2023-04-13T06:39:23-07:00 2022-12-31 342066858 Lane Financial Services 8 Glencove Ct Simpsonville SC 29681 990 2022-01-01 237400632 Bleeding Disorders Association of South Carolina BLEE 8643509941 25 Woods Lake Rd 300 Greenville SC 29607 Sue Martin Director 2023-04-13 Sue Martin 999009999 true James Lane P00981409 8643466157 X 2 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z Sue Martin 427567 false X http://hemophiliasc.org X 1998 SC To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected. 11 0 0 0 279855 286662 18550 12350 303 765 31181 70402 329889 370179 21443 28440 0 79358 81640 0 0 174218 266853 275019 376933 54870 -6754 443317 435698 3411 2546 439906 433152 X To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected. false false 79525 Family Educational Camp: This three-day weekend event was available to individuals and families free of charge with direct and immediate family members who either have a bleeding disorder, are carriers of a bleeding disorder or have an immediate family member affected. It was located in the low country to provide educational and supportive services to our community who reside in the low country and to provide upstate and mid-state participants a coastal experience. Education, supportive services, and family connections with community members was an optimum outcome of this weekend event. This year, we support a health equity summit within the event to address health inequities within the South Carolina Bleeding Disorders Community. Attendees included 42 families, approximately 180 participants, speakers and guests. We provided an educational and networking component specifically designed for families with children ages 0-6, 7-12, and our teens 13-18. We also provided simultaneously an adult educational track for our childless adults. Exhibiting of treatment therapies and services was available throughout the event. We provided 8 sessions throughout the weekend with national educators on varies bleeding disorders issues addressing their needs to include; insurance education, school and healthcare self-advocacy, treatment, research, local and national healthcare public policies updates and other related educational and health equity needs. This event is free of charge to all participants. 68865 BDASC Annual State Meeting and Educational Conference Day: This year we provide our members our annual state-wide meeting. We reported on the years financials and accomplishments. Board of Directors were recognized, and awards were given to our community members for yearly accomplishments. In addition, the HELLO Conference, Helping Embrace Life Learning Opportunities provided presentations and educational programs to support all areas of living well with bleeding disorders so those affected can reach their highest potentials without boundaries. This was a two-day event open to all members of the bleeding disorders community in South Carolina, healthcare providers, and associations. The attendance was over 225, locally and nationally. Our Friday evening dinner opening event included BDASCs mission moments, awards, and a key note presentation. Educational presentations and breakouts were available on Saturday. Childcare is provided. A special program was provided also for the teens. The event concluded after dinner on Saturday. On Saturday, exhibiting was provided for participants to interface one-to-one with participating home care and manufacturing companies and their representatives to explore new treatment therapies and services. 37244 BDASC Advocacy/Legislative Days in Columbia This event was attended by approximately 60 individuals; which included our members affected by bleeding disorders, healthcare providers who assist our community members with services and treatment, local and national organization with interest in assuring access to quality care and treatment, the states Department of Health and Environmental Control, Children with Special Health Care Needs, and our Industry partners. The Chapter provides informational support to community members in regards to advocacy awareness and training, education on health care access initiatives the chapter is working on, and addresses any concerns, while educating our elected officials on bleeding disorders. We provided awareness support and materials to government and state agencies to help promote a greater understanding of the challenges faced by people with bleeding disorders. 