2023-08-21T06:00:26-04:00 2022-12-31 990 2022-01-01 161513923 WORLD FEDERATION OF HEMOPHILIA USA % Alain Baumann WORL 8774177944 PMB 142 911 CENTRAL AVE ALBANY NY 122061304 Alain Baumann Executive Director 2023-08-21 2022 2023-04-26 12:10:37Z WFH USA Alain Baumann 1425 Rene Levesque West Suite 1200 MONTREAL Quebec CA H3G 1T7 684615118 false X www.wfhusa.org X 1996 NY Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world 11 11 0 12 0 0 822907635 684598697 42817 -26415 2556 42836 0 0 822953008 684615118 822516039 684198174 0 0 88606 92025 0 0 61078 155104 220664 822759749 684510863 193259 104255 2014564 1856452 998691 720864 1015873 1135588 The specific purpose of WFH USA is to advance the global mission of the World Federation of Hemophilia WFH within the United States which is to improve and sustain care for people with inherited bleeding disorders around the world by developing resources and building awareness within the US for the global vision of Treatment for All. Charitable solicitations for the common purposes of WFH and WFH USA within the U.S. are conducted through WFH USA a 501c3 affiliated entity true false 683312184 683230986 683312184 WFH Humanitarian Aid program The WFH Humanitarian Aid Program improves the lack of access to care and treatment by providing much-needed support to national member organizations NMOs hemophilia treatment centres HTCs and healthcare practitioners HCPs in emerging countries. This support comes in the form of education training and donated factor and non-factor replacement therapy. The objective of the program is to make it possible for people with inherited bleeding disorders to reliably access safe and consistent treatment and care regardless of their type of bleeding disorder gender or location. WFH USA provides tens of thousands of people living with hemophilia access to care and allows the introduction of prophylaxis and elective surgeries in more than 60 countries around the world. The Program promotes identification and diagnosis incentivizes governments to invest in bleeding disorders care and demonstrates the positive impact of investment in treatment. In accordance with the Collaboration Agreement between WFH USA and the WFH WFH USA is exclusively responsible for all solicitations of donors and potential donors of in-kind contributions of clotting factor and other pharmaceutical products for use in the WFH Humanitarian Aid Program and all monetary donations to support the WFH Humanitarian Aid Program. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Humanitarian Aid programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Humanitarian Aid Program 575000 517500 575000 WFH TRAINING AND EDUCATION PROGRAM The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Training and Education programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Training and Education Program. 230000 207000 230000 WFH RESEARCH PROGRAM The WFH Research Program works to enhance data collection and research activities around the world to build the evidence base for the optimal management of inherited bleeding disorders. It fills a unique need within the global community and has great potential to add value to the existing evidence base. Part of the Research Program the World Bleeding Disorders Registry WBDR is a web-based data entry system that provides a platform for a network of hemophilia treatment centers HTCs around the world to collect uniform and standardized data and guide clinical practice. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Research Program to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Research Program. 234314 225990 229752 684351498 true true false false false false false false false true false true true false false false true false false true true true true false false false false false true false false false false false false false false false true false false false false true false false false true 0 0 0 false false false false false false false 0 false false false false false false false false false false X 11 11 false false false false true true true true true false false true true true true false false false false false AL AR CA DC FL GA HI IL KS KY MD MA MI MN MS NH NJ NM NY NC OR PA RI SC TN UT VA WV WI X World Federation of Hemophilia 5148757944 1425 Rene Levesque West Suite 1200 MONTREAL QC CA H3G 1T7 Eric Stolte President 2.00 0 X X 0 0 0 Ken Trader Vice-President 1.00 0 X X 0 0 0 Sean Singh Treasurer 1.00 0 X X 0 0 0 Alain Baumann Secretary 8.00 0 X X X 0 0 7264 Paula Bell Director 1.00 0 X 0 0 0 Amy Dunn Director 1.00 0 X 0 0 0 Phillip Kucab Director 1.00 0 X 0 0 0 Glenn Pierce Director 1.00 1.00 X 0 0 0 Edith Rosato Director 1.00 0 X 0 0 0 Mr Frank L Schnabel IV Director 1.00 0 X 0 0 0 Mark W Skinner Director 1.00 0 X 0 0 0 Len Valentino Director 1.00 0 X 0 0 0 Dawn Rotellini Ex-Officio NHF Liaison 1.00 0 X 0 0 0 Jennifer Laliberte National Director 28.00 0 X 0 0 84761 0 0 92025 0 false false false 0 0 0 0 0 684598697 679788865 684598697 Investment income Endowment fund -26415 -26415 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 -26415 42836 42836 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 684615118 16421 0 0 0 0 15261 15261 684182913 684182913 0 0 92025 65325 4567 22133 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 114354 81175 21820 11359 890 0 890 0 10000 0 10000 0 0 0 0 0 0 0 6824 6824 0 0 17690 0 9500 8190 7187 0 5058 2129 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 16715 0 12027 4688 0 0 0 0 10647 0 10647 0 0 0 0 0 0 0 0 0 0 