2023-11-07T16:45:50-06:00 2022-12-31 521392008 GELMAN ROSENBERG & FREEDMAN 4550 MONTGOMERY AVE SUITE 800N BETHESDA MD 208142930 990 2022-01-01 721282316 HEMOPHILIA FEDERATION OF AMERICA INC HEMO 2026756984 999 NORTH CAPITOL STREET NE 301 WASHINGTON DC 20002 DANIEL KELSEY PRESIDENT AND CEO 2026756984 2023-11-07 1 DANIEL KELSEY 999009999 0 RICHARD J LOCASTRO CPA P00288314 3019519090 0 AAL1 IAL1 2022 2023-04-26 12:10:37Z DANIEL KELSEY 999 NORTH CAPITOL STREET NE 301 WASHINGTON DC 20002 5559810 0 X HTTPS://WWW.HEMOPHILIAFED.ORG X 1994 LA SEE PART III, LINE 1. 48 48 40 57 329000 96405 3967154 3613216 848545 1947269 178439 0 481568 -675 5475706 5559810 0 851801 0 0 2583235 2645965 0 0 1198058 1932216 2366641 4515451 5864407 960255 -304597 9019153 6691676 1932523 383996 7086630 6307680 X HEMOPHILIA FEDERATION OF AMERICA IS A NATIONAL NONPROFIT ORGANIZATION THAT ASSISTS, EDUCATES, AND ADVOCATES FOR THE BLEEDING DISORDERS COMMUNITY. 0 0 1245291 387984 72074 HFA RESEARCH - A COMMUNITY CENTERED, COMMUNITY FOCUSED, AND COMMUNITY DRIVEN PROGRAM AIMED AT IMPROVING THE LIVES OF BLEEDING DISORDERS COMMUNITY MEMBERS. RESEARCH TOPICS ARE IDENTIFIED BY THE COMMUNITY POPULATION AND FOCUSED ON PATIENT/COMMUNITY DATA. DATA IS COLLECTED NATIONALLY ONLINE AS WELL AS LOCALLY THROUGH HFA'S 50-PLUS MEMBER ORGANIZATIONS ACROSS THE COUNTRY. 1171107 57672 1546195 SYMPOSIUM CONFERENCE - A NATIONAL ANNUAL COMMUNITY-CERTIFICATION EDUCATIONAL CONFERNCE EVENT THAT DRAWS HUNDREDS OF PATIENTS AND THEIR FAMILIES.THIS CONFERENCE IS A PLACE WHERE COMMUNITY MEMBERS COME TOGETHER TO SHARE INFORMATION, LEARN ABOUT NEW ADVANCEMENT, AND BUILD A NETWORK OF SUPPORT. 771974 365630 HELPING HANDS - DESIGNED TO ESTABLISH A RAPID, NON-INVASIVE SOURCE OF RELIEF FOR EMERGENCY SITUATIONS FOR INDIVIDUALS AND FAMILIES IN THE BLEEDING DISORDERS COMMUNITY. EACH APPLICATION IS GIVEN CAREFUL CONSIDERATION AS TO THE PERSONAL CIRCUMSTANCES, WHILE ENSURING A MINIMUM INVASION OF PRIVACY FOR COMMUNITY MEMBERS. THE PROGRAM ALSO ASSISTS INDIVIDUALS WITH THE COSTS OF MEDICALLY NECESSARY ITEMS AND DURABLE MEDICAL EQUIPMENT. 397329 22832 GEARS FOR GOOD CHARITY BIKE RIDE - ENCOURAGES PEOPLE WITH BLEEDING DISORDERS TO LIVE HEALTHY, ACTIVE LIFESTYLES. GEARS FOR GOOD IS A CHARITY BIKE RIDE OFFERED TO RAISE FUNDS FOR THE HELPING HANDS PROGRAM. RIDERS ENJOY MEETING NEW PEOPLE AND BUILDING STRONGER FRIENDSHIPS ALONG THE WAY WHILE RAISING FUNDS FOR THIS IMPORTANT CAUSE. 