2023-08-23T14:21:41-04:00 2022-12-31 561743537 LANGDON & COMPANY LLP 223 US HIGHWAY 70 EAST SUITE 100 GARNER NC 275294051 990 2022-01-01 208423943 CHORDOMA FOUNDATION CHOR 9198096779 PO BOX 2127 DURHAM NC 27702 JOSH SOMMER EXEC. DIR. & PRES. 9198096779 2023-08-22 true JOSH SOMMER XXX-XX-XXXX true SUSAN DEAN P01281194 9196621001 2023-08-22 2022 2023-04-26 12:10:37Z JOSH SOMMER PO BOX 2127 DURHAM NC 27702 4886250 false X WWW.CHORDOMAFOUNDATION.ORG X 2007 NC THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. 15 14 11 120 0 2961128 4812417 0 1432 15406 123194 58427 3085754 4886250 1925627 1199415 0 977164 1193089 0 491001 469393 696265 3372184 3088769 -286430 1797481 6529695 7599511 2131664 1353307 4398031 6246204 THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE. false false 1713330 1169414 (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, THE CHORDOMA FOUNDATION INITIATED AND FUNDED A PORTFOLIO OF RESEARCH PROJECTS SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE, AND PROVIDED A VARIETY OF VITAL SERVICES TO THE CHORDOMA RESEARCH COMMUNITY, INCLUDING BANKING CHORDOMA TUMOR TISSUE, DEVELOPING AND DISTRIBUTING PRECLINICAL MODELS OF CHORDOMA, PERFORMING PRECLINICAL DRUG SCREENING, AND FACILITATING PATIENT PARTICIPATION IN CLINICAL TRIALS. 603572 30000 (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, THE CHORDOMA FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, AND OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES. 2316902 true true false false false false false false false false true false false false false true true false false false true true false false false false false true true true false false false false false true false false true false false false false false false false false true 12 0 true 11 true false false false false false false false false false false false false X 15 14 false false false false false false false true true false false true true true true true true true true false X X X JOSH SOMMER 9198096779 PO BOX 2127 DURHAM NC 27702 DANIEL FREED HEAD OF TARG 40.00 X 153838 0 13647 KENNY BRIGHTON HEAD OF PHIL 40.00 X 153136 0 5603 JOSH SOMMER EXEC. DIR. & 50.00 X X 132248 0 12084 TAMMY SILVERTHORNE DIRECTOR OF 40.00 X 100001 0 15355 SHANNON LOZINSKY DIRECTOR OF 40.00 X 100250 0 11619 SARA NICK HEAD OF ENGA 40.00 X 100500 0 3705 LESLIE ADLER DIRECTOR 2.00 X 0 0 0 PAUL FELDMAN DIRECTOR 2.00 X 0 0 0 STEVEN GOLICK DIRECTOR 2.00 X 0 0 0 CHRISTOPHER HEERY DIRECTOR 2.00 X 0 0 0 ALICIA JEFFREYS DIRECTOR 2.00 X 0 0 0 INGEMAR LANEVI TREASURER 2.00 X 0 0 0 SUSAN MAHONY DIRECTOR 2.00 X 0 0 0 STEVEN MANDEL DIRECTOR 2.00 X 0 0 0 SHREYASKUMAR PATEL DIRECTOR 2.00 X 0 0 0 DAVID SANDAK CHAIR 4.00 X 0 0 0 CHRISTY SHAFFER DIRECTOR 2.00 X 0 0 0 JULIE SONG SECRETARY 2.00 X 0 0 0 MEGAN STEWART DIRECTOR 2.00 X 0 0 0 