2023-11-07T11:08:29-06:00 2022-12-31 640414329 HADDOX REID EUBANK BETTS PLLC 1020 HIGHLAND COLONY PKY SUITE 600 RIDGELAND MS 39157 990 2022-01-01 710874241 FOUNDATION TO ERADICATE DUCHENNE INC FOUN 7036837500 PO BOX 2371 ALEXANDRIA VA 223010371 JAMES WOOD TREASURER 7036837500 2023-11-01 1 JAMES WOOD 999009999 1 MAURA MCDEVITT P02480985 6019482924 2023-11-01 0 AAL1 IAL1 2022 2023-04-26 12:10:37Z JAMES WOOD PO BOX 2371 ALEXANDRIA VA 223010371 911179 0 X WWW.DUCHENNEMD.ORG X 2002 VA TO FUND RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY, IN HOPES OF FINDING A CURE. 6 6 0 6 0 0 809683 805428 0 0 226 1809 111785 -30164 921694 777073 509989 519194 0 0 0 0 72000 84000 90097 144182 160850 726171 764044 195523 13029 773260 837468 126989 177802 646271 659666 THE ORGANIZATION'S MISSION IS TO PROVIDE RESEARCH GRANTS TO FUND AGGRESSIVE RESEARCH INTO TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY AND TO SUPPORT THE EFFORT TO TREAT, AND ULTIMATELY CURE, THIS DISEASE. 0 0 594194 519194 THE ORGANIZATION AWARDED RESEARCH GRANTS IN THE AMOUNT OF $519,194 DURING 2022. THESE GRANTS WERE AWARDED TO FUND THE DEVELOPMENT OF POTENTIAL THERAPIES FOR DUCHENNE MUSCULAR DYSTROPHY UTILIZING STRATEGIES DESIGNED TO REPAIR THE GENETIC FLAW OF THIS CATASTROPHIC, SINGLE-GENE-DEFECT DISORDER; SUPPORT ACADEMIC RESEARCH INSTITUTIONS IN EFFORTS TO BRING THERAPIES TO THE MARKETPLACE THAT WOULD COMPENSATE FOR THE LACK OF A PROTEIN ESSENTIAL IN MUSCLE REGENERATION AND REPAIR; AND FUND SCIENTIFIC WORKSHOPS FOR LEADING MUSCLE RESEARCHERS AND CLINICIANS TO EFFECTIVELY COLLABORATE ON STRATEGIES FOR TRANSLATION APPROACHES TO MUSCULAR DYSTROPHY. 594194 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 0 0 1 0 1 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 6 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 X 6 6 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 CA DC TN VA NY X LESLIE WADLER 7036837500 4202 MAPLE TREE CT ALEXANDRIA VA 22304 X JOEL WOOD PRESIDENT 10.00 X X 0 0 0 SCOTT SINDER SECRETARY 5.00 X X 0 0 0 JAMES WOOD TREASURER 5.00 X X 0 0 0 DAN CARSON DIRECTOR 1.00 X 0 0 0 DAVE HEIL DIRECTOR 1.00 X 0 0 0 BRAD TODD DIRECTOR 1.00 X 0 0 0 0 0 0 0 0 0 0 EPIPHANY PRODUCTIONS INC 4102 MAPLE TREE COURT ALEXANDRIA VA 22304 FUNDRAISING & ADMINISTRATIVE 130000 1 750711 54717 805428 1809 1809 0 750711 134106 -134106 -134106 TRINDS LLC 900099 103942 103942 103942 777073 0 0 -28355 413812 413812 105382 105382 56000 56000 10218 5109 5109 60000 60000 84000 84000 22500 15000 7500 2814 1826 988 BANK FEES 9318 9318 764044 594194 79753 90097 157528 152340 10000 33961 34414 571771 650714 773260 837468 126989 177802 126989 177802 X 646271 659666 646271 659666 773260 837468 13029 366 0 X X 0 1 X 1 0 X 758928 857838 732763 945848 805428 4100805 758928 857838 732763 945848 805428 4100805 59194 4041611 2101 3392 280 226 1809 7808 65005 27415 103390 111785 103942 411537 4520150 0.89410 0.88190 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 INVESTMENT IN TRINDS, LLC 600714 F INVESTMENT IN REVERAGEN BIOPHARMA, INC. 50000 C 650714 X 911545 366 134106 134472 777073 0 777073 898150 134106 134106 764044 0 764044 PART X, LINE 2: MANAGEMENT BELIEVES IT HAS NO MATERIAL UNCERTAIN TAX POSITIONS AND, ACCORDINGLY, IT WILL NOT RECOGNIZE ANY LIABILITY FOR UNRECOGNIZED TAX BENEFITS. PART XI, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 134,106. PART XII, LINE 2D - OTHER ADJUSTMENTS: FUNDRAISING EVENTS 134,106. 