557730 17683 OTHER ACTIVITIES - PROVIDES EDUCATIONAL AND ARTISTIC SCHOLARSHIPS TO MEMBERS OF THE BLEEDING DISORDERS COMMUNITY, A RESOURCE GUIDE FOR THE CONSUMERS, AND MAINTAINS A WEBSITE WITH INFORMATION ABOUT THE ORGAIZATION'S PROGRAMS AND SERVICES. THE ORGANIZATION ALSO PUBLISHES A QUARTERLY NEWSLETTER CALLED "DATELINE FEDERATION". IN ADDITION, THE ORGANIZATION COVERS THE COST OF ATTENDANCE TO MEETINGS OF THE DEPARTMENT OF HEALTH AND HUMAN SERVIES, THE BLOOD PRODUCTS ADVISORY COMMITTEE OF THE FDA, AND THE ADVISORY COMMITTEE ON BLOOD SAFETY AND AVAILABILITY, AND PARTICIPATION IN CONFERENCES AT THE INVITATION OF THE CENTER FOR DISEASE CONTROL. 518707 OUTREACH - HELPS INDIVIDUALS WITH BLEEDING DISORDERS AND THEIR CAREGIVERS LEARN HOW TO BECOME ADVOCATES ON THIER OWN BEHALF THROUGH IN-PERSON AND ONLINE TRAINING, TOOL KITS, AND WEV RESOURCES. EDUCATION AND TOOLS ARE PROVIDED TO PARTICIPATE IN MONITORING, LEARNING TO SELF-ADVOCATE, AND EDUCATING ABOUT FEDERAL AND STATE PUBLIC POLICIES THAT IMPACT THE LIVES OF PEOPLE LIVING WITH BLEEDIDNG DISORDERS. SOCIAL AND PRINT MEDIA ARE ACTIVELY UTILIZED TO EXTEND OUTREACH EFFORTS AND BRING COMMUNITY TOGETHER. FOUR PROGRAMS ARE INCLUDED IN OUTREACH: BLOOD BROTHERHOOD, BLOOD SISTERHOOD, HFA FAMILIES,AND OUTREACH EDUCATION 1473766 40515 4662138 1 1 0 0 0 0 0 0 0 0 0 0 0 0 1 0 0 0 0 0 0 0 0 0 0 0 0 1 1 1 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 82 0 1 40 1 1 1 0 0 0 0 0 0 0 0 0 0 0 X 48 48 0 0 0 0 0 0 0 1 1 0 0 0 1 1 1 1 1 1 1 0 X X DANIEL KELSEY 2026756894 999 NORTH CAPITOL STREET NW WASHINGTON DC 20001 ALLIE RITCEY CHAIR 1.00 X X 0 0 0 JOSEPH MARKOWITZ VICE CHAIR 1.00 X X 0 0 0 TRACY CLEGHORN PAST CHAIR 1.00 X X 0 0 0 LUCAS RUNION TREASURER 1.00 X X 0 0 0 GEORGE STONE SECRETARY 1.00 X X 0 0 0 STEPHEN LONG VICE CHAIR 1.00 X X 0 0 0 DAVID HUSKIE MEMBER AT LARGE 1.00 X 0 0 0 VICTORIA HUBBERT MEMBER AT LARGE 1.00 X 0 0 0 DANIEL MIKKOLA MEMBER AT LARGE 1.00 X 0 0 0 MARIA CHAVEZ MEMBER AT LARGE 1.00 X 0 0 0 ANNE-LOUISE WIRTHLIN MEMBER AT LARGE 1.00 X 0 0 0 MICHELLE PALMATIER BOARD MEMBER 1.00 X 0 0 0 LEIGH GOLDSTEIN BOARD MEMBER 1.00 X 0 0 0 MONICA DIAZ MATTEI BOARD MEMBER 1.00 X 0 0 0 STEPHANIE KRAMBRINK BOARD MEMBER 1.00 X 0 0 0 DEBRA SCHWARTZ BOARD MEMBER 1.00 X 0 0 0 CARSON OUELLETTE BOARD MEMBER 1.00 X 0 0 0 PATRICIA TUCKER BOARD MEMBER 1.00 X 0 0 0 CHERI WAKEHAM BOARD MEMBER 1.00 X 0 0 0 ALANE FOLEY BOARD MEMBER 1.00 X 0 0 0 JOURDAN WATKINS BOARD MEMBER 1.00 X 0 0 0 BERNADETTE FOX BOARD MEMBER 1.00 X 0 0 0 KIM MADEIROS BOARD MEMBER 1.00 X 0 0 0 NIKOLE SCHROEDER BOARD MEMBER 1.00 X 0 0 0 DANIELLE LEITNER BAXTER BOARD MEMBER 1.00 X 