2023-09-25T14:21:40-07:00 2022-12-31 942590179 Krisch & Company 3478 Buskirk Ave Ste 215 Pleasant Hill CA 94523 990 2022-01-01 680182998 HEMOPHILIA COUNCIL OF CALIFORNIA HEMO 9165727771 717 K STREET 501 SACRAMENTO CA 95814 LYNNE KINST Executive Director 2023-09-25 true LYNNE KINST 999009999 true JULIA MCKEE CPA P01743240 9259300902 3 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z MICHAEL BRADLEY 717 K STREET 501 SACRAMENTO CA 95814 256354 false X http://www.hemophiliaca.org/ X 1989 CA THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS. 15 15 2 30 0 14655 8879 239649 238735 129 8740 0 254433 256354 0 0 147263 160231 0 11148 96253 188438 243516 348669 10917 -92315 449880 336465 15655 53627 434225 282838 X THE MISSION OF HCC IS TO IMPROVE ACCESS TO CARE AND TREATMENT OPTIONS IN ORDER TO ADVANCE THE QUALITY OF LIFE FOR PEOPLE WITH BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, AND OUTREACH IN THE COLLABORATION WITH ITS FOUNDING MEMBER ORGANIZATIONS. false false 151684 73650 EDUCATION - THIS INCLUDES POLICY AND ADVOCACY WEBINARS, CHAPTER PRESENTATIONS, ANDFUTURE LEADERS PROGRAMS TO EDUCATE OUR LEGISLATORS AND THE PUBLIC ON THE IMPORTANCE OF HEMOPHILIA CARE BOTH FOR THE BLEEDING DISORDERS COMMUNITY AND THE GREATER COMMUNITY. HCC SUPPORTS AND ENCOURAGES ALL PATIENTS WITH BLEEDING DISORDERS TO SEEK THE EXPERT CARE OF TRAINED PROFESSIONALS AT THE HEMOPHILIA TREATMENT CENTERS THROUGHOUT THE STATE. HCC ALSO SUPPORTS CHOICE OF TREATMENT AND PROVIDERS, AND EDUCATES THE HEMOPHILIA COMMUNITY ON THE RANGE OF OPTIONS FOR TREATMENT. 78806 77755 ADVOCACY & POLICY - THE HCC ACTIVELY SEEKS THE SUPPORT OF THE CALIFORNIA LEGISLATURE FOR MEASURES THAT WILL IMPROVE THE QUALITY OF LIFE OF MEMBERS IN OUR COMMUNITY. OUR EFFORTS FOCUS ON SUPPORTING THE CURRENT PROGRAMS THAT EXIST, AS WELL AS EVALUATING CHANGES TO THE CURRENT HEALTH SYSTEM THAT MAY AFFECT ACCESS AND QUALITY OF TREATMENT. 27923 59000 HEALTHCARE ACCESS FORUM - THIS IS A QUARTERLY BLEEDING DISORDERS INDUSTRY FORUM THATPROMOTES COMMUNICATION AMONG CONSUMERS, INDUSTRY, HEALTHCARE PROVIDERS, SPECIALTYPHARMACIES AND THE STATE. 51160 28330 309573 true true false true false false false false false false true false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false false true 3 0 true 2 true false false false false false false false 0 false false false false false false false X 15 15 false false false false false false false true true false false true true true true true true true false false CA X X X LYNNE KINST 9165727771 717 K STREET STE 501 SACRAMENTO CA 95814 LYNNE KINST Executive Dir. 40.00 0.00 X 88484 0 0 STEPHANIE DANSKER Secretary 5.00 0.00 X X 0 0 0 CINDY GUZMAN BOARD MEMBER 2.00 0.00 X 0 0 0 MICHAEL BRADLEY President 5.00 0.00 X X 0 0 0 AMAL ESTRADA BOARD MEMBER 2.00 0.00 X 0 0 0 RICHARD UNO BOARD MEMBER 2.00 0.00 X 0 0 0 MOSI WILLIAMS BOARD MEMBER 2.00 0.00 X 0 0 0 NATE OSBORNE BOARD MEMBER 2.00 0.00 X 0 0 0 TONY CARVALHO BOARD MEMBER 2.00 0.00 X 0 0 0 CHRISTINE GAXIOLA BOARD MEMBER 2.00 0.00 X 0 0 0 SHELLYE