2023-08-25T09:53:48-05:00 2022-12-31 042571780 AAFCPAS INC 50 WASHINGTON STREET WESTBOROUGH MA 01581 990 2022-01-01 043068130 NATIONAL BRAIN TUMOR SOCIETY INC NATI 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 6179249997 2023-08-23 1 DAVID ARONS XXX-XX-XXXX 1 JOHN BUCKLEY CPA P00830631 5083669100 2023-08-23 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z DAVID ARONS 55 CHAPEL STREET 006 NEWTON MA 02458 13311345 0 X WWW.BRAINTUMOR.ORG X 1989 MA NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 19 19 51 38364 0 0 11743049 13242979 0 0 33433 -18394 0 0 11776482 13224585 2720431 2241460 0 0 4247282 4989190 0 0 931301 1980711 3169772 8948424 10400422 2828058 2824163 13088308 15423168 1701739 1240860 11386569 14182308 X NATIONAL BRAIN TUMOR SOCIETY UNRELENTINGLY INVESTS IN, MOBILIZES, ANDUNITES OUR COMMUNITY TO DISCOVER A CURE, DELIVER EFFECTIVE TREATMENTS,AND ADVOCATE FOR PATIENTS AND CARE PARTNERS. 0 0 2878695 2241460 RESEARCH: NATIONAL BRAIN TUMOR SOCIETY (NBTS) THROUGHOUT ITS HISTORYHAS FUNDED SOME OF THE MOST IMPORTANT DISCOVERIES THAT HAVE LED TO THEADVANCEMENT OF BRAIN TUMOR RESEARCH. TODAY, NBTS IS FUNDING INNOVATIVETEAM-SCIENCE INITIATIVES INCLUDING PROJECTS IN OUR DEFEAT BRAIN TUMORS PROGRAM PORTFOLIO DESIGNED TO TRANSLATE DISCOVERIES INTO TRANSFORMATIVE MEDICAL BREAKTHROUGHS FOR ADULTS AND CHILDREN WITH BRAIN TUMORS. OUR "DEFEAT" PROGRAM BRINGS TOGETHER WORLD-RENOWN INSTITUTIONS TO ACCELERATE THE PACE OF RESEARCH BY REQUIRING DATA SHARING AND PARTNERSHIPS WITH INDUSTRY. NBTS BRAIN TUMOR INVESTMENT FUND CATALYZES THE BRAIN TUMOR BIOTECH AND BIOPHARMA SPACE BRIDGING PROMISING ACADEMIC RESEARCH TO MOVE INTO INDUSTRIAL DEVELOPMENT. THE NBTS' RESEARCH ROUNDTABLE PROGRAM CONVENES STAKEHOLDERS TO TAKE ON BARRIERS AND OPPORTUNITIES TO BRAIN TUMOR TREATMENT DEVELOPMENT. 912714 PUBLIC POLICY & ADVOCACY: NBTS IS WELL-RECOGNIZED AS A LEADER IN PUBLICPOLICY RELATED TO BRAIN TUMORS AND CANCER GENERALLY. EACH YEAR WEADVANCE A SPECIFIC POLICY AGENDA WITH CONGRESS AND THE EXECUTIVE BRANCH TO IMPROVE PATIENTS LIVES AND THE LIKELIHOOD OF THE DEVELOPMENT OF NEW TREATMENTS. NBTS ADVOCACY EFFORTS HAVE LED TO GREATER FEDERALINVESTMENT IN BRAIN TUMOR RESEARCH AND IMPROVED POLICIES THAT SPEED THE RESEARCH PROCESS. THROUGH ADVOCACY PATIENTS AND THEIR FAMILIES, AND RESEARCHERS ALSO HAVE A VOICE AND CAN COME TO WASHINGTON DC FOR OUR SIGNATURE HEAD TO THE HILL HELD ANNUALLY. 4997287 INFORMATION, AWARENESS AND REMEMBRANCE: NBTS IS COMMITTED TO HELPINGPATIENTS AND CARE PARTNERS OBTAIN ESSENTIAL INFORMATION FROM THE TIMEOF DIAGNOSIS INCLUDING INFORMATION ABOUT TREATMENT OPTIONS AND CLINICAL TRIALS. THROUGH ITS BRAIN TUMOR EXPERIENCE WEBSITE, PERSONALIZED SUPPORT AND NAVIGATION FOR PATIENTS AND GROUP SUPPORT PROGRAMS, NBTS PROVIDES, TO MANY ACROSS THE U.S. AND GLOBALLY, TIMELY INFORMATION AND IS AVAILABLE TO HELP CONNECT TO TREATMENTS CENTERS AND SUPPORT SERVICES. IT ALSO HELPS PATIENTS FIND CLINICAL TRIALS THROUGH THE NBTS CLINICAL TRIALS FINDER. NBTS ALSO CONNECTS PATIENTS TO EACH OTHER THROUGH REGIONAL EVENTS AND HELPS FAMILIES HONOR THEIR LOVED ONES. THE EVENTS PROVIDE ACCESS TO TREATMENT PROVIDERS FOR FAMILIES AND FRIENDS, AND HELP MAKE THE BROADER PUBLIC MORE AWARE OF OUR CAUSE THROUGH COMMUNICATIONS PROGRAMS. 