2023-11-13T13:30:38-06:00 2023-06-30 383697447 NON PROFIT CAPITAL MANAGEMENT LLC 153 CLINTON RD STERLING MA 015642357 990 2022-07-01 222505819 EPILEPSY FOUNDATION NEW ENGLAND EPIL 6175066041 650 SUFFOLK STREET 405 LOWELL MA 01854 SUSAN LINN PRESIDENT & CEO 6175066041 2023-11-13 1 SUSAN LINN 999009999 0 BRIAN KINDORF P01463837 7819336726 0 AAL1 IAL1 2022 2023-04-26 12:10:37Z SUSAN LINN 650 SUFFOLK STREET 405 LOWELL MA 01854 6813476 0 X WWW.EPILEPSYNEWENGLAND.ORG X 1983 MA EPILEPSY FOUNDATION NEW ENGLAND'S (EFNE) MISSION IS TO HELP PEOPLE AND FAMILIES EFFECTED BY EPILEPSY IN NEW ENGLAND. 19 19 100 75 0 0 1373063 2578465 4040716 3910457 186205 186935 380058 -102402 5980042 6573455 219839 216067 0 0 2758094 3769218 0 0 951798 1696570 1920613 4674503 5905898 1305539 667557 9060661 10402302 305995 418683 8754666 9983619 X TO HELP PEOPLE AND FAMILIES AFFECTED BY EPILEPSY IN NEW ENGLAND. EFNE AIMS TO SERVE THE APPROXIMATELY 110,000 PEOPLE IN MAINE, MASSACHUSETTS, NEW HAMPSHIRE, RHODE ISLAND, AND VERMONT AFFECTED BY EPILEPSY AND THE PEOPLE WHO CARE FOR THEM. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW. 0 0 1652992 3907825 FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION AND SUPPORTS ITS ADVANCEMENT OF RESEARCH IN EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO SHOWCASE ADVANCES AND RAISE MONEY FOR RESEARCH, IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN UNDERSTANDING RESEARCH IN EPILEPSY. 2195044 216067 RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 12 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2023, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 48 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 50 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE'S 12-MEMBER VOLUNTEER REMEMBRANCE NETWORK PROVIDES BEREAVEMENT SUPPORT TO FAMILIES WHO HAVE LOST A LOVED ONE TO EPILEPSY. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY. 509529 2632 YOUTH SERVICES: EFNE PROVIDES 10-12 SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING 250-300 PARTICIPANTS. EFNE'S YOUNG LEADERS NETWORK ENGAGES 525 TEENS AND YOUNG ADULTS IN SKILL-BUILDING AND SUPPORT THROUGH MONTHLY MEETINGS AND COMMUNITY SERVICE. PARTICIPANTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBERS, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION-AGE YOUTH WITH COMMUNITY BUILDING AND SKILLS AS THEY TRANSITION TO ADULTHOOD FOR 40 PEOPLE PER YEAR. KIDS CONNECT BUILDS COMMUNITY AND PROVIDES RECREATION FOR 200+ MIDDLE SCHOOL STUDENTS. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET UPS PROVIDE SUPPORT TO OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED 800+ FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY. 4357565 1 1 0 0 0 0 0 0 0 1 1 0 0 0 1 1 0 1 0 0 0 0 0 0 1 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 1 25 0 1 100 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 19 19 1 0 0 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 MA RI NH ME VT X SUSAN LINN PRESIDENT & CEO 6172074301 650 SUFFOLK STREET 405 LOWELL MA 01854 ANDREA ANDERSON DIRECTOR 0.40 0.00 X 0 0 0 JASON BOURQUE DIRECTOR 0.40 0.00 X 0 0 0 JENNIFER CARDILLO DIRECTOR 0.40 0.00 X 0 0 0 BRETT DOWNING DIRECTOR 0.40 0.00 X 0 0 0 JOHN N GAITANIS MD DIRECTOR 0.40 0.00 X 0 0 0 PHILIP HAYDON PHD DIRECTOR 0.40 0.00 X 0 0 0 ZACHERY HERMES DIRECTOR 0.40 0.00 X 0 0 0 TIM HIGGINS DIRECTOR 0.40 0.00 X 0 0 0 DON HOLMES DIRECTOR 0.40 0.00 X 0 0 0 JESSICA FENNELL DIRECTOR 0.40 0.00 X 0 0 0 FRANCIS J KENNEALLY III DIRECTOR 0.40 0.00 X 0 0 0 CATHERINE MCCARTY DIRECTOR 0.40 0.00 X 0 0 0 TAMARA SACHARCZYK DIRECTOR 0.40 0.00 X 0 0 0 FRANCESCO SALITURO PHD DIRECTOR 0.40 0.00 X 0 0 0 KIMBERLEE SCHUMACHER DIRECTOR 0.40 0.00 X 0 0 0 TIM YOUNG DIRECTOR 0.40 0.00 X 0 0 0 ANDREW COLE MD CHAIR 1.50 0.00 X X 0 0 0 STEVE SIRAVO TREASURER 1.50 0.00 X X 0 0 0 JOE SIRAVO SECRETARY 1.50 0.00 X X 0 0 0 SUSAN LINN PRESIDENT & CEO 50.00 0.00 X 241474 0 22521 BRADLEY RICH PRESIDENT - DONATION CENTER 0.00 50.00 X 0 244880 25516 241474 244880 48037 3 0 1 0 NON PROFIT CAPITAL MANAGEMENT LLC 153 CLINTON ROAD PO BOX 211 STERLING MA 01564 ACCOUNTING 101422 1 721949 1477373 379143 2578465 DONATION CENTER 621500 3907825 3907825 CAMP FEES AND CAMPERSH 621500 2632 2632 3910457 186935 186935 109873 721949 240021 -130148 -130148 OTHER REVENUE 621500 27746 27746 27746 6573455 3910457 0 84533 160000 160000 56067 56067 509705 210275 27085 272345 2745140 2238770 148385 357985 22622 22145 477 251539 189121 14329 48089 240212 175625 13359 51228 142482 142482 27630 23355 1412 2863 411926 182726 185074 44126 74569 35381 32500 6688 153302 99928 8513 44861 158835 129039 7448 22348 50246 36792 2224 11230 28351 23354 2134 2863 5124 5124 25476 17871 1080 6525 TRUCK EXPENSES 454645 438811 15834 POSTAGE AND SHIPPING 231630 230322 106 1202 REPAIRS AND RENTAL 63203 27929 1755 33519 MISCELLANEOUS 62411 29736 5605 27070 30783 25194 2567 3022 5905898 4357565 596535 951798 1052321 985059 284067 32163 20000 800371 285578 136137 180879 796116 794624 6617 1492 7008302 8577201 24750 68026 9060661 10402302 298862 364092 7133 784 0 53807 305995 418683 X 8324935 9520218 429731 463401 8754666 9983619 9060661 10402302 667557 561396 0 X X 0 1 X 1 1 1 X 1030479 1485561 1906765 1373063 2578465 8374333 1030479 1485561 1906765 1373063 2578465 8374333 8374333 69802 97369 116905 186205 186935 657216 9763 1256 91104 409926 27746 539795 9571344 20830128 0.87490 0.86780 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 5392670 1068279 328027 6788976 5004726 1351977 -964033 5392670 3274882 1007023 722821 5004726 1798501 1309111 167270 3274882 521025 