2023-10-17T15:56:20-05:00 2023-04-30 GARY MCGEE & CO LLP 1000 SW BROADWAY SUITE 1200 PORTLAND OR 97205 990 2022-05-01 931181662 Children's Cancer Association CHIL 5032443141 1200 NW Naito Parkway 140 Portland OR 97209 Danielle York Chief Executive Officer 5032443141 2023-10-17 Danielle York 999009999 1 Yee Lee McGee P01294356 5032222515 2 AAL1 IAL1 2022 2023-04-26 12:10:37Z Danielle York 1200 NW Naito Parkway 140 Portland OR 97209 6909307 0 X www.JoyRx.org X 1995 OR The Children's Cancer Association ("CCA")is an Oregon nonprofit corporation established in 1995. The Association provides multi-tiered services to children and families at no cost, offering them unique in-hospital programs, family and emotional support, access to information, use of a family retreat home, and opportunities for children/teens and family members to experience joy, comfort and respite while battling life-threatening illnesses. 26 23 61 483 0 0 6523743 5935132 0 0 58923 59523 -5668 -423263 6576998 5571392 564662 65355 0 0 3641601 4483826 0 0 1533593 1454965 1779673 5661228 6328854 915770 -757462 5324937 6982327 626613 3102465 4698324 3879862 X At Children's Cancer Association (CCA), our mission is to deliver Joy-centric programs that create immediate and measurable improvement to the mental and emotional wellness of young patients. 0 0 1882993 24373 JoyRx Music - JoyRx Music draws on the universal appeal of music to energize and buoy spirits, enabling children to feel Joy during the stressful and painful experiences related to extended hospitalizations and treatments for life-threatening illness. JoyRx trained staff musicians engage hospitalized kids of all ages and diagnoses, allowing them to choose the "music medicine" experience that best fits their current emotional place and desired mood. Continued on schdule O. No-cost bedside and virtual program options are available and tailored for one-on-one or group music experiences. Children can choose to join a live music session, request a song, sing along, engage in music lessons, and even grab an instrument to join the band-whatever feels right and brings Joy to them in the moment. Our trained music specialists also deliver music medicine virtually to kids and teens across the nation, partnering with hospital staff to integrate live music into their existing entertainment systems or through real-time, one-on-one interactions via iPad. In addition, JoyRxMusic.org is available on demand 24/7 and offers exclusive artist performances, music lessons, games, and more. Since 1995, JoyRx Music has served over 155,000 children. Last year, over 27,000 children and teens in 36 hospitals around the nation were served by JoyRx Music, providing over 120,000 total service interactions. 1018394 Community Outreach, Education and Resources - In addition to our core program offerings, JoyRx is proud to provide comprehensive resources and information to families facing the profound trauma of a pediatric cancer diagnosis. JoyRx Kids' Cancer Pages is the first-ever national resource directory on childhood cancer and was recognized by the National Cancer Institute as "the most comprehensive guide for families currently available." Now in its fifth edition, this vital support tool is sent free-of-charge to every pediatric hospital in the country. A searchable PDF is also available. Continued on schdule O. JoyRx volunteers make a powerful difference in the lives of children in need. The impact of our talented staff was multiplied by 483 generous volunteers who invested nearly 2,800 hours into our local community. The monetary value of this volunteer time is over $88,000. In return, they find their own life changed by the extraordinary spirit of these courageous kids. 410331 27467 JoyRx Mentorship - JoyRx Mentorship fosters trusted companionship to inspire laughter and distraction. The only program of its kind in the nation, our trained, adult volunteer JoyRx Mentors provide emotional support to children in treatment and critical support to parents who endure the hardship of long hospital stays with their children. A cross between a supportive playmate and trusted listener, JoyRx Mentors bring lightness. In the hospital, they arrive with bags full of toys, games, and activities and do their best to make their young friends feel supported to relieve their stress and anxiety, dispelling feelings of loneliness and isolation. Continued on schedule O. Virtually and remotely, they spend time on chat and Zoom video calls and exchange old fashioned pen-pal letters. Mentorships can last multiple years and