0 0 0 MATTHEW PORGES BOARD MEMBER 1.00 X 0 0 0 TYSHAWN CONSTANTINE BOARD MEMBER 1.00 X 0 0 0 AUSTIN HOLLAND BOARD MEMBER 1.00 X 0 0 0 NATASHA BURROUGHS BOARD MEMBER 1.00 X 0 0 0 SHARI LUCKEY BOARD MEMBER 1.00 X 0 0 0 KRISTINE MANNS BOARD MEMBER 1.00 X 0 0 0 RONALD STAAKE BOARD MEMBER 1.00 X 0 0 0 KASEY SHADE BOARD MEMBER 1.00 X 0 0 0 CHARLENE COWELL BOARD MEMBER 1.00 X 0 0 0 JESUS ESCOBEDO-SOTO BOARD MEMBER 1.00 X 0 0 0 LAURA PORTALES BOARD MEMBER 1.00 X 0 0 0 ASHLEY CASTELLO BOARD MEMBER 1.00 X 0 0 0 ANGELA BROWN BOARD MEMBER 1.00 X 0 0 0 BRITNEE VIEIRA BOARD MEMBER 1.00 X 0 0 0 JEREMY GRIFFIN BOARD MEMBER 1.00 X 0 0 0 TANYA RICCHI BOARD MEMBER 1.00 X 0 0 0 CARLA WELLS BOARD MEMBER 1.00 X 0 0 0 KATHERINE MEARS BOARD MEMBER 1.00 X 0 0 0 ESTEFANA MONGE-SOTELO BOARD MEMBER 1.00 X 0 0 0 DENA SHEPARD BOARD MEMBER 1.00 X 0 0 0 TAHA AMIR BOARD MEMBER 1.00 X 0 0 0 CARLETHA GATES BOARD MEMBER 1.00 X 0 0 0 SCOTT DOMOWICZ BOARD MEMBER 1.00 X 0 0 0 SHARON MEYERS PRESIDENT & CEO (UNTIL 5/31) 40.00 X 222810 0 12000 BARBARA KAVANAUGH INTERIM CEO 40.00 X 98013 0 270 MICHELLE BURG VP OPERATIONS (UNTIL 11/3) 40.00 X 110097 0 8808 430920 0 21078 2 0 1 0 0 44431 320000 3248785 3613216 SYMPOSIUM 611710 1546195 1546195 DATELINE ADVERTISING 900099 329000 329000 FEE FOR SERVICE CONTRA 812900 72074 72074 1947269 MENTAL HEALTH INITIATI 900099 -675 -675 -675 5559810 1618269 329000 -675 X 409994 409994 441807 441807 333093 288531 44562 2018268 1608000 410268 78514 78514 80520 55814 24706 135570 80840 54730 48566 48566 86106 67491 18615 636800 485129 151671 47229 42310 4919 376134 151789 224345 153602 85743 4211 63648 754443 608698 145745 9777 7028 2749 17456 17456 BOARD EXPENSES 127760 127760 SOFTWARE & SUBSCRIPTION 80218 40786 39432 MEMBERSHIP DUES 13982 2444 11538 PROFESSIONAL DEVELOPMEN 7640 6791 849 6928 6647 281 5864407 4662138 4211 1198058 1587891 353681 1132798 1707 312041 77515 31347 13333 5955076 6245440 9019153 6691676 290497 -12418 1400500 346469 241526 49945 1932523 383996 X 7086630 6307680 7086630 6307680 9019153 6691676 -304597 -590728 116375 0 X 0 0 0 X 5942302 5655623 5634568 3967154 3613216 24812863 5942302 5655623 5634568 3967154 3613216 24812863 10467268 14345595 26948 82483 100639 178439 0 388509 49254 -675 48579 25249951 2466814 0.56810 0.65820 X RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 0 PAYROLL LIABILITIES 5387 ACCRUED VACATION LEAVE 44558 49945 1 ASOCIACIN PUERTORRIQUEA DE HEMOFILIA Y CONDICIONES DE SANGRADO PO BOX 29005 SAN JUAN PR 009290005 660559280 501(C)(3) 10000 0 