JOHN THERIEN DIRECTOR 2.00 X 0 0 0 715387 62013 6 false true false 4812417 592187 4812417 15406 15406 34192 34192 34192 34192 EMPLOYEE RETENTION CREDIT 21475 21475 OTHER INCOME 2760 2760 24235 4886250 58427 15406 926915 926915 30000 30000 242500 242500 470557 288790 44334 137433 576540 353834 54319 168387 9659 5928 910 2821 63327 38865 5966 18496 73006 44805 6878 21323 977 703 143 131 14523 14523 130405 104301 6612 19492 14590 8716 5874 53239 11391 25796 16052 123183 57176 27727 38280 35770 7653 17332 10785 61307 16743 8392 36172 9104 9104 20775 13632 6291 852 IN-KIND CONTRIBUTIONS 157143 147701 2539 6903 BAD DEBT EXPENSE 50000 50000 MEETING EXPENSES 25249 17249 8000 3088769 2316902 280866 491001 804311 267171 5065451 6102120 584490 1123782 34262 21334 28107 127442 49111 19847 78331 6529695 7599511 214632 573348 1905855 776434 11177 3525 2131664 1353307 X 3250101 3052256 1147930 3193948 4398031 6246204 6529695 7599511 X 1797481 50692 X false true X true false X 2350245 5151081 2488341 2961128 4812417 17763212 2350245 5151081 2488341 2961128 4812417 17763212 4720147 13043065 4180 1049 5729 26512 49598 87068 11150 2512 1775 15437 17865717 201386 0.73010 0.76780 X PART II, LINE 10 CONFERENCE REGISTRATION FEES 15,437 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 7540 7113 427 56342 41998 14344 63560 63560 78331 X 4984136 47194 50692 97886 4886250 4886250 3135963 47194 47194 3088769 3088769 SCHEDULE D, PAGE 3, PART X THE FOUNDATION EVALUATES ANY UNCERTAIN TAX POSITIONS. ACCORDINGLY, THE FOUNDATION'S POLICY IS TO RECORD A LIABILITY FOR ANY TAX POSITION TAKEN THAT IS BENEFICIAL TO THE FOUNDATION, INCLUDING ANY RELATED INTEREST AND PENALTIES, WHEN IT IS MORE LIKELY THAN NOT THE POSITION OF MANAGEMENT WITH RESPECT TO A TRANSACTION OR CLASS OF TRANSACTIONS WILL BE OVERTURNED BY A TAXING AUTHORITY UPON EXAMINATION. MANAGEMENT DOES NOT BELIEVE ANY SIGNIFICANT INCOME TAX UNCERTAINTIES EXIST AS OF DECEMBER 31, 2022 OR 2021. SCHEDULE D, PAGE 4, PART XI, LINE 2D GAIN ON FOREIGN CURRENCY 50,692 true EUROPE GRANTS RESEARCH 22000 SOUTH ASIA GRANTS RESEARCH 220500 242500 242500 SOUTH ASIA RESEARCH 220500 WIRE TRANSFER EUROPE RESEARCH 22000 WIRE TRANSFER 1 1 false false false false false false SCHEDULE F, PAGE 1, PART I, LINE 2 MONITORING THE USE OF GRANT FUNDS OUTSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. SCHEDULE F, PAGE 1, PART I, LINE 3 EUROPE 22,000 0 SOUTH ASIA 220,500 0 true CANCER RESEARCH INSTITUTE 29 BROADWAY FLOOR 4 NEW YORK NY 10006 131837442 501C3 200000 RESEARCH GRANT CHILDREN'S HOSPITAL OF PHILADELPHIA CHOP 3615 CIVIC CENTER BOULEVARD PHILADELPHIA PA 19104 231352166 501C3 75019 RESEARCH GRANT START 4383 MEDICAL DRIVE SUITE 4021 SAN ANTONIO TX 78229 208313687 300762 RESEARCH GRANT THE JACKSON LABORATORY 600 MAIN STREET BAR HARBOR ME 04609 