2023-06-30T08:36:48-07:00 2022-12-31 752454220 SWALM & ASSOCIATES PC 2435 N Central Expwy Ste 720 Richardson TX 75080 990 2022-01-01 742138345 Texas Neurofibromatosis Foundation TEXA 9727396086 511 East John Carpenter Freeway Irving TX 75062 Laura Lyon President 9727396086 2023-06-19 true Laura Lyon XXX-XX-XXXX true Edward S Swalm CPA P00754779 9725168800 2023-06-30 3 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z X Laura Lyon 511 East John Carpeter Freeway Irving TX 75062 564208 false X www.texasnf.org X 1980 TX To fund neurofibromatosis research and education and to provide for support groups for those facing the illness. 16 16 5 100 0 0 294789 560761 0 10045 2426 43114 1021 347948 564208 31500 46475 0 136320 181941 0 300482 162405 348275 330225 576691 17723 -12483 579783 590826 33170 56696 546613 534130 To fund neurofibromatosis research and education and to provide for support groups for those facing the illness. false false 62459 45000 0 The organization funds and supports neurofibromatosis research projects and participates in a Neurofibromatosis National Affairs Coalition to increase public awareness and insure and increase funding allocated from federally funded programs. 109322 1475 0 The organization provides neurofibromatosis educational materials/information to patients, physicians, teachers and counselors; physician and clinical referrals; and statewide neurofibromatosis clinics. It conducts a symposium featuring nationally recognized researchers, a yearly family camp, and family support groups. In 2016 the the family camp served 136 patients and family members, 6 support groups serving 95 individuals, total served though events and clinics were 768 patients. 4781 0 0 The organization increases neurofibromatosis public awareness by publishing newsletters, public speaking engagements, exhibiting at state educational and medical meetings, and using billboards. 176562 true true false true false false false false false true true false false false true false true false false false false false false false true false false true true false false false false false false false false false true false false false false false false false false false true 0 0 true 5 true false false false false false true true false false false false X 16 16 false false false false false false false true true false false true true true true true true true false false X X Cindy Hahn 9727396087 511 East John Carpenter Freeway Irving TX 75062 X John Lowe Director 1.00 X 0 0 0 Laura G Lyon Director/President 5.00 X X 0 0 0 Laina Olinger Director/ VP 5.00 X X 0 0 0 Janie Perelman Director 1.00 X 0 0 0 Tammy Benson O'Brien Director 1.00 X 0 0 0 Tricia Madden Director/Secretary 5.00 X X 0 0 0 Bob Boronow Director 1.00 X 0 0 0 Scott Remphrey Director 1.00 X 0 0 0 Kathryn Loo Treasurer 5.00 X 0 0 0 John Slopis MD Director 1.00 X 0 0 0 Cindy Hahn Executive Director 40.00 X X 87000 0 0 Paul Schrier Director 1.00 X 0 0 0 Edel Cuadra Director 1.00 X 0 0 0 Jeff Davison Director 1.00 X 0 0 0 Jane Hoskins Director 1.00 X 0 0 0 Jon Keith Director 1.00 X 0 0 0 Katie Lange Director 1.00 X 0 0 0 87000 0 0 false false false 446007 114754 145666 560761 2426 0 0 446007 Other 900099 1021 1021 0 0 1021 564208 3447 0 0 45000 45000 1475 1475 87000 34800 43500 8700 82012 30033 24572 27407 12929 4960 5207 2762 10965 0 6031 4934 25459 7822 12633 5004 22329 11165 4466 6698 Education 24908 24908 0 0 Camps and symposiums 11091 11091 0 0 Telephone 1991 498 1194 299 Special Event 241791 0 0 241791 9741 4810 2044 2887 576691 176562 99647 300482 1000 1000 566157 540057 2055 0 12626 25528 0 0 0 22186 579783 590826 7205 9045 25965 25465 0 22186 33170 56696 X 467184 398382 79429 135748 546613 534130 579783 590826 -12483 X false true X true false X 0 581674 742851 176318 294789 560761 2356393 0 0 581674 742851 176318 294789 560761 2356393 0 2356393 591 2477 4413 10045 2426 19952 69661 70004 32761 0 0 172426 45019 43114 88133 2636904 0.89360 0.87950 X 0 0 0 Pt III Ln 20 Other Income Part II, Line 10 Description: PPP loan forgiveness 2020: 43100. Description: Other 2020: 14. Pt II Ln 10 Other Income Part II, Line 10 Description: PPP loan forgiveness 2020: 43100. 2021: 43100. Description: Other 2020: 1919. 2021: 14. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false false false false true 10000 false false 10000 Pt II-B Line 1 A Lobbying firm is hired to set up meetings on Capital Hill regarding neurofibromatosis research. At these meetings, contacts are made and later followed up with. All constituents are contacted to write their represenatatives encouraging them to sign a letter supporting neurofibromatosis research. 37957 46475 -8518 69457 31500 37957 56761 13196 500 69457 49996 91238 84473 56761 37115 66749 52500 1368 49996 false false 0 0 0 Right of Use liability - operating lease 22186 22186 X 564208 564208 564208 576691 576691 576691 Other Direct expenses for fundraising events Pt XII, Line 2d Direct expenses for fundraising events Pt V, Line 4 Intended Uses for Endowment Funds - The endowment funds are to be used for research, scholarships, and assistance when a family member with neurofibromatosis is hospitalized in a city other than their home. Also, endowment funds are used to help the organization conduct an annual family camp each year that provides opportunityies for neurofibromatosis families to network with each other. Pt X, Line 2 FIN 48 Footnote - The Foundation is a nonprofit organization that is exempt from Federal income taxes under Section 501(c)(3) of the Internal Revenue Code, except on net income derived from unrelated business activities. Dinner/Auction 280640 280640 None 280640 280640 280640 true UT Southwestern Medical School 5323 Harry Hines Blvd Dallas TX 75390 766002868 30000 Research El Paso Dermatology 1700 Murchison Dr 215 El Paso TX 79902 742049407 15000 Clinic 0 0 X Silent Auction items 127 145666 false true false Pt I col(b) The Organization reports the number of donations received. Pt I Line 32b The Organization uses a third party to assist with silent Pt I Line 32b auction items. Pt VI, Line 11b Foundation's Process to Review Form 990 - The Form 990 is prepared by a third-party CPA firm who provides it to the Foundation. The treasurer and executive director review the form. The CPA firm processes it for signature and filing once approval is received from the Foundation. The form is emailed to all directors for their review before it is siged and filed with the Internal Revenue Service Pt VI, Line 12c Enforcement of Conflicts Policy - The conflict of interest policy is enforced and monitored by an annual certifiction by the board members that acknowledges receipt of, understanding of and compliance with the policy and discloses any current financial, vocational, or charitable ties that may give rise to a conflict of interest. Pt VI, Line 15a Compensation Process for Top Official - The Foundation considers outside data to determine compensation for officers and directors. The compensation is voted on by independent board members and documented in writing. The executive director is evaluated annually by the President, and her compensation is voted on by the board of directors. Pt VII, Col (F) Governing Documents Disclosure Explanation - The Foundation makes its governing document, conflict of interest policy, and financial statements available to the public upon request.