2023-06-01T15:15:48-04:00 2022-12-31 474306215 Mullins PC 7625 Wisconsin Avenue Bethesda MD 20814 990 2022-01-01 844654297 Shwachman-Diamond Syndrome Alliance Inc SHWA PO Box 2441 Woburn MA 01888 Eszter Hars President 6173291838 2023-05-31 true Eszter Hars XXX-XX-XXXX John Mullins P01429307 2027706371 2023-06-02 0 00 AAL1 IAL1 2022 2023-04-26 12:10:37Z Eszter Hars 336751 false X www.sdsalliance.org/ X 2020 MA Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable. 5 4 1 5 0 0 386094 336751 0 0 1474 0 387568 336751 8000 0 86525 0 10856 1811 8243 1811 102768 385757 233983 401345 635328 0 401345 635328 Dedicated to building a world where Shwachman-Diamond Syndrome (SDS) is curable. false false 73042 The SDS Alliance brings together patient families, researchers, clinicians, and other diverse stakeholders to better understand, diagnose, and treat this devastating cancer predisposition genetic disorder. 73042 true true false false false false false false false false false false false false false false false false false false false false false false false false false true false false false false false false false false false false false false false false false false false false false true 0 0 true 1 true false false false false true true true true false false false false false false X 5 4 true false false false false true false true true false false true true true true true false true false false X X X The Organization 6173291838 PO Box 2441 Woburn MA 01888 Eszter Hars President 35.00 0.00 X X 80000 0 0 Lisa Superina Member 1.00 0.00 X 0 0 0 Lotien Huang Member 1.00 0.00 X 0 0 0 Anne Duprey Secretary 1.00 0.00 X X 0 0 0 Kati Ebrahim Treasurer 1.00 0.00 X X 0 0 0 80000 0 0 0 false false false 336751 336751 336751 0 0 0 X 8000 8000 80000 60000 10000 10000 6525 4894 816 815 1800 1800 1315 1315 4017 148 3828 41 368 368 743 743 102768 73042 18870 10856 391345 625328 10000 10000 401345 635328 0 0 X 401345 635328 401345 635328 401345 635328 233983 0 X false false X 16659 386094 336751 739504 16659 386094 336751 739504 44713 694791 739504 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED true Coriell Institute 403 Haddon Ave Camden NJ 08103 210672684 501c3 8000 Medical Research - Biobank Development Officer directors etc family relationship Part VI line 2 Two of the board members are married. Member election for additional members Part VI line 7a The Organization has a sole member who has the ability to appoint other board members. Form 990 governing body review Part VI line 11 The 990 is reviewed by the full Board of Directors before it is filed. Conflict of interest policy compliance Part VI line 12c Board members are required to disclose conflicts of interest as they arise. CEO executive director top management comp Part VI line 15a The approval process includes review and approval by independent persons, comparability data and contemperanous substantiation of the deliberation and decision. Governing documents etc available to public Part VI line 19 Governing documents are available upon request. List of other fees for services expenses Part IX line 11g Community Development $200