1229853 47623 1798501 0.99400 0.00500 0.00100 0 0 38432 38432 0 80241 78749 1492 677443 677443 0 1492 OPERATING LEASE LIABILITY 53807 53807 X 7170004 561396 35153 596549 6573455 0 6573455 5941051 35153 35153 5905898 0 5905898 PART X, LINE 2: THE FINANCIAL ACCOUNTING STANDARDS BOARD ("FASB") HAS ISSUED A STANDARD THAT CLARIFIES THE ACCOUNTING AND RECOGNITION OF INCOME TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN IN THE ORGANIZATION'S INCOME TAX RETURNS. THE ORGANIZATION ASSESSES THE LIKELIHOOD, BASED ON THEIR TECHNICAL MERIT, THAT TAX POSITIONS WILL BE SUSTAINED UPON EXAMINATION BASED ON THE FACTS, CIRCUMSTANCES AND INFORMATION AVAILABLE AT THE END OF EACH PERIOD. IF THE ORGANIZATION INCURS INTEREST OR PENALTIES AS A RESULT OF UNRECOGNIZED TAX POSITIONS THE POLICY IS TO CLASSIFY INTEREST ACCRUED WITH INTEREST EXPENSE DISCUSSIONAND PENALTIES THEREON WITH OPERATING EXPENSES. THE ORGANIZATION'S TAX FILINGS ARE SUBJECT TO AUDIT BY VARIOUS TAXING AUTHORITIES. THE ORGANIZATION IS NOT CURRENTLY UNDER EXAMINATION BY ANY TAXING JURISDICTION. PART V, LINE 4: TO BE USED FOR FUTURE SCHOLARSHIPS, CAMP, E-STUDIO AND ADVOCACY PROGRAMS. WALKS FOR EPILEPSY 395923 348478 47445 19572 51308 GALAS 281525 220592 60933 117976 24678 8 154374 152879 1495 26487 831822 721949 109873 117976 19572 102473 240021 -130148 1 THE BRIGHAM AND WOMEN'S HOSPITAL INC 75 FRANCIS STREET BOSTON MA 02115 042312909 501(C)(3) 75000 0 N/A N/A RESEARCH MASSACHUSETTS GENERAL HOSPITAL INC 55 FRUIT STREET BOSTON MA 02114 042697983 501(C)(3) 75000 0 N/A N/A RESEARCH BOSTON MEDICAL CENTER 960 MASSACHUSETTS AVENUE BOSTON MA 02118 043314093 501(C)(3) 5000 0 N/A N/A RESEARCH MAINE HEALTH 22 BRAMHALL STREET PORTLAND ME 04102 010238552 501(C)(3) 5000 0 N/A N/A RESEARCH 4 4 FINANCIAL AID & SCHOLARSHIPS 63 56067 N/A N/A PART I, LINE 2: EFNE RETAINS DOCUMENTATION SUPPORTING FUNDS DISBURSED FOR FINANCIAL AID, SCHOLARSHIPS AND RESEARCH GRANTS X X X X X 0 0 0 0 0 0 0 0 0 BRADLEY RICH PRESIDENT - DONATION CENTER 0 196380 0 48500 0 0 0 0 0 25516 0 270396 0 0 SUSAN LINN PRESIDENT & CEO 211474 0 30000 0 0 0 0 0 22521 0 263995 0 0 0 FORM 990, PART VI, SECTION A, LINE 1A THE EXECUTIVE COMMITTEE IS COMPOSED OF THE OFFICERS, THE PRESIDENT AND CEO, AND ADDITIONAL DIRECTORS APPOINTED BY THE CHAIR AND APPROVED BY THE BOARD OF DIRECTORS. THE PRESIDENT & CEO IS A NON-VOTING MEMBER OF THE EXECUTIVE COMMITTEE. THE CHAIR IS THE CHAIR OF THE EXECUTIVE COMMITTEE, WHICH MEETS AS NEEDED. THE PRESIDENT AND CEO OR ANY TWO OTHER MEMBERS OF THE EXECUTIVE COMMITTEE MAY CALL A MEETING OF THE COMMITTEE. IT SHALL HAVE PRIMARY RESPONSIBILITY FOR ROUTINE FISCAL MATTERS AND PERSONNEL, AND MAY MAKE RECOMMENDATIONS TO THE BOARD OF DIRECTORS AS TO ANNUAL BUDGET AND OTHER MATTERS. IT MAY ACT FOR THE BOARD OF DIRECTORS UPON