2023-11-09T14:29:19-06:00 2023-01-31 721396621 CARR RIGGS & INGRAM LLC 4004 SUMMIT BLVD NE SUITE 800 ATLANTA GA 30319 990 2022-02-01 581943490 ALS ASSOCIATION OF GEORGIA INC ALSA 4046369909 5881 GLENRIDGE DRIVE 200 ATLANTA GA 30328 SARAH EMBRO EXECUTIVE DIRECTOR 4046369909 2023-11-08 1 SARAH EMBRO 999009999 0 TIFFANY T ORR CPA P01559485 7703948000 2023-11-08 0 AAL1 IAL1 2022 2023-04-26 12:10:37Z SARAH EMBRO 5881 GLENRIDGE DRIVE 200 ATLANTA GA 30328 1581290 0 4119 X WWW.ALSAGA.ORG X 1988 GA THE ORGANIZATION'S VISION IS TO CREATE A WORLD WITHOUT ALS. THE ORGANIZATION OFFERS ONE-ON-ONE PATIENT CONSULTATION AND MEDICAL EQUIPMENT AS WELL AS SUPPORT GROUPS, CARE GRANTS, CLINICS, AN ANNUAL SYMPOSIUM, AND RESEARCH FUNDING. 12 12 10 85 0 0 1651746 1487276 0 0 1033 8688 73967 0 1726746 1495964 354735 406150 0 0 642382 667225 0 0 261120 450356 580895 1447473 1654270 279273 -158306 1713949 1659434 110288 224893 1603661 1434541 X THE PRIMARY MISSION OF THE ALS ASSOCIATION IS TO LEAD THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 0 0 1155159 406150 PATIENT SERVICES -THE RELATIONSHIP BETWEEN THE CARE SERVICES TEAM AND THE PERSONS DIAGNOSED WITH ALS (PALS) AND THEIR FAMILY MEMBERS COMMENCE UPON DIAGNOSIS. THE GOAL OF THE PROGRAM IS TO ENSURE THAT INDIVIDUALS AND THEIR FAMILIES EXPERIENCE OPTIMAL EMOTIONAL FUNCTIONING GIVEN THE DEVASTATION OF THE DISEASE. OUR ATTEMPT TO SUCCESSFULLY IMPACT FAMILIES CAN BE OUTLINED WITHIN OUR EXISTING PROGRAMS: EDUCATION, KOSTIUK CARE GRANT, SUPPORT GROUPS, RICKY P. SWEAT EQUIPMENT LOANER & ASSISTIVE TECHNOLOGY PROGRAM, SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM, PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM, AND PATIENT CONSULTATIONS. INDIVIDUALS WHO ARE NEWLY DIAGNOSED OFTEN NEED TIME TO ABSORB THE IMPACT OF THEIR DIAGNOSIS, THEREFORE BASIC INFORMATION AND EDUCATION IS PROVIDED IMMEDIATELY BY THE ALS ASSOCIATION OF GA. THIS INFORMATION INCLUDES BUT IS NOT LIMITED TO THE DIAGNOSIS ITSELF, DISEASE TRAJECTORY, SUPPORT AND ONGOING RESEARCH. ANNUALLY THE ASSOCIATION PROVIDES AN EDUCATIONAL SYMPOSIUM WHICH HIGHLIGHTS RESEARCH, SUPPORT AND EDUCATIONAL OPPORTUNITIES FOR PERSONS WITH ALS, COMMUNITY PROVIDERS AND SUPPORTERS. ALTHOUGH TO DATE THERE IS NO CURE FOR THIS DISEASE, THE ALS ASSOCIATION IS PASSIONATE ABOUT THE MISSION OF ONE DAY FINDING A TREATMENT AND ULTIMATELY A CURE.THE FINANCIAL HARDSHIP THAT FAMILIES INCUR AS THE RESULT OF AN ALS DIAGNOSIS CAN IMPACT THEIR QUALITY OF LIFE TREMENDOUSLY. FOR THOSE THAT MAY NEED ADDITIONAL HELP, THE KOSTIUK CARE GRANT PROGRAM STRIVES TO PROVIDE SOME RELIEF. THIS PROGRAM IS A REIMBURSEMENT