CUIDANDO DE TI,FACILITATED RAP SESSION - EVENT 7/8/2022, FACILITATED RAP SESSION FOR TEENS, MANEJO DEL DOLOR,TAKING CARE OF YOU (IN SPANISH) EVENT 5/15/2022 BDAND (BLEEDING DISORDERS OF ND) PO BOX 548 FARGO ND 58107 471684681 501(C)(3) 8000 0 COOKING DEMONSTRATION - EVENT 2/1/2022, COOKING DEMONSTRATION - EVENT 2/26/2022 - JOINT EVENT WITH ALASKA AND PACIFIC NORTHWEST,WHEN TO FREAK OUT AND PATHWAYS TO BEST CARE BLEEDING DISORDER ASSOCIATION OF SOUTH CAROLINA 25 WOODS LAKE ROAD STE 300 GREENVILLE SC 29607 237400632 501(C)(3) 12000 0 CARRIER GUILT RAP SESSION AND MIND HEART BODY CONNECTION,COOKING DEMONSTRATION - EVENT 2/26/2022 - JOINT EVENT WITH ALASKA AND PACIFIC NORTHWEST,WHEN TO FREAK OUT AND PATHWAYS TO BEST CARE BLEEDING DISORDERS ALLIANCE OF ND (V) PO BOX 548 FRAGO ND 58107 471684681 501(C)(3) 6000 0 MILD MATTERS, TRAUMA, TAKING CARE OF YOU BLEEDING DISORDERS FOUNDATION OF NORTH CA 260 TOWN HALL DR SUITE A MORRISVILLE NC 275605544 561273974 501(C)(3) 10000 0 BEYOND RECREATION - KEYNOTE,KINESIOTAPING, FINANCIAL WELLNESS 101, PATHWAY TO BEST CARE, BLEEDING DISORDERS SOUTHERN TIER P O BOX 538 BINGHAMTON NY 139020538 161490070 501(C)(3) 8000 0 MY STORY OF RESILIENCE & BLOOD SISTERHOOD OVEVIEW,PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,RAP SESSION: COPING WITH STRESS BLOOD BOND BLEEDING DISORDERS NETWORK 5626 FEATHERCREED RD MATTESON IL 604431148 472777844 501(C)(3) 6000 0 RAP SESSION - EVENT 6/18/2022,RAP SESSION - EVENT 7/16/2022 CENTRAL CALIFORNIA HEMOPHILIA FNDTN V P O BOX 163689 SACRAMENTO CA 958169689 237373643 501(C)(3) 10000 0 AGING WITH A BLEEDING DISORDER, ANGELA LAMBING RN AND AGES AND STAGES: EARLY CHILDHOOD, MINA NYUGEN, PSYD,COOKING WITH CHEF MIKE - BSIS, FINANCIAL WELLNESS,TAKING CARE OF YOU - PRESENTED BY DEBBIE DE LA RIVA, LPC EASTERN PENNSYLVANIA BLEEDING DISORDERS FOUNDATION SARAH PILACIK148 W STATE ST SUITE 305 KENNETT SQAURE PA 19348 231567876 501(C)(3) 12000 0 A PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,CANNABIS, CHRONIC PAIN & CAVEATS, MEMBER ORG REIMBURSEMENT, MY STORY OF RESILIENCE - EVENT 9/24/2022, RAP SESSION & GROWING UP WITH A BLEEDING DISORDER PANEL FLORIDA HEMOPHILIA ASSOCIATION (V) 915 MIDDLE RIVER DRSTE 501 FORT LAUDERDALE FL 333043561 592072352 501(C)(3) 12000 0 ED RAP SESSION - MESA REDONDA PARA PADRES 12/11/22,ED SESSION - EL MANEJO DEL DOLOR 12/10/22, GOT STRESS? AND WOMEN'S RAP SESSION - EVENTS 7/22/2022,MINA NGUYEN-DRIVER, PSYD TWO SESSIONS: INTIMACY AND TAKING CARE OF YOU - EVENT 8/5/2022 GATEWAY HEMOPHILIA ASSN 4976 