often the bonds of friendship are still strong long after the final treatment. Since 1999, the program has matched more than 1,700 kids undergoing lengthy treatment regimens with a trained and trusted adult mentor volunteer. During this time of quarantine and social distancing, the award-winning JoyRx Mentorship program facilitated 52 virtual matches to provide young patients with a caring and trusted adult mentor during treatment. Virtual matches met via video chat to give kids additional support and companionship during hospital appointments, in-patient stays, or while isolating at home. JoyRX also provided 1,105 virtual and in person events to kids, family members, and their JoyRx Mentors. 329979 13515 JoyRx Nature - JoyRx Nature provides an essential connection to nature and instills hope and resiliency. Families close the gate behind them at the JoyRx Alexandra Ellis Caring Cabin on the Oregon coast and find themselves a world away from the hospital, nestled in 24 acres of surrounding woods with plentiful wildlife and a serene lake with its very own rowboat. The Caring Cabin is an extraordinary place for children in treatment and their extended families to relax, explore, and create once-in-a-lifetime memories.Afterward, many tell us they feel a kindred spirit with the hundreds of families like theirs who have "been there, and left personalized rocks along the pathway to the lake, commemorating not only their stay, but the long, hard road traveled. Offered since 2006, this no-cost, five-day retreat restores the energy needed to battle serious illness. Between 35 and 40 family members and friends visit JoyRx's luxurious Caring Cabin hideaway in a typical month. This free adventure helps restore the energy and hope kids need to battle their illness over the long haul. Last year, the Caring Cabin hosted 37 families. 42540 Science of Joy - This year, JoyRx continued to invest in an initiative to establish strong evidence-based practices to determine the qualitative impact of JoyRx programming. We engaged staff, Board, and hospital leaders in this effort, laying the groundwork to determine the impact, beyond the anecdotal or self-reported, of our JoyRx programs. Our goal is to go deeper, getting to the place where we can not only report the number of kids we're reaching, but also, eventually, quantitatively highlight how, and to what extent, we are improving the emotional and mental well-being of the kids and families we serve. 372519 13515 3684237 1 1 0 0 0 0 0 0 0 0 1 0 0 1 1 0 0 1 0 0 0 0 0 0 1 1 0 0 1 1 0 0 0 0 0 0 0 0 1 0 0 0 0 1 1 0 0 0 1 55 5 61 1 0 0 0 0 0 1 1 0 0 0 0 0 0 X 26 23 0 0 1 0 0 0 0 1 1 0 0 1 1 1 1 1 1 1 1 0 AL AR CA FL GA HI IL KS KY MD MA MI MN NH NJ NM NY NC OR PA SC TN UT VA WV WI X X Danielle York 5032443141 1200 NW Naito Parkway Suite 140 Portland OR 97209 Danielle York Chief Executive Officer 40.00 1.00 X X 278733 0 26442 Regina Ellis Founder/Chief Joy Officer Emeritus 40.00 1.00 X X 202372 0 30039 Andrea Corradini Board Chair 2.00 X X 0 0 0 Scott Burton Board Chair Emeritus 2020-2021 2.00 X X 0 0 0 Rosemary Colliver Board Chair Emeritus 2017-2019 2.00 X X 0 0 0 Paul Gulick Board Chair Emeritus 2008-2010 2.00 1.00 X X 0 0 0 Andy Lytle Board Chair Emeritus 2011-2017 2.00 1.00 X X 0 0 0 Jen Balint Board Director 2.00 X 0 0 0 Suzann Baricevic Murphy Board Director 2.00 X 0 0 0 Paula Barran Board Director 2.00 X 0 0 0 Ryan Beckley Board Director 2.00 X 0 0 0 Jodi Coombs Board Director 2.00 X 0 0 0 Aaron Cooper Board Director 2.00 X 0 0 0 Tim Cooper Board Director 2.00 X 0 0 0 Dennis W Donley Jr Board Director 2.00 X 0 0 0 Bill Foudy Board Director 2.00 X 0 0 0 Margo Fowkes Board Director 2.00 X 0 0 0 Chris Funk Board Director 2.00 X 0 0 0 Catherine Gonzalez-Lofgren Board Director 2.00 X 0 0 0 Rob Goodman Board Director 2.00 X 0 0 0 Sharon Gueck Board Director 2.00 X 0 0 0 Paul Hogan Board Director 2.00 X 0 0 0 Scott Lawrence Board Director 2.00 X 0 0 0 Kelly Long Board Director 2.00 X 0 0 0 Caleb Noel Board Director 2.00 X 0 0 0 Lesley Otto Board Director 2.00 X 0 0 0 Todd Palmerton Board Director 2.00 X 0 0 0 Ron Penner-Ash Board Director 2.00 X 0 0 0 CS Sheffield Board Director 2.00 X 0 0 0 Laura Shipley Board Director 2.00 X 0 0 0 John Simpson Board Director 2.00 X 0 0 0 Sonja Steves Board Director 2.00 X 0 0 0 Mike Tarbell Board Director 2.00 X 0 0 0 Nicole McDonald V.P. of Finance and Ops. 40.00 1.00 X 119607 0 10185 Jennifer O'Bryan V.P. of Revenue and Development 40.00 X 188644 0 12180 Jack Pipkin V.P. of Dev. Regional Markets 40.00 X 146840 0 11329 Mark Ferdig