142617 328251 true true false false false false false false false false true false false false true false false false false false false false false false true false false false true false false false false false false false false false false false false false false false false false false true 0 0 false 0 false false false false false false false 0 false false false false false false false X 11 0 false false false false false false false false false false false true false false false true false false SC X Suzanne Martin 8643509941 25 Woods Lake Rd Greenville SC 29607 Suzanne Martin Director 40.00 0.00 X 63000 0 0 Wendy Legrand Director 2.00 0.00 X 0 0 0 Christine Evans Director 2.00 0.00 X 0 0 0 James Whitmire Director 2.00 0.00 X 0 0 0 Edna Rabb Director 2.00 0.00 X 0 0 0 Taylor Upton Director 2.00 0.00 X 0 0 0 Susie Maloy Director 2.00 0.00 X 0 0 0 Shelley Crisp President 3.00 0.00 X 0 0 0 Aaron Smith Vice President 3.00 0.00 X 0 0 0 Joey Karkowiak Treasurer 2.00 0.00 X 0 0 0 Samantha Javorka Secretary 3.00 0.00 X 0 0 0 63000 0 false false false 0 286662 286662 Advertising E-mail/Direct 511190 6250 6250 Advertising Newsletter 516110 6100 6100 Advertising Website 516110 12350 765 765 0 0 0 0 127790 57388 70402 0 0 0 370179 765 12350 0 28440 28440 0 0 63000 57290 5710 0 12750 12750 0 0 5890 5890 0 0 0 0 0 0 0 0 22082 22082 0 0 12803 12803 0 0 227812 227812 0 0 0 2197 2197 Postage and Shipping 1959 1959 0 376933 328251 48682 0 17545 88409 425772 346476 0 0 0 0 0 0 0 2320 2320 0 0 0 0 0 813 443317 435698 3411 2546 3411 2546 X 439906 433152 439906 433152 443317 435698 -6754 X false false false X 210723 245068 269698 270491 286662 1282642 0 0 210723 245068 269698 270491 286662 1282642 346785 935857 99 83 345 303 765 1595 0 0 1284237 0.72870 0.67700 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 2320 2320 Payroll Taxes 2546 2546 X false Walk Fundraiser 68262 68262 9091 12016 Golf Fundraiser 59528 59528 466 22127 13688 127790 127790 466 22127 9091 25704 57388 70402 false 0 0 Scholarships 3 Benevolence Fund 55 Form 990, Part III, Line 4d OTHER PROGRAM SERVICES 4: National Annual Meeting Education and Research Support As a chapter of the National Hemophilia Foundation, and a member organization of Hemophilia Federation of America we encourage our community members to attend the Annual Meetings of these important national organizations. We provided direct financial assistance to 10 individuals and their families to attend national meetings this year. We supported direct financial support for research, and global financial support for initiatives of the National World Hemophilia Foundations. OTHER PROGRAM SERVICES 5: Washington Days: Members of BDASC advocated with over 400 members of the national community at the Nations Capital in March. Our Chapter represented the state of South Carolina in advocacy to help address continued access to care and treatment. We participated in six meetings with our US Congressmen. OTHER PROGRAM SERVICES 6: Educational Conference & Events OTHER PROGRAM SERVICES 7: Mens, Womens, Young Families, VWD, and Rare Support Groups: We provide sub-group support and educational programs to all families, men, and women located in all regions of the state from different disease states. These programs foster educational support, empowerment, and friendship while living with a bleeding disorder OTHER PROGRAM SERVICES 8: Outreach Support: In 2022, we supported over 60 virtual and in person educational outreach programs throughout the state; to include the Upstate, Midlands and Lowcountry. These educational events can ease the need for long distance travel for our community. Education included various topics such as scholarship assistance, camps, insurance, healthcare policies, school and job assistance, and advocacy seminars. This year we provided educational and networking support to hundreds of families. The chapter supported outreach education and awareness campaigns during the National Bleeding Disorders Awareness Month of March and supported 15 state county and city proclamations. OTHER PROGRAM SERVICES 9: Winter Year-End State Meeting and Holiday Celebration: The winter state-wide meeting is the organizations year-end meeting of the Chapter and the attendance was over 220 participants; adults, children, and teens. We also highlighted the chapters accomplishments in a one-day community event with holiday festivities OTHER PROGRAM SERVICES 10: The Carolina Crew of North and South Carolina Teen Retreat The teen retreat allowed teens ages 13-18 years with a bleeding disorder, or who have a sibling or parent with a bleeding disorder to come together for a four-day weekend to build friendships, independence, learn self-advocacy skills and provide mentoring opportunities. Teens benefited by attending educational programs along with outdoor activities to promote friendships and build of a support system. Our program this year was specifically designed to provide encouragement in difficult situations which is sometimes a result of living with a bleeding disorder. The event provided this opportunity to 22 teens. OTHER PROGRAM SERVICES 11: Bleeding Disorders Association of South Carolina Chapter Day at Camp Burnt Gin: BDASC partners