2023-05-01T06:17:23-07:00 2022-12-31 202466693 Donna Foxman CPA 105 Foxwood Terrace Toms River NJ 08755 990 2022-01-01 223123551 Lyme Disease Association Inc LYME 8883666611 PO Box 1438 Jackson NJ 08527 Patricia V Smith President 2023-05-01 true Patricia V Smith 999009999 true Donna Foxman CPA P01320600 7323497638 X 2 AAL1 IAL1 FAL1 2022 2023-04-26 12:10:37Z Patricia V Smith PO Box 1438 Jackson NJ 08527 279003 false X LymeDiseaseAssociation.org X 1992 NJ Lyme Disease Association (LDA) raises funds for research, education, prevention and patient support. LDA partnered to establish Columbia Un. Lyme & Tick-Borne Diseases Research Center. Provides research grants, LymeAid 4 Kids, physician conferences, public presentations. 6 6 0 23 0 308002 278794 0 4340 209 0 312342 279003 47794 70500 0 0 0 1521 246690 210169 294484 280669 17858 -1666 496596 494539 66728 67459 429868 427080 LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients. false false 192844 Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences:public,corporations,schools,government, health care providers, radio interviews- 2022 was more limited in scope due to ongoing COVID. LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news,links to resources & researcher funding opportunities/studies for public. LDA online Guest Blogs were presented by experts in tick-borne diseases and published on May website & newsletter. LDA answers non-medical questions online & maintains a free tick-borne diseases searchable nationwide doctor referral, completely upgraded in 2022 with about 800 medical providers/other professionals. 46500 46500 Research, Education, Grants: Since 1992, LDA has provided 124 research grants including two 2022 grants, one to test for tick-borne pathogens, another patient centered research (not completed). Research published in peer-reviewed journals helps move the field forward. In 2022, three new publications, "Journal of Medical Entomology, Healthcare (Basel), and The Journal of Nervous & Mental Disease acknowledged the LDA as research funder, bringing to 60 the total number of journal publications to date from LDA-funded research. From 1999 to 2022, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provided educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD. 24000 24000 LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $443,000 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 24 financially disadvantaged families grants in 2022. 263344 true true false true false false false false false false true false false false false false true false false false false false false false false false false true true false false false false false false false false false true false false false false false false false false true 8 0 false 0 false false false false false false false 0 false false false false false false false X 6 6 true false false false false false false true false false false true true true true true false true true false AK AL AR AZ CA CO CT FL GA KS KY LA MA MD ME MN MO NC NH NJ NY OH OK OR PA RI SC TN UT VA WA WI WV X X Isabella Hackett 8883666611 PO Box 1438 Jackson NJ 08527 X Patricia V Smith President 56.00 0.00 X X 0 0 0 Corey Lakin 2nd Vice Pres. 1.50 0.00 X X 0 0 0 Ruth Waddington Secretary 10.00 0.00 X X 0 0 0 Jeannine Phillips Director 9.00 0.00 X 0 0 0 Richard Smith V P/Treasurer 4.00 0.00 X X 0 0 0 Timothy Lynagh Director 10.00 0.00 X 0 0 0 0 false false false 0 11021 267773 145993 278794 0 209 209 0 0 0 0 0 0 0 0 279003 209 46500 46500 24000 24000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 608 376 232 3460 1054 2406 Program costs and supplies 141315 141315 Outside services 51141 40535 9900 706 Database management, website 3548 3332 216 Telephone & internet 3033 2390 643 7064 3842 2407 815 280669 263344 15804 1521 124919 142264 370963 345817 0 0 0 0 0 0 0 13599 11169 714 2430 4028 0 0 0 0 496596 494539 4728 5459 62000 62000 66728 67459 X 122043 109778 307825 317302 429868 427080 496596 494539 -1666 -1122 X false true X true false X 461290 297124 241978 308002 278794 1587188 0 0 461290 297124 241978 308002 278794 1587188 0 1587188 6172 4772 5899 4340 209 21392 0 0 1608580 0.98670 0.98330 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED false false false Part I-A, Line 1 - Direct and Indirect Political Campaign Activities There was no political campaign activities.In 2022, LDA had a small amount of lobbying efforts that were not relevant financially as they were basically volunteer efforts. LDA provided written input into language to a Congressman that was then submitted by the House Lyme Disease Caucus to obtain more monies for Lyme & tick-borne diseases research through CDC & NIH for LHHS federal appropriations bill. Some of that language was contained in Committee reports surrounding the bill and in bill. LDA also submitted language in same manner regarding monies for the Congressionally Directed Medical Research Program (CDMRP)funded through Department of Defense Appropriations Act.Additionally. LDA was concerned that the CDC's existent NE Regional Center of Excellence in Vector-Borne Diseases was not funded in the prior appropriations,although the other Centers for Excellence were. That original Center coverage included a number of Mid Atlantic states which have high incidence of Lyme: PA, NY, NJ, MD. DE, DC metro, VA, and WV. A new NE Center was designated which did not seem to have same outreach to those states as the original NE Center. The LDA contacted a Congressman and explained the issue and asked him to seek additional funding to be placed in CDC appropriations that could then be used to accomplish similar goals for the states no longer included in the originally designated NE region. Additional monies were allocated to CDC in appropriations. 13599 11169 2430 2430 277881 -1122 -1122 279003 279003 280669 280669 280669 true Anorexia Nervosa Research LLC 668 S Newport St Denver CO 80224 25000 0 actual research 0 1 LymeAid 4 Kids (1,000 each grant) 24 24000 actual Additional Supplemental Information Research and education grants totaling $70,500 were awarded in 2022. In addition to the grants over $5,000, smaller grants were awarded to the following in 2022: ILADS (MD) Grand Animal Hospital(CO) Kendall County Health Dept.(IL) Minnesota Lyme Association (MN) Lyme Association of Greater Kansas City Lyme Fight Foundation (CA) Oxford Area Foundation (PA) Grantmaker's Description of How Grants are Used LDA requires a signed grant agreement and periodic reports from the grant recipients, plus a final report. The larger grants are paid in installments. If a grantee publishes their work, LDA needs to be recognized in the journal article. Advertising 1 140843 actual Stocks 1 5150 actual false false false Form 990, Part VI, Section A, Line 2 Patricia Smith and Richard Smith, both directors and officers, are married. Form 990, Part VI, Section A, Line 8b Board minutes are recorded for all Board meetings and any actions taken by the Board. There are no committees which are authorized to act on behalf of the organization. Form 990, Part VI, Section B, Line 11b The Association's financial records are reviewed by the internal audit committee prior to providing them to the auditor. The 990 is reviewed by the president and treasurer before it is filed. It is then sent to the Board for comment. The Board reviews both the audit and the 990 and then votes to accept the documents at the next Board meeting or in online discussion. Form 990, Part VI, Section B, Line 12c The organization has a written conflict of interest policy. Board members are reminded of compliance with this policy on an ongoing basis. Form 990, Part VI, Section B, Line 15a The organization does not have paid employees. Form 990, Part VI, Section B, Line 15b There are no paid employees. This is a volunteer run organization. Form 990, Part VI, Section C, Line 19 Information is available upon request as required by current regulations. Financial information can also be found on Candid, formerly Guidestar.