8788696 1 1 0 1 0 0 0 0 0 1 1 0 0 0 1 1 0 1 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 1 0 0 0 1 0 0 0 0 1 48 0 1 51 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA CA X X DOROTHY WHALEN CFO 6179249997 55 CHAPEL STREET 006 NEWTON MA 02458 DAVID ARONS CEO 40.00 X 239793 0 40817 LAUREN HALL CSO/CDO 40.00 X 246411 0 7670 KIRK TANNER CSO 40.00 X 203236 0 11396 ASHLEY BRENNAN EXEC. DIR, PEER-TO-PEER FUNDRAISING 40.00 X 169621 0 32002 KEVIN JEANS ASSISTANT CHIEF DEVELOPMENT OFFICER 40.00 X 195290 0 5897 DOROTHY WHALEN CFO 40.00 X 152540 0 15891 KATIE GERMAIN CHIEF MARKETING & COMM. OFFICER 40.00 X 146080 0 4728 KENNETH TROSHINSKY CFO (UNTIL 2/2022) 40.00 X 45601 0 2040 TOM ROLOFF CHAIR 2.00 X X 0 0 0 ROBERT BURGER VICE CHAIR 1.00 X X 0 0 0 DAVE BROWN TREASURER 1.00 X X 0 0 0 LIZ SALMI CLERK 1.00 X X 0 0 0 ERIC OLSON PHD BOARD MEMBER 1.00 X 0 0 0 DR EVANTHIA GALANIS BOARD MEMBER 1.00 X 0 0 0 ROBERT CORRAO BOARD MEMBER 1.00 X 0 0 0 SALO ZELERMYER JD BOARD MEMBER 1.00 X 0 0 0 ERICA BIRKE BOARD MEMBER 1.00 X 0 0 0 RYAN LANG BOARD MEMBER 1.00 X 0 0 0 ALLISON BISHOF BOARD MEMBER 1.00 X 0 0 0 DR EDJAH NDUOM BOARD MEMBER 1.00 X 0 0 0 DR JOOHEE SUL BOARD MEMBER 1.00 X 0 0 0 CORIE YUTKIN BOARD MEMBER 1.00 X 0 0 0 ADAM HAYDEN BOARD MEMBER 1.00 X 0 0 0 MIL PAREKH BOARD MEMBER 1.00 X 0 0 0 LEAH RECHT JD BOARD MEMBER 1.00 X 0 0 0 KABIR SETHI BOARD MEMBER 1.00 X 0 0 0 FRANK MACCHIAROLA BOARD MEMBER 1.00 X 0 0 0 DAVID DONABEDIAN BOARD MEMBER (UNTIL 6/2022) 1.00 X 0 0 0 MICHAEL SMITH BOARD MEMBER (UNTIL 5/2022) 1.00 X 0 0 0 1398572 0 120441 11 0 1 0 BRACEWELL LLP PO BOX 207486 DALLAS TX 753207486 GOVERNMENT RELATIONS 120498 KIVVIT PO BOX 22393 NEW YORK NY 100872393 PUBLIC RELATIONS 116740 TECH SUPER POWERS 500 HARRISON AVE SUITE 108 BOSTON MA 02118 IT SUPPORT 109723 3 693848 12549131 83579 13242979 18168 18168 50198 86760 -36562 -36562 -36562 13224585 0 0 -18394 2216460 2216460 25000 25000 496682 386542 49669 60471 3792198 2867436 294198 630564 97027 73307 7487 16233 274511 214361 26361 33789 328772 249321 26269 53182 28384 28384 46295 13689 32606 276959 276959 2040 2040 299703 292045 7658 243980 243980 80791 45341 30741 4709 452385 363128 55125 34132 20921 10141 7642 3138 196371 178493 5516 12362 2798 2798 39368 38448 613 307 36514 22181 9186 5147 SPECIAL EVENTS 1290280 1173865 52981 63434 TRAINING AND RECRUITING 60924 18404 40863 1657 DUES AND SUBSCRIPTIONS 48750 43488 744 4518 DONATED GOODS 31660 31660 11649 1649 10000 10400422 8788696 680425 931301 4149587 2556927 6106765 8951007 569167 869481 884526 883108 124681 195673 201440 19960 86813 181480 860569 841915 219381 509211 86819 69455 0 364911 13088308 15423168 310687 327199 700000 548750 691052 0 364911 1701739 1240860 X 6730462 8867565 4656107 5314743 11386569 14182308 13088308 