2023-07-17T14:44:08-07:00 2023-01-31 931157146 Kern & Thompson LLC 1800 SW First Avenue Suite 410 Portland OR 97201 990 2022-02-01 680516066 The ALS Association Oregon and Southwest Washington Chapter ALSA 5032385559 825 NE Multnomah St Suite 940 Portland OR 97232 LANCE CHRISTIAN Executive Direc 2023-07-17 true LANCE CHRISTIAN 999009999 true Eric A Zehntbauer CPA P01294391 5032223338 X 2 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z LANCE CHRISTIAN 825 NE Multnomah St Suite 940 Portland OR 97232 3882334 false X WWW.ALSA-OR.ORG X 2002 OR LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. 15 15 21 450 0 4365692 3816969 0 32068 63602 -29159 -151363 4368601 3729208 1062800 83000 0 1131681 1346693 0 321142 762854 1690347 2957335 3120040 1411266 609168 3939845 4982342 277410 930566 3662435 4051776 X LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH ALS (LOU GEHRIGS DISEASE) AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT. false false 1127643 50000 OUTREACH AND ADVOCACYAS A CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE OREGON AND SOUTHWEST WASHINGTON CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. RESEARCH SUPPORT WENT TO OVER 150 RESEARCH GRANTS AROUND THE GLOBE. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2023 INCLUDE ONLINE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, PASSING ACT FOR ALS ACT AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. THE ORGANIZATION PROVIDED OVER $500,000 TO SUPPORT THESE NATIONAL PUBLIC POLICY AND RESEARCH EFFORTS.AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK TO DEFEAT ALS, SKI TO DEFEAT ALS, RIDE TO DEFEAT ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE OREGON AND SOUTHWEST WASHINGTON CHAPTER. RESEARCH IS A CRITICAL PART OF THE CHAPTER MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES DEFEAT ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN OUR CHAPTER TERRITORY AS POSSIBLE. 379653 INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 250 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2023. THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 186 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2023. THE CHAPTER GRANT PROGRAM IS DESIGNED TO PROVIDE FINANCIAL ASSISTANCE FOR FAMILIES LIVING WITH ALS. OVER $169,000 IN GRANTS WERE MADE TO 414 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES.THE ORGANIZATIONS MISSION IS ALSO CARRIED ON THROUGH SERVICES PROVIDED BY THE NATIONAL ALS ASSOCIATION (NATIONAL). THE ALS CHAPTERS HAVE A REVENUE SHARING AGREEMENT WITH NATIONAL WHEREBY APPROXIMATELY 13.6% OF REVENUES NET OF CREDIT FOR SUPPORTING ALS RESEARCH AND PUBLIC POLICY ACTIVITIES ARE PAID TO THE NATIONAL ORGANIZATION. 