EICHELBERGER ST ST LOUIS MO 631093233 431447057 501(C)(3) 10000 0 BUT I CAN'T BREING HOME THE BACON; COPING WITH MALE ROLE EXPECTATIONS AND NURTURING COUPLES' RELATIONSHIPS,ED SESSION - EL MANEJO DEL DOLOR 12/10/22, RAP SESSION,RAP SESSION: HOW WELL DO YOU KNOW YOUR PARTNER? HEMOPHILIA ALLIANCE OF MAINE 45 ROBERTSON BLVD SUITE 5 BREWER ME 04412 275057729 501(C)(3) 10000 0 2 RAP SESSIONS: ADVOCACY AND MENTAL HEALTH,2 SESSIONS: MY STORY OF RESILIENCE & MENTAL HEALTH 101 FOR TEENS,BEYOND RECREATION: PILLOW CASE SCAVENGER HUNT - EVENT 2/20/2022 HEMOPHILIA ASSN OF NEW YORK 131 WEST 33RD STREET NEW YORK NY 10001 135650955 501(C)(3) 10000 0 COOKING "DEMO,ED SESSION - AQUA THERAPY,ED SESSION - STRETCHING,LEGAL RIGHTS WITH A BLEEDING DISORDER,RAP SESSION/Q&A HEMOPHILIA ASSN OF THE CAPITAL AREA ATTN BRENDA BORDELON WASHINGTON DC 22150 541702561 501(C)(3) 8000 0 BSIS COOKING DEMONSTRATION - 1/23/2022,FINANCIAL WELLNESS 101,TAKING CARE OF YOU AND RAP SESSION HEMOPHILIA ASSOCIAITON OF NEW JERSEY 197 ROUTE 18 SOUTH EAST BRUNSWIC NJ 088161440 221964188 501(C)(3) 12000 0 COOKING DEMONSTRATION - EVENT 5/1/2022,FINANCIAL WELLNESS 101 -EVENT 6/12/2022,K TAPING - EVENT 8/21/2022,PLASMA RICH PROTEIN FOR BB,RAP SESSION - EVENT 3/13/2022,RAP SESSION FOR BB HEMOPHILIA FND OF MICHIGAN 1921 W MICHIGAN AVE YPSILANTI MI 481974816 381905673 501(C)(3) 14000 0 3-H PROCESSING THE CONTINUED IMPACT, AGING WITH A BLEEDING DISORDER, BARRIERS TO WOMEN/X LINKED DISORDERS,COOKING WITH CHEF MIKE - BSIS,FINANCIAL WELLNESS 101 - DEBRA JACOBS HEMOPHILIA FND OF SOUTHERN CALIFORNIA 959 E WALNUT ST SUITE 114 PASADENA CA 911065372 951916053 501(C)(3) 16000 0 BASICS OF SCHOOL ADVOCACY AND GOT STRESS? STRATEGIES FOR ANXIETY AND WORRY PRESENTED BY DR. JULIANA BLOOM,, PHD, BSIS RAP SESSION - ENGLISH - EVENT 3/19/2022, BSIS RAP SESSION - EVENT 3/19/2022,CARRIER GUILT & BALANCING FAMILY ISSUES,FINANCIAL WELLNESS 101, FACILITATED BY DEBRA JACOBS - EVENT 7/13/2022,MILD MATTERS, PRESENTED BY REBEKAH HECKATHORNE, RN HEMOPHILIA FOUNDATION OF MARYLAND 13 CLASS COURT PARKVILLE MD 212342261 521973777 501(C)(3) 18000 0 BUDGETING, YES YOU CAN (PART 2 OF 3),EVERYTHING CREDIT (PART 3 O 3) DEBRA JACOBS - EVENT 9/28/2022,FINANCIAL WELLNESS 101 (DEBRA JACOBS) PART 1/3,GAME OF LIFE 11/12/2022,INTENTIONAL TEAM BUILDING 11/12/2022,JOINT HEALTH WEBINAR - VIRTUAL,RAP SESSION - EVENT 5/21/2022,RAP SESSION - EVENT 5/21/2022,TEEN FITNESS 12/17/2022,WINTER HOLIDAY RAP SESSION 12/10/2022 HEMOPHILIA FOUNDATION OF NORTHERN CALIFORNIA ANDREA OROZCO 1155-C ARNOLD DRIVE 