2023-11-14T18:21:18-06:00 2022-12-31 133628255 CONDON O'MEARA MCGINTY & DONNELLY LLP ONE BATTERY PARK PLAZA 7TH FL NEW YORK NY 10004 990 2022-01-01 202014968 CHARLEY'S FUND INC CHAR 4135280400 635 MAIN STREET SUITE 3 GREAT BARRINGTON MA 01230 TRACY KRAMER SECKLER CO-FOUNDER/CEO 4135280400 2023-11-10 1 TRACY KRAMER SECKLER 999009999 0 ALEXANDER LAZZARUOLO P01775353 2126617777 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z TRACY KRAMER SECKLER 635 MAIN STREET SUITE 3 GREAT BARRINGTON MA 01230 674178 0 X WWW.CHARLEYSFUND.ORG X 2004 MA TO ACCELERATE THE DEVELOPMENT OF LIFE-SAVING TREATMENTS FOR DUCHENNE MUSCULAR DYSTROPHY "DMD" 4 1 3 3 0 0 1779280 729763 0 0 2144 756 201 -77534 1781625 652985 1250500 1250500 0 0 460429 80179 0 0 68858 100937 116705 1811866 1447384 -30241 -794399 5463767 4104795 743575 179002 4720192 3925793 X CHARLEY'S FUND'S SINGULAR MISSION IS TO SUPPORT THE DEVELOPMENT OF TREATMENTS AND A CURE FOR DUCHENNE MUSCULAR DYSTROPHY (DMD). WE IDENTIFY AND DIRECT FUNDING TO THE MOST COMPELLING RESEARCH AND TREATMENT PROGRAMS RELATED TO DMD AND, (CONT. ON SCH. O.) 0 0 1336941 1250000 SEE SCHEDULE O 500 500 1336941 1 1 0 0 0 0 0 0 0 1 1 0 1 0 0 0 0 1 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 0 0 0 1 1 1 0 0 0 1 7 0 1 3 1 0 0 0 0 0 0 0 0 0 0 0 0 X 4 1 1 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 CA CT FL IL MA NJ NY OH WA X SARAH DONALDSONTHE FUND 4135280400 635 MAIN ST STE 3 GREAT BARRINGTON MA 01230 BENJAMIN SECKLER MD PRESIDENT 15.00 X X 0 0 0 EARL KRAMER TREASURER 2.00 X X 0 0 0 RANDY REIFF DIRECTOR 2.00 X 0 0 0 TRACY KRAMER SECKLER DIRECTOR 40.00 X 13146 0 0 13146 0 0 0 0 0 0 0 729763 19157 729763 6693 6693 15256 21193 -5937 -5937 -5937 LOSS ON INVESTEMNT IN LLC 900099 -77534 -77534 -77534 652985 0 0 -76778 1250500 1250500 13146 8367 1353 3426 59427 37822 6117 15488 1475 608 554 313 6131 3735 1015 1381 28029 28029 318 318 61172 28175 32997 7405 1046 614 5745 1200 398 398 404 770 770 319 319 1668 556 556 556 OTHER 12149 1289 2312 8548 SCIENTIFIC CONSULTING 3675 3675 1447384 1336941 41585 68858 1097 1097 1367338 666241 886240 309214 2462 2462 3176 180 12078 11477 920 601 3202534 3125000 5463767 4104795 9398 49025 734177 129977 743575 179002 X 3880191 3637792 840001 288001 4720192 3925793 5463767 4104795 -794399 0 X 0 1 X 1 0 X 2757831 2082116 1178574 1779280 729763 8527564 2757831 2082116 1178574 1779280 729763 8527564 2600969 5926595 11152 13926 2547 2279 6693 36597 589 111 -77534 -76834 8487327 100966 0.69830 0.74550 X SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME: OTHER - 2020 AMOUNT: $ 500. NET GAIN LOSS ON INVESTMENTS OF LLC - 2020 AMOUNT: $ 89. 2021 AMOUNT: $ 111. 2022 AMOUNT: $ -77,534. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 840001 552000 288001 1098758 645000 903757 840001 1417892 319134 1098758 1250000 979558 811666 1417892 94621 1825000 669621 1250000 1.00000 0 0 12078 11477 601 601 INVESTMENT - WIDE VISION LLC 125000 C INVESTMENT - AKASHI THERAPEU. 3000000 C 3125000 PART V, LINE 4: TEMPORARILY RESTRICTED NET ASSETS CONSIST OF CONTRIBUTIONS THAT ARE RESTRICTED BY THE DONOR FOR A SPECIFIC PURPOSE OR RELATE TO FUTURE PERIODS. 