2023-11-14T18:03:48-06:00 2022-12-31 954303700 JOHN S BALISY & COMPANY 24000 ALICIA PARKWAY 17 STE 466 MISSION VIEJO CA 92691 990 2022-01-01 200299958 CURE DUCHENNE CURE 9498722552 100 BAYVIEW CIRCLE 5600 NEWPORT BEACH CA 92660 DEBRA MILLER CEO 9498722552 2023-11-14 DEBRA MILLER XXX-XX-XXXX 1 JOHN S BALISY COMPANY P01385861 9495407519 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z DEBRA MILLER 100 BAYVIEW 5600 NEWPORT BEACH CA 92660 10530786 0 X WWW.CUREDUCHENNE.ORG X 2003 CA COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY. AS WELL AS, IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DISTROPHY PATIENTS. 12 10 37 18 0 0 2697179 2429586 0 0 412798 147656 2332242 3174126 5442219 5751368 394830 330000 0 0 2939257 3851657 0 0 1066464 4271299 4823959 7605386 9005616 -2163167 -3254248 33154912 28410543 309658 310658 32845254 28099885 X CURE DUCHENNE IS A NON-PROFIT ORGANIZATION DEDICATED TO RAISING FUNDS AND COORDINATING AND FUNDING RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY, INCREASING PUBLIC AWARENESS FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, IMPROVING CARE, HEALTH,AND QUAILITY OF LIVING FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS. 0 0 6736726 330000 114728 CURE DUCHENNE WAS ORGANIZED IN 2003 WITH THE MISSION TO FUND RESEARCH NECESSARY TO FIND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY PATIENTS, AND IMPROVING THE CARE AND HEALTH OF DUCHENNE MUSCULAR DYSTROPHY PATIENTS. SINCE CURE DUCHENNE WAS ORGANIZED, THE ORGANZIATIO HAS BEEN VERY INSTRUMENTAL IN HAVING SEVERAL DRUGS APPROVED BY THE FDA FOR PATIENTS WITH DUCHENNE MUSCULAR DYSTROPHY. 6736726 1 1 0 0 0 0 0 0 0 0 1 0 1 0 1 0 1 0 0 0 0 0 0 1 1 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 1 45 0 1 37 1 0 0 0 0 0 0 0 0 0 0 X 12 10 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA MA TN WI TX X X DEBRA MILLER 9495407519 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 PAUL MILLER SECRETARY 10.00 X X 0 0 0 DEBRA MILLER PRESIDENT & CEO 40.00 X X 151305 0 0 JEFFREY GOFFMAN DIRECTOR 1.00 X 0 0 0 PETER STRELOW DIRECTOR 1.00 X 0 0 0 DAVID MACINNIS DIRECTOR 1.00 X 0 0 0 DANA WHITE DIRECTOR 1.00 X 0 0 0 RYAN WILLIAMS DIRECTOR 1.00 X 0 0 0 MARTIN LEHR DIRECTOR 1.00 X 0 0 0 ELAINE WU DIRECTOR 1.00 X 0 0 0 TJ FARNSWORTH DIRECTOR 1.00 X 0 0 0 SARAH MCELROY DIRECTOR 1.00 X 0 0 0 TIM SULLIVAN DIRECTOR 1.00 X 0 0 0 KATHLENE BALISY FINANCE DIRECTOR 40.00 X 170833 0 0 BRADLEY HODGES FORMER PARTNER WITH CUREDUCHENNE VENTURES 40.00 X 151231 0 0 MICHAEL KELLY CHIEF SCIENTIFIC OFFICER 40.00 X 175000 0 0 HEATHER MEDLIN SENIOR DIRECTOR OF CLINICAL DEVELOPMENT 40.00 X 156821 0 0 KENT MORA FORMER CHIEF OF STAFF 40.00 X 211308 0 0 LIANNA ORLANDO VICE PRESIDENT OF RESEARCH 40.00 X 196917 0 0 1213415 0 0 10 1 1 0 THE WORTHWHILE COMPANY PO BOX 63478 CHARLOTTE NC 28263 SOFTWARE DEVELOPMENT 875400 TRINDS LLC 6425 LIVING SPACE 2ND FLOOR PITTSBURG PA 15206 RESEARCH 289580 SYSTEM HOLDINGS LLC PO BOX 644722 PITTSBURG PA 15264 EMPLOYMENT SERVICES 139602 BRAND AMP LLC 1945 PLACENTIA AVE BLG C COSTA MESA CA 92627 MARKETING 127461 IDEAL HALL 611 ANTON BLVD STE 140 COSTA MESA CA 92626 MARKETING 115419 5 1450872 978714 2429586 362715 362715 2092405 9096 2316560 0 -224155 9096 -215059 -215059 5669912 1450872 2462858 3207054 3207054 TRINDS LLC LOSS 541700 -32928 -32928 -32928 5751368 114728 0 3207054 330000 330000 1216122 1132599 15211 68312 2174238 1373482 326427 474329 203034 163035 20 39979 258263 189637 20226 48400 19797 5083 11927 2787 45701 13470 29001 3230 242659 160200 17478 64981 180698 13514 165278 1906 229575 89322 117985 22268 385034 309392 14555 61087 409105 249542 109813 49750 4054 4054 59928 32866 12576 14486 OUTSIDE SERVICES 2269069 2057420 136099 75550 PROMOTIONAL EXPENSE 327334 214051 62998 50285 PUBLIC RELATIONS 252504 