2023-03-27T10:57:30-04:00 2022-07-31 KUNDINGER CORDER & MONTOYA PC 475 LINCOLN STREET SUITE 200 DENVER CO 80203 990 2022-01-01 264431001 GLOBAL DOWN SYNDROME FOUNDATION GLOB 7205485618 3239 E 2ND AVENUE DENVER CO 80206 MICHELLE SIE WHITTEN PRESIDENT AND CEO 7205485618 2023-03-23 true MICHELLE SIE WHITTEN 999009999 false MARIA MONTOYA P01363907 3035345953 2023-03-27 2022 2023-04-26 12:10:37Z MICHELLE SIE WHITTEN 3239 E 2ND AVENUE DENVER CO 80206 1132886 false X WWW.GLOBALDOWNSYNDROME.ORG X 2009 CO TO IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME. 11 7 0 56 0 3206849 944748 6540 3895 13188 -2598 1551 0 3228128 946045 555437 91200 0 1032840 396160 0 147201 1080908 719827 2669185 1207187 558943 -261142 8253735 8604160 631867 1242235 7621868 7361925 X TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE LINDA CRNIC INSTITUTE FOR DOWN SYNDROME TO ERADICATE THE MEDICAL AND COGNITIVE ILL EFFECTS ASSOCIATED WITH DOWN SYNDROME AND TO ENSURE PEOPLE WITH THE CONDITION LIVE LONGER AND HEALTHIER LIVES AND THEREFORE REACH THEIR TRUE POTENTIAL. false false 252237 RESEARCH AND CLINICAL CARE: DOWN SYNDROME IS WHEN A PERSON IS BORN WITH THREE COPIES OF CHROMOSOME 21 INSTEAD OF THE USUAL TWO. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A HIGHER INCIDENCE OF CERTAIN DISEASES AND PROTECTS THOSE SAME INDIVIDUALS FROM OTHER DISEASES. THEY DO SO IN THE FOLLOWING WAYS: - CREATING AND UPDATING MEDICAL GUIDELINES BY CONDUCTING RESEARCH ON HOW PEOPLE WITH DOWN SYNDROME ARE TREATED FOR CERTAIN CONDITIONS OR DISEASES AND WHAT INTERVENTIONS OR MEDICATIONS WORK FOR PEOPLE WITH DOWN SYNDROME. - CONDUCTING MEDICAL OR CLINICAL RESEARCH TO IMPROVE THE HEALTH AND LIFESPAN OF PEOPLE WITH DOWN SYNDROME, ESPECIALLY IN AREAS WHERE THEY ARE HIGHLY PREDISPOSED TO DISEASE (E.G. ALZHEIMER'S DISEASE AND AUTOIMMUNE CONDITIONS) AND HIGHLY PROTECTED (E.G. SOLID TUMORS AND CERTAIN TYPES OF HEART ATTACK AND STROKE.) - CONDUCTING BASIC OR LABORATORY RESEARCH IN CONJUNCTION WITH MEDICAL OR CLINICAL RESEARCH. - EXPANDING AWARENESS THROUGH EDUCATION OUTREACH, GOVERNMENT ADVOCACY, AND PUBLIC RELATIONS WORK IN COORDINATION WITH AND FOR THE CRNIC INSTITUTE AND GLOBAL'S OTHER AFFILIATES. 497917 91200 3895 OUTREACH, EDUCATION, AND CONFERENCES: GLOBAL OFFERS A VARIETY OF RESEARCH AND MEDICAL OUTREACH MEETINGS, WORKSHOPS, WEBINARS, EDUCATIONAL PROGRAMS, AND CLASSES DESIGNED TO SUPPORT AND IMPROVE THE LIVES OF GLOBAL 'S SELF- ADVOCATES, FAMILY MEMBERS AND PROFESSIONALS SERVING OUR COMMUNITY. MANY OF OUR EDUCATIONAL PROGRAMS INVOLVE BUILDING SKILLS, BUILDING SELF-ESTEEM AND FOSTERING INDEPENDENCE. 