2023-11-14T09:08:03-06:00 2022-12-31 161131146 BONADIO & CO LLP 171 SULLYS TRAIL PITTSFORD NY 14534 990 2022-01-01 205244339 AMERICAN THROMBOSIS AND HEMOSTASIS NETWORK INC AMER 5852817301 67 RED ROCK CIRCLE ROCHESTER NY 14626 CRYSTAL WATSON CEO 5852817301 2023-11-10 1 CRYSTAL WATSON 999009999 0 MICHAEL VOLLMER P01322902 5853811000 2023-11-10 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z CRYSTAL WATSON 67 RED ROCK CIRCLE ROCHESTER NY 14626 13595220 0 X WWW.ATHN.ORG X 2006 GA NON-PROFIT ORGANIZATION DEDICATED TO ADVANCE AND IMPROVE THE CARE OF INDIVIDUALS WITH BLEEDING AND CLOTTING DISORDERS. 10 9 55 17 0 0 13254943 13465526 0 0 94766 101383 14831 28311 13364540 13595220 5016733 5395276 0 0 6162323 6993690 0 0 0 2381921 2145875 13560977 14534841 -196437 -939621 10168996 8367265 3334622 3104627 6834374 5262638 X ATHN PROVIDES STEWARDSHIP OF A SECURE NATIONAL DATABASE, ADHERENT TO ALL PRIVACY GUIDELINES, WHICH WILL BE USED TO SUPPORT CLINICAL OUTCOMES ANALYSIS, RESEARCH, ADVOCACY AND PUBLIC HEALTH REPORTING IN THE HEMOSTASIS AND THROMBOSIS COMMUNITY. 0 0 4253536 3690055 CDC SURVEILLANCE - THIS CENTER FOR DISEASE CONTROL COOPERATIVE AGREEMENT FUNDS THE COMMUNITY COUNTS CDC PUBLIC HEALTH SURVEILLANCE PROJECT TO CREATE A UNIFORM SET OF DEMOGRAPHIC AND HEALTH SERVICES UTILIZATION DATA CHARACTERIZING THE POPULATION WITH BLEEDING AND CLOTTING DISORDERS AND TO MONITOR HEALTH INDICATORS OF THESE POPULATIONS. COMMUNITY COUNTS CONSISTS OF THREE PARTS, HTC POPULATION PROFILE, MORTALITY REPORTING, AND THE REGISTRY FOR BLEEDING DISORDERS SURVEILLANCE. MORE THAN 122,809 PATIENTS ARE INVOLVED IN THE CDC SURVEILLANCE PROJECT. 3306761 642150 ATHN SYSTEMS - THIS PROGRAM COMPRISES THE SOFTWARE SYSTEMS AND CAPABILITIES REQUIRED AS A STEWARD OF A SECURE NATIONAL DATABASE USED TO SUPPORT CLINICAL OUTCOMES ANALYSIS, RESEARCH, AND PUBLIC HEALTH WITH REPORTING BY OVER 140 TREATMENT CENTERS, GOVERNMENT ENTITIES, AND RESEARCHERS. 514419 HRSA MCHB - THIS NATIONAL HEMOPHILIA PROGRAM IS A COOPERATIVE AGREEMENT WHICH FUNDS THE FIRST NATIONAL HEMOPHILIA PROGRAM COORDINATING CENTER. THE PROJECT CREATES A NATIONAL NETWORK TO OPTIMIZE THE CARE FOR PATIENTS WITH BLEEDING AND THROMBOTIC DISORDERS OVER THEIR LIFETIME AND ACROSS GENERATIONS AND EXTENDS ATHN'S LEADERSHIP FROM THE HTCS AND REGIONS TO A BROADER GROUP OF STAKEHOLDERS SUCH AS PROFESSIONAL ORGANIZATIONS, PATIENT ADVOCACY GROUPS, PAYERS, AND GOVERNMENT PARTNERS. 