2023-11-13T13:19:13-07:00 2023-06-30 990 2022-07-01 383225425 ALTERNATING HEMIPLEGIA OF CHILDHOOD FOUNDATION INC ALTE 2000 Town Center Suite 1900 Southfield MI 48075 Gene Andrasco Treasurer 8475306918 2023-11-13 1 1 11 1 AAL2 2022 2023-04-26 12:10:37Z Joshua Marszalek 120 E Ford St Connersville IN 473319725 352764 0 X ahckids.org X 1995 MI Our mission is to find the cause(s) of Alternating AHC), develop effective treatments and ultimately find a cure, while providing support to the families and children with AHC by funding research to accomplish these goals 11 11 0 100 234727 0 360891 115270 0 0 38570 41428 398273 193299 797734 349997 87166 31488 0 0 0 0 0 0 0 54002 167308 141168 198796 656566 151201 1183214 1359089 0 0 1183214 1359089 X Our mission is to find the cause(s) of AHC, develop effective treatments and ultimately a cure, while providing support to the families and children with AHC by funding research to accomplish these goals. Through research, education and family support we have One Mission - END AHC. 0 0 31488 31488 0 Grant given to the Dr. Steven Clapcote at Leeds University in the United Kingdom to develop mice models and develop an Antagonism of endogenous Na/K-ATPase inhibitors as a therapeutic approach for alternating hemiplegia of childhood and related diseases. 18880 18880 0 Grant to Alternating Hemiplegia of Childhood UK in support of the ATP1A3 Medical Symposium. In addition to the grant to the UK foundation we also sponsored a couple board members to attend the meeting to continue the collaboration of the global Alternating Hemiplegia organizations to End AHC. 42867 42867 0 The Alternating Hemiplegia of Childhood Foundation hosted a family meeting in June, 2023 in Glendale California. The conference allowed families to meet face-to-face, hear presentations on quality-of-life topics, get research updates from the leading projects in Alternating Hemiplegia, plus make connections that will last a lifetime. The meeting also included clinics where families met with researchers who are studying Alternating Hemiplegia. 2500 2500 0 See Schedule O, Statement 1 2500 2500 0 95735 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 X 11 11 0 0 0 0 0 0 0 1 1 0 0 1 1 1 0 0 0 0 0 0 MI X X X X Sharon Ciccodicola 3136637772 2000 Town Center Suite 1900 Southfield MI 48074 X Katelyn Wilson Director 2 X 0 0 0 Kate Byrne Director 2 X 0 0 0 Sharon Ciccodicola Director 5 X 0 0 0 Heather Gates Director 2 X 0 0 0 Bill Gerber Director 1 X 0 0 0 Cate Cohen Director 1 X 0 0 0 Joshua Marszalek President 7 X X 0 0 0 April Hawk Vice-President of Education & Family Support 5 X X 0 0 0 Vicky Platt Vice President of Research 5 X X 0 0 0 Gene Andrasco Treasurer 4 X X 0 0 0 Stephen Henderson Secretary 4 X X 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 115270 0 115270 0 41428 0 41428 0 0 0 0 0 0 0 0 0 0 0 0 0 188046 0 2767 185279 185279 0 8020 0 8020 0 8020 349997 0 234727 0 31488 31488 35750 35750 11160 11160 2243 2243 1365 1365 61747 61747 3510 3510 Other - Family Support 2500 2500 0 0 Other - License / Taxes & Fees 980 0 980 0 Other - Marketing 48053 0 48053 0 198796 95735 103061 0 183306 137440 999908 1221649 1183214 1359089 0 0 X 0 0 0 0 1183214 1359089 1183214 1359089 1183214 1359089 151201 24674 0 0 0 0 X 0 0 0 X 27418 23371 13917 13255 115270 193231 17167 8567 5752 6974 8020 46480 0 0 0 0 0 0 0 0 0 0 0 0 44585 31938 19669 20229 123290 239711 0 0 0 0 0 0 0 0 0 0 0 0 0 0 239711 8998 7084 5158 21318 41428 83986 0 0 0 0 8998 7084 5158 21318 41428 83986 0 0 0 0 0 0 0 0 53583 39022 24827 41547 164718 323697 0.74054 0.73745 0.25946 0.26255 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED Europe (including Iceland and Greenland) Dr. Clapcote at the University of Leeds in the UK. Development of mice models for the purpose of Antagonism of endogenous Na K ATPase inhibitors as a therapeutic approach for alternating hemiplegia of childhood. The aim is to reduced activity of NKA a3, due to heterozygous loss of function mutations in ATP1A3, is widely considered the underlying mechanism of AHC. Therefore, interventions that will increase NKA a3 enzymatic activity should improve the clinical symptoms. 31488 Wire transfer 0 0 1 0 0 0 0 0 0 Virtual Walk Fundraiser 136190 0 136190 0 0 0 0 0 1704 Warriors for Kathryn 35651 0 35651 0 0 0 0 0 0 1 16205 0 16205 0 0 0 0 0 1063 188046 0 188046 0 0 0 0 0 2767 2767 185279 Form 990, Part III, Line 4d The Alternating Hemiplegia of Childhood Foundation provides grants to families for the following expenses: Transportation for a medical appointment to see a specialist is not available locally. Transportation for medical testing is not available locally. Transportation, or other expenses, to the AHCF Family Meeting that create a hardship to attend Medical equipment deemed necessary but not covered by insurance or local organizations. The grants are for a maximum of $500 per family. We provided 5 grants this year Form 990, Part VI, Section B, Line 11b Copies of 990 forms are saved on a shared cloud storage site for the entire Board of Directors to review Form 990, Part VI, Section C, Line 18 The form 990 and supporting schedules are available on the Guidestar website www.guidestar.org Form 990, Part VI, Section C, Line 19 The financial statements, conflict of interest policy and form 990 with supporting schedules may be accessed by contacting Sharon Ciccodicola 2000 Town Center Suite 1900 Southfield MI 48075