315259 EDUCATION AND SUPPORT PROGRAMSSTRATEGICALLY BASED IN AND NEAR PATIENTS HOME COMMUNITIES, CARE SERVICES COORDINATORS WORK DIRECTLY WITH PEOPLE WITH ALS AND THEIR FAMILIES TO HELP THEM NAVIGATE MANAGEMENT OF ALS AS WELL AS ACCESS COMMUNITY RESOURCES. DURING THE YEAR ENDED JANUARY 31, 2023, CARE SERVICE COORDINATORS MADE 356 HOME VISITS. IN THESE VISITS, COORDINATORS ARE OFTEN THE CRUCIAL SUPPORT PEOPLE NEED WITH GUIDANCE ON FINANCE, EMPLOYMENT ISSUES, INSURANCE QUESTIONS, SOCIAL SECURITY DISABILITY, MEDICARE, MEDICAID, AND LONG-TERM CARE QUESTIONS. COORDINATORS FACILITATED 188 ALS SUPPORT GROUPS IN PERSON AND ONLINE. CARE SERVICES STAFF ALSO PROVIDED PROFESSIONAL EDUCATION FOR COMMUNITY PARTNERS SUCH AS HOSPICE, HOME HEALTH AND HOME CARE AGENCIES TO INCREASE THEIR KNOWLEDGE OF ALS. 467709 33000 2290264 true true false false false false false false false false true false false false true false true false false false false false false false true false false true false true false false false false false false false false false false false false false true false false false true 15 0 true 21 true false false false false false true true false 0 false false false false false false false X 15 15 false false false false false false false true true false false true true true true true true true true false OR X LANCE CHRISTIAN 5032385559 825 NE Multnomah St Suite 940 PORTLAND OR 97232 LANCE CHRISTIAN Executive Dir. 40.00 0.00 X 166346 0 19940 AMY FRAZEY President 2.00 0.00 X X 0 0 0 JASON DRUCKER Vice President 2.00 0.00 X X 0 0 0 KATHERINE HART Treasurer 2.00 0.00 X X 0 0 0 KEVIN WRIGHT Secretary 2.00 0.00 X X 0 0 0 TOM HOLT PAST PRES 2.00 0.00 X 0 0 0 KENNETH FINK Director 2.00 0.00 X 0 0 0 KIM GOSLIN Director 2.00 0.00 X 0 0 0 ARTURO GONZALEZ Director 2.00 0.00 X 0 0 0 JOE GROSS DIRECTOR 2.00 0.00 X 0 0 0 DIANA HENDRICKSON Director 2.00 0.00 X 0 0 0 JAMES LOBDELL Director 2.00 0.00 X 0 0 0 DOUG MCCLURE Director 2.00 0.00 X 0 0 0 IAN MCHONE DIRECTOR 2.00 0.00 X 0 0 0 ALAN TEO Director 2.00 0.00 X 0 0 0 MARK TURNBULL Director 2.00 0.00 X 0 0 0 166346 19940 1 false true false MILLER NASH GRAHAM & DUNN 111 SW 5TH AVE 3400 PORTLAND OR 97204 LEGAL SERVICES 209871 1 359084 169910 3287975 3816969 0 59625 59625 0 0 0 5740 1763 3977 3977 3977 359084 151363 -151363 -151363 0 0 0 3729208 -87761 X 83000 83000 0 0 0 186936 157120 14511 15305 0 908268 763524 70149 74595 43070 36151 3485 3434 111682 93741 9036 8905 96737 82748 6551 7438 0 0 0 0 0 0 375460 17771 321974 35715 45647 41584 3788 275 140503 94086 11039 35378 0 0 124761 104957 13068 6736 78049 36648 41401 0 47542 15575 31967 0 503407 503407 7314 7314 6922 5956 644 322 CHAPTER GRANTS 173212 173212 Printing and Publications 57490 28672 1784 27034 SUPPLIES AND RESOURCE MATERIAL 36002 4369 5658 25975 VOLUNTEER EXPENSES 28094 27781 313 65944 19962 39320 6662 3120040 2290264 508634 321142 X 201378 1116181 830686 253639 40000 0 0 0 0 0 13809 24820 38521 27377 18458 11144 2494758 2918804 0 0 617754 380756 0 3939845 4982342 25167 258197 252243 45209 627160 277410 930566 X 3662435 3986776 65000 3662435 4051776 3939845 4982342 609168 -219827 X false true X true false X 2018729 2355269 2539255 4365692 3816969 15095914 0 0 2018729 2355269 2539255 4365692 3816969 15095914 2313118 12782796 3291 3638 1733 25507 59625 93794 0 0 15189708 0.84150 0.86380 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 38521 27377 11144 11144 RIGHT OF USE LIABILITIES 627160 627160 3509381 -219827 -219827 