750154 true true false true false false false false false false true false false false true false true false false false false true false false true false false true false false false false false false false false false false true false false false false true false false false true 0 0 true 0 false false false false false true true false false false false false false X 11 7 true false false false false false false true true false false true true true true true true true true false AL AK AR CA CO CT DC FL GA HI IL KS KY LA ME MD MA MI MO ND X MICHELLE SIE WHITTEN 7205485618 3239 E 2ND AVENUE DENVER CO 80206 X MICHELLE SIE WHITTEN PRESIDENT AN 20.00 20.00 X X 0 0 0 JOHN J SIE CHAIR 1.50 1.00 X X 0 0 0 ANNA M SIE DIRECTOR 1.50 1.00 X 0 0 0 MARY BETH WALLINGFORD TREASURER 3.00 X X 0 0 0 RICHARD WAYSDORF SECRETARY 1.00 X X 0 0 0 JOHN C MCGINLEY DIRECTOR 1.00 X 0 0 0 JAY MILLS DIRECTOR 1.00 X 0 0 0 RICKI REST DIRECTOR 1.00 X 0 0 0 TOMAGO COLLINS DIRECTOR 1.00 X 0 0 0 CHARLIE MONFORT DIRECTOR 1.00 X 0 0 0 FRANK STEPHENS DIRECTOR 1.00 X 0 0 0 false false false X 234775 350000 359973 72400 944748 REGISTRATIONS 900099 3895 3895 3895 4435 4435 7033 -7033 -7033 -7033 179808 234775 179808 946045 3895 -2598 X 83200 83200 8000 8000 43285 30064 13221 298892 186954 58609 53329 26267 18535 4192 3540 27716 17341 5753 4622 6485 6485 4500 4500 51700 51700 220382 130235 69991 20156 121140 64636 30602 25902 80667 56830 1448 22389 87213 52713 34500 PUBLIC RELATIONS 73247 49821 12321 11105 PROGRAM GOODS 51025 125 45500 5400 RECRUITING 23468 22710 758 1207187 750154 309832 147201 3030193 669072 1652499 3151436 204895 408993 1243 73699 38837 61822 2276008 559287 1803935 1716721 1522133 2522417 8253735 8604160 102548 92404 500000 500000 29319 42748 607083 631867 1242235 X 6572412 6369770 1049456 992155 7621868 7361925 8253735 8604160 -261142 1199 X X false true X true X 4701935 3623958 3515589 3206849 944748 15993079 4701935 3623958 3515589 3206849 944748 15993079 4532868 11460211 16615 26104 25177 13010 4435 85341 1925 1925 7782 12036 37291 1551 58660 16139005 94492 0.71010 0.68500 X PART II, LINE 10 OTHER INCOME 58,660 RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 51700 51700 1155487 1207187 195719 48930 290531 274054 264969 195719 1025273 1537910 187070 172583 100000 51700 511353 72633 68514 66242 48930 256319 384479 2070125 406849 1663276 205883 152438 53445 1716721 EVENT ADVANCES 607083 607083 1779791 1199 843847 845046 934745 11300 11300 946045 2039734 843847 843847 1195887 11300 11300 1207187 EDUCATION 8000 WIRE TRANSFER 1 false false false false false false ACCEPTABILITY G 414583 234775 179808 38314 65339 65391 10764 414583 234775 179808 38314 65339 65391 10764 179808 true DOWN SYNDROME CONNECTION OF THE BAY 101-J TOWN COUNTRY DR DANVILLE CA 94526 911904304 501(C) 8000 EDUCATION SHARING DOWN SYNDROME ARIZONA 745 N GILBER RD 124 - 273 GILBERT AZ 85234 860822557 501(C) 6400 EDUCATION COASTAL BRINGING UP DOWN SYNDROME O 20 N 4TH STREET SUITE 205 WILMINGTON NC 28401 814628292 501(C) 6400 EDUCATION DOWN SYNDROME ASSOCIATION FOR FAMIL PO BOX 57362 LINCOLN NE 68505 043701318 501(C) 8000 EDUCATION DOWN SYNDROME ASSOCIATION