PROGRAM THAT ASSISTS FAMILIES WITH EXPENSES THAT ARE NOT TRADITIONALLY COVERED BY PRIVATE INSURANCES, MEDICAID OR MEDICARE. IT WILL COVER EXPENSES RELATED TO HOME CARE ASSISTANCE (RESPITE), TRAVEL COSTS FOR ATTENDANCE TO AND FROM THE ALS CLINICS, HOME MODIFICATIONS, AUTO MODIFICATIONS AND COMMUNICATION DEVICES. RECIPIENTS MAY APPLY FOR AND RECEIVE TWO GRANTS PER YEAR IN THE AMOUNT OF $1,000 PER GRANT REQUEST. GRANTS ARE AWARDED TWICE A YEAR ON A FIRST COME FIRST SERVE BASIS AND WILL BE BASED ON AVAILABILITY OF FUNDS. DURING FYE 2023, $203,000 WAS AWARDED IN CARE GRANT FUNDS. THE SUPPORT GROUP PROGRAM PROVIDES PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO CONNECT WITH OTHERS IN THE COMMUNITY WHO SHARE SIMILAR CHALLENGES AND NEEDS. THE GROUPS ARE DESIGNED TO PROVIDE EMOTIONAL AND PSYCHOSOCIAL SUPPORT AS WELL AS RESOURCES AND EDUCATION.KNOWING WHAT QUESTIONS TO ASK AND WHERE TO LOOK FOR RESOURCES IS VITAL. THE ASSOCIATION CURRENTLY CONDUCTS MONTHLY SUPPORT GROUPS THAT MEET THE NEEDS OF 159 COUNTIES IN THE STATE OF GEORGIA. THESE GROUPS ARE FACILITATED BY PROFESSIONALS AND COMMUNITY PARTNERS TO ENSURE MAXIMUM RESULTS. BECAUSE THE NEEDS OF CAREGIVERS AND CHILDREN CAN BE VERY SENSITIVE, THE ASSOCIATION HAS DEVELOPED SPECIFIC GROUPS TO ADDRESS THOSE NEEDS.AS THE DISEASE PROGRESSES, INDIVIDUALS WILL EXPERIENCE A DECLINE IN FUNCTIONING AS IT RELATES TO MOBILITY AND SPEECH. THESE CHALLENGES CAN IMPACT INDEPENDENCE AND QUALITY OF LIFE. IN SOME SITUATIONS, SPECIFIC MEDICAL AND COMMUNICATION DEVICES ARE REQUIRED BUT NOT COVERED BYPRIVATE INSURANCE, MEDICAID OR MEDICARE. THE EQUIPMENT LOANER PROGRAM PROVIDES SUCH EQUIPMENT TO PERSONS WITH ALS AT NO COST. THIS PROGRAM WORKS DILIGENTLY TO OBTAIN THROUGH GRANT FUNDING OR PRIVATE DONATIONS SUCH ITEMS THAT CAN ENSURE INCREASED INDEPENDENCE. THE ASSOCIATION IN PARTNERSHIP WITH COMMUNITY PROVIDERS COLLABORATE ON THE MAINTENANCE ANDSTORAGE OF ALL EQUIPMENT.90% OF THE CURRENT ALS COMMUNITY IN GEORGIA CONTINUES TO REMAIN IN THEIR HOME THROUGHOUT THE DISEASE PROCESS. THIS BECOMES INCREASINGLY DIFFICULT BECAUSE THEY WILL REQUIRE TOTAL ADL CARE FROM ADDITIONAL PROVIDERS. THIS SERVICE IS NOT COVERED BY MEDICARE OR PRIVATE INSURANCE COMPANIES. THE SALLY PANFEL IN-HOME CARE AND RESPITE PROGRAM PROVIDES PALS WITH UP TO 12 HOURS OF IN-HOME CARE PER WEEK. THE CARE IS PROVIDED BY LICENSED COMMUNITY PARTNERS OF THE ALSAGA ASSOCIATION AND ELIGIBILITY IS BASED ON A NEEDS ASSESSMENT. DURING FYE 2023, 4,815 IN-HOME CARE HOURS WERE PROVIDED THROUGH THIS PROGRAM.ACCESS TO QUALITY CARE AND RESEARCH CAN BE CHALLENGING FOR THOSE IMPACTED BY ALS. AS MOBILITY