2023-11-15T05:16:22-06:00 2022-12-31 843551139 LEE & CROWLEY LLC 423 W BROADWAY SUITE 304 BOSTON MA 02127 990 2022-01-01 472398246 THE SUMAIRA FOUNDATION INC SUMA 6178429282 485 FOLEY ST 631 SOMERVILLE MA 02145 SUMAIRA AHMED FOUNDER/ CEO 6178429282 2023-11-15 1 SUMAIRA AHMED XXX-XX-XXXX 0 CHRISTOPHER LEE P01571686 6173568220 X 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z SUMAIRA AHMED 485 FOLEY ST 631 SOMERVILLE MA 02145 1645259 0 X WWW.SUMAIRAFOUNDATION.ORG X 2014 MA THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS. 5 3 0 4 -10404 0 303042 1481066 0 0 0 0 6881 -23375 309923 1457691 62050 180000 0 0 0 435258 0 0 134618 58485 757011 120535 1372269 189388 85422 356004 457112 108532 224218 247472 232894 X THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS. 0 0 180000 180000 GRANTS TO FACILITATE RESEARCH FOR THE TREATMENT OF NEUROMYELITIS OPTICA AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE. 688974 800000 WORKING TO GENERATE GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER (NMOSD) AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE (MOGAD), AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS + THEIR CAREGIVERS. 176549 205000 FROM THE EXPERTS - A FACEBOOK LIVE SERIES DESIGNED TO EDUCATE AND DISCUSS A VARIETY OF TOPICS RELEVANT TO OUR COMMUNITY. EACH WEBINAR IS HOSTED BY AN EXPERT IN THE FIELD AND OFFERS VIEWERS A CHANCE TO ASK QUESTIONS IN REAL TIME. 1045523 1 1 0 0 0 0 0 0 0 0 1 0 0 1 0 1 0 0 0 0 1 1 0 0 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 9 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 5 3 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 1 1 0 0 0 MA X SUMAIRA AHMED 6178429282 485 FOLEY ST 631 SOMERVILLE MA 02145 SUMAIRA AHMED PRESIDENT 15.00 X X 224539 0 0 MELISSA BARASH DIRECTOR 1.00 X 0 0 0 MICHAEL DEVLIN DIRECTOR 1.00 X 210719 0 0 LAUREN MICHAELS DIRECTOR 1.00 X 0 0 0 STEPHANIE HAMZO DIRECTOR 1.00 X 0 0 0 435258 0 0 2 0 1 0 0 216000 1265066 1481066 162263 216000 175234 -12971 -12971 1930 12334 -10404 -10404 1457691 0 -10404 -12971 75000 75000 105000 105000 435258 282918 108814 43526 7675 3838 3837 15653 7826 7827 17235 8618 8617 14889 8933 2978 2978 7056 4234 1411 1411 101614 89619 4290 7705 4328 4328 3959 990 989 1980 FILM PRODUCTION 272644 272644 CONSULTING 265830 172789 26583 66458 MEALS AND ENTERTAINMENT 21449 21449 SOFTWARE 10668 10668 14011 8786 3282 1943 1372269 1045523 192128 134618 299431 403045 4940 2765 184 0 2581 51633 51486 356004 457112 59218 150000 108532 15000 108532 224218 X 0 0 0 0 247472 232894 247472 232894 356004 457112 85422 -100000 0 X 0 1 X 0 0 X 45725 93336 168947 329843 1481066 2118917 164193 164193 45725 93336 168947 329843 1645259 2283110 0 1246220 1246220 1246220 1246220 1036890 45725 93336 168947 329843 1645259 2283110 0.45420 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2765 184 2581 2581 DEPOSITS, FUNDRAISING EVENTS 29904 WEBSITE DEVELOPMENT COSTS, NET 21582 