2023-11-13T16:01:09-06:00 2022-12-31 390974031 WEGNER CPAS LLP 419 N LEE ST ALEXANDRIA VA 223142301 990 2022-01-01 811030889 PULMONARY HYPERTENSION CARE CENTERS INC PULM 3015653004 1629 K ST NW 300 WASHINGTON DC 20006 MATT GRANATO PRESIDENT AND CEO 3015653004 2023-11-13 1 MATT GRANATO 999009999 1 GLENN MILLER CPA P00086726 7035190990 2023-11-03 3 AAL1 IAL1 2022 2023-04-26 12:10:37Z X MATT GRANATO 1629 K ST NW 300 WASHINGTON DC 20006 653851 0 X PHASSOCIATION.ORG X 2015 MD TO ESTABLISH A PROGRAM OF ACCREDITED CENTERS WITH EXPERTISE IN PULMONARY HYPERTENSION TO IMPROVE OVERALL QUALITY OF CARE AND LONG-TERM OUTCOMES OF PATIENTS WITH THIS LIFE THREATENING DISEASE. X 8 8 0 150 0 0 4089 1351 452500 652500 0 0 0 0 456589 653851 18000 26000 0 0 0 0 0 0 0 704806 657626 722806 683626 -266217 -29775 426651 0 581272 0 -154621 0 X TO ESTABLISH A PROGRAM OF ACCREDITED CENTERS WITH EXPERTISE IN PULMONARY HYPERTENSION TO IMPROVE OVERALL QUALITY OF CARE AND LONG-TERM OUTCOMES OF PATIENTS WITH THIS LIFE THREATENING DISEASE. 0 0 389968 26000 302500 PULMONARY HYPERTENSION CARE CENTERS (PHCC ACCREDITATION): THE PULMONARY HYPERTENSION ASSOCIATION (PHA) ESTABLISHED ITS PH CARE CENTERS (PHCC) PROGRAM TO ACCREDIT CENTERS NATIONWIDE WITH SPECIAL EXPERTISE IN TREATING PULMONARY HYPERTENSION (PH), PARTICULARLY PULMONARY ARTERIAL HYPERTENSION (PAH), TO RAISE THE OVERALL QUALITY OF CARE AND OUTCOMES IN PATIENTS WITH THIS INCURABLE, PROGRESSIVE, LIFE-THREATENING RARE DISEASE. ESTABLISHED IN 2011, THE PHCC PROGRAM HAS ACCREDITED TWO TYPES OF CENTERS. CENTERS OF COMPREHENSIVE CARE (CCC) AND REGIONAL CLINICAL PROGRAMS (RCP). BOTH PHCC-ACCREDITED CCC'S AND RCP'S HAVE DEMONSTRATED A COMMITMENT TO ROVIDING EXPERT-LEVEL CARE BASED ON THE PULMONARY HYPERTENSION DIAGNOSIS AND TREATMENT CONSENSUS GUIDELINES. AT THE END OF 2022, THERE WERE 82 ACCREDITED CENTERS NATIONWIDE. 198578 0 350000 PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND A RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR QUALITY IMPROVEMENT OF CARE AND FOR RESEARCH OF RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. DATA IS COLLECTED IN CONJUNCTION WITH ROUTINE PH CARE TEAM VISITS APPROXIMATELY EVERY 3-6 MONTHS. AT THE END OF 2022, THERE WERE 68 CENTERS PARTICIPATING AND 12,323 PATIENTS EVER ENROLLED IN PHAR. 588546 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 1 1 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 X 8 8 0 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 0 0 0 MD X X TERESITA ESPOSITO 3015653004 1629 K ST NW STE 300 WASHINGTON DC 20006 DELPHINE YUNG CHAIR 3.00 3.00 X X 0 0 0 MATT WALL TREASURER 3.00 3.00 X X 0 0 0 ELIZABETH MIKLOS SECRETARY 3.00 X X 0 0 0 JOEL WIRTH IMMEDIATE PAST CHAIR 3.00 X X 0 0 0 COLLEEN BRUNETTI DIRECTOR 3.00 3.00 X 0 0 0 JESSIE KOHLER DIRECTOR 3.00 3.00 X 0 0 0 NICOLE CREECH DIRECTOR 3.00 3.00 X 0 0 0 MATT GRANATO PRESIDENT AND CEO 3.00 34.50 X X 0 277763 8333 TONY LAHNSTON PHA CHAIR 3.00 3.00 X X 0 0 0 TESS ESPOSITO VP - FINANCE 3.00 34.50 X 0 153671 11077 KEVIN HEYEN VP - DEVELOPMENT 3.00 34.50 X 0 102068 0 ELIZABETH JOSELOFF VP - QUALITY CARE & RESEAR 3.00 34.50 X 0 141663 16263 KAREN SMAALDERS VP - COMMUNICATIONS 1.00 36.50 X 0 140211 10673 KATHERINE KRONER VP - ADVOCACY & PATIENT EN 1.00 36.50 X 0 126077 10249 0 941453 56595 0 0 1 0 THE UNIVERSITY OF WASHINGTON 12455 COLLECTIONS DRIVE CHICAGO IL 60693 PROGRAM MANAGEMENT SERVICES 279326 1 1351 1351 REGISTRY REPORTS INCOM 900099 350000 350000 ACCREDITATION INCOME 900099 302500 302500 652500 653851 