664230 DATA QUALITY COUNTS 260419 895 CDC COVID VTE PROGRAM 2880009 1062176 ATHN RESEARCH PRGORAMS 3804658 1063071 11879374 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 15 0 55 1 0 0 0 0 0 0 0 0 0 0 0 0 X 10 9 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X MICHAEL NIEKAMP 5852817301 67 REDROCK CIRCLE ROCHESTER NY 14626 ROBERT SIDONIO MD BOARD MEMBER 1.00 X 0 0 0 TAMARA VOGEL MBA TREASURER 1.00 X X 0 0 0 SARAH O'BRIEN MD SECRETARY 1.00 X X 0 0 0 VANESSA BYAMS MPH BOARD MEMBER (NON-VOTING) 1.00 X 0 0 0 CHRSTOPHER E WALSH MD BOARD MEMBER 1.00 X 0 0 0 JANNA JOURNEYCAKE MD MSCS CHAIR 1.00 X X 0 0 0 KATHRYN MCLAUGHLIN MPH BOARD MEMBER (NON-VOTING) 1.00 X 0 0 0 CRYSTAL WATSON PRESIDENT AND CEO 40.00 X X 323881 0 26213 STEVEN PIPE MD BOARD MEMBER (NON-VOTING) 1.00 X 0 0 0 W KEITH HOOTS MD BOARD MEMBER (NON-VOTING) 1.00 X 0 0 0 EDITH ROSATO RPH IOM BOARD MEMBER 1.00 X 0 0 0 JIM MUNN RN MS BOARD MEMBER 1.00 X 0 0 0 TYLER BUCKNER MD MSC BOARD MEMBER 1.00 X 0 0 0 DUC BOBBY TRAN MD MSC BOARD MEMBER 1.00 X 0 0 0 LINDA MAGLIOCCO VP, FINANCE AND ADMINISTRA 40.00 X 214936 0 20495 MOSES MILES VP, RESEARCH AND INFORMATI 40.00 X 287345 0 18632 MICHAEL NIEKAMP CHIEF FINANCIAL OFFICER 40.00 X 128413 0 11628 ROBERT FROST SENIOR SOFTWARE DEVELOPER 40.00 X 147464 0 16991 TROY VERBRUGGE LEAD DEVELOPER 40.00 X 178776 0 17643 CARRIE O'NEILL DIRECTOR, RESEARCH PROGRAM 40.00 X 170900 0 12573 STEPHANIE ROMPOT SENIOR DIRECTOR, PRODUCT MANAGEMENT 40.00 X 155700 0 10607 NABIL DAOUD DIRECTOR, BIOSTATICS 40.00 X 143023 0 18186 1750438 0 152968 9 0 1 0 0 5438564 8026962 13465526 101383 101383 OTHER REVENUE 900099 28311 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14495293 39548 39548 14534841 1 ADMIN OF THE TULANE EDUCATIONAL FUND 1430 TULANE AVENUE NEW ORLEANS LA 70112 720423889 501(C)(3) 14350 0 DATA MANAGEMENT CAPACITY RESEARCH ADVARRA 6100 MERRIWEAHTER DRIVE SUITE 600 COLUMBIA MD 21044 311358981 501(C)(3) 147620 0 DATA MANAGEMENT CAPACITY RESEARCH ALBANY 43 NEW SCOTLAND AVENUE MAIL CODE 131 ALBANY NY 12208 141338310 501(C)(3) 9400 0 DATA MANAGEMENT CAPACITY RESEARCH AUGUSTA UNIVERSITY RESEARCH INSTITUTE ATTN KUTLAR - SEQ 37512 1120 15TH ST AA-312 AUGUSTA GA 30912 586002053 501(C)(3) 11200 0 DATA MANAGEMENT CAPACITY RESEARCH BLEEDING & CLOTTING DISORDERS INSTITUTE 9128 N LINDBERGH DRIVE PEORIA IL 61615 272050459 501(C)(3) 38700 0 DATA MANAGEMENT CAPACITY RESEARCH BLOODWORKS NW 921 TERRY AVENUE SEATTLE WA 98104 911019655 501(C)(3) 50000 0 DATA MANAGEMENT