2023-05-22T13:31:25-05:00 2022-12-31 541853459 MITCHELL BURNS & CO PC 110 EAST MARKET ST 200 LEESBURG VA 20176 990 2022-01-01 475016851 PATIENTS RISING INC PATI 2027501186 700 12TH STREET NW 700 WASHINGTON DC 20005 TERESSA WILCOX EXECUTIVE DIRECTOR 2027501186 2023-05-22 1 TERESSA WILCOX XXX-XX-XXXX 0 W MATTHEW BURNS P01265537 7037774900 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z TERESSA WILCOX 700 12TH STREET NW 700 WASHINGTON DC 20005 872251 0 X WWW.PATIENTSRISING.ORG X 2015 VA PROVIDE SUPPORT AND EDUCATION TO PEOPLE WITH CHRONIC AND LIFE-THREATENING ILLNESSES AND ADVOCATE FOR ACCESS TO TREATMENTS, INNOVATIONS, AND CARE PATIENTS NEED. 5 4 9 12 0 0 993326 872251 0 0 0 0 0 0 993326 872251 39386 250 0 0 287717 406500 0 0 52492 576783 1145173 903886 1551923 89440 -679672 529961 87815 612721 850247 -82760 -762432 X PATIENTS RISING IS DEDICATED TO PROVIDING SUPPORT AND EDUCATION TO PEOPLE WITH CHRONIC AND LIFE-THREATENING ILLNESSES. WE WORK WITH PATIENTS TO ADVOCATE FOR ACCESS TO TREATMENTS, INNOVATIONS, AND CARE THEY NEED. 0 0 184046 VOICES OF VALUE IS A MULTI-MEDIA HUB BY PATIENTS FOR PATIENTS TO SHARE KNOWLEDGE AND ADVOCATE FOR THE NEEDS OF THEIR COMMUNITY. PATIENTS SHARE INSIGHTS AND PRESENT THE TRUE CHALLENGES OF LIVING WITH CHRONIC AND LIFE-THREATENING ILLNESSES. 728909 250 PATIENT ACCESS AND AFFORDABILITY PROJECT: WE EVALUATE THE VARIOUS FRAMEWORKS THAT ASSESS AND DEMONSTRATE THE VALUE OF INNOVATIVE TREATMENTS. THESE TREATMENTS HELP PATIENTS WHO ARE LIVING WITH RARE AND CHRONIC DISEASES. AS THE MARKET BECOMES MORE INNOVATIVE, WE FOCUS ON WAYS TO PROMOTE ACCESS AND MAINTAIN AFFORDABILITY. WE LOOK BEYOND THE ONE-SIZE-FITS-ALL APPROACH, WHICH CAN DISCRIMINATE AGAINST PATIENTS. WE PROVIDE PATIENT-POWERED PATHWAYS TO HELP BOTH THE PAYERS AND GOVERNMENT AGENCIES AS THEY MAKE CRITICAL PAYMENT DECISIONS FOR THESE PAYMENTS. 237038 PATIENTS RISING PROVIDES ONE ON ONE NAVIGATION SUPPORT SERVICES FOR PATIENTS THROUGH OUR CONCIERGE HELPLINE. WE DIRECTLY HELP PATIENTS WHO CALL AND EMAIL WITH DIRECT SUPPORT FROM ONE OF OUR STAFF MEMBERS. THIS CAN HELP THEM WITH ANYTHING FROM HOW TO FIND RESOURCES FOR FINANCIAL SUPPORT TO HOW TO WRITE A LETTER TO THEIR INSURER IF THEY HAVE BEEN DENIED COVERAGE FOR A NEEDED TREATMENT. 155963 PATIENTS RISING LEARNING IS A FREE ONLINE EDUCATIONAL PROGRAM DEVELOPED TO HELP PATIENTS AND CAREGIVERS BUILD SELF-ADVOCACY SKILLS, LEARN ABOUT THEIR CONDITIONS, NAVIGATE HEALTHCARE COVERAGE, AND ULTIMATELY GET ACCESS TO THE BEST CARE AND TREATMENT POSSIBLE. 155963 1305956 1 1 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 27 0 9 1 0 0 0 0 0 0 0 0 0 0 X 5 4 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 X THE ORGANIZATION 2029042462 700 12TH STREET NW 700 WASHINGTON DC 20005 JOHN KABATECK CHAIRMAN 5.00 X X 0 0 0 TERESSA WILCOX EXECUTIVE DIRECTOR 30.00 30.00 X X 178334 41667 5350 DARLA S BELL DIRECTOR 5.00 X 0 0 0 JEFFREY OLDHAM DIRECTOR 5.00 X 0 0 0 JONATHAN WILCOX DIRECTOR 5.00 X 0 0 0 178334 41667 5350 1 0 1 0 0 205000 28810 638441 872251 872251 0 0 0 X 250 250 108150 54075 27038 27037 