MATTERS, WHICH WILL NOT AWAIT THE NEXT REGULAR MEETING OF THE BOARD OF DIRECTORS. MOTIONS SHALL BE RATIFIED AT THE FULL BOARD MEETING IMMEDIATELY FOLLOWING THE EXECUTIVE COMMITTEE MEETING AT WHICH MOTIONS WERE APPROVED. A MAJORITY OF CURRENT MEMBERS OF THE EXECUTIVE COMMITTEE SHALL CONSTITUTE A QUORUM. FORM 990, PART VI, SECTION A, LINE 2 BOARD MEMBERS, SUSAN LINN AND CHANDA LINN HAVE A FAMILY RELATIONSHIP BOARD MEMBERS STEVE SIRAVO AND JOE SIRAVO HAVE A FAMILY RELATIONSHIP FORM 990, PART VI, SECTION B, LINE 11B EFNE SHALL SUBMIT THE FORM 990 TO ITS BOARD OF DIRECTORS PRIOR TO THE FILING OF THE FORM 990. EFNE'S 990 SHALL BE SUBMITTED TO EACH MEMBER OF THE BOARD OF DIRECTOR'S VIA HARD COPY OR EMAIL AT LEAST 10 DAYS BEFORE THE FORM 990 IS FILED WITH THE IRS. FORM 990, PART VI, SECTION B, LINE 12C ALL BOARD MEMBERS SIGN A CONFLICT OF INTEREST STATEMENT INDICATING ACKNOWLEDGEMENT AND SUPPORT OF THE POLICY, AS WELL AS DISCLOSURE OF ANY POTENTIAL CONFLICTS. THE MINUTES OF THE BOARD MEETINGS EVIDENCE RECUSALS FROM MEETINGS, WHEN APPROPRIATE, AND RECORD ANY WAIVERS IN THE MINUTES. THE CONFLICT OF INTEREST POLICY IS MONITORED THROUGH BIMONTHLY MEETINGS OF THE NOMINATING COMMITTEE (THE CHAIR REVIEWS EACH MEMBER'S STANDING AND COMPLIANCE WITH BOARD POLICIES) AND THROUGH ANNUAL BOARD MEETINGS WHICH INCLUDE ORIENTATION FOR NEW BOARD MEMBERS AND REVIEW OF POLICIES FOR ALL MEMBERS (THE BOARD CHAIR AND PRESIDENT/CEO MONITOR ADMINISTER THESE TASKS). WHEN A CONFLICT IS SUSPECTED OR REPORTED, THE PRESIDENT/CEO AND BOARD CHAIR MEET WITH THE BOARD MEMBER TO DISCUSS THE CONFLICT AND TO DETERMINE THE APPROPRIATE COURSE OF ACTION FORM 990, PART VI, SECTION B, LINE 15 THE BOARD OF DIRECTORS ESTABLISHED A PERSONNEL COMMITTEE COMPRISED OF VOLUNTEER EXPERTS IN THE FIELD OF HUMAN RESOURCES. THE PERSONNEL COMMITTEE RECOMMENDS ANNUAL COMPENSATION OF THE PRESIDENT AND CEO AND KEY EMPLOYEES. THE COMMITTEE USES COMPARABILITY DATA TO LOOK AT SALARIES IN SIMILAR CHARITABLE ORGANIZATIONS, AS WELL AS A PERFORMANCE REVIEW TO DETERMINE SALARY RATES. THE PROCESS AND DECISIONS WOULD BOTH BE DOCUMENTED IN THE BOARD MINUTES. FORM 990, PART VI, SECTION C, LINE 19 EFNE MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE TO THE PUBLIC UPON REQUEST. FORM 990, PART XII, LINE 2C: THE PROCESS OF SELECTING THE INDEPENDENT AUDITOR DID NOT CHANGE BETWEEN YEARS. EPILEPSY FOUNDATION NEW ENGLAND DONATION CENTER LLC ONE DUNHAM ROAD 2ND FLOOR BILLERICA MA 02118 270491645 ALLOWS CITIZENS TO DONATE AND PURCHASE GENTLY USED ITEMS AT DISCOUNT PRICES MA 3912027 696501 EPILEPSY FOUNDATION NEW ENGLAND 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 EPILEPSY FOUNDATION NEW ENGLAND DONATION CENTER LLC P 144106 FAIR MARKET VALUE EPILEPSY FOUNDATION NEW ENGLAND DONATION CENTER LLC S 2100000 FAIR MARKET VALUE