51486 X 1645259 0 1645259 -187568 -187568 1457691 1559837 187568 187568 1372269 0 1372269 PART X, LINE 2: THE ORGANIZATION IS EXEMPT FROM FEDERAL INCOME TAXES UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE ("IRC") AND, ACCORDINGLY, DOES NOT PROVIDE FOR INCOME TAXES. AN EXEMPTION WAS GRANTED TO THE ORGANIZATION ON OCTOBER 7, 2014. UNDER ASC 740, AN ORGANIZATION MUST RECOGNIZE THE FINANCIAL STATEMENT EFFECTS OF A TAX POSITION TAKEN FOR TAX RETURN PURPOSES WHEN IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL NOT BE SUSTAINED UPON EXAMINATION BY A TAXING AUTHORITY. THE ORGANIZATION DOES NOT BELIEVE IT HAS TAKEN ANY MATERIAL UNCERTAIN TAX POSITIONS, AND, ACCORDINGLY, IT HAS NOT RECORDED ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. THE ORGANIZATION HAS FILED FOR AND RECEIVED INCOME TAX EXEMPTIONS IN THE JURISDICTIONS WHERE IT IS REQUIRED TO DO SO. ADDITIONALLY, THE ORGANIZATION HAS FILED IRS FORM 990 INFORMATION RETURNS, AS REQUIRED, AND ALL OTHER APPLICABLE RETURNS IN JURISDICTIONS WHERE SO REQUIRED. THE ORGANIZATION'S RETURNS ARE SUBJECT TO EXAMINATION BY FEDERAL AND STATE JURISDICTIONS, HOWEVER THERE ARE NO EXAMINATIONS ONGOING AS OF DECEMBER 31, 2022. FOR THE YEAR ENDED DECEMBER 31, 2022, THERE WERE NO INTEREST OR PENALTIES RECORDED OR INCLUDED IN THE STATEMENT OF ACTIVITIES. PART XI, LINE 4B - OTHER ADJUSTMENTS: MERCHANDISE FUNDRAISING EXPENSES PART XII, LINE 2D - OTHER ADJUSTMENTS: MERCHANDISE FUNDRAISING EXPENSES 1 0 0 0 0 0 0 0 0 0 EUROPE TO HELP SUPPORT THE UNIVERSITY OF VERONA'S MISSION 25000 CHECK 0 CENTRAL AMERICA TO HELP SUPPORT THE NATIONAL UNIVERSITY OF MEXICO'S MISSION 25000 CHECK 0 EUROPE TO HELP SUPPORT CHARITE'S MISSION 25000 CHECK 0 EUROPE TO HELP SUPPORT FRONTIERS' MISSION 30000 WIRE TRANSFER 0 0 0 0 0 0 0 PART III ACCOUNTING METHOD: X MA CELEBRATING 8 YEARS OF TSF 86181 80000 6181 19747 11880 5TH NMO AWARNESS ANNUAL GALA 292082 136000 156082 50513 65693 27401 378263 216000 162263 70260 65693 39281 175234 -12971 1 UNIVERSITY OF UTAH HEALTH 201 PRESIDENTS CIR SALT LAKE CITY UT 84112 876000525 501(C)(3) 25000 0 THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION. MAYO CLINIC JACKSONVILLE 4500 SAN PABLO RD S JACKSONVILLE FL 32224 593337028 501(C)(3) 25000 0 THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION. CASE WESTERN RESERVE UNIVERSITY 10900 EUCLID AVE CLEVELAND OH 44106 341018992 501(C)(3) 25000 0 THE PURPOSE OF THIS GRANT IS TO ASSIST CASE WESTERN RESERVE UNIVERSITY IN THEIR MISSION. 0 0 0 0 0 0 0 0 0 SUMAIRA AHMED PRESIDENT 224539 0 0 0 0 0 0 0 0 0 224539 0 0 0 MICHAEL DEVLIN DIRECTOR 210719 0 0 0 0 0 0 0 0 0 210719 0 0 0 FORM 990, PART VI, SECTION A, LINE 8B ONE BOARD MEMBER DOCUMENTS THE MEETING WITH WRITTEN MEETING MINUTES THEN THEY ARE APPROVED BY THE PRESIDENT. FORM 990, PART VI, SECTION B, LINE 11B THE PRESIDENT REVIEWS 990 BEFORE IT IS FILED FORM 990, PART VI, SECTION C, LINE 19 DOCUMENTS ARE AVAILABLE UPON REQUEST