236 MARTINEZ CA 94553 941638703 501(C)(3) 8000 0 GOT STRESS SERIES: 3 SESSIONS - EVENT 4/8-9/2022,COPING WITH CHANGE - EVENT 5/21/2022,KINESIO TAPING HEMOPHILIA OF IOWA (V) P O BOX 36568 DES MOINES IA 50315 421334948 501(C)(3) 14000 0 HITTING A HOME RUN AT YOUR CLINIC VISIT, BLOOD BROTHERHOOD RAP SESSION,TWO PRESENTATIONS: FINANCIAL WELLNESS 101 (DEBRA JACOBS) & PATHWAYS TO CARE IN THE REPRODUCTIVE YEARS (DR. O'BRIEN),WHEN TO FREAK OUT OR CALMLY PICK UP THE PHONE LOUISIANA HEMOPHILIA FOUNDATION 3084 WESTFORD DRIVE SUITE A BATON ROUGE LA 708161675 510207472 501(C)(3) 16000 0 2 SESSIONS - MENTAL HEALTH 101 FOR TEENS & MY STORY OF RESILIENCE - EVENT 7/25/2022,2 SESSIONS: INTIMACY (COUPLES) AND RAP SESSION (INTIMACY),BLOOD SISTERHOOD PROGRAM OVERVIEW,IMPORTANCE OF COMMUNITY,IMPROV FOR TEENS CONNECTIONS & MENTAAL HEALTH, REAL TALK, MIDWEST HEMOPHILIA ASSOCIATION V 1471 WEST SOUTH STREET SUITE F OZARK MO 65721 431595395 501(C)(3) 16000 0 12/13/22, FAMILES,4 SESSIONS: KINESIO TAPING, ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH, AND A PATHWAY FOR BEST CARE; THE REPRODUCTIVE YEARS,KINESIO TAPING,MENTAL HEALTH 101 - EVENT 5/14/2022,ON THE HORIZON/EMERGING THERAPIES,RAP SESSION: HEALTH & WELLNESS. NEW ENGLAND HEMOPHILIA ASSOCIATION (V) 347 WASHINGTON STREET - SUITE 401 DEDHAN MA 020261862 046111861 501(C)(3) 14000 0 A PATHWAY FOR BEST CARE, THE REPRODUCTIVE YEARS - EVENT 8/27/2022,AGING WITH A BLEEDING DISORDER,INTIMACY AND FOCUSED RAP SESSION (2 SESSIONS BY THE SAME SPEAKER) - EVENT 3/19/2022,MANAGING PAIN ALTERNATIVELY,RAP SESSION,TAKING CARE OF YOU NORTHERN OHIO HEMOPHILIA FOUNDATIONINC 17407 LORAIN AVE SUITE 206 CLEVELAND OH 44111 341018501 501(C)(3) 10000 0 ADAPTING ACTIVITIES FOR JOINT HEALTH,IMPORTANCE OF COMMUNITY & CAREGIVING RAP SESSION,IMPORTANCE OF COMMUNITY CONNECTIONS - EVENT 6/12/2022,MENTAL HEALTH 101 OKLAHOMA HEMOPHILIA FOUNDATION V 9524 E 81ST ST SUITE B1510 TULSA OK 74133 730754621 501(C)(3) 10000 0 ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH AND A PATHWAY FOR BEST CARE: THE REPRODUCTIVE YEARS - EVENT 6/18/2022,COOKING DEMONSTRATION - EVENT 4/9/2022,TASK MASTER & WHAT'S IN A CLOWNS DR. BAG PACIFIC NORTHWEST BLEEDING DISORDERS V ATTN MADONNA MCGUIRE SMITH PORTAND OR 973337207 930551733 501(C)(3) 12000 0 RAP SESSION AT FAMILY CAMP - EVENT 6/17/2022. ROCKY MTN HEMOPHILIA & BLEEDING DISORDER 1627 W MAIN ST 142 BOZEMAN MT 597154011 810533720 501(C)(3) 12000 0 ADAPTING ACTIVITIES FOR JOINT HEALTH AND A RAP SESSION FOR TEENS - EVENT 8/13/2022,BUT I CAN'T BRING