3729208 3729208 3120040 3120040 3120040 false GALA 359084 359084 10699 72940 67724 359084 359084 10699 72940 67724 151363 -151363 true OHSU 3181 SW SAM JACKSON PARK ROAD PORTLAND OR 97239 931176109 GOVERNMENT 15000 0 ALS CLINIC SUPPORT PROVIDENCE ST VINCENT 9205 SW BARNES RD PORTLAND OR 97225 930575982 501(C)(3) 18000 0 ALS CLINIC SUPPORT THE ALS ASSOCIATION 1300 WILSON BLVD STE 600 ARLINGTON VA 22209 133271855 501(C)(3) 50000 0 RESEARCH 3 0 Grantmaker's Description of How Grants are Used GRANT EXPENSES ARE TRACKED USING GAAP PROCEDURE AND COMPLY WITH ALL REPORTING REQUIRED BY GRANTORS ON OUTCOMES AND RESTRICTIONS. X false false false false false false false false false LANCE CHRISTIAN Executive Dir. 156346 10000 9981 9959 186286 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: INDEPENDENCE PROGRAMSTO SUPPORT AND EMPOWER PEOPLE LIVING WITH ALS TO LIVE INDEPENDENTLY AND AS FULLY AS POSSIBLE, THE ORGANIZATION PROVIDES SERVICES THAT HELP PEOPLE WITH EQUIPMENT AND TOOLS TO ASSIST IN THEIR DAILY LIVES. THE MEDICAL EQUIPMENT LOAN PROGRAM PROVIDES EQUIPMENT SUCH AS MANUAL WHEELCHAIRS, POWER WHEELCHAIRS, BATHROOM EQUIPMENT AND PATIENT LIFTS TO FAMILIES FOR SHORT AND LONG-TERM LOAN. PARTNERING WITH MEDICAL EQUIPMENT COMPANIES ACROSS THE CHAPTER, THE ORGANIZATION FULFILLED 250 MEDICAL EQUIPMENT LOAN REQUESTS DURING THE YEAR ENDED JANUARY 31, 2023. THE ORGANIZATION ALSO HAS A UNIQUE PROGRAM TO ASSIST FAMILIES LIVING WITH ALS IN ACCESSING AUGMENTATIVE AND ALTERNATIVE COMMUNICATION (AAC) EQUIPMENT AS WELL AS ADAPTIVE TECHNOLOGY FOR COMPUTER ACCESS AND ENVIRONMENTAL CONTROLS FOR PEOPLE WITH ALS. THIS PROGRAM PROVIDED SUPPORT, TRAINING, ASSISTIVE AND COMMUNICATION EQUIPMENT LOANS, TECHNICAL ASSISTANCE, AND HOME-BASED SUPPORT TO 186 FAMILIES DURING THE YEAR ENDED JANUARY 31, 2023. THE CHAPTER GRANT PROGRAM IS DESIGNED TO PROVIDE FINANCIAL ASSISTANCE FOR FAMILIES LIVING WITH ALS. OVER $169,000 IN GRANTS WERE MADE TO 414 FAMILIES FOR WELL-BEING AND FAMILY SUPPORT, COMMUNICATION SUPPORT, TRANSPORTATION ASSISTANCE, HOME MODIFICATIONS, AND MEDICAL EXPENSES.THE ORGANIZATIONS MISSION IS ALSO CARRIED ON THROUGH SERVICES PROVIDED BY THE NATIONAL ALS ASSOCIATION (NATIONAL). THE ALS CHAPTERS HAVE A REVENUE SHARING AGREEMENT WITH NATIONAL WHEREBY APPROXIMATELY 13.6% OF REVENUES NET OF CREDIT FOR SUPPORTING ALS RESEARCH AND PUBLIC POLICY ACTIVITIES ARE PAID TO THE NATIONAL ORGANIZATION. OTHER PROGRAM SERVICES 5: OUTREACH AND ADVOCACYAS A CHAPTER OF THE NATIONAL ALS ASSOCIATION, THE OREGON AND SOUTHWEST WASHINGTON CHAPTER PROVIDES ONGOING FINANCIAL SUPPORT FOR THE NATIONAL ALS ASSOCIATION TO SUPPORT FEDERAL PUBLIC POLICY INITIATIVES TO IMPROVE THE LIVES OF FAMILIES LIVING WITH ALS, OUTREACH EFFORTS TO RAISE PUBLIC AWARENESS ABOUT ALS, AS WELL AS CUTTING EDGE GLOBAL RESEARCH WORKING TOWARD AN EFFECTIVE TREATMENT AND ULTIMATELY A CURE FOR ALS. THE ORGANIZATION CONTRIBUTED TO A NATIONAL EFFORT THAT FUNDED SIGNIFICANT PROJECTS TO UNDERSTAND THE CAUSE OF ALS, THE DISEASE MECHANISM, GENETICS, BIOMARKERS FOR ALS, ENVIRONMENTAL FACTORS, AND TRANSLATIONAL RESEARCH TO MOVE