OF CENTRA 3710 CEDAR STREET BOX 3 AUSTIN TX 78705 742577312 501(C) 6000 EDUCATION DOWN SYNDROME ASSOCIATION OF DELAWA PO BOX 747 MIDDLETOWN DE 19709 201874295 501(C) 7800 EDUCATION DOWN SYNDROME ASSOCIATION OF GREATE 1300 STRASSNER DRIVE BRENTWOOD MO 63144 431108833 501(C) 8000 EDUCATION DOWN SYNDROME ASSOCIATION OF NORTHE 6533-B BRECKSVILLE RD INDEPENDENCE OH 44131 341630114 501(C) 8000 EDUCATION BUDDY UP FOR LIFE INC 8000 WALTON PARKWAYSUITE 208 NEW ALBANY OH 43054 270789426 501(C) 7200 EDUCATION DOWN SYNDROME ASSOCIATION OF WISCON 11709 W CLEAVELAND AVE 2 NO 2 WEST ALLIS WI 53227 391681338 501(C) 6600 EDUCATION 10 SCHEDULE I, PAGE 1, PART I, LINE 2 FOR THE EDUCATIONAL AND SELF-ADVOCATE EMPLOYMENT AWARDS, MEMBERS OF THE GLOBAL DOWN SYNDROME FOUNDATION CONDUCT AN AWARD REVIEW PROCESS TO DETERMINE WHO IS SELECTED FROM A POOL OF APPLICANTS, AND THE AMOUNT OF THE AWARD IS DETERMINED BY REVIEWING FINANCIAL REPORTS INCLUDING A BUDGET FOR THE EDUCATIONAL AND SELF-ADVOCATE EMPLOYMENT PROGRAMS. AT THE END OF THE AWARD PERIOD, EACH AWARD RECIPIENT MUST SEND THEIR FINAL REPORT WITH PROGRAM DOCUMENTATION. X AUCTION ITEMS 3 72400 REPLACEMENT COST false false false FORM 990 - ORGANIZATION'S MISSION TO SIGNIFICANTLY IMPROVE THE LIVES OF PEOPLE WITH DOWN SYNDROME THROUGH RESEARCH, MEDICAL CARE, EDUCATION AND ADVOCACY. AN IMPORTANT PART OF THIS MISSION IS TO SUPPORT THE LINDA CRNIC INSTITUTE FOR DOWN SYNDROME TO ERADICATE THE MEDICAL AND COGNITIVE ILL EFFECTS ASSOCIATED WITH DOWN SYNDROME AND TO ENSURE PEOPLE WITH THE CONDITION LIVE LONGER AND HEALTHIER LIVES AND THEREFORE REACH THEIR TRUE POTENTIAL. FORM 990, PAGE 2, PART III, LINE 4A RESEARCH AND CLINICAL CARE: DOWN SYNDROME IS WHEN A PERSON IS BORN WITH THREE COPIES OF CHROMOSOME 21 INSTEAD OF THE USUAL TWO. BECAUSE OF GLOBAL'S WORK, SCIENTISTS ARE DEVELOPING BETTER METHODS TO UNDERSTAND HOW THE TRIPLICATION LEADS TO A HIGHER INCIDENCE OF CERTAIN DISEASES AND PROTECTS THOSE SAME INDIVIDUALS FROM OTHER DISEASES. THEY DO SO IN THE FOLLOWING WAYS: - CREATING AND UPDATING MEDICAL GUIDELINES BY CONDUCTING RESEARCH ON HOW PEOPLE WITH DOWN SYNDROME ARE TREATED FOR CERTAIN CONDITIONS OR DISEASES AND WHAT INTERVENTIONS OR MEDICATIONS WORK FOR PEOPLE WITH DOWN SYNDROME. - CONDUCTING MEDICAL OR CLINICAL RESEARCH TO IMPROVE THE HEALTH AND LIFESPAN OF PEOPLE WITH DOWN SYNDROME, ESPECIALLY IN AREAS WHERE THEY ARE HIGHLY PREDISPOSED TO DISEASE (E.G. ALZHEIMER'S DISEASE AND AUTOIMMUNE CONDITIONS) AND HIGHLY PROTECTED (E.G. SOLID TUMORS AND CERTAIN TYPES OF HEART ATTACK AND STROKE.) - CONDUCTING BASIC OR LABORATORY RESEARCH IN CONJUNCTION WITH MEDICAL OR CLINICAL RESEARCH. - EXPANDING AWARENESS THROUGH EDUCATION OUTREACH, GOVERNMENT ADVOCACY, AND PUBLIC RELATIONS WORK IN COORDINATION WITH AND FOR THE CRNIC INSTITUTE AND GLOBAL'S OTHER AFFILIATES. FORM 990, PART VI LINE 2 - RELATED PARTY INFORMATION AMONG