITTEE FOR REVIEW. IF NEEDED, THE PREPARER SHALL SCHEDULE A PRESENTATION IN PERSON OR BY TELECONFERENCE WITH THE FINANCE COMMITTEE TO ADDRESS ANY QUESTIONS OR ISSUES. UPON RESOLUTION OF ANY ISSUES AND APPROVAL BY THE FINANCE COMMITTEE, COPIES OF THE FINAL AUDITED FINANCIAL STATEMENTS AND FORM 990 WILL BE FORWARDED TO ALL MEMBERS OF THE BOARD OF DIRECTORS. THE PRESIDENT & CEO WILL EXECUTE AND MAIL OR ELECTRONICALLY FILE THE FINAL DOCUMENTS WITH THE IRS AND APPROPRIATE STATE AGENCIES. FORM 990, PAGE 6, PART VI, LINE 12C ALL EMPLOYEES ARE REQUIRED TO SIGN AN ACKNOWLEDGEMENT OF RECEIPT OF THE CONFLICT OF INTEREST POLICY. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE DETERMINES PRESIDENT & CEO'S COMPENSATION BASED ON A SALARY SURVEY AND PERFORMANCE EVALUTION. FORM 990, PAGE 6, PART VI, LINE 15B BOARD MEMBERS ARE NOT COMPENSATED. OTHER OFFICER COMPENSATION IS DETERMINED BASED ON SALARY SURVEYS, PERFORMANCE, AND BUDGETARY NEEDS AND IS APPROVED BY THE BOARD. FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS ARE KEPT ON FILE AT THE ORGANIZATION'S OFFICE AND ARE MADE AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART XI, LINE 9 DIRECT FUNDRAISING EXPENSES 215,145 DIRECT FUNDRAISING EXPENSES -215,145