THERAPY IDEAS FROM THE LAB BENCH TO THERAPY. RESEARCH SUPPORT WENT TO OVER 150 RESEARCH GRANTS AROUND THE GLOBE. PUBLIC POLICY ACCOMPLISHMENTS DURING THE YEAR ENDED JANUARY 31, 2023 INCLUDE ONLINE ADVOCACY OF PEOPLE WITH ALS TO CONNECT WITH LEGISLATORS IN WASHINGTON DC TO ADVOCATE FOR THE NATIONAL ALS REGISTRY, THE ALS RESEARCH PROGRAM AT THE DEPARTMENT OF DEFENSE, PASSING ACT FOR ALS ACT AND PROMOTING FEDERAL SUPPORT FOR ALS RESEARCH. THE ORGANIZATION PROVIDED OVER $500,000 TO SUPPORT THESE NATIONAL PUBLIC POLICY AND RESEARCH EFFORTS.AWARENESS EVENTS SPONSORED BY THE ORGANIZATION INCLUDE THE WALK TO DEFEAT ALS, SKI TO DEFEAT ALS, RIDE TO DEFEAT ALS, MAY ALS AWARENESS MONTH, CREATION OF PUBLIC SERVICE ANNOUNCEMENTS, MISSION CONNECTED SOCIAL MEDIA, AND CREATION OF VIDEOS THAT ILLUSTRATE WHAT ALS IS AND HOW CHAPTER SERVICES CAN HELP. NOVEMBER NATIONAL FAMILY CAREGIVER MONTH ACTIVITIES SERVE AS OPPORTUNITIES TO BRING HOPE AND COMMUNITY TO PEOPLE WITH ALS AND THEIR FAMILIES. BY COMING TOGETHER AT AWARENESS EVENTS, PEOPLE WITH ALS AND THEIR FAMILIES AS WELL AS THOSE WHO HAVE LOST A LOVED ONE TO ALS FIND STRENGTH AND SUPPORT WITH ONE ANOTHER. THE LARGE NUMBER OF PEOPLE WHO PARTICIPATE IN THESE EFFORTS RAISE THE PROFILE OF ALS ACROSS THE CHAPTER AND ENGAGE COMMUNITY AWARENESS OF THE SERVICES AND RESOURCES AVAILABLE FROM THE OREGON AND SOUTHWEST WASHINGTON CHAPTER. RESEARCH IS A CRITICAL PART OF THE CHAPTER MISSION. AS PART OF THE EFFORT TO INCREASE THE KNOWLEDGE OF ALS AND THOSE AFFECTED, THE ORGANIZATION PROMOTES DEFEAT ALS EVENTS THAT PROMOTE THE NATIONAL ALS REGISTRY. THIS EFFORT IS VITAL TO UNDERSTAND THE FULL INCIDENCE AND PREVALENCE OF ALS ACROSS OREGON AND SOUTHWEST WASHINGTON SO THAT WE CAN IDENTIFY AND STRATEGICALLY PLAN TO SERVE AS MANY FAMILIES LIVING WITH ALS IN OUR CHAPTER TERRITORY AS POSSIBLE. Form 990, Part VI, Section B, Line 11b DRAFT 990 WILL IS SUBMITTED ELECTRONICALLY TO BOARD MEMBERS FOR APPROVAL PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c ANNUAL SIGNED FORM SPECIFYING CONFLICTS OF INTEREST IS REQUIRED OF ALL DIRECTORS. BOARD MEMBERS HAVING CONFLICT OF INTEREST WILL RECUSE THEMSELVES FROM RELATED MATTERS. NO CONFLICTS HAVE BEEN NOTED. Form 990, Part VI, Section B, Line 15a THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES AND SUBSTANTIATES THE COMPENSATION FOR THE EXECUTIVE DIRECTOR. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section B, Line 15b THE BOARD OF DIRECTORS PERIODICALLY REVIEWS, APPROVES, AND SUBSTANTIATES COMPENSATION FOR OTHER OFFICERS AND KEY EMPLOYEES. THE PROCESS IS BASED ON KNOWLEDGE OF COMPARABLE POSITIONS IN SIMILAR ORGANIZATIONS. Form 990, Part VI, Section C, Line 19 GOVERNING DOCUMENTS, POLICIES, AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REASONABLE REQUEST. THE FEDERAL FORM 990 IS ALSO AVAILABLE ON THE GUIDESTAR WEBSITE. ALS ASSOCIATION NATIONAL OFFICE 1275 K STREET NW WASHINGTON DC 20005 133271855 ALS RESEARCH AND TREATMENT DC 501(C)3 7 N/A false false true false false false false false false false false false false false false false false false false false