2023-10-27T15:39:21-07:00 2023-06-30 262176601 EASY OFFICE DBA JITASA 1120 S RACKHAM WAY SUITE 300 MERIDIAN ID 83642 990EZ 2022-07-01 261224181 LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC LYMP 2622278453 7901 4TH STREET NORTH SAINT PETERSBURG FL 33702 MICHAEL KELLY EXECUTIVE DIRECTOR 2622278453 2023-10-27 1 1 JEREMY CORK P01544850 2082874777 2023-10-27 1 11 0 AAL2 2022 2023-04-26 12:10:37Z X www.ldgalliance.org X X 121403 X 118418 0 0 2845 0 0 0 0 0 0 0 0 0 0 140 121403 47072 0 0 215149 0 1820 16899 280940 -159537 578870 -416 418917 X 471896 312210 0 0 107246 109655 579142 421865 272 2948 578870 418917 WORLDWIDE PATIENT SUPPORT PROGRAM WHICH INCLUDES A PATIENT REGISTRY, A WEBSITE WITH RARE DISEASE INFORMATION AND PATIENT DISCUSSION FORUM. OUR OUTREACH PROGRAM INCREASES THE AWARENESS OF CLA'S THROUGH OUR WEBSITE AND SOCIAL MEDIA INCLUDING EVENTS SUCH AS AWARENESS DAY AND RARE DISEASE DAY. THIS ALSO SUPPORTED THE DISTRIBUTION OF LEARNING VIDEOS FROM OUR CONFERENCE FOR THOSE INDIVIDUALS THAT COULD NOT ATTEND INCLUDING A SPECIAL INTRODUCTION TALKS ABOUT CLA'S. 3972 50673 OUR RESEARCH PROGRAM INCLUDES $35,000 TO FUND RESEARCH GRANTS FROM THE UNIVERSITY OF PENNSYLANIA/ THE MILLION DOLLARY BIKE RIDE TO STUDY SUPPORT COMPLEX LYMPHATIC ANOMLIES ($35,000). TWO AWARD RECEIPTIENTS WERE SELECTED. WE ALSO SUPPORT TWO YOUNG INVESTIGATOR AWARDS TO RESEARCH PROJECTS SPECIFIC TO CLA ($25,000). 43000 49371 OUR PATIENT SUPPORT SERVICES INCLUDED THE MANAGEMENT OF OUR PATIENT REGISTRY TO SUPPORT RESEARCH NEEDS AND TRACK VITAL INFORMATION ABOUT CLAS. THE PROGRAMS ALSO SUPPORTS THE MANAGEMENT OF SEVERAL SUPPORT GROUPS. 100 19944 119988 SCOTT WEISNER PRESIDENT 2 0 0 0 SCOTT GOLDFARB BOARD MEMBER 2 0 0 0 MITCH MAERSCH BOARD MEMBER 2 0 0 0 TIFFANY FERRY BOARD MEMBER 2 0 0 0 LOUISE MURGIA DIRECTOR OF OPERATIONS 40 47216 0 0 MICHAEL KELLY EXECUTIVE DIRECTOR 20 57038 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 FL MICHAEL KELLY 30751 BROOKWOOD DRIVE PEPPER PIKE OH 44124 2622278453 0 0 0 0 0 0 0 0 0 0 0 NONE NONE 1 X 117135 315738 224895 320875 118418 1097061 117135 315738 224895 320875 118418 1097061 35462 35462 0 0 0 0 35462 35462 1061599 5890 4316 131 843 2845 14025 5890 4316 131 843 2845 14025 123025 320054 225026 321718 121263 1111086 0.95546 0.98171 0.01262 0.01829 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Form 990-EZ, Part I, Line 8 MISCELLANEOUS REVENUE Form 990-EZ, Part I, Line 10 GRANTS TO OTHER ORGANIATIONS = $43,100 GRANTS & ASSISTANCE TO INDIVIDUALS = $3,972. Form 990-EZ, Part I, Line 16 Description;Amount^OFFICE EXPENSES;9257|TRAVEL AND CONFERENCE EXPENSES;6112|INSURANCE;1530^Total;16899^ Form 990-EZ, Part I, Line 20 Description;Amount^UNREALIZED LOSS;-416^Total;-416^ Form 990-EZ, Part II, Line 24 Description;EOY Amount^INVESTMENTS PUBLICLY TRADED SECURITIES;109655^Total;109655^ Form 990-EZ, Part II, Line 26 Description;EOY Amount^ACCOUNTS PAYABLE AND ACCURED EXPENSES;2948^Total;2948^