V.P. of Programs 40.00 X 127680 0 8989 1063876 0 99164 6 0 1 0 0 2014121 976018 2944993 412708 5935132 60004 60004 481 -481 -481 -481 680638 2014121 1288929 -608291 -608291 189220 48505 140715 140715 Other income 900099 44313 44313 44313 5571392 0 0 -363740 65355 65355 598061 374181 95515 128365 6000 6000 3312997 1955721 671369 685907 70065 41310 18503 10252 258104 153514 50508 54082 238599 142101 47047 49451 16095 714 15381 18856 18856 567835 321018 3221 243596 86868 78181 8687 152460 76964 11518 63978 69036 46860 7245 14931 302700 212110 35665 54925 146449 75048 4314 67087 18414 9672 1761 6981 73870 51514 7502 14854 66125 20498 38492 7135 Miscellaneous 166686 53476 81142 32068 Bank and card fees 94279 2985 91294 6328854 3684237 1111024 1533593 14700 11953 563540 278755 1433676 2538948 3650 3600 459771 201587 1331455 1174842 215424 156613 2634176 2222967 0 1567904 5324937 6982327 567173 1173315 39375 92542 20065 265518 0 1571090 626613 3102465 X 3175613 1953023 1522711 1926839 4698324 3879862 5324937 6982327 -757462 -61000 0 X 0 1 X 1 0 X 4984541 5487964 4964515 6523743 5935132 27895895 4984541 5487964 4964515 6523743 5935132 27895895 2256218 25639677 198046 187864 48858 59123 60004 553895 145645 145645 48710 32240 50045 39668 44313 214976 28810411 4305688 0.88990 0.88470 X Schedule A, Part II, Line 10, Explanation of Other Income: Other income - 2018 Amount: $ 48,710. 2019 Amount: $ 32,240. 2020 Amount: $ 50,045. 2021 Amount: $ 39,668. 2022 Amount: $ 44,313. RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED RESTRICTED 704467 677340 27127 624787 497502 127285 2201 2201 156613 Right-of-use assets - operating leases 1567904 1567904 Lease Liabilities - operating leases 1571090 1571090 Wonderball 1003109 633217 369892 18165 116988 170309 201342 Golf Tournament 413950 305471 108479 18700 28890 42000 12404 26656 10 1277700 1075433 202267 22380 55621 73888 192249 223097 86240 2694759 2014121 680638 41080 55621 120943 351237 405810 314238 1288929 -608291 189220 507 44223 3775 0 189220 507 44223 3775 48505 140715 OR 1 0 1 0 1.00000 Jack Pipkin Vice President of Deve 1200 NW Naito Parkway Suite 140 Portland OR 97209 0 Jack Pipkin Vice President of Deve Individual has overall supervision and management of the raffle and sweepstakes. X 0 1 Support for seriously ill children, teens and their families - Music 3473 23973 400 FMV Personal electronic and/or gaming devices, family getaways, parties, etc. specifically tailored to each family. Events/tickets opportunities for seriously ill children, teens and their families. 1105 7214 FMV Tickets to events and activities. Support for seriously ill children, teens and their families. 59 7960 12293 FMV Toys, games, etc. Support for seriously ill children, teens and their families - Caring Cabin 370 8963 4552 FMV Gift cards, house supplies, toys, etc. Part I, Line 2: The organization monitors assistance provided by coordinating assistance directly with the vendor or provider, maintaining on-going contact with the individual before, during, and/or after receiving assistance to ensure assistance is used for its intended purpose. X X X X 0 0 0 0 0 0 0 1 0 Danielle York Chief Executive Officer 227784 0 45000 0 5949 0 20008 0 6434 0 305175 0 0 0 Regina Ellis Founder/Chief Joy Officer Emeritus 153036 0 45000 0 4336 0 25750 0 4289 0 232411 0 0 0 Jennifer O'Bryan V.P. of Revenue and Development 161705 0 23500 0 3439 0 5746 0 6434 0 200824 0 0 0 Jack Pipkin V.P. of Dev. Regional Markets 131723 0 13000 0 2117 0 4895 0 6434 0 158169 0 0 0 Part I, Line 7 During the year, bonuses based on available funds, performance against goals and specific written bonus program guidelines were awarded to the Executive Team. X 44751 Fair market Value X 9 123008 Fair market value X 25 21790 Fair market value X Auction Items 160 196909 Fair market value X Toys 27 15529 Fair market value X Travel Getaways 2 5817 Fair market value X Event tickets 6 2593 Fair market value X Gift Cards 40 1911 Fair market value X Music Instruments 1 400 0 1 0 Part I, Column (b): The number of column (B) represents the number of contributions. Form 990, Part VI, Section A, line 4 Children's Cancer Association amended and re-stated the bylaws in November, 2022. Bylaws were amended to include language regarding the mandatory review of all multi-year contracts and leases by the Chief Executive Officer. Further, the amendment states that any purchases or entry into contracts or leases of a material amount must be approved by the Board of Directors. Form 990, Part VI, Section B, line 11b The Finance Director and CEO