15423168 2824163 -28424 0 X X 0 1 X 1 0 X 11269569 14128145 8855708 11743049 13242979 59239450 11269569 14128145 8855708 11743049 13242979 59239450 59239450 28476 33770 66897 46779 18168 194090 59433540 0.99670 0.99660 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 276959 276959 10123463 10400422 670021 167505 0 0 578379 507660 597421 670021 2353481 3530222 308751 477918 243345 276959 1306973 144595 126915 149355 167505 588370 882555 PART II-A, LINE 1 NATIONAL BRAIN TUMOR SOCIETY ENGAGES IN A MODEST AMOUNT OF IRS DEFINITION DIRECT LOBBYING TO INFLUENCE SPECIFIC FEDERAL LEGISLATION ON AN ANNUAL BASIS. THE FEDERAL LEGISLATION SPANS THE HEALTH CARE AND LIFE SCIENCES RESEARCH POLICY ISSUES THAT MAKE UP NBTS' POLICY AGENDA. THE LOBBYING WORK IS CARRIED OUT BY NBTS PROFESSIONAL STAFF AND CONSULTANTS. NBTS DOES NOT ENGAGE IN IRS DEFINITION INDIRECT LOBBYING. 565448 565448 565448 565448 565448 565448 508547 56901 565448 315448 193099 508547 0.96680 0.03320 0 0 21796 21796 179644 19960 159684 181480 OPERATING LEASE OBLIGATIONS 364911 364911 X 13194121 -28424 -28424 13222545 2040 2040 13224585 10398382 0 10398382 2040 2040 10400422 PART V, LINE 4: THE ORGANIZATION HAS ENDOWMENT NET ASSETS IN WHICH THE PRINCIPAL AND ANY CURRENT CONTRIBUTIONS ARE PERMANENTLY DONOR RESTRICTED. THE BALANCE AS OF DECEMBER 31, 2022 WAS INVESTED IN BOND FUNDS AND MONEY MARKETS. INCOME AND APPRECIATION EARNED ON THE PERMANENTLY RESTRICTED NET ASSETS ARE RESTRICTED TO SUPPORT THE COSTS OF PRODUCING AND DISTRIBUTING THE ESSENTIAL GUIDE TO BRAIN TUMORS AND TO FUND RESEARCH PROJECTS. THE INFORMATION IS UPDATED ON AN ANNUAL BASIS AND MADE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. PART X, LINE 2: THE ORGANIZATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAXES IN ACCORDANCE WITH ASC TOPIC, INCOME TAXES. THIS STANDARD CLARIFIES THE ACCOUNTING FOR UNCERTAINTY IN TAX POSITIONS AND PRESCRIBES A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR THE CONSOLIDATED FINANCIAL STATEMENTS REGARDING A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. THE ORGANIZATION HAS DETERMINED THAT THERE ARE NO UNCERTAIN TAX POSITIONS WHICH QUALIFY FOR EITHER RECOGNITION OR DISCLOSURE IN THE CONSOLIDATED FINANCIAL STATEMENTS AT DECEMBER 31, 2022. 1 YALE UNIVERSITY 2 WHITNEY AVE 6TH FLOOR NEW HAVEN CT 06510 060646973 501 (C) 3 1185000 0 RESEARCH THE REGENTS OF THE UNIVERSITY OF CA 10889 WILSHIRE BLVD SUITE 700 LOS ANGELES CA 90095 956006143 501 (C) 3 180000 0 RESEARCH THE BRIGHAM AND WOMEN'S HOSPITAL INC PO BOX 3149 BOSTON MA 02241 042312909 501 (C) 3 250000 0 RESEARCH STANFORD UNIVERSITY 485 BROADWAY MAIL CODE 8838 REDWOOD CITY CA 94063 941156365 501 (C) 3 173750 0 RESEARCH MAYO CLINIC 200 FIRST ST SW ROCHESTER MN 55905 416011702 501 (C) 3 101375 0 RESEARCH MASSACHUSETTS GENERAL HOSPITAL 55 FRUIT STREET BOSTON MA 02114 041564655 501 (C) 3 101375 0 RESEARCH BAPTIST HEALTH SOUTH FLORIDA FOUNDATION INC 6855 RED ROAD SUITE 600 CORAL GABLES FL 33143 591923401 501 (C) 3 25000 0 RESEARCH THE RESEARCH INSTITUTE AT