010211513 501C3 125720 RESEARCH GRANT UNIVERSITY OF NC AT CHAPEL HILL 120 MASON FARM ROAD CHAPEL HILL NC 27519 566001393 501C3 21133 RESEARCH GRANT UPMC DEPARTMENT OF NEUROSURGERY 200 LOTHROP STREET PITTSBURG PA 15213 232919472 501C3 100000 RESEARCH GRANT 5 1 PATIENT ASSISTANCE 10 30000 FMV SCHEDULE I, PAGE 1, PART I, LINE 2 MONITORING USE OF GRANT FUNDS INSIDE THE U.S. IS CARRIED OUT THROUGH REGULAR REPORTING BY GRANTEE ORGANIZATIONS. X X false false false false false false false false false DANIEL FREED HEAD OF TARGET DISCO 143581 10203 54 4607 9040 167485 KENNY BRIGHTON HEAD OF PHILANTHROPY 138082 15000 54 4592 1011 158739 SMITH ANDERSON LLP BOARD DIRECTOR 47194 IN-KIND LEGAL SVCS false SCHEDULE L, PART V THE FOUNDATION RECEIVED AN IN-KIND DONATION OF LEGAL SERVICES FROM SMITH ANDERSON, LLP. JOHN THERIEN, A BOARD MEMBER OF THE FOUNDATION, IS ALSO A MEMBER OF THE LAW FIRM SMITH ANDERSON, LLP. X 6 435045 FMV X TECH SOLUTIONS 1 157142 FMV false true false FORM 990, PAGE 6, PART VI, LINE 11B FINANCIAL REPORTS AND THE FORM 990 ARE REVIEWED BY THE FOUNDATION'S EXECUTIVE DIRECTOR, BOARD CHAIR, TREASURER AND FINANCE COMMITTEE BEFORE BEING DISTRIBUTED TO THE FULL BOARD FOR REVIEW AND APPROVAL. FORM 990, PAGE 6, PART VI, LINE 12C EACH EMPLOYEE, DIRECTOR, OR OTHER AGENT OF THE FOUNDATION SIGNS A STATEMENT THAT AFFIRMS THEY HAVE RECEIVED A COPY OF THE POLICY, READ AND UNDERSTAND THE POLICY, AGREED TO COMPLY WITH THE POLICY, AND UNDERSTAND THE FOUNDATION MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES IN ORDER TO MAINTAIN THEIR FEDERAL TAX EXEMPTION. FORM 990, PAGE 6, PART VI, LINE 15A THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS RECOMMENDS COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES THAT IS (I) WITHIN THE BUDGET APPROVED BY THE BOARD OF DIRECTORS, AND (II) COMPARABLE TO INDUSTRY NORMS FOR SIMILARLY SIZED NONPROFITS. THE BOARD OF DIRECTORS DECIDE ON COMPENSATION OF THE EXECUTIVE DIRECTOR AND KEY EMPLOYEES BY VOTE. FORM 990, PAGE 6, PART VI, LINE 15B THE EXECUTIVE DIRECTOR, ALONG WITH THE BOARD OF DIRECTORS, DETERMINE THE COMPENSATION OF THE ORGANIZATION'S EMPLOYEES AFTER CAREFULLY REVIEWING THE EMPLOYEE CREDENTIALS AND THE ORGANIZATION'S BUDGET. ALL POSITIONS AND COMPENSATIONS ARE APPROVED AND FUNDED THROUGH THE ANNUAL BUDGET, WHICH REQUIRES BOARD REVIEW AND APPROVAL. IN ADDITION, PERSONNEL ISSUES MAY BE BROUGHT BEFORE THE EXECUTIVE COMMITTEE OF THE BOARD OF DIRECTORS BY THE EXECUTIVE DIRECTOR. FORM 990, PAGE 6, PART VI, LINE 19 GOVERNING DOCUMENTS INCLUDING ARTICLES OF INCORPORATION, BY-LAWS, POLICIES, ANNUAL AUDITS, AND 990S ARE ON FILE IN THE FINANCE OFFICE AND ARE AVAILABLE TO THE PUBLIC UPON REQUEST. SOME OF THESE DOCUMENTS ARE AVAILABLE ON THE FOUNDATION'S WEBSITE. FORM 990, PART XI, LINE 9 GAIN ON FOREIGN CURRENCY 50,692