2023-12-13T06:56:41-06:00 2022-12-31 721396621 CARR RIGGS & INGRAM LLC 7411 FULLERTON STREET SUITE 300 JACKSONVILLE FL 32256 990 2022-01-01 592624901 STOP CHILDREN'S CANCER INC STOP 3523772622 2622 NW 43RD STREET B3 GAINESVILLE FL 32606 JAMES ROBERTSON OFFICER 3523772622 2023-12-11 1 JAMES ROBERTSON 999009999 1 DANA ALEXANDER P01425283 9043566023 2023-12-11 3 AAL1 IAL1 2022 2023-04-26 12:10:37Z JAMES ROBERTSON 2622 NW 43RD STREET SUITE B3 GAINESVILLE FL 32606 1460742 0 X WWW.STOPCHILDRENSCANCER.ORG X 1981 FL THE MISSION OF STOP CHILDREN'S CANCER IS THE PREVENTION, CONTROL AND CURE OF CHILDHOOD CANCERS. FUNDS ARE RAISED ANNUALLY AND AWARDED TO SELECTED RESEARCH AGENCIES. 19 19 2 164 0 0 211431 381820 0 0 85767 -5828 119518 107732 416716 483724 200000 250000 0 0 73989 73991 0 0 5760 48200 41214 322189 365205 94527 118519 1465671 1445769 1749 1882 1463922 1443887 X THE MISSION OF STOP CHILDREN'S CANCER IS THE PREVENTION, CONTROL AND CURE OF CHILDHOOD CANCERS. FUNDS ARE RAISED ANNUALLY AND AWARDED TO SELECTED RESEARCH AGENCIES. 0 0 330644 250000 SINCE ITS INCEPTION IN 1981, STOP CHILDREN'S CANCER HAS RAISED OVER $10 MILLION, INCLUDING THE BONNIE'S LEGACY ENDOWMENT FUND WHICH HAS APPROXIMATELY $1 MILLION IN PERPETUITY. IN ADDITION, AS A RESULT OF THESE DONATIONS, WELL IN EXCESS OF $20 MILLION IN NATIONAL CANCER INSTITUTE/NATIONAL INSTITUTE OF HEALTH (NIH) GRANTS HAVE BEEN AWARDED.STOP CHILDREN'S CANCER / BONNIE R. FREEMAN CLINICAL TRIAL FUND:THIS FUND CONTINUES TO SUPPORT THE PROGRAM INFRASTRUCTURE, INCLUDING THE DIRECTOR'S POSITION WHO HAS LED OUR EFFORTS IN GROWING THE PEDIATRIC CANCER TRIALS. DESPITE A YEAR WHERE WE HAVE CONTINUED TO BATTLE COVID, THE PEDIATRIC ONCOLOGY CLINICAL TRIALS CONTINUE TO BE ONE OF THE MOST PRODUCTIVE IN THE CANCER CENTER. THIS INCLUDES ENROLLING 16 CHILDREN ON PEDIATRIC CANCER TREATMENT TRIALS, 67 PATIENTS ON BASIC SCIENCE, SUPPORTIVE CARE, OR SURVIVORSHIP STUDIES, AND AN ADDITIONAL 53 ENROLLED ON THE CHILDREN'S ONCOLOGY GROUP REGISTRY AND BIOLOGY STUDY DURING THE ACADEMIC YEAR. IN ADDITION, OUR TEAM ACTIVELY RECRUITED 4 SUBJECTS TO DR. L;AGMAY'S INVESTIGATOR-INITIATED TRIAL USING ENGINEERED DONOR GRAFTS FOR PEDIATRIC STEM CELL TRANSPLANT IN CHILDREN WITH LEUKEMIA THAT WILL TAKE PLACE NOT ONLY AT UF, BUT ALSO 5 OTHER TRANSPLANT CENTERS IN FLORIDA. FUNDING HAS NOW BEEN SECURED TO OPEN AN INVESTIGATOR-INITIATED TRIAL USING A CANCER VACCINE TO IMPROVE CURES IN PATIENTS WITH HIGH RISK AND RELAPSED OSTEOSARCOMA.STOP CHILDREN'S