DECLINES AND THE NEED FOR ASSISTIVE TECHNOLOGY INCREASES, PERSONS WITH ALS FIND IT DIFFICULT TO ATTEND NEEDED APPOINTMENTS VIA TRADITIONAL MODES OF TRANSPORTATION. MEDICARE AND MEDICAID ARE VERY LIMITED REGARDING THE COVERAGE OF NON-EMERGENCY TRANSPORTATION. THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM IS FOCUSED ON ADDRESSING TRANSPORTATION NEEDS VIA: NON-EMERGENCY TRANSPORTATION, VAN RENTALS, VEHICLE MODIFICATION AND VOUCHERS. DURING FYE 2023, 61 INDIVIDUALS RECEIVED SPECIFIC TRANSPORTATION ASSISTANCE AND 37 VAN RENTALS WERE PROVIDED TO FAMILIES THROUGH THIS PROGRAM.INFORMATION IS VITAL TO PERSONS WITH ALS. AS THE BODY DECLINES IT IS VERY IMPORTANT TO BE PRESENTED WITH REALISTIC EXPECTATIONS REGARDING THE DISEASE TRAJECTORY. SKILLED CARE SERVICE COORDINATORS ARE AVAILABLE TO PROVIDE ONGOING CONSULTATIONS THROUGH OUR CARE SERVICES CONSULTATION PROGRAM. THE ONGOING CONSULTATIONS PROVIDE THE OPPORTUNITY TO ASSESS, EDUCATE AND EMPOWER INDIVIDUALS AND THEIR FAMILIES TO MAKE INFORMED DECISIONS. THE COORDINATORS ARE ALSO VERY INSTRUMENTAL IN IDENTIFYING AND MAKING COMMUNITY REFERRALS. THE ALS ASSOCIATION IS THE CONNECTION BETWEEN WHAT IS NEEDED AND WHAT IS AVAILABLE FOR PERSONS WITH ALS, THEIR FAMILIES AND CAREGIVERS. 70771 GLOBAL RESEARCH EFFORTS, IN PARTNERSHIP WITH THE ALS ASSOCIATION, NATIONALLY, ARE ON-GOING TO INCREASE THE NUMBER OF SCIENTISTS WORKING ON ALS AND ADVANCE NEW DISCOVERIES AND TREATMENTS. 1225930 1 1 0 1 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 0 10 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 12 12 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 GA X X X SARAH EMBRO 4046369909 5881 GLENRIDGE DRIVE 200 ATLANTA GA 30328 PETER GLEICHMAN CHAIR 2.50 X X 0 0 0 JORDAN MYERS VICE CHAIR 1.00 X X 0 0 0 PATRICK WILLIS TREASURER 2.00 X X 0 0 0 MITZI HILL SECRETARY 0.50 X X 0 0 0 JOSHUA I BOSIN DIRECTOR 0.50 X 0 0 0 NED DOUTHAT DIRECTOR 0.50 X 0 0 0 HILLARY GARDNER DIRECTOR 0.50 X 0 0 0 HEATHER LARSON DIRECTOR 0.50 X 0 0 0 CHRISTINE MCKENZIE DIRECTOR 0.50 X 0 0 0 BILL NORDMARK DIRECTOR 1.00 X 0 0 0 MARK PANFEL DIRECTOR 1.00 X 0 0 0 KISHA MORRIS WESLEY DIRECTOR 0.50 X 0 0 0 SARAH EMBRO EXECUTIVE DIRECTOR 40.00 X 109377 0 13889 109377 0 13889 1 0 0 0 0 537558 949718 5995 1487276 7461 7461 1316 89 1227 1227 1227 85237 537558 85237 0 1495964 0 0 8688 84065 84065 322085 322085 123266 80780 15153 27333 422821 277087 51975 93759 10640 6973 1308 2359 70322 46084 8644 15594 40176 26328 4939 8909 7940 4129 3017 794 49547 25764 18828 4955 49863 25929 18948 4986 8685 6223 453 2009 125870 88109 5035 32726 70661 47161 8567 14933 13287 12621 