CAPACITY RESEARCHDATA MANAGEMENT CAPACITY RESEARCH BOSTON CHILDREN'S HOSPITAL - RESEARCH FINANCE 300 LONGWOOD AVENUE BOSTON MA 02115 042774441 501(C)(3) 267078 0 DATA MANAGEMENT CAPACITY 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UNIVERSITY (734)THE JOHN BOUHASIN CENTER FOR CHILDREN WITH BLEEDI 3545 LINDELL BLVD ST LOUIS MO 63103 430654872 501(C)(3) 10850 0 DATA MANAGEMENT CAPACITY RESEARCH THE CHILDRENS MERCY HOSPITAL 2401 GILHAM ROAD KANSAS CITY MO 64108 440605373 501(C)(3) 33950 0 DATA MANAGEMENT CAPACITY RESEARCH THE FEINSTEIN INSTITUTE FOR MEDICAL RESEARCH PO BOX 95000-7530 PHILADELPHIA PA 19195 112241326 501(C)(3) 30650 0 DATA MANAGEMENT CAPACITY RESEARCH THE REGENTS OF THE UNIVERSITY OF CALIFORNIA USCF MAIN REPOSITORY PO BOX 748872 LOS ANGELES CA 90074 946036493 501(C)(3) 15050 0 DATA MANAGEMENT CAPACITY RESEARCH UNIVERSITY OF ARIZONA PO BOX 210158 RM 510 SPONSORED PROJECTS AND CONTRACTING SERVICES TUCSON AZ 85721 742652689 501(C)(3) 10650 0 DATA MANAGEMENT CAPACITY RESEARCH UNIVERSITY OF COLORADO DENVER 1800 GRANT STREET SUITE 600 DENVER CO 80203 846000555 501(C)(3) 41250 0 DATA MANAGEMENT CAPACITY RESEARCH UNIVERSITY OF FLORIDA 219 GRINTER HALL GAINSVILLE FL 32611 596002052 501(C)(3) 24950 0 DATA 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18500 0 DATA MANAGEMENT CAPACITY RESEARCH VANDERBILT UNIVERSITYFINANCE MANAGEMENT 1161 21ST AVE SOUTH D-D3300 MEDICAL CENTER NORTH NASHVILLE TN 37232 352528741 501(C)(3) 23650 0 DATA MANAGEMENT CAPACITY RESEARCH VERSITI WISCONSIN INC 638 N 18TH STREET MILWAUKEE WI 53233 390807235 501(C)(3) 22781 0 DATA MANAGEMENT CAPACITY RESEARCH VIRGINIA COMMONWEALTH UNIVERSITY BOX 843035 RICHMOND VA 23284 546001758 501(C)(3) 12950 0 DATA MANAGEMENT CAPACITY RESEARCH WAKE UNIVERSITY HEALTH SCIENCES MEDICAL CENTER BLVD WINSTONSALEM NC 27157 223849199 501(C)(3) 13600 0 DATA MANAGEMENT CAPACITY RESEARCH WASHINGTON UNIVERSITY 700 ROSEDALE AVE CAMPUS BOX 1034 ST LOUIS MO 63112 430653611 501(C)(3) 23600 0 DATA MANAGEMENT CAPACITY RESEARCH WASHINGTON CENTER FOR BLEEDING DISORDERS 701 PIKE ST 1900 SEATTLE WA 98101 832302258 501(C)(3) 54500 0 DATA MANAGEMENT CAPACITY RESEARCH WEILL MEDICAL COLLEGE-CORNELL UNIV 1300 YORK AVE NEW YORK NY 10065 131623978 501(C)(3) 15400 0 DATA MANAGEMENT CAPACITY RESEARCH WNY BLOOD CARE 1010 MAIN STREET SUITE 300 BUFFALO NY 14202 160965865 12050 0 DATA MANAGEMENT CAPACITY RESEARCH PART I, LINE 2: ATHN HAS A FORMAL PROCESS FOR