HOROWITZ BOARD MEMBER 2.00 0.00 X 0 0 0 LAUREN HAY Vice President 5.00 0.00 X X 0 0 0 RIGOBERTO MANZO BOARD MEMBER 2.00 0.00 X 0 0 0 OSCAR HORTA Treasurer 2.00 0.00 X X 0 0 0 HEATHER MIKELS BOARD MEMBER 2.00 0.00 X 0 0 0 MATTHEW CIANCIULLI BOARD MEMBER 2.00 0.00 X 0 0 0 88484 0 false false false 0 8879 8879 ADVOCACY & POLICY 77755 77755 DIVERSITY & INCLUSION 4250 4250 EDUCATION 73650 73650 HEALTH POLICY SUMMIT 21300 21300 HEALTHCARE ACCESS FORUM 59000 59000 2780 2780 238735 8740 8740 0 0 0 0 0 0 0 0 256354 238735 8740 X 0 0 0 0 88484 75232 8828 4424 0 45384 35596 9788 0 1428 1185 200 43 24935 20696 3491 748 0 0 6120 5079 857 184 0 0 0 112475 105775 1400 5300 0 2731 2600 108 23 0 0 3767 3127 527 113 35771 35440 331 0 0 0 0 193 193 3619 3003 507 109 MEETINGS 11827 11827 DUES AND SUBSCRIPTIONS 4803 3894 833 76 COMMUNICATIONS 2655 2207 371 77 BANK CHARGES 1460 1275 152 33 3017 2637 362 18 348669 309573 27948 11148 50217 51233 399023 283691 0 0 0 0 0 0 514 514 2470 1444 126 1026 0 0 0 0 1 449880 336465 655 1127 15000 52500 15655 53627 X 434225 282838 434225 282838 449880 336465 -92315 -54429 -4643 X false false false X 236993 270050 194854 254304 247614 1203815 0 0 236993 270050 194854 254304 247614 1203815 411733 792082 473 163 4339 129 8740 13844 0 0 1217659 0.65050 0.61280 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false 25200 25200 323469 348669 69734 17434 false 45926 43918 48703 69734 208281 312422 22080 24000 24000 25200 95280 11482 10980 12176 17434 52072 78108 Part II-B, Line 1i - Other Activities Description HEMOPHILIA COUNCIL OF CALIFORNIA HAS A PAID LOBBYIST WHO MONITORS LEGISLATION ON ITS' BEHALF. WHEN NEEDED, SHE WILL LOBBY IN SUPPORT OF HEALTH CARE PRIORITIES OF THE ORGANIZATION. SHE ALSO REPRESENTS THE ORGANIZATION ON ISSUES WITH THE STATE DEPARTMENT OF HEALTH SERVICES, MEDI-CAL PROGRAM, CCS, GHPP, MRMIB & MRMIP PROGRAMS FOR THE UNDERINSURED. Part IV - Additional Information 2470 1444 1026 1026 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: OTHER PROGRAM SERVICES 5: OTHER PROGRAM SERVICES 6: Form 990, Part VI, Section B, Line 11b THE RETURN IS SENT VIA EMAIL TO ALL BOARD MEMBERS FOR REVIEW BEFORE BEING SIGNED BY THE EXECUTIVE DIRECTOR. Form 990, Part VI, Section B, Line 12c THE POLICY IS REVIEWED EVERY JANUARY WITH THE BOARD. BOARD MEMBERS ARE ENCOURAGED TO BE MINDFUL OF THE POLICY DURING MEETINGS. Form 990, Part VI, Section B, Line 15a IN ORDER TO ESTABLISH THE COMPENSATION OF THE EXECUTIVE DIRECTOR, THE GOVERNANCE COMMITTEE, COMPOSED OF FOUR DIRECTORS WITHOUT CONFLICT OF INTEREST, REVIEWED COMPARABLE COMPENSATION FOR SIMILARLY QUALIFIED PERSONS AT SIMILAR ORGANIZATIONS IN OCTOBER 2019. MINUTES AND CONTEMPORANEOUS DOCUMENTATION ARE AVAILABLE UPON REQUEST. Form 990, Part VI, Section C, Line 19 PRIOR YEAR INFORMATION RETURNS (FORM 990) ARE AVAILABLE FOR PUBLIC INSPECTION ON THE GUIDESTAR WEBSITE LOCATED AT WWW.GUIDESTAR.ORG.THE ORGANIZATION'S GOVERNING DOCUMENTS, POLICIES, FINANCIAL STATEMENTS AND INFORMATION RETURNS ARE AVAILABLE UPON REQUEST.