246001 6503 DUES & SUBSCRIPTIONS 134145 47810 53402 32933 264356 109302 105376 49678 9005616 6736726 1202426 1066464 13432108 8410921 37337 21117 0 16220 19555425 19514869 0 0 167379 468533 33154912 28410543 59950 36108 15177 66808 234531 207742 309658 310658 X 32845254 28099885 32845254 28099885 33154912 28410543 X -3254248 -1649977 158856 X 0 1 X 0 0 X 4715363 5323906 2772905 1804005 2429586 17045765 4715363 5323906 2772905 1804005 2429586 17045765 17045765 9248 21839191 1574511 994482 147656 24565088 41610853 11622712 0.40960 0.43330 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 0 37337 21117 16220 16220 INVESTMENTS HELD 19514869 F 19514869 PENSION PAYABLE 7588 LEASE LIABILITIES 200154 207742 4260247 -1649977 158856 -1491121 5751368 0 5751368 9005616 0 9005616 0 9005616 PART XI, LINE 2D - OTHER ADJUSTMENTS: 2021 EMPLOYEE RETENTION CREDIT RECEIVED IN 2022 158,924. WASH SALES LOSS DISALLOWED -68. X X X X X 0 HANNAH LEIGH INC 304 BROADWAY STREET VENICE CA 90291 ANNUAL NAPA GALA FUNDRAISING 0 1394710 59827 1334883 1394710 59827 1334883 CA MA TN WI TX FUNDRAISER-MIAMI GALA 568530 13100 555430 135188 FUNDRAISER-NEWPORT BEACH GALA 1394710 40000 1354710 399631 14 5157544 1397772 3759772 1928039 7120784 1450872 5669912 2462858 2462858 3207054 SCHEDULE G, PART I, LINE 2B, COLUMN (V) DURING 2022, THE ORGANIZATION PAID THE FUNDRAISER $59,827. THESE PAYMENTS REPRESENT SERVICES RENDERED DURING THE FUNDRAISING EVENTS, INCLUDING ORGANIZING AND COORDINATING THE FUNCTIONS. 1 THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 042312909 230000 0 EDUCATION/ OUTREACH/ RESEARCH FOUNDATION OF NATIONAL INSTITUTE OF HEALTH 9650 ROCKVILLE PIKE RM 3411 BETHSEDA MD 20814 521986675 100000 0 EDUCATION/ OUTREACH/ RESEARCH PART I, LINE 2: GRANTS GIVEN OUT BY THE COMPANY ARE MONITORED AND ASSESSED WHETHER THE GRANTS WERE USED FOR THE ORIGINALLY INTENDED PURPOSE FOR THE GRANT. X X X 0 0 0 0 0 0 0 0 0 KENT MORA FORMER CHIEF OF STAFF 211308 0 0 0 0 0 0 0 0 0 211308 0 0 0 LIANNA ORLANDO VICE PRESIDENT OF RESEARCH 196917 0 0 0 0 0 0 0 0 0 196917 0 0 0 MICHAEL KELLY CHIEF SCIENTIFIC OFFICER 175000 0 0 0 0 0 0 0 0 0 175000 0 0 0 KATHLENE BALISY FINANCE DIRECTOR 170833 0 0 0 0 0 0 0 0 0 170833 0 0 0 HEATHER MEDLIN SENIOR DIRECTOR OF CLINICAL DEVELOPM 156821 0 0 0 0 0 0 0 0 0 156821 0 0 0 DEBRA MILLER PRESIDENT & CEO 151305 0 0 0 0 0 0 0 0 0 151305 0 0 0 BRADLEY HODGES FORMER PARTNER WITH CUREDUCHENNE VEN 151231 0 0 0 0 0 0 0 0 0 151231 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 DEBRA AND PAUL MILLER HAVE A FAMILY RELATIONSHIP. FORM 990, PART VI, SECTION B, LINE 11B FORM 990 WILL BE AVAILABLE TO ALL THE BOARD MEMBERS TO REVIEW PRIOR TO FILING AT THE REGULARLY SCHEDULED BOARD MEETINGS. HOWEVER, A LIMITED NUMBER OF BOARD MEMBERS WILL REVIEW THE ENTIRE FORM 990 PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD OF DIRECTORS ARE REQUIRED TO REVIEW AND SIGN THE CONFLICT OF INTEREST POLICY AT LEAST ANNUALLY. THE BOARD MEMBER MUST INFORM THE REST OF THE BOARD IF A CONFLICT ARISES OR IF IT EXISTS. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION ARE REVIEWED BY INDEPENDENT LEGAL COUNSEL AND SUBMITTED TO THE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANZIATION'S AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE AVAILABLE TO THE PUBLIC VIA THE GUIDESTAR USA INC WEBSITE. FORM 990, PART XI, LINE 9: 2021 EMPLOYEE RETENTION CREDIT RECEIVED IN 2022 158,924. WASH SALE LOSS DISALLOWED -68. CUREDUCHENNE VENTURE LLC 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 383934145 INVESTING IN RESEARCH CA 112822 20561254 CURE DUCHENNE CD ACCESS 24000 ALICIA PARKWAY STE 466 MISSION VIEJO CA 92691 813735979 DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE CA 501(C)(3) ACTIVE 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0