652500 0 0 X 26000 26000 299389 204309 95080 11900 11900 306813 306813 1839 1839 2423 2423 19229 19229 544 544 15489 15489 683626 588546 95080 0 294916 0 0 112500 0 0 0 0 0 0 19235 0 0 0 0 0 0 0 426651 0 100233 0 481039 0 581272 0 X -154621 0 -154621 0 426651 0 X -29775 184396 X 0 1 X 1 0 X X 1 PULMONARY HYPERTENSION ASSOCIATION 650880021 10 1 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 1 STIPENDS 25 26000 PART I, LINE 2: THE ORGANIZATION PERFORMS AN INITIAL ACCREDITATION EVALUATION, AS WELL AS REACCREDITATIONS TO MONITOR THE USE AND ELIGIBILITY OF THE STIPENDS. STIPENDS ARE PAID TO RECIPIENTS WHEN THE PHCC REVIEWERS SUBMIT THEIR EVAULATION REPORTS. 0 0 0 0 0 0 0 0 0 MATT GRANATO PRESIDENT AND CEO 0 277763 0 0 0 0 0 8333 0 0 0 286096 0 0 TESS ESPOSITO VP - FINANCE 0 153671 0 0 0 0 0 4610 0 6467 0 164748 0 0 ELIZABETH JOSELOFF VP - QUALITY CARE & RESEAR 0 141663 0 0 0 0 0 4250 0 12013 0 157926 0 0 KAREN SMAALDERS VP - COMMUNICATIONS 0 140211 0 0 0 0 0 4206 0 6467 0 150884 0 0 FORM 990, SCHEDULE J, PART I, LINE 3: PULMONARY HYPERTENSION CARE CENTERS, INC. (PHCC) DOES NOT HAVE DIRECT EMPLOYEES. PHCC SALARIES ARE ALLOCATED FROM PULMONARY HYPERTENSION ASSOCIATION (PHA) EMPLOYEES BASED ON NUMBER OF HOURS WORKED FOR PHCC. COMPENSATION POLICIES ARE SUBJECT TO THE PROCEDURES OF PHA, THE SUPPORTED ORGANIZATION, AS DESCRIBED IN ITS FORM 990. DISSOLUTION - TRANSFER OF NET ASSETS (DEFICIT) TO PULMONARY HYPERTENSION ASSOCIATION. 2022-12-31 184396 N/A 650880021 PULMONARY HYPERTENSION ASSOCIATION 1629 K ST NW STE 300 WASHINGTON DC 20006 501(C)(3) 1 0 0 0 1 1 1 1 0 PART I, LINE 2E: PERSON(S) INVOLVED: DELPHINE YUNG, MATT WALL, COLLEEN BRUNETTI, JESSIE KOHLER, NICOLE CREECH PART I, LINE 2E: EXPLANATION OF INVOLVEMENT: DELPHINE YUNG WAS CHAIR OF PHCC AMD A DIRECTOR ON THE PHA BOARD IN 2022. UPON DISSOLUTION OF PHCC, SHE REMAINS A DIRECTOR ON THE PHA BOARD.MATT WALL WAS TREASURER OF BOTH PHCC AND PHA IN 2022. UPON DISSOLUTION OF PHCC, HE REMAINS TREASURER OF PHA.COLLEEN BRUNETTI WAS A DIRECTOR ON THE BOARD OF PHCC AND IMMEDIATE PAST CHAIR OF PHA IN 2022. UPON DISSOLUTION OF PHCC, SHE REMAINS IMMEDIATE PAST CHAIR OF PHA.JESSIE KOHLER WAS A DIRECTOR ON THE BOARD OF BOTH PHCC AND PHA IN 2022. UPON DISSOLUTION OF PHCC, SHE REMAINS A DIRECTOR ON THE BOARD OF PHA.NICOLE CREECH WAS A DIRECTOR ON THE BOARD OF PHCC AND SECRETARY OF PHA IN 2022. UPON DISSOLUTION OF PHCC, SHE REMAINS SECRETARY OF PHA. FORM 990, PART VI, SECTION B, LINE 11B THE FINANCE AND AUDIT COMMITTEE REVIEWS THE FORM 990 WITH THE CPA FIRM PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C DIRECTORS AND OFFICERS ARE REQUIRED TO SUBMIT A CONFLICT OF INTEREST DISCLOSURE STATEMENT ON AN ANNUAL BASIS. THE ASSOCIATION REQUIRES ANY ACTUAL OR POTENTIAL CONFLICTS OF INTEREST TO BE DISCLOSED TO THE BOARD. THE BOARD MEMBER MUST RECUSE THEMSELVES FROM THE DISCUSSION AND VOTING ON ANY MATTER WHERE A CONFLICT OF INTEREST EXISTS. FORM 990, PART VI, SECTION C, LINE 19 THE ASSOCIATION'S FINANCIAL STATEMENTS AND 990 ARE AVAILABLE TO THE PUBLIC ON THE ASSOCIATION'S WEBSITE AND BY PUBLIC REQUEST. FORM 990, PART IX, LINE 11G OTHER PROFESSIONAL FEES: PROGRAM SERVICE EXPENSES 306,813. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 306,813. FORM 990, PART XI, LINE 9: TRANSFER OF NET ASSETS TO PHA 184,396. PULMONARY HYPERTENSION ASSOCIATION INC 1629 K ST NW STE 300 WASHINGTON DC 20006 650880021 EXTEND AND IMPROVE THE LIVES OF THOSE WITH PULMONARY HYPERTENSION FL 501(C)(3) LINE 10 0 0 0 0 0 0 0 0 0 0 0 1 0 1 1 1 0 0 0 0