0 0 0 0 0 0 0 0 0 0 NORTH AMERICA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 19382 0 NORTH AMERICA TO FUND RESEARCH FOR THE TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 86000 0 1 1 0 0 0 0 0 0 PART III ACCOUNTING METHOD: X X X X X X 1 EPHIPHANY PRODUCTIONS INC 104 EAST HUME AVENUE ALEXANDRIA VA 22301 FUNDRAISING EVENT PLANNING, CONSULTING 0 805428 84000 721428 805428 84000 721428 CA CT DC FL IL KY MD MN MO NC NJ OH DINING AWAY DUCHENNE 598252 598252 18160 70785 6480 FORE DUCHENNE 90459 90459 5563 2850 9833 1 62000 62000 1175 9016 6500 3744 750711 750711 5563 19335 82651 6500 20057 134106 -134106 1 PARENT PROJECT MUSCULAR DYSTROPHY 1012 14TH STREET STE 500 WASHINGTON DC 20005 311405490 50000 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY TRINDS LLC 6425 LIVING PLACE 2ND FL PITTSBURGH PA 15206 811603540 11526 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY RESEARCH FOUNDATION FOR SUNY AT BINGHAMTON UNIVERSITY PO BOX 6000 BINGHAMTON NY 139026000 166053710 98835 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY CHILDREN'S NATIONAL MEDICAL CENTER 111 MICHIGAN AVENUE NW WASHINGTON DC 20010 521654453 204849 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY REVERAGEN BIOPHARMA INC 155 GIBBS STREET SUITE 433 ROCKVILLE MD 20850 263808415 47852 0 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY 3 2 FORM 990, PART VI, SECTION A, LINE 2 JOEL WOOD (PRESIDENT) AND JAMES WOOD (TREASURER) ARE BROTHERS. FORM 990, PART VI, SECTION B, LINE 11B THE TREASURER OF THE FOUNDATION, JAMES E. WOOD, PRESENTS THE PREPARED FORM 990 TO THE GOVERNING BODY. THE INFORMATION CONTAINED IN THE FORM 990 IS REVIEWED AND EXPLAINED AND ANY QUESTIONS POSED ARE ANSWERED. AFTER THE GOVERNING BODY HAS REVIEWED THE FORM 990 AND AGREES WITH THE INFORMATION CONTAINED THEREIN, THE FORM 990 IS FILED WITH THE INTERNAL REVENUE SERVICE. FORM 990, PART VI, SECTION B, LINE 12C THE AFFILIATIONS OF THE BOARD MEMBERS AND OFFICERS ARE REGULARLY MONITORED TO ENSURE THAT NO CONFLICTS OF INTEREST OCCUR, EITHER PERCEIVED OR ACTUAL, WITH RESPECT TO THE FOUNDATION TO ERADICATE DUCHENNE AND THOSE CHARGED WITH ITS GOVERNANCE. THE BOARD MEMBERS ARE PROVIDED A COPY OF THE POLICY AND REVIEW AND DISCLOSE ANY CONFLICTS ON AN ANNUAL BASIS. ANY ISSUES ARE BROUGHT TO THE BOARD, DISCUSSED AND REPORTED IN THE BOARD MINUTES. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE GENERAL PUBLIC UPON REQUEST. FORM 990, PART XII, LINE 2C THE AUDITOR MEETS WITH THE BOARD OF DIRECTORS MAKING A FULL PRESENTATION AT THE COMPLETION OF THE AUDIT FOR THE YEAR ANSWERING ANY OF THE BOARD'S QUESTIONS. THE AUDITOR WORKS CLOSELEY WITH THE BOARD OF DIRECTORS DURING THE YEAR SHOULD ANY CONCERNS ARISE.