2023-10-17T09:23:37-07:00 2022-12-31 362716239 BARNES GIVENS & BARNES 200 E Evergreen Ave STE 117 Mount Prospect IL 60056 990 2022-01-01 742926378 THE MULTIPLE SYSTEM ATROPHY COALITION INC MULT 8667374999 1660 International Dr 600 MCLEAN VA 22102 JOSEPH LINDAHL Executive Director 2023-10-17 true JOSEPH LINDAHL 999009999 true William J Barnes P00399658 2247642442 0 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z X 1660 International Dr 600 MCLEAN VA 221024877 2578176 false X WWW.MSACOALITION.ORG X 1999 TX THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. 14 14 0 668 0 1947017 1394761 0 84128 72218 0 2031145 1466979 520500 795677 0 0 0 233723 468678 1117553 989178 1913230 1041967 -446251 7567273 6293509 398668 388754 7168605 5904755 THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE. false false 839010 795677 RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA. 332681 PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL. 227174 CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES. 1398865 true true false false false false false false false false false false false false false true true false false false false true false false false false false true false false false false false false false false false false false false false false false false false false false true 7 0 true 0 false false false false false false false 0 false false false false false false false X 14 14 false true false false false false false true true false false true true true true true true false false false AL AR CA CO CT FL GA HI IL KS KY MA MD ME MI MN MS NC ND NH NJ NM NV NY OH OK OR PA RI SC TN UT VA WI WV X X JOSEPH LINDAHL 8667374999 1660 International Dr Ste 600 MCLEAN VA 221024877 X Pam Bower CHAIR 20.00 0.00 X X 0 0 0 CYNTHIA ROEMER IMED PAST CHAIR 10.00 0.00 X X 0 0 0 Dawn Rodgers-Dexter Treasurer 15.00 0.00 X X 0 0 0 Patricia Libby Thvedt Secretary 20.00 0.00 X X 0 0 0 Gregor Wenning Director 2.00 0.00 X 0 0 0 Liz Dyas Director 2.00 0.00 X 0 0 0 Larry Kellerman Director 2.00 0.00 X 0 0 0 Adrienne Glusman Marioles Director 2.00 0.00 X 0 0 0 Vikram Khurana Director 2.00 0.00 X 0 0 0 Daniel Claassen Director 2.00 0.00 X 0 0 0 Alan Smally Director 2.00 0.00 X 0 0 0 Andre Cote Barch Director 2.00 0.00 X 0 0 0 Gary Troutman Director 2.00 0.00 X 0 0 0 William Billy Finnerty Director 2.00 0.00 X 0 0 0 JOSEPH LINDAHL Executive Dir. 40.00 0.00 X 0 0 0 0 false false false MCI USA 1660 International Dr Ste 600 MCLEAN VA 221024877 Management 780000 1 1394761 1394761 0 95758 95758 0 0 0 1087657 1111197 -23540 -23540 -23540 0 0 0 0 1466979 -23540 95758 495177 495177 0 300500 300500 0 0 0 0 0 0 0 780000 424667 147333 208000 0 0 0 0 25743 25743 48148 48148 0 5534 5534 0 0 0 23912 23912 0 0 0 0 0 620 620 Patient support and education 142014 142014 Awareness Outreach 36507 36507 Other 26557 26557 Fundraising Expenses 25723 25723 2795 2795 1913230 1398865 280642 233723 671374 525532 1466771 1166961 0 153535 96737 0 0 0 0 0 0 5275593 4504279 0 0 0 0 7567273 6293509 13149 12158 385519 376596 398668 388754 X 3867442 2795758 3301163 3108997 7168605 5904755 7567273 6293509 -446251 -817599 X X false true X true false X 1017304 4138319 1326828 1947017 1394761 9824229 0 0 1017304 4138319 1326828 1947017 1394761 9824229 3441014 6383215 1088 43568 38259 66121 95758 244794 0 70000 70000 10139023 