at camp each year with the South Carolina Hemophilia Treatment Center and the States Department of Health and Environmental Control. Our goal is to provide a special Chapter day and activity event for kids with Bleeding Disorders from around the state and who are patients of the Prisma Health Midstate and Upstate. We provided travel assistance for families that requested financial assistance with transportation to and from camp. We provided a Chapter Camp hat and Ice Cream social event virtual due to COVID-19. Kids at camp make great strides in learning self-independence. We also supported the same activities for kids at Camp Courage from the Prisma Health Upstate HTC in Greenville. OTHER PROGRAM SERVICES 12: National Organizational Support OTHER PROGRAM SERVICES 13: Public Awareness OTHER PROGRAM SERVICES 14: Emergency Assistance Program/Scholarships BDASC provides a financial assistance program to families and individuals affected by bleeding disorders. This year we gave aid to 64 individuals and families. This includes providing 5 college scholarships to eligible members of the community affected by bleeding disorders. OTHER PROGRAM SERVICES 15: Newsletter/ Website/ E-blasts: We provide a quarterly newsletter which contains information on the Chapter, national articles and education, products for treatment, research article, and community news from members within our chapter. The newsletter provides a vital source of communication for our members. Our website provides a wealth of supportive information. We provided monthly and by-monthly constant contact e-blast newsletters to over 1,800 members of the bleeding disorders community throughout the nation with up-to-date information on events and educational materials. OTHER PROGRAM SERVICES 16: Par for the Clot Charity Golf Awareness Funraiser This charity event is an annual fundraiser to help support the Chapters overall programs and services. The revenue raised are used to support the educational programs and services, advocacy initiatives, and national research support we provide to the Bleeding Disorders community. The charity event also serves as an awareness campaign for bleeding disorders and the affects a diagnosis has individuals and their families. We had 175 participants with volunteers and community members in participation. OTHER PROGRAM SERVICES 17: BDASCs :STEP for Bleeding Disorders Walk for Hemophilia and Bleeding Disorders The walk fundraiser is one of Bleeding Disorders Association of South Carolinas primary revenue sources to fund the Chapters mission to support the programs and services of the organization. This fundraiser is open to the entire membership and general public statewide. This fitness walk helps to promote education on staying healthy for individuals with hemophilia and serves as the Chapters public awareness campaign allowing us to reach a broader base of the general public education on bleeding disorders. We had over 250 individuals in participation coming from throughout the state of South Carolina. OTHER PROGRAM SERVICES 18: Annual Von Willebrand Disease Educational Retreat Provided an educational and support weekend to 40 individuals and families who are affected by von Willebrand Disease. Treatment therapies education for doctors in the field we on hand to provide additional medical support and education. OTHER PROGRAM SERVICES 19: Virtual Innovation Program VIP:In response to the COVID -19 pandemic, Hemophilia of South Carolina launched a new initiative in 2020, our Virtual Innovation Program VIP. The mission of the VIP program is to provide continuing education, support services, and to connect with members with the use of managed educational tools, such as I-Pads. Enrolled with the service of a Mobile Device Management we can provide virtual connections to web clips, videos, apps, and URLs, all of our choosing, and provide zoom virtual meeting capabilities. The program has been well embraced by the 85 families or individuals enrolled. With the huge success of this educational pilot program, we will continue to provide this opportunity to all members as funding for additional educational tools become available. Form 990, Part VI, Section B, Line 11b ONCE THE FORM 990 IS COMPLETED, IT IS PRESNTED AT THE FIRST SCHEDULED BOARD MEETING FOR ALL BOARD MEMBERS TO REVIRW AND APPROVE Form 990, Part VI, Section B, Line 15a THE BOARD OF DIRECTORS DETERMINES EXECUTIVE DIRECTOR COMPENSTION BASED ON COMPARABLE COMPENSATION PAID FOR SIMILIAR POSITIONS AT OTHER STATE HEMOPHILIA CHAPTERS Form 990, Part VI, Section C, Line 19 HEMOPHILIA OF SOUTH CAROLINA MAINTAINS A WEB SITE WHEREBY MOST RELEVANT DOCUMENTS ARE AVAILABLE TO THE GENERAL PUBLIC. INTERESTED PARTIES MAY CONTACT THE CHAPTER AND REQUEST OTHER DOCUMENTS AS APPROPRIATE. CONTACT NUMBERS AND ADDRESSES ARE POSTED ON THE WEB SITE.