OFFICERS THREE OF THE MEMBERS OF THE BOARD OF DIRECTORS HAVE A FAMILY RELATIONSHIP, AND ONE BOARD MEMBER HAS A BUSINESS RELATIONSHIP WITH THE MEMBERS WHO HAVE A FAMILY RELATIONSHIP. FORM 990, PAGE 6, PART VI, LINE 2 SEE ABOVE. FORM 990, PAGE 6, PART VI, LINE 11B FORM 990 IS REVIEWED BY SENIOR MANAGEMENT AND DISTRIBUTED BY EMAIL TO THE BOARD PRIOR TO FILING. FORM 990, PAGE 6, PART VI, LINE 12C THE BOARD DISCLOSES CONFLICTS OF INTEREST ON AN ANNUAL BASIS. FORM 990, PAGE 6, PART VI, LINE 15A MICHELLE SIE WHITTEN IS AN EMPLOYEE OF THE ANNA AND JOHN SIE FOUNDATION (AJSF). WHILE AJSF PAYS HER SALARY, THE AMOUNT PAID FOR WORK PERFORMED FOR GLOBAL ACTIVITIES IS RECORDED IN GLOBAL'S RECORDS AS PERSONNEL COSTS AND IS REPORTED IN PART VII, COLUMN D AND COLUMN F. THIS IS ALSO REPORTED AS A CONTRIBUTION FROM AJSF TO GLOBAL. THE PORTION OF HER SALARY AND BENEFITS RELATED TO WORK PERFORMED FOR AJSF IS NOT INCLUDED IN PART VII. IN DETERMINING HER COMPENSATION, THE TRUSTEES OF AJSF ALONG WITH THIRD PARTY PROFESSIONALS (THE AJSF COMMITTEE) REVIEW COMPARABILITY DATA TO DETERMINE THE APPROPRIATE COMPENSATION AMOUNT. FORM 990, PAGE 6, PART VI, LINE 15B APPROVAL FOR COMPENSATION OF ALL OTHER STAFF IS DELEGATED TO THE CEO. THE CEO BASES THE COMPENSATION ON COMPARABILITY STUDIES FOR SIMILAR POSITIONS IN SIMILARLY SIZED NON-PROFIT ORGANIZATIONS. TOTAL COMPENSATION IS INCLUDED IN THE ANNUAL BUDGET AND REVIEWED BY THE BOARD AT THE ANNUAL BOARD MEETING. FORM 990, PAGE 6, PART VI, LINE 17 LOUISIANA, MAINE, MARYLAND, MASSACHUSETTS, MICHIGAN, MISSOURI, NORTH DAKOTA FORM 990, PAGE 6, PART VI, LINE 19 THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY, AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART VIII GLOBAL, PURSUANT TO ITS ARTICLES OF INCORPORATION AND BYLAWS, ENGAGES IN FUNDRAISING ACTIVITIES FOR ITS AFFILIATES (E.G. THE LINDA CRNIC INSTITUTE FOR DOWN SYNDROME, ANNA AND JOHN J. SIE CENTER FOR DOWN SYNDROME). ON OCCASION, GLOBAL GENERATES DONATIONS THAT ARE GIFTED DIRECTLY TO SUCH AFFILIATES. THESE DONATIONS ARE NOT REPORTED AS CONTRIBUTION REVENUE ON THE FORM 990, PART VIII. WHILE THESE AMOUNTS ARE NOT REFLECTED IN THE FORM 990, IT IS IMPORTANT TO NOTE THESE AMOUNTS ARE CAPTURED IN THE GLOBAL ANNUAL REPORT AND FOOTNOTED IN THE AUDITED FINANCIAL STATEMENTS. CONSIDERATION OF THE CONTRIBUTIONS TO AFFILIATES IS IMPORTANT TO ACCURATELY REFLECT THE EFFICACY AND SCOPE OF GLOBAL'S EFFORTS. THE AMOUNT DONATED DIRECTLY TO AFFILIATES IN 2022, THROUGH JULY 31, WAS 515,000. FORM 990, PART IX, LINE 11G ADVOCACY 42,800 0 0 OTHER PROFESSIONAL FEES 87,435 69,991 20,156 TOTAL 130,235 69,991 20,156 FORM 990, PAGE 12, PART XII, LINE 2C THE BOARD TREASURER, THE PRESIDENT & CEO, AND CERTAIN MEMBERS OF MANAGEMENT MEET WITH THE EXTERNAL AUDITORS ON AN ANNUAL BASIS TO REVIEW THE FINANCIAL STATEMENTS IN DETAIL. 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