NATIONWIDE CHILDREN'S HOSPITAL 700 CHILDRENS DRIVE COLUMBUS OH 43205 316056230 501 (C) 3 50000 0 RESEARCH ALBERT EINSTEIN COLLEGE OF MEDICINE 1300 MORRIS PARK AVENUE BRONX NY 10461 830621846 501 (C) 3 100000 0 RESEARCH UNIVERSITATSKLINIKUM HEIDELBERG (CERN) INF 672 HEIDELBERG GM 69120 50000 0 RESEARCH 9 1 RESEARCH GRANT 1 25000 PART I, LINE 2: THE NATIONAL BRAIN TUMOR SOCIETY (NBTS) REQUIRES, AS A CONDITION OF THE GRANT, SCIENTIFIC REVIEW, THE PRODUCTION OF SCIENTIFIC AND FINANCIAL REPORTS ON AN ANNUAL BASIS, AND REGULAR TELECONFERENCES WITH RESEARCHERS TO DETERMINE USE OF GRANT FUNDS AND PERFORMANCE. X X X X 0 0 0 0 0 0 0 0 0 DAVID ARONS CEO 239793 0 0 0 0 0 7650 0 33167 0 280610 0 0 0 LAUREN HALL CSO/CDO 246411 0 0 0 0 0 7319 0 351 0 254081 0 0 0 KIRK TANNER CSO 203236 0 0 0 0 0 6192 0 5204 0 214632 0 0 0 ASHLEY BRENNAN EXEC. DIR, PEER-TO-PEER FUNDRAISING 169621 0 0 0 0 0 4769 0 27233 0 201623 0 0 0 KEVIN JEANS ASSISTANT CHIEF DEVELOPMENT OFFICER 195290 0 0 0 0 0 5430 0 467 0 201187 0 0 0 DOROTHY WHALEN CFO 152540 0 0 0 0 0 4615 0 11276 0 168431 0 0 0 KATIE GERMAIN CHIEF MARKETING & COMM. OFFICER 146080 0 0 0 0 0 4377 0 351 0 150808 0 0 0 X 12 51919 FMV X 11359 30486 FMV X GIFT CARDS 8 650 FMV X POP-UP TENTS 5 524 FMV 0 0 0 FORM 990, PART VI, SECTION A, LINE 2 A BOARD MEMBER IS THE CEO OF AN ORGANIZATION WHERE ANOTHER BOARD MEMBER IS EMPLOYED. FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE FEDERAL FORM 990 IS EMAILED TO THE FULL BOARD OF DIRECTORS FOR REVIEW AND COMMENT PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE BOARD REQUIRES THAT ALL MEMBERS CONDUCT AN ANNUAL REVIEW FOR ANY CONFLICTS OF INTEREST AND SHOULD ANY ARISE, THAT THEY BE DISCLOSED TO THE BOARD AND MANAGEMENT. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE COMMITTEE OF THE BOARD DETERMINES THE CEO'S SALARY. COMPARABILITY FIGURES REPRESENTING COMPARABLE POSITIONS, SCOPE OF RESPONSIBILITY, SIZE OF ORGANIZATION AND BUDGET AND SIMILAR INDUSTRY WERE PROVIDED TO THE EXECUTIVE COMMITTEE. IN REGARD TO OTHER OFFICERS AND KEY EMPLOYEES, THE HR MANAGER REVIEWS COMPARABLE DATA FOR JOB RESPONSIBILITIES AND REVIEWS WITH THE CEO TO VERIFY COMPENSATION. FORM 990, PART VI, SECTION C, LINE 19 THE FINANCIAL STATEMENTS ARE AVAILABLE ON THE ORGANIZATION'S WEBSITE. ALL OTHER DOCUMENTS ARE AVAILABLE UPON REQUEST. FORM 990, PART XI, LINE 2C THE FINANCE COMMITTEE IS RESPONSIBLE FOR OVERSIGHT AND SELECTION OF THE INDEPENDENT AUDITOR CURE GBM 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 371703878 BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC PEDIATRIC CANCER CURE LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 472233672 PEDIATRIC BRAIN TUMOR RESEARCH DE 0 0 NATIONAL BRAIN TUMOR SOCIETY INC BRAIN TUMOR INVESTMENT FUND LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 845100031 BRAIN TUMOR RESEARCH DE 520022 1824544 NATIONAL BRAIN TUMOR SOCIETY INC NBTS TDG LLC 55 CHAPEL STREET SUITE 006 NEWTON MA 02458 862578255 BRAIN TUMOR RESEARCH DE 933333 50000 NATIONAL BRAIN TUMOR SOCIETY INC