0 0 0 5000 0 5000 0 Postage 350 0 273 76 0 0 0 0 Charitable registration and filing fees 31007 0 18504 12503 0 0 0 0 0 0 0 0 684510863 684351498 98286 61078 0 0 0 0 573823 448815 14750 14753 0 0 148081 207864 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 448432 439162 829478 745858 0 0 0 0 2014564 1856452 204756 333776 0 0 793935 387088 0 0 0 0 0 0 0 0 0 0 0 0 998691 720864 X 0 0 0 0 1015873 1135588 1015873 1135588 2014564 1856452 104255 -129038 0 0 0 144498 X false true X true false X 380638146 439969894 398358407 822907635 684598697 2726472779 0 0 0 0 0 0 0 0 0 0 0 0 380638146 439969894 398358407 822907635 684598697 2726472779 2328277140 398195639 17623 19769 116832 218704 50745 423673 0 0 0 0 0 0 0 0 0 0 0 0 2726896452 0.15 0.15 X Part II - Line 10 | Year:, Amount:, Description:| 2018, , | 2019, | 2020, | 2021, | 2022, | Part II, line 17a 1.Attraction of Public Support. WFH USA is organized and operated so as to attract new and additional public support on a continuous basis. Through a Collaboration Agreement with its Canadian affiliate the World Federation of Hemophilia "WFH" WFH USA maintains a continuous and bona fide program for solicitation of funds from the general public as well as engaging in activities designed to attract in-kind donations of clotting factor and other pharmaceutical products from multiple sources. Hemophilia treatment products received as donations are distributed to more than 60 developing countries each year for the treatment of thousands of people with hemophilia and related bleeding disorders. This activity is namely called the WFH Humanitarian Aid Program. Monetary contributions are utilized to cover the operational costs related to the Humanitarian Aid Program to support other charitable activities and to pay WFH USA's administrative expenses. The scope of WFH USA's fund-raising activities is reasonable in light of its charitable activities. WFH USA employs a National Director who is supported by three full-time WFH employees. 2.The Charity's Percentage of Public Support. WFH USA's total support from the public during the five-year period ending 2022 was at 14.60%; for the five-year period ending 2021 the ratio was at 15.29%. As explained in Part III of Form 990 WFH USA's specific purpose is to advance the global mission of the World Federation of Hemophilia WFH within the United States to improve and sustain care for people with inherited bleeding disorders around the world. As also explained in Part III of Form 990 the primary way that WFH USA carries out that mission is through the WFH Humanitarian Aid Program in which it receives product donations that are then distributed each year in more than 60 developing countries for the treatment of thousands of persons with hemophilia and related bleeding disorders. As a result the great majority of WFH USA's support is received in the form of in-kind contributions of blood clotting factor or other related pharmaceutical products mainly from manufacturers of those products. As there are only a limited number of such manufacturers the more successful that WFH USA is in obtaining substantial contributions from them the lower WFH USA's public support percentage will be. Thus WFH USA limits its activities to a special field and that inherently limits the number of its in-kind contributors. In other words the nature of the Humanitarian Aid Program is the reason that WFH USA's public support percentage is relatively low. 3.The Charity's Sources of Public Support. WFH USA's public support is derived from a representative number of persons. WFH USA does not receive most of its support from the members of a single family or from a single business. During the five-year period ending CY 2022 WFH USA received in-kind contributions of blood clotting factor or other related pharmaceutical products from 15 separate and unrelated sources. WFH USA also received cash donations from more than 300 different and unrelated individuals or organizations during that time period. 4.WFH USA's Governing Body. WFH USA has a governing body that represents the broad interests of the public. Its governing body does not represent the personal or private interests of a limited number of donors. WFH USA's governing body is comprised of persons having special knowledge or expertise in the particular field or discipline in which WFH USA operates and or other persons having knowledge of and interest in WFH USA and its mission to improve and sustain care for people with inherited bleeding disorders. WFH USA's governing body represents a broad cross-section of the views and interests of persons with inherited bleeding disorders and persons devoted to treating those disorders. None of the members of WFH USA's governing body are selected by affiliated with or otherwise represent the interests of the manufacturers of blood clotting factor or other related pharmaceutical products that contribute such products to WFH USA. 5.WFH USA's Facilities and Services. WFH USA provides facilities or services directly for the benefit of the general public on a continuing basis and maintains a definitive program to accomplish its charitable work on a world-wide basis. As already noted each year the Humanitarian Aid Program benefits thousands of persons with hemophilia and related bleeding disorders in more than 60 developing countries. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 602082 63001 0 0 0 0 665083 550651 51431 0 0 0 0 602082 497885 52766 0 0 0 0 550651 448161 49724 0 0 0 0 497885 392815 62779 0 7433 0 0 448161 0 1 0 false false C C BOND FUNDS 439162 F 439162 CASH 130899 F EQUITIES 306704 F FIXED INCOME 308255 F 745858 684560752 -17780 -17780 684578532 36586 36586 684615118 684504039 0 684504039 6824 6824 684510863 Part XI, line 4b 1 Donations to the endowment fund totalling $63,001 are recorded as an increase to the Net Assets on the financial statements and thus are not part of the revenue of the financial statements though included on Form 990. 2 Gross earnings on the endowment fund dividend interest income and gain on sale of securities of $7,909 are presented as deferred investment income on the Balance Sheet of the Audited Financial Statements and thus not part of the revenue. 3 Part of the earnings on the endowment fund totalling $34,324 was used in 2022 to pay the SSMF scholarships. Part V, line 4 The Susan Skinner Memorial Fund SSMF has been established as an endowment fund to support through scholarship payments the training education and leadership development of women within the bleeding disorders community. Scholarship recipients aged 18 to 60 years from the United States and abroad demonstrate outstanding leadership to improve the care of women with bleeding disorders in their countries and the potential to become future leaders in the bleeding disorder community. true Central America and the Caribbean 0 0 Program services HUMANITARIAN AID 31884932 East Asia and the Pacific 0 0 Program services HUMANITARIAN AID 85018738 Europe Including Iceland and Greenland 0 0 Program services HUMANITARIAN AID 2134300 Middle East and North Africa 0 0 Program services HUMANITARIAN AID 51223533 Russia and Neighboring States 0 0 Program services HUMANITARIAN AID 32641100 South America 0 0 Program services HUMANITARIAN AID 20455326 South Asia 0 0 Program services HUMANITARIAN AID 260117716 Sub-Saharan Africa 0 0 Program services HUMANITARIAN AID 196296210 North America 0 0 Program services HUMANITARIAN AID 3459131 North America 0 0 Program services TRAINING AND EDUCATION PROGRAM 517500 North America 0 0 Program services RESEARCH PROGRAM 207000 North America 0 0 Program services SOLIDARITY PROGRAM 186400 0 0 0 0 684141886 684141886 North America HUMANITARIAN AID 3459131 CHECK North America RESEARCH PROGRAM 207000 CHECK North America TRAINING AND EDUCATION PROGRAM 517500 CHECK North America SOLIDARITY PROGRAM 186400 CHECK Sub-Saharan Africa HUMANITARIAN AID 4569703 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2941603 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2681500 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 9318280 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 1145000 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 10408868 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 60841785 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 42739005 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 331500 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 231600 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 3754415 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 14328100 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 7839638 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 8018123 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 2288700 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 11629994 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 1902400 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 5068018 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 210000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 6820685 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 33926804 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 1529410 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 264880 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 18905978 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 1169000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 28144209 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 2552800 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 7639834 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 622380 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 309700 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 18707686 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 14873815 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 927960 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 361600 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 287500 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 7670500 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 1999325 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 103320 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 11116000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 356320 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 3694048 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 680250 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 563000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 1645160 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 470700 MEDICAL SUPPLY FMV Russia and Neighboring States HUMANITARIAN AID 12291573 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 33319802 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 35636893 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 17500 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 9626195 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 2628180 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 