CANCER / KIMBERLY H. FLAITZ RESEARCH GRANT:A KEY GOAL OF THIS RESEARCH FUND WAS TO SUPPORT WORK ON DEVELOPING VACCINES FOR PEDIATRIC OSTEOSARCOMA WITH THE ULTIMATE GOAL OF OPENING A TRIAL USING ONE OF THESE TECHNOLOGIES IN CHILDREN. THE FUNDING CONTINUED TO SUPPORT THE SALARY OF DR. MATTHEW CASCIO WORKING ON DEVELOPING LIPID-NANOPARTICLE(NP) VACCINES AND CAR T CELL IMMUNOTHERAPY. IN PARTNERSHIP WITH DRS. CASCIO AND MILNER (MENTOR), WE HAVE ESTABLISHED A JOINT PEDIATRIC AND LARGE-ANIMAL CANCER IMMUNOTHERAPY PROGRAM. TOGETHER WE HAVE MANUFACTURED CLINICAL GRADE LIPID-NANOPARTICLE VACCINES. IN PET-DOGS WITH SPONTANEOUSLY OCCURRING OSA, WE HAVE SHOWN THAT LIPID-NP VACCINES ELICIT IMMUNE RESPONSES WITH IMPROVING THE DOGS' LONG-TERM SURVIVAL.LYRICS FOR LIFE / STOP CHILDREN'S CANCER JEFFREY A. BLOCK RESEARCH GRANT:THIS FUNDING SUPPORTED DR. PAUL CASTILLO, WHO IS WORKING ON DEVELOPING NOVEL IMMUNOTHERAPIES TO TREAT REFRACTORY CANCERS, ESPECIALLY T-CELL LEUKEMIAS AND T-CELL LYMPHOMAS. GIVEN THE STRIKING RESULTS OF A COMBINATIONAL APPROACH USING CAR T CELLS AND RNA NANOPARTICLE-BASED VACCINES, HE CONTINUES HIS WORK USING THIS APPROACH THAT WAS REPORTED IN 2021. HE HAS SHOWN PROMISING DATA USING THIS IMMUNOTHERAPEUTIC COMBINATIONAL APPROACH FOR ACUTE MYELOID LEUKEMIA, METASTATIC OSTEOSARCOMA, AND METASTATIC MELANOMA. THE PROMISE OF THIS APPROACH IS THAT IT CONTINUES TO HOLD ANTICANCER EFFICACY FOR A WIDE RANGE OF CANCERS. THIS FUNDING ALSO SUPPORTED A REVIEW PAPER THAT WAS PUBLISHED, DESCRIBING TUMOR MODELS FOR EVALUATION OF CAR T CELLS. 330644 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 1 3 0 1 2 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 FL X TRACY CHRISTIE 3523772622 2622 NW 43RD STREET SUITE B3 GAINESVILLE FL 32606 X PHYLLIS BAUCOM SECRETARY 1.00 X X 0 0 0 LYNN BENNETT BOARD MEMBER 1.00 X 0 0 0 JIM BRANDENBURG VICE PRESIDENT 1.00 X X 0 0 0 BECKY DE MARIE BOARD MEMBER 1.00 X 0 0 0 PAT DOOLEY BOARD MEMBER 1.00 X 0 0 0 BETH FLAITZ BOARD MEMBER 1.00 X 0 0 0 CAROLYNE R FREEMAN BOARD MEMBER 1.00 X 0 0 0 HOWARD FREEMAN BOARD MEMBER 1.00 X 0 0 0 LAUREL FREEMAN BOARD MEMBER 1.00 X 0 0 0 JAY HUTTO BOARD MEMBER 1.00 X 0 0 0 MAC MCCARTY BOARD MEMBER 1.00 X 0 0 0 STORM ROBERTS BOARD MEMBER 1.00 X 0 0 0 JAMES ROBERTSON PRESIDENT 1.00 X X 0 0 0 CINDY SMYDER TREASURER 1.00 X X 0 0 0 MARY ANNE WESTPHAL BOARD MEMBER 1.00 X 0 0 0 LARRY HARTFIELD VICE PRESIDENT 1.00 X X 0 0 0 JIM CARNES BOARD MEMBER 1.00 X 0 0 0 MARC SPIWAK BOARD MEMBER 1.00 X 0 0 0 