666 1419 851 426 142 3875 1666 1589 620 NATIONAL ALS ASSOCIATIO 222831 158500 22127 42204 OTHER EXPENSE 13515 5812 5541 2162 MERCHANT AND BANK FEE 13402 5763 670 6969 1654270 1225930 167220 261120 604111 463652 1107669 1115131 1000 10000 1169 413 83766 83766 0 0 0 70238 1713949 1659434 110288 153030 0 71863 110288 224893 X 879693 581321 723968 853220 1603661 1434541 1713949 1659434 -158306 -1355 -9459 0 X X 0 1 X 1 0 X 1666498 1870915 1282768 1651746 1487276 7959203 1666498 1870915 1282768 1651746 1487276 7959203 1007923 6951280 7642 10830 6090 1033 7461 33056 76 3729 3805 7996064 0.86930 0.90440 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 1 1 0 0 0 0 1 0 0 0 0 0 PART II-B, LINE 1: IN FISCAL YEAR 2023, THE ORGANIZATION'S PUBLIC POLICY INITIATIVES FOCUSED TO RAISE AWARENESS, ADVOCATE FOR ISSUES, AND SEEK FUNDING FOR ALS PATIENTS AND THEIR FAMILIES AT THE STATE LEVEL AND NATIONALLY. IN ACHEIVING THESE GOALS, THE ORGANIZATION INCURRED $0 OF EXPENSES. DUE TO THE COVID PANDEMIC, THE ANNUAL ALS ADVOCACY CONFERENCE TYPICALLY HELD IN WASHINGTON D.C. WHERE A DELEGATION OF GEORGIA ALS PATIENTS, VOLUNTEERS, STAFF, AND BOARD MEMBERS ATTENDED TO MEET WITH GEORGIA CONGRESSMEN ON CAPITOL HILL, WAS HELD VIRTUALLY THROUGH WEBINARS AND TELEPHONE CONFERENCE CALLS. 83766 83766 0 0 OPERATING LEASE LIABILITY 71863 71863 X 1626520 -1355 46674 45319 1581201 -85237 -85237 1495964 1786181 46674 85237 131911 1654270 0 1654270 PART X, LINE 2: UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE, THE ASSOCIATION IS EXEMPT FROM TAXES ON INCOME OTHER THAN UNRELATED BUSINESS INCOME. THE ASSOCIATION DOES NOT HAVE ANY UNRELATED BUSINESS INCOME. SUBSEQUENT TO YEAR-END, THE ASSOCIATION FILED TO CHANGE ITS LEGAL NAME TO ALS UNITED OF GEORGIA, INC. AND APPLIED FOR INDEPENDENT TAX-EXEMPT STATUS, EFFECTIVE JULY 25, 2023. THE ASSOCIATION UTILIZES THE ACCOUNTING REQUIREMENTS ASSOCIATED WITH UNCERTAINTY IN INCOME TAXES USING THE PROVISIONS OF FASB ASC 740, INCOME TAXES. USING THAT GUIDANCE, TAX POSITIONS INITIALLY NEED TO BE RECOGNIZED IN THE FINANCIAL STATEMENTS WHEN IT IS MORE-LIKELY-THAN-NOT THE POSITIONS WILL BE SUSTAINED UPON EXAMINATION BY THE TAX AUTHORITIES. IT ALSO PROVIDES GUIDANCE FOR DERECOGNITION, CLASSIFICATION, INTEREST AND PENALTIES, ACCOUNTING IN INTERIM PERIODS, DISCLOSURE AND TRANSITION. AS OF JANUARY 31, 2023 AND 2022, THE ASSOCIATION HAS NO UNCERTAIN TAX POSITIONS THAT QUALIFY FOR RECOGNITION OR DISCLOSURE IN THE FINANCIAL STATEMENTS. PART XI, LINE 4B - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE -85,237. PART XII, LINE 2D - OTHER ADJUSTMENTS: SPECIAL EVENT EXPENSE 85,237. ALS