review the Form 990 prior to review by the Finance Committee and the full Board of Directors. Form 990, Part VI, Section B, line 12c Annually, all Board members and key employees review, complete and sign a disclosure statement which details any potential conflicts of interest between the organization and the Board member or key employee. The annual review and signed commitment of the written policy supports the ongoing monitoring and preparation for enforcement, if enforcement were to become necessary. Form 990, Part VI, Section B, line 15 The process for determining the compensation of the CEO consisted of the following: 1. HR leadership conducted a competitive compensation analysis and established Pay Grades/Wage Bands for every position category within CCA including CEO and Founder/Chief Joy Officer. 2. The analysis utilized both local and national data, for-profit and nonprofit data. The salary data was from MBL Group's Survey of Non Profits in Oregon, Guide Star's National Compensation Report, Cascade Employers Compensation Report, Milliman's Northwest Executive Compensation Report, and Bluewater Nonprofit Solutions National Survey. 3. The data with various filters was analyzed including: an operating volume of $5-$10 million, FTE's of 50-99, organization focus of "Social Services and "Healthcare", and location of Oregon, Portland Metro, and National to determine wage bands for individual positions. 4. The Board Chair leads an "Executive Compensation" sub-committee with other Board Members to review the data analysis and make recommendations for any market driven compensation adjustments. 5. The Director of Finance and the Board Chair work with the CEO to develop and present potential merit and bonus pools to the Executive Committee. 6. The CEO submits a business/operations review to the Board Chair. 7. The review is evaluated by the Board Chair and potential adjustments submitted to the Executive Committee. 8. The Executive Committee approves any adjustment to CEO and Founder/Chief Joy Officer's base salaries. 9. The Executive Committee meets to determine actual bonus and merit for the CEO and Founder/Chief Joy Officer based on, available funds, performance against goals, and specific written bonus program guidelines. 10. Board Chair or Executive Committee member meets with CEO and Founder/Chief Joy Officer to communicate final review results including merit and bonus. 11. Results are shared with HR leadership who initiates changes and files appropriate documentation. Form 990, Part VI, Section B, Line 15b: The process for determining the compensation of other officers and key employees consisted of the following: 1. HR leadership conducted a competitive compensation analysis and established Pay Grades/Wage Bands for every position category within CCA including all Executive Team members (Vice President & above). 2.The analysis utilized both local and national data, for-profit and nonprofit data. The salary data was from MBL Group's Survey of Non Profits in Oregon, Guide Star's National Compensation Report, Cascade Employers Compensation Report, Milliman's Northwest Executive Compensation Report, and Bluewater Nonprofit Solutions National Survey. 3. The data with various filters was analyzed including: an operating volume of $5-$10 million, FTE's of 50-99, organization focus of "Social Services and "Healthcare", and location of Oregon, Portland Metro, and National to determine wage bands for individual positions. 4. The Board Chair created an "Executive Compensation" Sub-committee with three other board members to review the data analysis and make recommendations for any market driven compensation adjustments. 6. The Director of Finance and the Board Chair work with the CEO to develop and present potential merit and bonus pools to the Executive Committee. 7. The CEO conducts Performance Evaluations for Vice Presidents. 8. The CEO determines and communicates bonus and merit for the Vice Presidents based on, available funds, performance against goals, and specific written bonus program guidelines. 9. Results are shared with HR leadership who initiates changes and files appropriate documentation. Form 990, Part VI, Section C, line 19 Any and all governing documents, conflict of interest policy and financial statements are available to the public upon request. The Foundation of the Children's Cancer Association 1200 NW Naito Parkway Portland OR 97209 320330519 Benefit the Children's Cancer Association OR 501(c)(3) Line 12a, I Children's Cancer Association 1 0 0 0 0 1 0 0 0 0 0 1 0 0 1 1 0 0 0 0