JAMES QUESENBERRY BOARD MEMBER 1.00 X 0 0 0 0 0 0 0 0 0 0 0 245742 136078 65369 381820 34863 34863 854678 895369 -40691 -40691 -40691 189381 245742 81649 107732 107732 483724 0 0 101904 250000 250000 68727 48109 17182 3436 5264 3685 1316 263 2118 1482 530 106 5295 3706 1324 265 163 114 41 8 9265 6486 2316 463 5209 3646 1302 261 3237 2266 809 162 4021 2815 1005 201 3093 2165 773 155 DUES & SUBSCRIPTIONS 8771 6139 2193 439 MISCELLANEOUS 42 31 10 1 365205 330644 28801 5760 155576 185440 2416 0 159015 55311 99257 103704 1208422 1156625 1465671 1445769 1749 1882 0 1749 1882 X 1463922 1443887 1463922 1443887 1465671 1445769 118519 -138554 0 X 0 0 0 X 247423 127879 245286 211431 381819 1213838 247423 127879 245286 211431 381819 1213838 149133 1064705 23320 29774 36326 39355 34863 163638 1377476 189381 0.77290 0.58710 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 140000 47250 92750 19015 8061 10954 103704 BEAR 155931 34566 121365 0 4734 GOLF 129119 102192 26927 7802 19374 8884 2306 5 150073 108984 41089 4514 8275 15461 5850 4449 435123 245742 189381 12316 27649 24345 5850 11489 81649 107732 1 UNIVERISITY OF FLORIDA FOUNDATION PO BOX 14425 GAINESVILLE FL 32604 590974739 501(C)(3) 250000 0 TO FUND PEDIATRIC CLINICAL TRIAL PROGRAMS AT THE UNIVERSITY OF FLORIDA. PART I, LINE 2: BOARD OF DIRECTORS RECEIVES SCHEDULED PROGRESS REPORTS WITH REGARD TO THE RESEARCH FUNDED BY THE GRANT. X 5 8445 FAIR MARKET VALUE X OTHER 6 56924 FAIR MARKET VALUE 0 1 0 FORM 990, PART VI, SECTION A, LINE 2 HOWARD FREEMAN - DIRECTOR AND LAUREL FREEMAN - DIRECTOR ARE SPOUSES CAROLYNE FREEMAN - DIRECTOR IS THE DAUGHTER OF LAUREL FREEMAN - DIRECTOR CAROLYNE FREEMAN - DIRECTOR IS THE DAUGHTER OF HOWARD FREEMAN - DIRECTOR FORM 990, PART VI, SECTION B, LINE 11B A COPY OF THE 990 IS PROVIDED TO THE PRESIDENT AND TREASURER PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C THE ORGANIZATION ENFORCES COMPLIANCE WITH THE CONFLICT OF INTEREST POLICY BY REQUIRING ANY DIRECTOR TO DISCLOSE IF THERE IS A CONFLICT PRIOR TO VOTING ON ANY GIVEN ISSUE. FORM 990, PART VI, SECTION B, LINE 15 WHEN NECESSARY, THE EXECUTIVE COMMITTEE APPOINTS A REVIEW COMMITTEE TO REVIEW COMPENSATION PACKAGES. THE REVIEW COMMITTEE WILL THEN BRING BACK FINDINGS TO THE EXECUTIVE COMMITTEE FOR DISCUSSION. AFTER THIS REVIEW, THE COMPENSATION PACKAGES WOULD BE BROUGHT TO THE FULL BOARD TO BE VOTED ON AND APPROVED. FORM 990, PART VI, SECTION C, LINE 19 GOVERNING DOCUMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.