WALK 531101 475146 55955 11624 20886 1520 6554 15371 GOLF FORE ALS 91694 62412 29282 4361 24044 371 506 622795 537558 85237 15985 44930 1891 6554 15877 85237 0 1 AUGUSTA ALS CLINIC - AUGUSTA UNIVERSITY HOSPITAL 1120 15TH STREET BP 4390 AUGUSTA GA 30912 581418202 501(C)(3) 25000 0 CASH CLINIC FINANCIAL SUPPORT EMORY ALS CENTER - EMORY UNIVERSITY HOSPITAL 1762 CLIFTON ROAD SUITE 1400 ATLANTA GA 30322 580566256 501(C)(3) 25000 0 CASH CLINIC FINANCIAL SUPPORT 2 0 THE KOSTIUK ALS CARE GRANT PROGRAM - A FINANCIAL REIMBURSEMENT TO GEORGIA PATIENTS DIAGNOSED WITH ALS AND PLS TO ADDRESS NEEDS NOT COVERED BY TRADITIONAL INSURANCE, MEDICAID AND MEDICARE. 209 169490 THE PAUL B. WILLIAMS ALS TRANSPORTATION PROGRAM - TO ADDRESS THE TRANSPORTATION NEEDS OF INDIVIDUALS WHO HAVE BEEN DIAGNOSED WITH ALS. BECAUSE OF THE DEBILITATING NATURE OF THIS DISEASE, PALS ARE OFTENTIMES UNABLE TO UTILIZE BASIC FORMS OF TRANSPORTATION TO MEET THEIR DAILY NEEDS. 93 35742 THE SALLY PANFEL ALS IN-HOME CARE & REPSITE PROGRAM - TO PROVIDE PERSONS WITH ALS AND THEIR FAMILIES THE OPPORTUNITY TO RECEIVE IN HOME CARE AND RESPITE WHO CURRENTLY DO NOT HAVE THE FINANCIAL RESOURCES TO SECURE ASSISTANCE INDEPENDENT OF COMMUNITY SUPPORT. 38 116853 PART I, LINE 2: THE ASSOCIATION MONITORS GRANTS THROUGH REVIEW OF INVOICES AND CONTINUED FOLLOW-UP WITH GRANT RECIPIENTS. ELIZABETH NORDMARK FAMILY MEMBER OF DIRECTOR BILL NORDMARK 83972 ELIZABETH NORDMARK WAS EMPLOYED BY THE ORGANIZATION. 0 FORM 990, PART VI, SECTION B, LINE 11B A DRAFT OF FORM 990, WITH ALL APPLICABLE SCHEDULES, IS REVIEWED BY THE FINANCE COMMITTEE. AFTER ALL QUESTIONS AND COMMENTS HAVE BEEN ADDRESSED TO THE SATISFACTION OF THE COMMITTEE, THE FULL RETURN IS PRESENTED TO THE ENTIRE BOARD OF DIRECTORS PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C EMPLOYEES AND DIRECTORS ARE REQUIRED TO ANNUALLY DISCLOSE ANY RELATED PARTY RELATIONSHIPS AND/OR CONFLICTS OF INTEREST. FORM 990, PART VI, SECTION B, LINE 15 THE FINANCE AND EXECUTIVE COMMITTEE OF THE BOARD UTILIZES SALARY COMPARISON DATA PROVIDED BY THE NON PROFIT RESOURCE CENTER TO EVALUATE THE REASONABLENESS OF THE EXECUTIVE DIRECTOR'S COMPENSATION AND TO MAKE ANY RECOMMENDATIONS TO THE BOARD FOR POSSIBLE MODIFICATIONS IN PAY. FORM 990, PART VI, SECTION C, LINE 18 THESE DOCUMENTS ARE KEPT ON-HAND IN THE CORPORATE OFFICE AND ARE AVAILABLE UPON REQUEST. FORM 990, PART VI, SECTION C, LINE 19 AUDITED FINANCIAL STATEMENTS AND FORM 990 ARE POSTED ON ORGANIZATION'S WEBSITE. HTTPS://ALSAGA.ORG/WHO-WE-ARE/FINANCIAL-INFORMATION/ FORM 990, PART XII, LINE 2C: THERE ARE NO CHANGES IN PROCESS FROM THE PRIOR YEAR.