244819 211693 16563 16563 4005 3463 271 271 21902 18355 2111 1436 27624 20862 3381 3381 3466 3466 21377 21377 861012 850085 9227 1700 38983 23783 15200 2626 813 1813 14218 14218 16407 14856 1551 80676 80574 74 28 14322 14322 2882 558 2280 44 DUES AND SUBSCRIPTIONS 33475 8263 24889 323 STAFF DEVELOPMENT 30000 30000 HONORARIA 9085 9085 WEBSITE 8790 8470 320 7854 771 6925 158 1551923 1305956 193475 52492 74961 32815 455000 25000 30000 529961 87815 100044 341604 512677 508643 612721 850247 X 0 0 0 0 -82760 -762432 -82760 -762432 529961 87815 -679672 0 X 0 0 0 X 657691 663455 706089 638326 872251 3537812 1617 1617 657691 663455 707706 638326 872251 3539429 0 301310 301310 301310 301310 3238119 6 107 1 114 6 107 1 114 1524 1524 657697 663562 707707 638326 873775 3541067 0.91440 1.00000 0.00000 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 CONVERTIBLE PROMISSORY NOTE 30000 C 30000 CREDIT CARD PAYABLE 7971 PAYROLL LIABILITIES 672 SBA EIDL LOAN 500000 508643 X X 0 0 0 0 0 0 0 0 0 TERESSA WILCOX EXECUTIVE DIRECTOR 178334 41667 0 0 0 0 5350 0 0 0 183684 41667 0 0 FORM 990, PART VI, SECTION A, LINE 2 TERESSA WILCOX AND JONATHAN WILCOX ARE MARRIED. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 IS PROVIDED TO ALL BOARD MEMBERS FOR REVIEW PRIOR TO FILING, AND ANY QUESTIONS ARE DISCUSSED AMONGST THE BOARD AS NECESSARY. FORM 990, PART VI, SECTION B, LINE 12C COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY IS MONITORED AND ENFORCED BY THE CHIEF OPERATIONS OFFICER. FORM 990, PART VI, SECTION B, LINE 15 THE EXECUTIVE DIRECTOR'S COMPENSATION IS EVALUATED AND APPROVED BY THE BOARD OF DIRECTORS WITH THE ED ABSTAINING FROM THE VOTE. COMPENSATION OF OTHER OFFICERS OR KEY EMPLOYEES ALSO IS EVALUATED AND APPROVED BY THE BOARD OF DIRECTORS. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE AVAILABLE UPON REQUEST, CONFLICT OF INTEREST POLICY AND FORM 990 ARE AVAILABLE THROUGH THE ORGANIZATION'S WEBSITE. FORM 990, PART IX, LINE 11G PAYROLL PROCESSING: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 2,856. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 2,856. TEMPORARY HELP: PROGRAM SERVICE EXPENSES 3,173. MANAGEMENT AND GENERAL EXPENSES 1,966. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 5,139. CONTENT DEVELOPMENT/WRITING/REVIEW/EDITORIAL: PROGRAM SERVICE EXPENSES 227,300. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 227,300. DIGITAL SUPPORT SERVICES: PROGRAM SERVICE EXPENSES 227,836. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 227,836. OTHER PROGRAM SUPPORT SERVICES: PROGRAM SERVICE EXPENSES 387,619. MANAGEMENT AND GENERAL EXPENSES 2,725. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 390,344. GRAPHICS AND ANIMATION PRODUCTION: PROGRAM SERVICE EXPENSES 4,157. MANAGEMENT AND GENERAL EXPENSES 1,680. FUNDRAISING EXPENSES 1,700. TOTAL EXPENSES 7,537. PATIENTS RISING NOW 700 12TH STREET NW STE 700 WASHINGTON DC 20005 611860696 NOT FOR PROFIT - PATIENT ADVOCACY DC 501(C)(4) 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 PATIENTS RISING NOW C 213565 CASH PATIENTS RISING NOW Q 7834 CASH