HOME THE BACON - EVENT 4/30/2022,NURTURING COUPLE RELATIONSHIPS - EVENT 4/30/2022,WOMEN'S RETREAT. TENNESSEE HEMOPHILIA AND BLEEDING DISORDERS FOUNDATION 201 E MAIN STREET STE 240 MURFREESBORO TN 37130 621662856 501(C)(3) 14000 0 2 SESSIONS - BLOOD SISTERHOOD OVERVIEW & RAP SESSION (BLOOD SISTERS) - EVENT 8/6/2022,2 SESSIONS: GOT STRESS, PARTS 1 & 2,2 SESSIONS; MENTAL HEALTH 101 AND KINESIO TAPING,RAP SESSION FOR BLOOD BROTHERHOOD; ANXIETY, DEPRESSION AND COPING. UNITED HEMOPHILIA FOUNDATION 12138 CENTRAL AVENUERNSTE 872 MITCHELLVILLE MD 20721 813826935 501(C)(3) 12000 0 COOKING DEMONSTRATION - EVENT 4/6/2022,FINANCIAL WELLNESS 101,MIND-BODY-HEART CONNECTION - EVENT 5/19/2022,RAP SESSION ADVOCACY. UTAH HEMOPHILIA FOUNDATION V 772 E 3300 S STE 205 SLAT LAKE CITY UT 841064630 876127162 501(C)(3) 8000 0 COOKING WITH CHEF MIKE,INTIMACY AND TEEN MENTAL HEALTH 101 - PRESENTED BY DAVE ROBINSON, PHD,MISSION LIFE. VIRGINIA HEMOPHILIA FOUNDATION (V) 9702 GAYTON RD STE 277 RICHMOND VA 23238 541183181 501(C)(3) 16000 0 A PATHWAY FOR BEST CARE,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH - EVENT 8/13/2022,AGES AND STAGE; EARLY CHILDHOOD,MIND-BODY-HEART CONNECTION,MY STORY OR RESILIENCE & EMERGING THERAPIES,RAP SESSION,TRAUMA AND PTSD IN THE BLEEDING DISORDERS COMMUNITY. WESTERN PA BLEEDING DISORDERS FOUNDATION 775 4TH STREET FIRST FLOOR BEAVER PA 15009 251359331 501(C)(3) 16000 0 A PATHWAY FOR BEST CARE: THE REPRODUCTIVE YEARS - EVENT 5/14/2022,ADAPTING PHYSICAL ACTIVITIES FOR JOINT HEALTH,COOKING WITH CHEF MIKE - EVENT 1/8/2022,GOT STRESS SERIES - VIRTUAL EVENT OVER 3 WEEKS,RAP SESSION: CAREGIVERS - EVENT 5/14/2022,TASK MASTER & WHAT'S IN A CLOWNS DR. BAG NEW YORK CITY HEMOPHILIA CHAPTER (V) 500 7TH AVE MAILROOM 8 NEW YORK NY 10018 261915425 501(C)(3) 10000 0 2 SESSIONS,2 SESSIONS IN SPANISH: COOKING DEMONSTRATION AND NUTRITION FOR BLEEDING DISORDERS,JOB READINESS 33 0 RENT ASSISTANCE 11 6643 DISASTER RELIEF 35 23098 COVID-19 RELIEF 75 49823 GENERAL ASSISTANCE 364 237807 SUPPLIES 63 28346 PATIENTS WITH INHIBITORS 12 3941 HELP PEOPLE MOVE FORWARD 10 15197 SCHOLARSHIPS TO ATTEND THE ANNUAL SYMPOSIUM 90 76952 PART I, LINE 2: ALL GRANTS AND RELATED OUTCOMES ARE ENTERED IN THE ASSOCIATION MANAGEMENT SYSTEM (AMS) AND MEMBER ORGANIZATIONS (MO) ARE RESPONSIBLE FOR SUBMITTING REPORTS THAT PROVIDE DETAILS RELATED TO HOW THEY UTILIZED THE GRANT FUNDS. X X 1 0 0 0 0 0 0 0 0 SHARON MEYERS PRESIDENT & CEO (UNTIL 5/31) 66666 0 156144 0 0 0 12000 0 0 0 234810 0 0 0 PART I, LINE 4A SHARON MEYERS RECEIVED $156,144.31 SEVERANCE PACKAGE. FORM 990, PART VI, SECTION B, LINE 11B THE FORM 990 WAS PREPARED BY THE OUTSIDE ACCOUNTING FIRM AND REVIEWED BY THE PRESIDENT AND CEO PRIOR TO FILING. FORM 990, PART VI, SECTION B, LINE 12C OFFICERS, DIRECTORS, TRUSTEES AND KEY EMPLOYEES ARE REQUIRED TO DISCLOSE POSSIBLE CONFLICTS ANNUALLY IN WRITING. THE ORGRANIZATION ALSO VERBALLY ENFORCES THE POLICY AT EVERY BOARD MEETING. IF A CONFLICT OF INTEREST OCCURS THE CONFLICTING MUST BE FULLY DISCLOSED; THE PERSON WITH THE CONFLICT OF INTEREST IS EXCLUDED FROM THE DISCUSSION AND APPROVAL OF SUCH TRANSACTION; A COMPETITIVE BID OR COMPARABLE VALUATION EXISTS; AND, THE BOARD OR A DULY CONSTITUTED COMMITTEE THEREOF HAS DETERMINED THAT THE TRANSACTION IS IN THE BEST INTEREST OF THE ORGANIZATION. DISCLOSURE INVOLVING BOARD MEMBERS SHOULD BE MADE TO THE BOARD CHAIR, (OR IF SHE OR HE IS THE ONE WITH THE CONFLICT, THEN TO THE BOARD VICE CHAIR) WHO BRINGS THESE MATTERS TO THE BOARD OR THE GOVERNANCE COMMITTEE. THE BOARD OR GOVERNANCE COMMITTEE DETERMINES WHETHER A CONFLICT EXISTS AND IN THE CASE OF AN EXISTING CONFLICT, WHETHER THE CONTEMPLATED TRANSACTION MAY BE AUTHORIZED AS JUST, FAIR, AND REASONABLE TO THE HFA. THE DECISION OF THE BOARD OR GOVERNANCE COMMITTEE ON THESE MATTERS WILL REST IN THEIR SOLE DISCRETION, AND THEIR CONCERN MUST BE THE WELFARE OF HFA AND THE ADVANCEMENT OF ITS PURPOSE. FORM 990, PART VI, SECTION B, LINE 15 THE ORGANIZATION'S EXECUTIVE COMMITTEE USE COMPARABLE DATA AND REVEIW OF THE EXECUTIVE DIRECTOR TO DETERMINE COMPENSATION. THE PROCESS IS DOCUMENTED IN THE MEETING MINUTES. THE LAST COMPENSATION REVIEW TOOK PLACE IN DECEMBER 2022. FORM 990, PART VI, SECTION C, LINE 19 THE ORGANIZATION MAKES ITS GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE UPON REQUEST. FORM 990, PART IX, LINE 11G OTHER: PROGRAM SERVICE EXPENSES 243,282. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 27,462. TOTAL EXPENSES 270,744. MARCOM: PROGRAM SERVICE EXPENSES 21,579. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 123,094. TOTAL EXPENSES 144,673. TECHWEB: PROGRAM SERVICE EXPENSES 21,010. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 615. TOTAL EXPENSES 21,625. TRANSLATION: PROGRAM SERVICE EXPENSES 15,369. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 15,369. SPEAKERS: PROGRAM SERVICE EXPENSES 156,071. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 500. TOTAL EXPENSES 156,571. CHILDCARE: PROGRAM SERVICE EXPENSES 27,818. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 27,818.