0.62960 0.60330 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED X 765750 -817599 142113 -675486 1441236 25743 25743 1466979 2029600 142113 142113 1887487 25743 25743 1913230 Part X : FIN48 Footnote THE ORGANIZATION IS A NONPROFIT ORGANIZATION AS DESCRIBED IN SECTION501(C)(3) OF THE INTERNAL REVENUE CODE AND IS EXEMPT FROM FEDERAL ANDSTATE INCOME TAXES ON TRADE OR BUSINESS PROFITS GENERATED BY ACTIVITIESRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. THE ORGANIZATION MAY BESUBJECT TO FEDERAL AND STATE INCOME TAXES FOR PROFITS GENERATED FROM TRADE OR BUSINESS ACTIVITIES UNRELATED TO THE ORGANIZATION'S EXEMPT FUNCTION. AS OF DECEMBER 31, 2022 MANAGEMENT BELIEVES THAT THE ORGANIZATION HAS NOT GENERATED ANY UNRELATED BUSINESS TAXABLE INCOME.THE ORGANIZATION ASSESSES THE RECORDING OF UNCERTAIN TAX POSITIONS BYEVALUATING THE MINIMUM RECOGNITION THRESHOLD AND MEASUREMENT REQUIREMENTS A TAX POSITION MUST MEET BEFORE BEING RECOGNIZED AS A BENEFIT IN THE FINANCIAL STATEMENTS. THE ORGANIZATION'S POLICY IS TO RECOGNIZE INTEREST AND PENALTIES ACCRUED ON ANY UNCERTAIN TAX POSITIONS AS A COMPONENT OF INCOME TAX EXPENSE, IF ANY, IN ITS STATEMENTS OF ACTIVITIES. THE ORGANIZATION HAS NOT RECOGNIZED ANY LIABILITIES FOR UNCERTAIN TAX POSITIONS OR UNRECOGNIZED BENEFITS AS OF DECEMBER 31, 2022. THE ORGANIZATION DOES NOT EXPECT ANY MATERIAL CHANGE IN UNCERTAIN TAX BENEFITS WITHIN THE NEXT 12 MONTHS. true EUROPE MSA RESEARCH 265000 WIRE TRANSF NORTH AMERICA MSA RESEARCH 35500 WIRE TRANSF 6 6 false false false false false false Part I, Line 2 - Grantmakers Explanation For Monitoring Use of Funds Outside US THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THERESEARCH GRANTS. true Brigham and Womens Hospital 75 Francis St Boston MA 02115 042312909 501(c)3 50000 0 MSA Research Mayo Clinic Jacksonville 4500 San Pablo Rd Jacksonville FL 32224 593337028 501(c)3 50000 0 MSA Research Pres & Fellows of Harvard Col 10 Shattuck Street Boston MA 02115 042103580 501(c)3 240000 0 MSA Research University of California SF 1651 4th St 4th Fl San Francisco CA 94158 946036493 501(c)3 50000 0 MSA Research University of Florida 1149 Newell Dr Gainsville FL 32610 596002052 501(c)3 100000 0 MSA Research 5 0 Grantmaker's Description of How Grants are Used THE ORGANIZATION REQUESTS PERIODIC UPDATES ON THE PROGRESS OF THE RESEARCH GRANTS. Form 990, Part VI, Section A, Line 3 THE ORGANIZATION IS A PARTY TO AN AGREEMENT FOR OPERATIONS MANAGEMENT,FINANCE AND ACCOUNTING, FUNDRAISING, EVENTS MANAGEMENT, PUBLICATIONS,MEMBERSHIP SUPPORT AND COMMUNICATION SERVICES PROVIDED TO THE ORGANIZATIONBY MCI USA. Form 990, Part VI, Section B, Line 11b THE FORM 990 IS REVIEWED IN DETAIL BY THE TREASURER OF THE ORGANIZATION.THE FORM 990 IS THEN SENT TO ALL MEMBERS OF THE BOARD OF DIRECTORS FORREVIEW AND COMMENT PRIOR TO FILING. Form 990, Part VI, Section B, Line 12c EACH BOARD MEMBER COMPLETES AND SIGNS A CONFLICT OF INTEREST QUESTIONNAIREEVERY YEAR. Form 990, Part VI, Section C, Line 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS AND FINANCIAL STATEMENTSAVAILABLE TO THE PUBLIC UPON REQUEST Form 990, Part XII, Line 2c THE ORGANIZATION HAS A COMMITTEE THAT ASSUMES RESPONSIBILITY FOROVERSIGHT FOR THE AUDIT OF ITS FINANCIAL STATEMENTS AND SELECTION OF ANINDEPENDENT ACCOUNTANT. THIS PROCESS HAS NOT CHANGED DURING THE YEAR.