APPLYING, SELECTING, AWARDING, SUBSTANTIATING THE AMOUNTS OF GRANTS AWARDED AND TRACKING ACHIEVEMENT OF MILESTONES FUNDED BY THE GRANTS. THE ATHNDATA.QUALITY.COUNTS APPLICATION PROCESS IS AN ONLINE SUBMISSION PROCESS USING A STANDARD APPLICATION TEMPLATE, WITH SPECIFIC FUNDING REQUIREMENTS AND SUBMISSION DEADLINES ANNOUNCED TO ALL ATHN AFFILIATES. PROPOSALS ARE REVIEWED BY A MULTI-DISCIPLINARY GRANT REVIEW PANEL. EACH PROPOSAL IS WEIGHTED BASED ON CRITERIA ESTABLISHED FOR THAT ROUND OF FUNDING AND APPROPRIATENESS OF FINANCIAL REQUEST. UPON SELECTION OF THE SUBSET OF WINNING PROPOSALS, THE PROPOSED AWARDEES AND AMOUNTS OF EACH AWARD ARE REVIEWED BY THE DATA QUALITY COUNTS COMMITTEE FOR REASONABLENESS AND CONSISTENCY WITH BUDGET, AND APPROVED BY THE ATHN BOARD. LETTER AGREEMENTS CONFIRMING THE AWARDED AMOUNT AND REQUIREMENTS ARE PROVIDED AND EXECUTED BY EACH AWARDEE. PAYMENTS ARE ISSUED IN THREE PARTS: $2,500 UPFRONT AND THE REMAINING PAYMENTS MADE EVERY SUBSEQUENT SIX MONTHS UPON SUBMISSION INTERIM PROJECT REPORTS AND FINAL PROJECT REPORTS AT A RATE OF $50 OR $100 FOR UPDATING CORE DATA ELEMENTS PER PATIENT. X X X 0 0 0 0 0 0 0 0 0 CRYSTAL WATSON PRESIDENT AND CEO 282904 0 40977 0 0 0 16968 0 9245 0 350094 0 0 0 MOSES MILES VP, RESEARCH AND INFORMATI 251428 0 35917 0 0 0 15032 0 3600 0 305977 0 0 0 LINDA MAGLIOCCO VP, FINANCE AND ADMINISTRA 187870 0 27066 0 0 0 11250 0 9245 0 235431 0 0 0 TROY VERBRUGGE LEAD DEVELOPER 161526 0 17250 0 0 0 8398 0 9245 0 196419 0 0 0 CARRIE O'NEILL DIRECTOR, RESEARCH PROGRAM 168800 0 2100 0 0 0 8973 0 3600 0 183473 0 0 0 STEPHANIE ROMPOT SENIOR DIRECTOR, PRODUCT MANAGEMENT 155700 0 0 0 0 0 7007 0 3600 0 166307 0 0 0 ROBERT FROST SENIOR SOFTWARE DEVELOPER 128924 0 18540 0 0 0 7746 0 9245 0 164455 0 0 0 NABIL DAOUD DIRECTOR, BIOSTATICS 125023 0 18000 0 0 0 7986 0 10200 0 161209 0 0 0 FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FORM 990 WAS EMAILED TO ALL BOARD MEMBERS FOR THEIR REVIEW PRIOR TO BEING FILED. FORM 990, PART VI, SECTION B, LINE 12C ATHN REQUIRES ALL BOARD MEMBERS AND OFFICERS TO COMPLETE CONFLICT OF INTEREST STATEMENTS ON A YEARLY BASIS. FORM 990, PART VI, SECTION B, LINE 15 THE PRESIDENT/CEO'S COMPENSATION IS REVIEWED BY THE EXECUTIVE COMMITTEE AND APPROVED BY THE BOARD. FORM 990, PART VI, SECTION C, LINE 19 ALL REQUIRED PUBLIC DISCLOSURE DOCUMENTS ARE MADE AVAILABLE UPON REQUEST DURING NORMAL BUSINESS HOURS. PART XII, 2C THE AUDIT OVERSIGHT PROCESS HAS NOT CHANGED FROM THE PRIOR YEAR.