3484568 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 11647245 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 370110 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 2799854 MEDICAL SUPPLY FMV Europe (Including Iceland and Greenland) HUMANITARIAN AID 231900 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 4402427 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 19505003 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 5215875 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 22324962 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 3900513 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 455000 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 414375 MEDICAL SUPPLY FMV East Asia and the Pacific HUMANITARIAN AID 40586349 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 4742424 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 1870980 MEDICAL SUPPLY FMV Middle East and North Africa HUMANITARIAN AID 3094000 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 9683933 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 371700 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 584100 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 204450 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 522000 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 68622953 MEDICAL SUPPLY FMV South Asia HUMANITARIAN AID 17923351 MEDICAL SUPPLY FMV Central America and the Caribbean HUMANITARIAN AID 3726757 MEDICAL SUPPLY FMV South America HUMANITARIAN AID 3342427 MEDICAL SUPPLY FMV Sub-Saharan Africa HUMANITARIAN AID 633360 MEDICAL SUPPLY FMV 1 77 Scholarship Middle East and North Africa 2 6612 Scholarship to attend World Congress FMV Scholarship Sub-Saharan Africa 1 3769 Scholarship to attend World Congress FMV Scholarship Europe Including Iceland and Greenland 2 4601 Scholarship to attend World Congress FMV Scholarship Russia and Neighboring States 1 4928 Scholarship to attend World Congress FMV false false false false false false Part I Line 2 Humanitarian aid is sent to Hospitals & Registered Hemophilia Associations in the recipient countries. It is sent by international couriers DHL Fedex that require us to provide the contact name address and telephone where the shipment will be sent. Prior to sending we coordinate with the recipient and with the courier to ensure we have all necessary documents and authorizations. The international courier provides us with an airway bill with a tracking number. We require that the recipients send us an acknowledgement of receipt signed by the person that the shipment was addressed to or their representative. It specifies the product brand name manufacturer lot number quantity of the product and expiry date. In addition we ask the recipients to provide a detailed utilization report. Detailed reporting on usage of the monetary allocations to the WFH for Joint Programs per Collaboration Agreement between the WFH and WFH USA is being periodically presented to the Finance Committee and the Board of Directors of WFH USA. The SSMF scholarships covered expenses registration travel visa fees accommodation and meals to attend the WFH 2022 World Congress and Global NMO training in Montreal Canada. The expenses were authorized by the WFH staff. true Scholarship 4 0 9995 FMV Scholarship to attend World Congress Grant 4 0 5266 FMV Travel grant program 0 0 0 0 0 0 0 0 0 0 Part I Line 2 Scholarship payments support the training education and leadership development of women within the bleeding disorders community. Scholarship recipients from the United States and abroad demonstrate outstanding leadership to improve the care of women with bleeding disorders in their countries and the potential to become future leaders in the bleeding disorder community. In 2022 four women from the United States benefited from this scholarship together with six international scholars. The scholarships covered expenses registration travel visa fees accommodation and meals to attend the WFH 2022 World Congress and Global NMO training in Montreal Canada. The expenses were authorized by the WFH staff. Travel grants are provided to medical professionals who are: i members of a federally recognized US hemophilia treatment center multidisciplinary care team ii current members of the nursing psychosocial dental laboratory sciences or musculoskeletal a physiotherapist WFH committees and iii commit to participate in the planning of the he WFH World Congress and or attend relevant Congress sessions and meetings. In 2022 the amount was used to cover grantees' expenses registration travel accommodation and meals to participate in the WFH 2022 World Congress in Montreal Canada. The expenses were authorized by the WFH staff. X 9500 FMV X 7509 FMV X 143279250 353727175 Reference Pricing Book X Medication for Hemoph. 2608260 326044680 Reference Pricing Book 0 false true false Part III, line 2 SOLIDARITY PROGRAM The WFH Solidarity Program allows the WFH to support the development of all its national member organizations and their efforts to improve access to diagnosis treatment and care. The Solidarity Fund also ensures that the WFH can respond quickly to its national member organizations' emerging needs or challenges and provide relief in times of crisis. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to support the WFH Solidarity programs to the WFH as needed to carry out the WFH's responsibilities with respect to the WFH Solidarity Program. Part VI, Line 6 The World Federation of Hemophilia WFH a Canadian charity is the sole member of WFH USA. Part VI, Line 7a The World Federation of Hemophilia WFH has the power to elect all members of WFH USA's governing body. In addition the World Federation of Hemophilia has the sole power to amend the bylaws of the organization. Part VI, Line 7b Once a year at the General Assembly the WFH as a sole voting member of WFH USA approves the election of WFH USA Board of Directors Part VI, Line 11b Form 990 is prepared by the staff of WFH and in particular by its Head of Accounting & Financial Planning who has 16 years of experience with WFH. The Form 990 is then sent to WFH's Finance & Administration Director for review. After approval the Form 990 is then sent to the WFH USA's Finance Committee for their review and approval. Finally the Form 990 is reviewed by the Executive Director of WFH USA. Upon approval a copy of the form is also provided to all other members of the Board. Subsequently Form 990 is published on the WFH USA website for public inspection. Part VI, Line 12c Officers and Directors have to sign a conflict of interest form every year at the first annual board meeting. This is a standing agenda item such that conflicts are updated if required at each board meeting. Disclosure of a conflict or potential conflict of interest enables the Board to request the abstention of a member from an area where conflict occurs or could occur. Part VI, Line 19 The audited financial statements of WFH USA are posted on the organization's website along with the completed Form 990 and schedules. Part III, Line 4d | Description:, Expense Amount:, Grants Amount:, Revenue Amount:| Susan Skinner Memorial Fund: An endowment fund which supports through scholarship payments support the training education and leadership development of women within the bleeding disorders community. Scholarship recipients aged 18 to 60 years from the United States and abroad demonstrate outstanding leadership to improve the care of women with bleeding disorders in their countries and the potential to become future leaders in the bleeding disorder community. The fund is managed with the goal of generating enough funds to distribute scholarships while maintaining its long-term viability., $41148, $34324, $36586| Solidarity Fund, $186400, $186400, $186400| Travel fund, $6766, $5266, $6766| Part XI, Line 9 | Description:, Explanation:, Amount:| A large portion of the endowment fund Susan Skinner Memorial Fund is invested in publicly traded securities. Per the Memorandum of understanding of the SSMF the endowment fund is managed with the goal of generating enough funds to distribute scholarships while maintaining the long-term viability of the SSMF. Therefore the investment earnings are deferred for future years to be used for the fund's needs. The investment earnings are presented as deferred investment income on the Balance Sheet. The $144,498 represents the 2022 portion of the investment losses that have been deferred, Deferred investment earnings from the endowment fund, $144498| World Federation of Hemophilia 1425 Rene Levesque West suit 1200 Montreal QC CA H3G1T7 108222050 Improves and sustains care for people with inherited bleeding disorders around the world CA 501(C)(3) Charity Status 7 N A false false false false false false false false false false false false false true false true true false true true World Federation of Hemophilia M 206379 Per Services agreement with the WFH the WFH performs various services for WFH USA. As full consideration for the WFH's performance of the services WFH USA reimburses the WFH for the costs without any markup incurred and paid by the WFH in providing the services to WFH USA. In 2022 the total reimbursements relating to employee salaries amounted to $206,379 World Federation of Hemophilia O 92025 In 2022 the National Director of WFH USA was also holding a position of Director Strategic & Community Partnerships within the WFH and the Executive Director Secretary of WFH USA is also a CEO of the WFH. They both are paid by the WFH. Employees' time dedicated to WFH USA is determined based on timesheets and the dollar equivalent is being compensated by WFH USA to the WFH. The compensated amount was $92,025 in 2022 included in line 1m World Federation of Hemophilia P 67912 The WFH incurred certain expenses on behalf of WFH USA throughout the year. These expenses totaling to $67,912 were recorded in the accounting books and reimbursed to the WFH World Federation of Hemophilia R 4370031 WFH USA has signed a Collaboration agreement with the WFH which defines joint and coordinated activities the "Joint Programs" to support their common charitable goal. The Joint Programs currently include the WFH Humanitarian Aid Program the WFH Research Program the WFH Training and Education Program and the WFH Solidarity Fund program. As per the Collaboration Agreement donors may designate contributions to WFH USA solely to be used to financially support the WFH Joint Programs. These donation less reasonable costs of administration and management incurred by WFH USA are periodically allocated to the WFH as needed to carry out the WFH's responsibilities with respect to the Joint Programs. In 2022 the total amount of contributions for the Joint Programs received by WFH USA was $4,531,728 of which $4,370,031 was allocated to the WFH. World Federation of Hemophilia S 40764 The WFH received monetary donation on behalf of WFH USA throughout the year. These donations totaling to $40,764 were transferred from the WFH to WFH USA