1 UMASS MEMORIAL FOUNDATION 333 SOUTH ST SHREWSBURY MA 01545 043108190 501(C)(3) 1250000 0 RESEARCH GRANT 1 PART I, LINE 2: ALL GRANTS ARE PROVIDED UNDER CONTRACTS WITH THE GRANT RECIPIENTS. THE CONTRACTS REQUIRE GRANTEES TO MEET CERTAIN EVENT AND PERFORMANCE MILESTONES AND PERIODIC PROGRESS REPORTS TO CHARLEY'S FUND, INC. ARE REQUIRED. THE BOARD OF DIRECTORS REVIEWS AND APPROVES GRANTS ACCORDING TO THE ORGANIZATION'S POLICY ON FUNDING AND EXPENSE APPROVALS. X 0 0 0 0 0 0 0 0 0 X 5 19157 FMV 0 1 0 PART III - LINE 1 IMPORTANTLY, AMPLIFY THE IMPACT OF THAT FUNDING WITH STRATEGIC PROBLEM-SOLVING SUPPORT TO BOTH AWARDEES AND THE BROADER DMD RESEARCH COMMUNITY. TO BEAT DMD, IT'S NOT ENOUGH TO FIND THE BEST RESEARCH; WE ALSO MUCH PROACTIVELY IDENTIFY AND KNOCK DOWN HURDLES THAT STAND IN THE WAY OF EFFICIENT DRUG DEVELOPMENT. SINCE INCEPTION, WE HAVE DIRECTED MORE THAN $49M IN FUNDING TO THESE EFFORTS, LEVERAGING BOTH OUR OWN FUNDING AS WELL AS FUNDING FROM OTHER DMD PATIENT ORGANIZATIONS TO IDENTIFY AND SUPPORT THE BEST SCIENCE IN PURSUIT OF TREATMENTS AND A CURE FOR DMD. IN 2022, WE DEDICATED A TOTAL OF $1,336,940 TO OUR PROGRAMMATIC EFFORTS. OF THIS, $1,250,500 WAS DEDICATED TO GRANTS AND ALLOCATIONS, AND $86,440 WAS DEDICATED TO OTHER PROGRAMMATIC EXPENSES. PART III - LINE 4A WE CONTINUED OUR SUPPORT OF THE DUCHENNE PROGRAM AT UMASS MEDICAL SCHOOL, WHICH WE CREATED IN 2018. THE PROGRAM IS POWERED BY A UNIQUE COLLABORATION AMONG THE MEDICAL, RESEARCH, AND PATIENT COMMUNITIES. FOUNDING CLINIC DIRECTOR DR. BRENDA WONG, HOST INSTITUTION UMASS MEDICAL CENTER AND MEDICAL SCHOOL, AND CHARLEY'S FUND WORK JOINTLY TO ENSURE THAT THE DUCHENNE PROGRAM THE LARGEST DEDICATED DUCHENNE CLINIC IN THE NORTHEAST US DELIVERS WORLD-CLASS RESULTS ON THREE KEY GOALS: DELIVER COMPREHENSIVE, INTEGRATED CARE TO PATIENTS HOST CUTTING-EDGE CLINICAL TRIALS DRIVE ORIGINAL RESEARCH AND DISCOVERIES TO POWER THE NEXT WAVE OF BREAKTHROUGHS THE DUCHENNE PROGRAM, NOW IN ITS FOURTH YEAR, HAS NEARLY 400 PATIENTS IN ITS DIRECT CARE AND CONTINUES TO BENEFIT PATIENTS WORLDWIDE EVEN IF THEY DO NOT ENTER ITS DOORS IN PERSON THROUGH SPONSORED CLINICAL TRIALS, ORIGINAL RESEARCH, AND SHARING BEST PRACTICES IN RESEARCH AND CARE WITH THE BROADER COMMUNITY. FORM 990, PART VI, SECTION A, LINE 2 BENJAMIN SECKLER, MD (BOARD CHAIRMAN), IS HUSBAND TO TRACY KRAMER SECKLER (BOARD MEMBER). EARL KRAMER (TREASURER), IS FATHER TO TRACY KRAMER SECKLER (BOARD MEMBER). FORM 990, PART VI, SECTION B, LINE 11B NO REVIEW WAS OR WILL BE CONDUCTED. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS, DIRECTORS AND KEY EMPLOYEES MUST REVIEW THE POLICY ANNUALLY AND SIGN A DECLARATION THAT THEY HAVE COMPLIED WITH THE POLICY. FORM 990, PART VI, SECTION B, LINE 15 COMPENSATION OF TOP MANAGEMENT AND OFFICERS OF THE ORGANIZATION IS DEVELOPED IN CONSIDERATION OF PERFORMANCE AND REVIEW OF RELEVANT COMPETITIVE BENCHMARKS AND SUBMITTED TO FINANCE BOARD MEMBERS FOR APPROVAL. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. CHARLEY'S FUND VENTURES LLC 635 MAIN STREET GREAT BARRINGTON MA 01230 275009330 FUND RAISING MA 3000601 N/A WIDE VISION DMD CAPITAL LLC 2266 WEST END NEW YORK NY 10025 202014968 INVESTMENT MA N/A RELATED 125000 0 0 DMD SOLUTIONS LLC 635 MAIN STREET GREAT BARRINGTON MA 01230 271107747 INVESTMENT MA N/A RELATED 0 0 TCW CATALYST LLC 4904 MERILANE AVE EDINA MN 55436 208875302 INVESTMENT MN N/A RELATED 0 0 DART THERAPEUTICS LLC 635 MAIN STREET GREAT BARRINGTON MA 01230 900600955 INVESTMENT MA N/A RELATED -84902 0 0 AKASHI THERAPEUTICS INC 245 FIRST ST 18TH FLOOR CAMBRIDGE MA 02142 DRUG DEVELOPMENT MA CHARLEY'S FUND C 3000000 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0